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This is COMPLETELY off-topic, but I’d love to have your curly hair! How’s that for focusing on something over which you have no control! 🙃😊🙃

Pacing has always been difficult for me. It is something I am constantly working on, trying to conserve my energy. Always great advice, Ellie.

Absolutely! The easier my awareness practice gets the greater my joy, even when the symptoms are strong.

I do it all the time, Ellie. I'm trying to learn that when I realize I'm doing it I tell myself, "This isn't real, right now." Then I try to focus on things around me that are real in the moment. Don't know if that's the right way to do it, but I'm doing it. :-)

I consider myself recovered from the “chronic” part of my symptoms. The acute symptoms will come & go dependent on what is happening in my life

For me, healing is on different levels - and I am learning every day. It is healing on emotional and physical level, but also for me spiritually. To be whole, all things put together. I can not say that I have recovered physically, but on an emotional level I am much better than I have been in my entire life….I hope this will affect my body over time.

Can’t wait to hear what you’re learning about and how it’s been helping you! I’ve been on the ME healing journey for 4 years. I relate a lot to your story, I also have hypermobility and orthostatic intolerance. I currently rate myself as 40-50%, but I’m also stubborn and will keep trying until something clicks. Thanks for posting

This is incredible! Thank you! almost 2 years long covid here

About a year ago, I quit thinking of myself as trying to recover and shifted into how much healing will happen? I’ve reached a new plateau of healing, but I have a long way to go. Your work gives me great hope.

Thank you!

Thank you Dr Stein. Such a clear and well put together presentation. Very helpful

This is so true! And I need to start using it right now. Thank you, Ellie!

☠☠☠ This is the kind of super-vague "just listen to your body!" pacing advice that got me from mild to very severe and bedbound. You CANNOT "just listen to your body" when PEM symptoms don't hit until 24-48 hours later. You're going to feel fine, even great the day-of, and only the next day will your body go into red-alert shutdown. Heart rate needs to stay between 90-110, and physical exertion needs to be no more than 8% of your daily activity, 5% if you are severe or very severe (e.g. if you are moderately severe and can do 8 hours of activity a day, you can do 38 minutes of exercise between 90-110bpm, BUT that includes things like showering and moving from one room to another if that raises your heart rate above 90).

Thank you for sharing! The hardest part for me has been to accept that I can’t go on the “hardest” trail like I used to, but that I’m not less of a person because of it. I’ve been learning to see other paths in my life which are more adapted to what my body can do and can be equally enjoyable. This was a very good example. I’m saving your video for when I need a reminder. ❤

The sun makes me break out in a burned flush after 30 seconds of exposure. What to do?

Thank you for any and all effort on this terrible disease. Millions of us are fighting to stay alive and live until a cure is found.

Don't delay start today ... thank you. 😊

I’m a morning person so it’s easy to get outside until it gets really frigid cold and then I struggle to find a way to do that. I’ve been practicing walking barefoot in the grass during the summer for a few minutes a day. My feet need regular support so I can’t do this much, but even a few minutes helps. Every other day or so I take a shower in the hottest water I can stand and then rinse in the coldest water I can stand for two minutes.

I have cfs/me. That can be proven to be mitos failure by doing the mitochondria failure blood test,inspired by Dr Sarah Myhill and invented by biochemist John Mclaren Howard. The man once voted best doctor in Europe (by other doctors) Dr Dietrich Klinghardt said "nine times out of ten cfs/me is undiagnosed lyme disease". The blood test is only 70% accurate for lyme. The problem is a lyme bacteria called ehrlichia which stops the mitos from working properly.One has to do a parasite cleanse first before going after the lyme bacteria because parasites act as little reservoirs for bacteria and heavy metals-so use binders to mop up heavy metals if you are doing parasite cleanses. Good luck.

Thanks for your answer. I listen a lot to recovery stories and many is back in life again without medicine. Not only brain retraining but with meditation, yoga, diet, mm

So this means that you can’t get healed from long Covid without medicin. I thought (and wish)the way was brain retraining

I’ve got long Covid. I’m housebound. I feel so bad in the sun. Do you have benefit of being outside but not in the sun?

Thanks you are great teacher but please be direct focused make points short. Don’t forget self to talk lateral talks and don’t advise . Leave it to listeners to choose. Thanks for reminding me to do what I do since childhood, learned from maternal grandmother ( my mitochondria are from her)in Babylon the cradle of human civilisation. I congratulate you for your efforts to help others and I don’t know how old are you? To see the effects of your healthy lifestyle.God bless you.

Bare feet, in water, cold exposure,sunlight,set biological clocks.

Bare feet, in water, cold exposure,sunlight,set biological clocks.

Interesting. I'll be thinking of ways to implement these in my life. Didn't realize I should be exposing my eyes to natural blue light. That's do-able. Thank you, Ellie! 🙂

I get up often with the daylight (in summer often very early) walk outside on my balcony barefoot and do one minute qi gong standing (since I can not stand for longer…), and then sit down in the doorway to drink my first electrolyte shot - and get 10 min of daylight. In the wintertime I get some clothes on and sit outside for 10-15 minutes when the light comes a bit later in the morning. Since I am not able to walk in nature, the garden around the house is very important to me, just to sit by the flowerbed and do som weeding is very calming, especially if I have done a bit stressful activity and need to wind down before resting. It must be great to see the Unesco place! I have seen documentarys of it, with the norwegian archeologist Ingstad. Enjoy!

Apparently if were diagnosed with chronic migraine we cant be diagnosed with cfs fybromyalgia? but i am i dont get conventional migraines anymore my pain is in upper body chronic migraine.

Is it helpful to get light through a closed window, that is through glass, or do you have to have direct exposure in the air itself?

Very much like learning to play a musical instrument

Thanks Ellie. Simple though difficult to do for this night hawk though I'll work on it. Would this amount of light be sufficient in our Canadian winters? I'm glad you said "open windows" as our newer energy efficient windows now block UV light, Will go for a walk now. Are there specific glasses you'd recommend for blocking screen light?

So this is a high link with autism adhd cfs fybromyalgia heds lost my mum last year to severe msnmy father has cfs to though milder now goid work though ime out most days in lounger

I so appreciate the videos you put out. Intelligent, understandable, and researched based. Thank you!

Thank you Dr. Stein! That is a very good and easy to understand summery of the latest scientific findings! And it is very important to understand this and know about the possible benefits!😊

Beautiful place, good insights

Ah! It makes perfect sense. We have to keep challenging ourselves, even if what we can do is limited, there's always something we can change. Happy trails!

bullsh$t lady! and you know it!

I really like the point that your body will tell you if your strategies are helping. It reminds if one of my favourite quotes from Rilke: 'Live your way into the answers'.

Nerve damage from surgeries. Heart surgery From taking veins , cutting chest area to do Heart ,replacing veins with Veins from leg or arm. How long takes to heal. Servers healing is a slow process What to do for pain ?????

Have you heard about the Pareto princip; 20% effort and 80% resault? I have also read the book microhabits. It gives the perspective that small change of habits over time can push us foreward as long as we are consistently doing them daily. I think it is important as many of us got into the fatigue by trying to do everything perfect. So great reminder!

Thank you. Sometimes it is hard to keep moving forward and go for progress and not keep berating myself for not doing wellness perfectly.

Yes! Félicitations Ellie! Following your passion and taking risks is what keeps us alive.

Amen to this. On good days when you can do something, anything, but do something. On bad days when you can't, feed the brain with good, only good uplifting stuff, avoid toxic news like the plague ... cos that's exactly what it is, a plague!

Im male and have long covid ME/CFS and dysautonomia. I put this down to being very stressed for 6 months before getting covid and physical stress through excercise after COVID.

Over the long weekend, I went paddleboarding in a very cold mountain lake on what ended up being a bit of a stormy day. I ended up dunked in the lake after a bit of a choppy ride 🥶and spent all day out of the house. It was a lot of firsts, made possible by a friend, and although I was quite sore afterward, I wouldn't trade the memories, the laughter, or the experience for anything. Definitely decided I'm a fairweather paddler though. 🤣

Beautiful out there!

My mother used to always say, "This too shall pass." 🙂

Notre monde est aussi impermanent que les nuages d'automne 😊

💐💐💐🙏🙏🙏🙏

This is so good! Thank you! 😍