How Long Can I Live with CLL? (Chronic Lymphocytic Leukemia) | The Patient Story

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  • čas přidán 18. 12. 2023
  • How long can I live with chronic lymphocytic leukemia or CLL? Top leukemia experts say many patients can live for decades with CLL without needing treatment! In this video, they discuss the impact of age, disease biology, and genetic tests on your prognosis.
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Komentáře • 16

  • @johnf8609
    @johnf8609 Před 2 měsíci +5

    I was diagnosed 4 years ago. My WBC is now over 100k. I'm at the gym 5x week taking cardio classes, yoga, and resistance training. Plus I walk 5-7 miles a day. I had COVID a couple of years ago and WBC dropped down to 19k from 60k at that time. I was in the ICU for five days. The doctors couldn't explain why my numbers dropped and now creeped up over the past 2 years. I feel pretty good for being 68.

  • @water2wine1
    @water2wine1 Před 7 měsíci +15

    My cousin has been living with this illness for about 20 years now.

  • @sassylynn9675
    @sassylynn9675 Před 8 dny

    I'm a CLL cancer patient for almost 2 yrs in January. I m on a medication called imbruvica,at 3 pills a day. I was told l will be on this for the rest of my life. Anyone else on this?

  • @DaveCLL
    @DaveCLL Před 2 měsíci +1

    What is needed in the "modern" era of CLL treatment is a longer term comparison. I'm speaking of treatments not involving chemo. And the comparison should be against a general age matched population. For example, at age 65, compare the percentage of deaths for CLL patients with the general population. Then do this at age 70, 75, 80..... The gap between the two populations would convey some idea of the impact of CLL on mortality.

  • @saeedabri
    @saeedabri Před 5 měsíci +2

    My Dad past away at the age of 68 he lived with this terrible disease for 10 years, after he was given FCR chemo he did not recover.

  • @Beepinsqueekin
    @Beepinsqueekin Před 7 měsíci +1

    My mother had CCL for 4 years and passed away in 1998 at Age 69

  • @KashanandHaribHkkids
    @KashanandHaribHkkids Před 6 měsíci +4

    I am cll patient since last 5 years
    Stage biant A
    Wbc 40,000
    Hemoglobin 14
    Platelets 250k
    No any symptoms
    No medicine i used

  • @marlenejones6266
    @marlenejones6266 Před 15 dny

    My daughters white cell was 159000 last visit. She is 41. Her Dr's said she has had it for over 20 years. I'm worried she will die soon. She is severely anemic.

  • @colleenmisner454
    @colleenmisner454 Před 3 měsíci

    My cancer marker total is 18. I can’t find anything on the internet on the total. Does anyone know

  • @TrudyContos-gq1bw
    @TrudyContos-gq1bw Před měsícem

    No one here is stating which subtype they have their are several!?

  • @joannboyd8855
    @joannboyd8855 Před měsícem

    Smh

  • @marlenejones6266
    @marlenejones6266 Před 15 dny

    Oh I'm sorry but your voice just hurt my ears