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❤I got diagnosed with acoustic neuroma

My Baha 4 was too heavy and I gave up.

What is cost?

What about ANs turnin malignant after GKRS?

Wondering if its normal for ear with tumor to sometimes feel achy, especially when laying down?

Hope medicare and secondary will cover the cost!

Modern medical schools were created by and supported by the drug manufactures. They took the drug sales from the Apothecary (Pharmacists) and now doctors are the salesmen.

Hard to have positive thinking when your spouse is constantly talking about depressing crap. When i get tired of hearing it (in my good ear) i turn on the vacuum and start cleaning. Or go for a hike. My life for the past 30 years has been drip drip drip, lol :(

I get depressed a lot! Have meltdowns over silly things that happen. Can’t hear much in left ear. Getting 2nd mri in 6 months. At least i’m 64. On the down side of my life :)

My MRI showed no further growth so it's now going to be a year before scanning asgain. The headaches I can manage easily with sumatriptan but the ear fullness and especially the tinnitus is debilitating and 24/7 with no restbite. I had crazy vertigo episodes right at the beginning before the diagnoses but no longer have that symptom. I did get acupunture to treat vertigo after running out of options and it simply went away straight after, whether the vertigo cleared up by itself or it was the acupunture I'll never know but it stopped right after the treatment.

My son had that and gave him alot of infections

I think my husband has the same problem, you just gave me hope. God bless you

thank you for sharing youre experience

Türkçe atyazı istiyoruz.Lutfen

Did you have tinnitus on your deaf side and if so was it cured after you got your BAHA?

What a wonderful presentation and presenter. What a blessing this practitioner must be to her patients!

Dr. Que debo hacer para tener una cita en su consutorio?

This is my second tumor first one in 2004 now in 2024 it came back the doctor said he could not find my eighth nerve can my face be repaired

How many days you will do walk properly after surgery,

Thanks for your efforts Could you please I have been diagnosed as an endo lymphatic hydrobs with tinnitus and hearing loss (Rigth 4 years and now the left for 8 monthes ) and (5 times yearly) vertigo My question is what is the defferent between the neuroma vestibular tumor and the endo lymphatic hydrobs tumor I should be grateful if you let me know the whatsapp account

I am about to get a BAHA. I am completely deaf on the right-side and wear a high-power behind-the-ear hearing aid on the left. The doctors want to install the BAHA on the right but say I will hear on the left. Does this mean my old hearing aid will no longer be required? Or can I still get any advantage from wearing it? And, one final question, is the sound you hear the same as with a hearing aid ie true sound? (I love my music)

I have a magnetic baha, not for long, it irritates my skin so having it replaced with the clip on abutment type.

Hello, couple days ago, I have been diagnosed with a large acoustic neuroma, which came as a blast of shock to me, I have calmed down and seaching for the right steps and any help I can find relating to this matter. I came across you video any advice would be apreciated.

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Wow this is so wonderful to come across!! I had my retrosigmoid surgery performed by Dr Andaluz and Dr Sami to remove my vestibular Schwannoma back in july 2021! Such a wondeful team of doctors they were and im so thankful for them 🙏🏻

Thanks for this. A question, does the implant get infected at all? Does your hair grow back at the abutment site?

I have an acoustic neuroma. It sits on the vestibular nerve inside of the brain. So does that mean it causes damage to the vestibular nerve? I've already had radiation to the tumor but I'm still getting side effects months later. Nobody can give me any answers so I don't know if what I'm experiencing is normal. Sometimes I have what I call dizzy spells but the room isn't spinning it's more like a tilting and a feeling of disequilibrium like you explained. And also comes along with nausea. Sometimes it only lasts about 30 seconds and other times it goes on for almost all day. It comes out of nowhere and I don't know what causes it to occur. Plus it also comes along with a heavy feeling inside of my head like my head is going to fall off of my shoulders. So I'm not really sure what to do and the only thing my doctor has done is give me medication to help with the spells. Every time I have an elongated spell it gets worse and it lasts longer and I'm scared that it means something is seriously wrong.

not interested for my ssd

Id love to have some help with making decision with Facial Nerve Neuroma? Nov 2022 I only notice such a suble difference with my right ear at night (sharpness or brightness of hearing) but really I dont feel anyone else would notice. I belong to a choir and with with the elderly in Dementia care so am more acutely aware of hearing. I had irrigation and only develpoed symptoms after this. The Gp said after the nurse tried irrigation 'there is water behind your ear drum and it looks a little stretched, possible from a passed ear infection, and there is also skin there this is why the nurse could not see your ear drum.' So a nine month wait for ENT. I have since had a CT scan and MRI and have been told it is all one thing the polyp in my outer ear canal leading into the masdoid bone with erosion of the masdoid and canal wall. I am concerned that it is the fluid in the middle ear that has caused erision. I think overall it must be that my ear is not functioning as well and so couldnt get rid of the fluid from the irrigation. It was mentioned I have an issue with my eusation tube at first ENT app end of July. I have been told I have conductive hearing loss high frequency down to 70db and mid to low 30db. MY quality of life is effected atm by hearing my voice as if its inside my head and made worse when there is noise. SO i can no longer go to choir, I have tried over this year but not singing and mouthing the words just makes me feel worse!! I also love yoga and so concerned about my blanace being effected. As atm all I know is they will watch and wait re operating. I really hope ENT will eventually help with the eustatian tube, so I can go to choir and no further risk to my ear with things like cholestatoma etc... I hope i get my hearing restored!

Thank you for this video. I had my acoustic neuroma surgery in March of this year and will be getting my BAHA abutment placed in November. I’m nervous about having another procedure so close to my incision from surgery because I’ve had such bad headaches since surgery. Did you have any headaches or worsening of any symptoms (pain, tinnitus) after your abutment was placed?

Hi. I may not need to contact you but could I possibly arrange for a relative to speak to you- either by email with me as go between as they don’t use email, or possibly a phone call?

regardless the goal needs to be wholistic health nor just supplementing and reducing symptoms. that is a big fault of TCM even though it pretends to be holistic. You don't treat disease, you create ease. treat the patient not the "disease". how can we see deep enough to understand "root cause" when each cause is likely linked to other causes. From my perspective, taking this holistic approach is essential for addressing the full range of factors that contribute to a person's health and wellness and can lead to more effective and sustainable outcomes. In my experience, holistic healthcare that emphasizes prevention, lifestyle factors, and emotional wellbeing in addition to treating specific conditions is often more effective in achieving long-term health and healing.

I'm a bit unsure about saying people don't make Vit D, as this doesn't seem true to me nor my friends who do get enough sunshine. Maybe in the winter tablets can be good. when u say its about treating the cause but still offer injections of Vit D it seems contradictory. its likely people with gut issues do not absorb properly because of diet. then that can be changed

I found this video for a friend and thought I'd listen in and I do appreciate the quality (and quantity!) of information shared from the heart it seems :) I believe you can talk slower, if you choose to, and people have time- though its subjective as to who can pick up everything you're saying...I more or less can. I observe that dis-ease is not an entity in reality, its more of a process that many times constitutes the healing process, otherwise it is viewed as negative and we label it such, where it would be preferable to remain indifferent. By supporting each other though wholistic treatment can be valued worldwide and introduced to the public. Some acupuncturists may be money-centred, for example I once told a guy about acupressure in the store and he said SH to maintain business. That doesn't mean it isn't useful but be in control of your health and finances :) then again they probably train extensively to be qualified. I have read stories of AN patients who found it beneficial, both that and reflexology.

Having you as my doctor is also a positivity that I don't really have to bother about any sickness or virus because your herbal medicine to cure herpes has shown me that you are a real Doctor and your product work like magic. Thank you so much! Dr Pius you're the Best one of them!....

This is a response to your comment about drinking water. You don't have to. You can get water from other sources. I eat a lot of watermelon. I also eat fruit. I also drink soy milk. You can get water from other sources. And it's not true that you need to drink 8 glasses of water in a day.

Since you seem to know so much about how the body works and about inflammation and all of that maybe you can explain to me what the hell is going on in my body that's causing me a lot of problems. Ever since I had a radiation treatment back in May 2023 and the preliminary side effects have dissipated I am left with what is called flare-ups. So far I have had three very severe flare-ups that keep getting worse every single time they crop up. I have had to leave work every single time and the last one was the worst one if all. I get no warning before they occur and the last one lasted all day and all night. I get severe dizziness combined with severe nausea and a heavy feeling in my head that makes me feel like gravity has been turned on to twice its amount. So I feel like I can't walk without possibly falling down and I have to hold onto something and then I don't have any energy because I feel like gravity is pushing me the Earth with a greater force. Why are these things happening and what is causing them to occur? I'm afraid to go back to work and have it occur again and this time it will be so debilitating that I won't be able to go back to work. Can you please help me with this and give me some kind of a solution? I only have Medicaid insurance and I live nowhere near your facility.

Sounds like a bunch of BS for rich people because I know that my insurance probably wouldn't cover any of this. Also it's a shot in the dark because who knows if it would make things any better or if it would make things a lot worse.

I have a comment and I also have a concern. I have a very small acoustic neuroma. It's about 1.7cm. I had stereotactic radiosurgery recently in May. It's now August. I am getting what is called flare-ups from the radiation treatment. So far this has happened at least three times and they all happened at work. Each time was more severe than the last one. And every single time I had to go home because I couldn't continue to work. There are no warning signs and it just comes out of nowhere. I don't fully understand what causes them to occur. I don't know if it's something that I am doing to bring them about or if it's just internal inflammation. But I get severe dizzy spells along with severe nausea and a heavy feeling inside of my body that starts in my head and it makes me feel like I'm fighting against gravity. So I'm not really sure if I should be worried or scared or what. I'm due for my MRI on August 22nd and then I see my radiation oncologist on August 28th for a consultation and a follow-up. He will take a look at the MRI and tell me what I need to do going forward. What can you tell me about these flare-ups that I have been having that are getting worse every single time they occur?

Finally the questions are asked, one would think that quality of life is #1 ...questions of headaches, loss of hearing as well as all the other outcomes are just as important as quality of life yet imagine going through a brain surgery, radiostatic or cutting the skull and coming up with all this,that folks loose their house or way of life bc of the costs of these treatments...hope all of the Surgeons are made mandatory to update their training and treatments after hearing the facts as you stated...sadly the quality of life took this long and answers yet most pcp's ent's and neurologist that given ancient information on a very most scary invasive surgeries one can go for...holistic health care is most important, thank you for sharing your research or make it mandatory as it now considered rare and many people would benefit from receiving the most accurate information. Sincerely appreciated Grace 🙏 ❤️

Why are there no subtitles?

Great info! Thanks.

As someone recently diagnosed with a 3cm VS, I found this really helpful. Thank you!

Did she says that Her appetite came back. Does that mean you also have loss of taste due to this?

Great video and thank you! Does the implant cause issues with future MRI's?

Emily, i am considering the baha and wanted to know if you can hear a caller on the phone on the cochlear side

Hi Mark. I’ve just watched all your videos regarding your surgery. I found it very interesting. I hope you’ve made a complete recovery? I suspect I might have something similar. I am now completely deaf in my left ear with annoying tinnitus, dizziness and headaches. I’ve not been diagnosed yet apart from my self google diagnosis. I know it’s not wise!! I’m still awaiting an appointment with ENT. It’s been almost 6 months. It would be interesting to hear how things went after your surgery?

You are incredibly lucky. Lucky that you found it in time and lucky that you made it through surgery and that you didn't have any facial problems afterwards. Lucky that you were able to remain strong and then you fought to return to who you were before. I'm surprised that you didn't have any tinnitus. That was my first symptom. And when it wasn't going away that's when I knew that I had to see an ENT doctor. I also had a hearing test at the same time. It was determined that I was suffering from a hearing loss also. Because I only had the tinnitus on one side I had to get an MRI. The doctor didn't tell me why he wanted me to get an MRI but I did my research and I found out why. I was hoping that he wouldn't find what he was looking to find but unfortunately he did. My tumor was small so for year it was under observation. Then six months later I had another MRI and unfortunately it was still growing. And this time I was told that it would not be good to have it under observation but to do something about it. The doctor didn't want me to have any more symptoms that may not have gone away. I was told it was too small for regular surgery so I opted for radiation. It is called stereotactic radiosurgery. It's a large dose of radiation that was given to me in one treatment. I wore a mask that was molded in a previous visit and that helps to keep you stable on the table and also helps to lineup the lasers. So that the radiation goes to the right spot. That was 2 weeks ago and I'm still suffering the side effects. I see my oncologist tomorrow for a follow-up and hopefully he can answer my questions and I can find out if what I have been experiencing is normal. I was told that in three to four months I'll get another MRI to find out whether or not the radiation treatment actually worked. Although I'm not sure how they're going to tell that because I was told it can also cause swelling to the tumor so the tumor is going to look larger when they do the MRI so how are they going to know if it's growing or if it's just swollen? I don't know what to think at this point. And I'm scared that I'm not healing properly. I cry almost every day. I haven't even gone back to work. And I'm really scared. And my tinnitus is worse. And I don't know if that's ever going to go back to the way it was or if it's just going to stay the way it is now. It's much louder and much more higher pitched and it's much harder to live with. I don't think I'm doing very well. I don't know if I made the right decision or not. But I guess only time will tell. 😢

Sacral sachwomma tumor ka solution

It is fully curable hai