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Thank you for this video and for your expertise in the removal of neurofibromas. It is because of doctors like you that my husband and I are grateful. We found a plastic surgeon in our area (Dallas, Texas) that specializes in NF1 removals and were very thrilled with his results over the excision of over 100 and electrodessication of over 400. Thanks for doing what you do! Not many specilaize in this area!

I didnt get my NF 1 from parents. I am the first with NF 1 in family. I have 4 brothers without NF 1. My parents dosent have it. My daughter has it now. I dont know if her child has NF 1.

Fibroids There are different types of neurofibromas (benign tumors). These are divided according to their appearance and the area where they occur. The number of fibroids and where they occur is individual and unpredictable, even for people within the same family. The most common type of fibroma in NF1 is called dermal neurofibroma. These are soft, gel-like cysts that are from a few millimeters up to several centimeters in diameter. These fibroids appear or increase around puberty and in some women can increase in number and size in connection with pregnancy and/or menopause. They can be found all over the body. They may itch or be perceived as a cosmetic problem, but rarely cause pain or neurological consequences. These fibroids never develop into malignant tumors. Nevertheless, due to their number, visibility and/or size, they can affect the quality of life (10). Nodular fibroids are another type of fibroids. They sit deeper under the skin and are firmer in consistency. This type of fibroma can cause pain, weakness and tingling in the area supplied by the affected nerve. Plexiform neurofibromas are soft swellings under the skin or in depth, for example from the nerve plexuses in the armpit or pelvis, without clear boundaries to surrounding tissue. They differ from the other types of fibroids in that they are often congenital and/or occur at a younger age. They can be symptom-free, but also troublesome if they are located in particularly pressure-exposed places, for example under the foot. About half are invisible from the surface. This type of fibroma is initially benign, but can grow along the nerves and develop into a malignant tumor in approximately 8-12% of those with NF1 (11, 12). The English term for such malignant fibromas is malignant peripheral nerve sheath tumors (MPNST). Warning signs are constant pain or sudden growth in a plexiform neurofibroma that has otherwise been stable, or that it changes from being soft to becoming hard (8). Such development most often occurs in late adolescence or early adulthood.

The problem is that this neurofibromas tends to grow back in the same spot or right next to the spot where it was removed from. My experience is that a neurofibroma has grown back right on top of the scar where it was removed from. Important to know that there is different type s of fibroma. Nodular fibroma that appears deep into the tissue, Plexiform neurofibroma, Darmale fibroma. All of this appears differently on the body.

The problem is that this neurofibromas tends to grow back in the same spot or right next to the spot where it was removed from. My experience is that a neurofibroma has grown back right on top of the scar where it was removed from. Important to know that there is different type s of fibroma. Nodular fibroma that appears deep into the tissue, Plexiform neurofibroma, Darmale fibroma. All of this appears differently on the body.

The problem is that this neurofibromas tends to grow back in the same spot or right next to the spot where it was removed from. My experience is that a neurofibroma has grown back right on top of the scar where it was removed from. Important to know that there is different type s of fibroma. Nodular fibroma that appears deep into the tissue, Plexiform neurofibroma, Darmale fibroma. All of this appears differently on the body.

The problem is that this neurofibromas tends to grow back in the same spot or right next to the spot where it was removed from. My experience is that a neurofibroma has grown back right on top of the scar where it was removed from. Important to know that there is different type s of fibroma. Nodular fibroma that appears deep into the tissue, Plexiform neurofibroma, Darmale fibroma. All of this appears differently on the body.

Fibroids There are different types of neurofibromas (benign tumors). These are divided according to their appearance and the area where they occur. The number of fibroids and where they occur is individual and unpredictable, even for people within the same family. The most common type of fibroma in NF1 is called dermal neurofibroma. These are soft, gel-like cysts that are from a few millimeters up to several centimeters in diameter. These fibroids appear or increase around puberty and in some women can increase in number and size in connection with pregnancy and/or menopause. They can be found all over the body. They may itch or be perceived as a cosmetic problem, but rarely cause pain or neurological consequences. These fibroids never develop into malignant tumors. Nevertheless, due to their number, visibility and/or size, they can affect the quality of life (10). Nodular fibroids are another type of fibroids. They sit deeper under the skin and are firmer in consistency. This type of fibroma can cause pain, weakness and tingling in the area supplied by the affected nerve. Plexiform neurofibromas are soft swellings under the skin or in depth, for example from the nerve plexuses in the armpit or pelvis, without clear boundaries to surrounding tissue. They differ from the other types of fibroids in that they are often congenital and/or occur at a younger age. They can be symptom-free, but also troublesome if they are located in particularly pressure-exposed places, for example under the foot. About half are invisible from the surface. This type of fibroma is initially benign, but can grow along the nerves and develop into a malignant tumor in approximately 8-12% of those with NF1 (11, 12). The English term for such malignant fibromas is malignant peripheral nerve sheath tumors (MPNST). Warning signs are constant pain or sudden growth in a plexiform neurofibroma that has otherwise been stable, or that it changes from being soft to becoming hard (8). Such development most often occurs in late adolescence or early adulthood.

Fibroids: There are different types of neurofibromas (benign tumors). These are divided according to their appearance and the area where they occur. The number of fibroids and where they occur is individual and unpredictable, even for people within the same family. The most common type of fibroma in NF1 is called dermal neurofibroma. These are soft, gel-like cysts that are from a few millimeters up to several centimeters in diameter. These fibroids appear or increase around puberty and in some women can increase in number and size in connection with pregnancy and/or menopause. They can be found all over the body. They may itch or be perceived as a cosmetic problem, but rarely cause pain or neurological consequences. These fibroids never develop into malignant tumors. Nevertheless, due to their number, visibility and/or size, they can affect the quality of life (10). Nodular fibroids are another type of fibroids. They sit deeper under the skin and are firmer in consistency. This type of fibroma can cause pain, weakness and tingling in the area supplied by the affected nerve. Plexiform neurofibromas are soft swellings under the skin or in depth, for example from the nerve plexuses in the armpit or pelvis, without clear boundaries to surrounding tissue. They differ from the other types of fibroids in that they are often congenital and/or occur at a younger age. They can be symptom-free, but also troublesome if they are located in particularly pressure-exposed places, for example under the foot. About half are invisible from the surface. This type of fibroma is initially benign, but can grow along the nerves and develop into a malignant tumor in approximately 8-12% of those with NF1 (11, 12). The English term for such malignant fibromas is malignant peripheral nerve sheath tumors (MPNST). Warning signs are constant pain or sudden growth in a plexiform neurofibroma that has otherwise been stable, or that it changes from being soft to becoming hard (8). Such development most often occurs in late adolescence or early adulthood.

The problem is that this neurofibromas tends to grow back in the same spot or right next to the spot where it was removed from. My experience is that a neurofibroma has grown back right on top of the scar where it was removed from. Important to know that there is different type s of fibroma. Nodular fibroma that appears deep into the tissue, Plexiform neurofibroma, Darmale fibroma. All of this appears differently on the body.

Munna Bhai

Hey doc, how did the surgery go? Can you update us about the patient post-op 🙏

Thank for the education and information. I have this disorder which I am told I will need surgical intervention. I am set to see the neurosurgeon in August to find out. This situation is affecting my ability to walk due to the tumors sitting on my spine (L4 and L5). I am very scared about this as I have never had a surgery before. But it is affecting me with my job performance. I am unable to sit for long periods of time. I am unable to walk at times and I have had multiple falls. The pain is unbearable a lot of times. Thanks again as I appreciate you and all that you do as NF1 is not know to many prescribers.

It's so sad for everything he's been through, I hope his condition continues to improve soon.

I got ot on nose and I am getting an surgery

are ther bones in your nose because my friend says no ther isint pleass say something

Please help have the problem 😢😢😢😢

Hii,sir Any treatment of neurobiomotsis,i em very happy see this video, i em the same problem please help me i am from Indian srinagar kashmir

Saya juga begini apa obatnya

Saya juga begini apa obatnya

I have suffered from NF tumors for over 30 years! And I can’t not get find an affordable surgeon can you help

I have nf

I agree a lot of doctors want to wait until the tumor is large. I prefer to try to be proactive and have them removed before they become a big problem. I've already dealt with doing that when I was younger.

OMG!! that's terrible. Always be sure where to go to avoid bad surprises. ❤️❤️

0 . щ. щ. з. щ, з. з. з. з, з. з

Hey doctor. I have plexiform neurofibomotasis since birth. I have mailed you on April 20th but didnt get any reply.

Calon istriku juga ada benjolan yang seperti itu dan tepatnya ada di hidung

Help my doughter too. And Im from indonesia.

She really looks so stunning!! Great job!! ❤❤❤❤

Inside Plastic Surgery, This is great! I liked it and subscribed!

Thank you so much for your clear explanation!

I have something on my chest for years now. it’s a hyperpigmented patch with the nodule like pimples on top . Lab results says it may include neurofibromas

Cool

Looks painful

Pls help me sir.i am in Kerala 🙏🙏🙏🙏

Promo-SM 🙋

Amazing

Part 2?? 🤔

Blessed be.

I wish I could afford to have mine removed. At least I don’t have any on my face.

"promosm"

Looks so very painfull .

É frustrante não passar o vídeo todo... é como tomar o chocolate de uma criança 😢😢😢

I also have neurofibromas type 1. I was diagnosed about 6 months ago and I have about 19 cysts in my body. I am 20 years old. I think it's going to fade away, I want to know about this. Whether there is a cure or cure. Are the ones that have been removed coming?

Can we hope for a medicine to cure the disease?

That’s very nice of this Dr. To take the time to try and remove as many as he can. Most Dr.s wouldn’t do cuz they aren’t life threatening , it would be for cosmetic reasons.

My heart 💙 really aches for this man. I so hope things work out for him.

I have relatives with this condition in varying degrees of severity. What people don’t realise is these lumps can grow internally too and cause all kinds of havoc.

Neurofibromatosis I

WOW!