CR&T Virtual MPN Symposium 2020 - Presentations, Part 1

--Welcome & Introduction - Richard T. Silver, MD, Lewis C. Cantley, PhD (Weill Cornell Medicine, New York, NY) and David Boule, Patient Committee Chair, Cancer Research & Treatment Fund (CR&T)
--Inflammation in MPNs: Clinical and Therapeutic Aspects - Hans Hasselbalch, MD, Roskilde Hospital, Roskilde, Denmark
--Next Generation Sequencing in Diagnosis and Treatment - Joseph M. Scandura, MD, Weill Cornell Medicine, New York, NY
--Polycythemia Vera: Interferon Prolongs Myelofibrosis-Free and Overall Survival - Ghaith Abu-Zeinah, MD, Weill Cornell Medicine, New York, NY

[@staceyhayes2586]

I was dx in 01 with ET (platelets over 1 million) then morphed in MF in o5. I’ve had two blood clots, Ischemic Colitis (then Dr. put me on Plavix), and a blockage in the intestines from too much scar tissue from prior laparoscopic surgeries (adhesions). In 2011, had my Gallbladder removed and one week later they found a Thymoma Tumor in the Thymus Gland and I had a Thymectomy (stage one, malignant). In 2018, had to take an ambulance to ER and they had to do emergency surgery, removal of my Appendix and when they took out my appendix they found a Neuroendocrine Carcinoid Tumor in my Appendix (stage IIA, malignant). And in 2019 I went to the ER for severe stomach pains and they said I had a 70% blockage in my Celiac Artery. I went to a top Vascular Surgeon at Mt. Sinai and he did some tests and said normally they would put a stent in, but due to my high risk and when he did the sonogram he said the body sometimes has a way of healing itself, instead of my blood going into my main artery, it has gone in another way, so its going where it is suppose to. We just have to keep an eye on it. I’ve been through a lot since dx with ET in 01. I had grade 2 fibrosis, and I have Osteoarthritis and severe joint and bone pain. My counts are ok. My hgb is 10.1 and my leukocytes is very low. Otherwise, I look like a picture of perfect health. Tired a lot, itch and the joint & bone pain. I see Dr. Macaranhas at Mt. Sinai. Just wanted to say I had two tumors and one blood cancer, Myelofibrosis. Stacey H. Long Island, NY

[@ruthhurley9905]

16:48

[@ruthhurley9905]

That’s terrible! Feel so sorry for you.

[@ruthhurley9905]

I have ET newly diagnosed, and wonder what’s going to happen next…