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Hypogammaglobulinemia & CVID - IDF Reel Stories, The Christy Family

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  • čas přidán 18. 08. 2024
  • IDF Reel Stories is a video community designed by the Immune Deficiency Foundation (IDF), to encourage and empower fellow patients and their loved ones affected by primary immunodeficiency (PI). Viewers are able to select from a robust playlist of video testimonials that touch us on some level -- whether as individuals, families or as members of the IDF community. The video stories cover a wide array of issues and topics and can be searched by Status, Patient Life Stage, Messages, Disorders, and Treatment Options.

Komentáře • 2

  • @bustbeel1
    @bustbeel1 Před 3 lety +3

    That was nice, Mom was able to get her Infusion able to take care of your daughters. It's so important to get and stay on your Treatment! As I was Diagnosed in 1985. My mother also was diagnosed some 20 years later. While she refused to accept she had CVID until she developed Cancer. After she was diagnosed and received the Gamma Globulin her Cancer went away unfortunately changing her prognosis as she passed at the age of 72. I really feel if she would have only been tested earlier when my Doctor's had suggested some 18 years earlier she might have extended her life Span. Miss and Love you Mom. While I have never missed a dose of Gamma Globulin and while I appreciate the Blood Product, receiving this Miracle I say thanks to everyone who donates their Plasma. It truly is a Gift of life. And to the many awesome Immunologists and Doctor's what can anyone say but you are special amongst all Humanity. God really gives us such wonderful hands of healing. Being diagnosed and treated has saved my life after having so many prior numerous Sinus and Pneumonias, I had growing up was a Challenge before I received Gamma Globulin. Diagnosed at age 24 I am now 60 years old. I consider myself healthy albeit some Challenges. Positivity is the most important in prevention of illness as I worked throughout my life. First job at the age of 14 I also put school first attended Graduated College. The first in my family. I grew up around Race Cars and Nostalgic American Muscle Cars.I have found Hobbies are an absolute for the Mental health of someone who suffers from a Challenging Illness like Common Variable Immune Deficiency. I am hoping a CRISPR Breakthrough will one day advance a possible Cure for Primary Immune Deficiencies. I am of the mind and always believe Gamma Globulin is a Pit Stop on the way to a cure for our disease. A wonderful story told by this family the support must be wonderful as you confront your Disease. God. Bless!

  • @johnbladykas4885
    @johnbladykas4885 Před 2 lety

    Interesting