Thoracic Outlet Syndrome: Taylor Sishc's story
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- čas přidán 7. 09. 2024
- Taylor Sishc is honest about the mystery condition that turned his left arm so numb and weak he could not even pick up a shoe. Sishc, an All-American high school diver recruited to Stanford University's elite team, had received prompt attention from the team's trainers and sports medicine doctors, but until he was referred to Stanford Hospital & Clinics' vascular surgeon Jason Lee, MD, he didn't really know what was going on with his arm.
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I am with you, I have had a lot of pain and trouble from Thorasic Outlet.....He is so lucky to be back to normal. I am still recovering after 17 surgeries/ procedures. 3 stents which got 3 blood clots, one in each stent, a blood transfusion, av fistula, an aorta in my shoulder from a donor, blood transfusion just to name a few. I just pray that one day I can be 100% again. I am however back to work but deal with pain daily from nerve damage and scar tissue. Life can be hard but you need to press on to better things and pray for the best.
At the moment that's about it for me as well. I am getting ready for SCS spinal Cord Stimulation. Let's hope it works.
So 95% of patients have neurogenic thoracic outlet syndrome (TOS) and only 5% of patient has some kind of vascular derivative thoracic outlet syndrome. The 5% of patients should see a vascular or possibly cardiothoracic surgeon. This is the type of problem they are trained to deal with. For the main group of patients with TOS - the 95% of patients who have the nerve compression variant, they should be diagnosed and treated by a peripheral nerve surgeon who focuses on chronic pain. The reason it’s do difficult for a vascular surgeon to diagnose neurogenic TOS is because they have very little understanding about peripheral nerve anatomy. The diagnosis of neurogenic TOS is relatively simple and straightforward to make for a peripheral nerve surgeon who also knows where all the other possible compression points between the cervical spine and the hand is located and can examine them all so there is not confusion about what the real problem is. If you know how to work up the cervical spine and the peripheral nervous system between spine and hand, then making the diagnosis of neurogenic syndrome is not hard at all. Also, while a ‘transaxillary’ approach with resection of the first rib may be necessary to treat the vascular variants of TOS, it’s almost NEVER needed to treat the neurogenic variant of TOS. The compression of the nerves occurs between the anterior and middle scalene muscles, NOT between the clavicle and the first rib. A transaxillary approach with resection of the first rib is both unnecessarily dangerous and morbid and when the first rib is removed, often requires an extended post-op recovery period. Vascular surgeons should be the ones to take care of the arterial and venous variants of TOS, they SHOULD NOT be the ones taking care of the neurogenic variants of TOS. They do not have the training or expertise to do so and get consistently good results. Patients with neurogenic TOS should seek out a chronic pain-focused peripheral nerve surgeon for this type of surgery.
Exactly!
Well said!
I couldn't swim without having a lot of pain after. I had surgery on both sides, I'm still on recovery, mostly for a protusion in the neck bones. I hope I can swim again, for the moment I only do bicycle, at the gym, go walking helps a lot. Thank you for sharing your story
Hey Taylor-can you please show us pictures of you AFTER your surgery?? Usually a 1st RIB removal-TOS surgery will make the shoulder droop on the side the surgery was done.--even in younger patients. These films of you all look like they were taken BEFORE your surgery. Can you tell us if they were? Can you show us the incision areas? and photos of you AFTER surgery?? I've seen many hospitals and websites PROMOTE very dangerous surgeries, so any patient viewing this video hopefully will be very skeptical regarding any claims of terrific progress like yours. The Medical Board even states that this condition is "EXTREMELY DIFFICULT TO TREAT" and "accompanies many risks." I have their document. So, HOW can Stanford be so successful?? Really Dr. Lee?! Taylor did Dr. Lee, or his residents/students cut out ALL of your 1st rib, or only PART of it? I wonder at what patient age these 90% success surgery rate claims were done? and how extensive the surgeries really were?? Hey, Stanford and Dr. Lee--PLEASE show us MORE in DETAIL!! Please explain if you took out all of Taylor's 1st rib and show us photos of him after surgery--does his shoulder droop??
My assumption was that all of the film was taken after the surgery. In the interview he was talking about the surgery in past tense, and he talked about continuing his diving success after the surgery.
Hes my dive coach coolest guy ever
Hello everyone. My name is muskan zahir sheikh Iam also suffering from tos I'm really got irritated by this. I'm 16 years old and I just getting recover by this.
Hello muskan. Did you get rid of this problem? Do you speak Hindi or urdu? Have you got tye surgery done?
this video is worth watching just for the diagram at 1:07
I have this at night if my arm leans forward when I m laying on my side my hand goes numb. I also struggle to holding things like a hairbrush up to my hair without experiencing exhaustion and cramps in my forearm.
I 'm suffering of this I'm in physical therapy is not working it started neck pain and headaches and is going to my arm.i need help.I had this since young and now I'm in cruelchel pain. Now that I'm 62.
were you diagnosed by MD of this condition? Try to visit a medical doctor to get assessed. For the neck pain you can check out self-massage by Rachel Richards Massage, it has helped me a lot.
Removing a rib is barbaric. Was enough physicial therapy done beforehand?
bleh i have this too...its not fun but kudo
Was your shoulder area swollen?? Burning pain, neck pain?
Mine isn't it started in my collerbine throat 7 years ago now it's armpits shoulders they don't no if it's fybromyalgia as I have heds tonmych confusion
How are ya doing being this far oyt post op? They told me 50/50 chance of recovery
Bună ziua! Ați avut cumva o astfel de operație? Scuze, ca întreb, dar eu sunt din România și am fost operata acum 4 ani, de TOS cu rezecție de prima coasta și nu sunt bine. Nu știu ce sa mai fac de dureri, au revenit și sunt mult mai puternice. As dori sa vorbesc cu cineva care a trecut prin aceasta operație. Mulțumesc!
@@florisimona9487 english???
@@flirtybuffy2003 Hello! Have you ever had such an operation? Sorry for asking, but I'm from România and I was operated on 4 years ago, for TOS with resection of the first rib and I'm not well. I don't know what to do about the pains, they have returned and they are stronger. I would like to talk to someone who has been through trist surgery. Thanks!
@@florisimona9487 about to have surgery thought id ask for longterm outcome
@@florisimona9487hello hope you’re doing well. I have the same problem and I am thinking about to do the surgery and remove the rip but I am very afraid to do it . Did you had a lot of pain after surgery? How long you where in the hospital?
Hello. I am from Romania and I vad cough surgery of TOS in 2018 but now I have pain again. I do not know what happens. Maybe relapse???? I am very sad😓
You need to calm down! You need a year of recovery!
@@PETRiCH0R030 one year? In october this year maria teo years since the operation. The pain reappeared after one year and seven months!!!!😔
@@florisimona9487 im sorry for you. Are you still in care of a doctor? Maybe you should go to a neurologist
@@PETRiCH0R030 thank you very much!
Buna Simona! Ai putea sa imi spui cine te-a operat si cum te simti acum dupa mai mult timp de la operatie? Sotul meu cauta pe cineva competent care sa ii faca aceasta operatie dar pare greu de gasit. Multumesc!