Chronic Lyme Disease Q&A
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- čas přidán 21. 01. 2021
- You asked so many great questions about my experience/journey with lyme disease so far. I was diagnosed with lyme and bartonella about one year ago and have been treating for 8 months now.
I am doing a mix of antibiotics and natural treatments including tetracycline, oil of oregano, samento, and monolaurin.
Here is the link I mentioned in the video where Dr. Steven Phillips answers some FAQ questions about lyme disease and bartonella: stevenphillipsmd.com/faqs/
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#LymeDisease #Bartonella #ChronicIllness
You poor sweetheart. You are so young for all that! I’m 61 and have had Lyme for 10 yrs diagnosed two yrs ago . I get 3 month flares that has debilitating fatigue. Like your videos.
Hi. I have over 3 decades of firsthand knowledge and experience with all tick-borne diseases. If you are open-minded, I am positive that I can help get you to the next level. I do this with some of my free time to give back and help others after suffering tremendously myself. Please feel free to email me. My email address is in the "About" section of my CZcams profile.
Thank you for sharing your story and treatments. I am on this journey as well. Wishing you much relief and keep the faith for more and more better days.
Thank you Maryellen!! Wishing you all the best on your journey as well. We got this! ❤️
Live blood cell analysis and 10 pass ozone got rid of my lyme. dr said was probably one of the worst cases he’s seen. My blood was horrible. Get Great Plains laboratory test for mycotoxins as well. Mold can knock you down at the same time. Up the nutrients with IVs. My intestines were leaking as well. Get as much sun as you can to help with the steroid synthesis for pain. My heart goes out to you. My joints and spine are so weak and twisted. You’re very much the same picture as me. I was ready to die at 70lbs skin and bones. My dad had it too and committed suicide. You’ll get through this and come out a stronger soul🤍
Thank you for sharing this Rachael, It was super helpful. Thank you for sharing your ideas and guesses even when you didn't know the answers and being real with us about that :) Thank yo u for sharing your experiences with us, am so grateful for it
Thank you for always being so supportive, you are awesome! ❤️
@@HealingWithRachael thank you
Such a well-done video. Been battling for 8+ years, and have done many types of abx and disulfiram. At this point my babesia is worse than lyme. There are so few treatments and so much still to be researched about it. Stay strong, fellow warriors!
This is so insightful. I really appreciate your videos ❤️
Thank you so much! ❤️
@@HealingWithRachael Thank YOU! ❤️🥄
My LLMD diagnosed my POTS as secondary POTS, meaning it was a result of my tick-borne infection. Lyme can impact any body system and as she mentioned, is the great imitator. I imagine the true number of cases is so much higher than known.
Oh no. I missed this post. I'm so sorry. I will always pray for you. 🌹🌹🌹
Interesting! I have hEDS, POTs, Tethered cord, CCI, .... and now I also have MS. Your videos are very relatable!
Yeah. And now I want to get all the Lyme tests I might have missed... I did get the standard one. I think that was it though. This was years ago. Interesting! Thanks for this video! Maybe this is something I should further look into myself.
Good video. I'm in the same boat as you! Been sick for 3 years. Been treating for confirmed lyme and bartonella. Also have spinal issues. Have a cervical stenosis at c4 and being assessed for CCI. I am also very very sensitive to many things and tend to tolerate antibiotics better than herbs. I'm also about 8 months into treatment. Still trying to find something that helps. keep fighting. It gets better xx
What causes the spinal issues ?! Is it Lyme ?!
Soooo I think I have Lyme. And i think I’ve had it for a while. I was also diagnosed with pots and later undiagnosed because doctors weren’t sure. I’ve seen so many doctors and had to switch my main doctor because she said everything I am experiencing is “normal” for me. Many doctors told it’s just anxiety but I KNOW it’s not. I just got tested for Lyme today.. and as crazy as it sounds I hope it is so I can at least get a diagnosis so I can help myself!!!! My symptoms have been getting worse recently so I had to come out of public school and start homeschooling. Really hope I can figure this out 😭❤️
Hi. Hopefully you were tested by a LLMD for "all" of the most common tick-borne diseases using a premium lab. Any other doctor will run old and outdated tests and won't treat properly, which will only prolong the recovery process. If you have any questions, please feel free to email me. My email address is in the "About" section of my CZcams profile.
Please check for mold toxicity and heavy metals xoxo
Great new video Rachael! I have some questions...is the oregano oil that you take liposomal? How many drops of Samento do you take a day? I’m taking some herbs for Lyme including oregano oil powder. My doctor prescribed some antibiotics and I’m a bit scared of having too many symptoms, since people talk so many bad things about it, I’ll try. And I have LDN here, I’ll probably start next month. Greetings! :)
Cistus incanus herbal tea has been Godsent🙏🏽 2x daily ☕️. magnesium & vit d same time .. or magnesium spray and stand in sun ☀️ soak it in! This has been game changer for me. I had fevers morning & night time for several years found an article about potassium iodine-kills bartonella. Turned out it worked for me.. no fevers for several years now. I’ve had Lyme over 4 yrs. I’m in remission. Found small bottle on amazon under morgellons potassium iodine. Salt baths helped significantly too. I’ve never taken any pharmaceuticals. I thank this young lady for spreading her story of natural treatments. There are more herbs see dr Rawls🙏🏽
Hi girl, I am sick with lyme and coinfentions too. Also diagnosed with EDS, POTS and other. I am on antibiotis for 7 months and I want to try SOT. Did you hear about it? It is much safer than stem cells, might be great option for u :)
would you happen to know if you di have lymes disease but was treated for it if years later it can turn to chronic lymes disease even if your blood work is showing it isn't active? out of nowhere I started feeling sick and im in so much pain all over my body from head to toe to the point its affecting my life... I get headaches every single day and days where it gets so bad im throwing up... my muscles hurt, neck always hurts, bones hurt joints everything, I get weakness, I get muscle twitching all over my body, I get numbness tingling and pins and needles, I constantly feel shortness of breath and I feel off like I can't concentrate right or function like I used to and I find myself getting very frustrated trying to do simple things, anytime I move or get up all my joints are constantly cracking my neck cracks anytime I turn it... I feel like I may have chronic lyme but my blood work is showing it isn't active... do you know if what iam experiencing can still be chronic lymes? also is itching all over a symptom of chronic lymes?
Hi there, I'm so sorry to hear you are still struggling. Yes, sometimes people can have chronic symptoms even if they "treated" it in the beginning and get negative bloodwork. I'd recommend finding a lyme literate doctor if possible! I'd also recommend this book called "Chronic" by Dr. Steven Phillips: amzn.to/3AKhB5P Wishing you all the best & I hope you can find help no matter the means!
@@HealingWithRachael thank you so much I seen a rheumatologist and they are trying to diagnose me with fibromyalgia but I really don't think that's what it is since the way I'm feeling and how sick I feel and having trouble concentrating and focusing and feeling off... I am seeing a holistic dr and he believes its chronic lymes disease
@@HealingWithRachael can chronic lymes disease cause a high wbc? mine is high and drs don't know why and are pretty much ignoring it
crystal r I’m sorry to hear that! Unfortunately most doctors are not educated properly about chronic lyme disease. It’s really sad. I’m not sure about the WBC count but I wouldn’t be surprised if it did. Hope you can find a doctor to help!
Hi. I have over 3 decades of firsthand knowledge and experience with all tick-borne diseases. All of the symptoms that you mentioned, including excessive itchy skin and high WBC counts, have correlation to tick-borne diseases.
You need to find a LLMD for "appropriate" testing and proper treatment. Any other doctor will simply prolong the recovery process. If you have any questions or need help finding a LLMD in your area, please feel free to email me. My email address is in the "About" section of my CZcams profile.
I can identify with the frustration of physicians failing to home in on a diagnosis. It seems the medical fraternity largely fails to think outside the box. It’s even worse if one has a diagnosis which represents the go to culprit of each and every symptom. I’m a long haul T1D but have significant chronic neck and shoulder discomfort. I experience significant light headedness, even visual disturbances, muscular pain, headache, fatigue, widespread medial arterial stenosis and, yes, I have been bitten by a tick. However, pretty much everything gets relegated to my diabetes and associated neuropathy.
How do you know what are herx reactions and what are side effects from treatments?
In my expetience, a herx usually exacerbates my lyme symptoms that I already have. Side effects can be wider-ranging and usually are nausea/GI/etc. It's a lot of trial/error, and taking things slow and not trying too much at once.
When will u free from cirvical coler??
My first question would be WHY DO YOU HAVE A NECK HARNESS?!
i have same story but i realized i was not going to get better and needed stronger meds than oral i have been on iv and realized i was just pissing the infection off i went symtom free on iv while im on if i stop i relapse when blood levels get low on meds it takes 4g rocephin 2g does nothing for me but im on everything plus disulfram i find what works and stay on it figure out how to afford it and adapt. listen to your body period nothing else no one else this your life and your life alone they will not be there when your in the icu room act acordingly.
Ok, he shouldn't have given you samento or aka cat's claw. If he wanted to figure out if you had lyme he should have used teasel root which can break down the biofilms/ the walls that lyme bacteria builds when it burrows into bones. Taking a large amount ( like a spoon in tincture form) would most likely produce a severe joint pain reaction because the herb is introducing the lyme back into the blood stream and then your body is trying to fight it off. But then as soon as you see a reaction like that you must be given strong anti- inflammatory herbs (elderberry, astragalus, black seed, etc) and antibiotic herbs (japanese knotweed) that kill the bacteria in the blood stream ( food form). Following up with those immediately after brings your body back into homeostasis. Also you should know that samento is not as effective at killing lyme bacteria as japanese knotweed. There is one more herb from south africa that works better than knotweed but it's not easily available in the USA. Also you should know that after you drop the inflammation and kill the bacteria you also needs to clean out your lymph system. You can clean out the lymph by eating things like dandelion greens. Steroids aren't necessary for dropping inflammation. If you make food with concentrated herbs they can drop inflammation very fast - it's just good home cooking. Also for the brain stuff please start incorporating foods like lion's mane mushrooms and reishi mushrooms into your diet. You can contact me @goodherbcompany on instagram- I'm just a home chef
Hey Rachael,
when you had a positive result for lyme even it was just partly, it still show that you had contact with this bacteria. We have several lyme patients with Co. infections in our group who developed instabilities of the cervical spine and countless other problems that you are familiar with. There's a new drug called Disulfiram which helped a lot of them going into full remission, maybe it can help you as well! 👍🏻
Thank you for sharing! That's awesome that you've heard of some people with neck/spinal instability that have benefited from disulfiram. 😊 I did some research on disulfiram a while ago and have definitely been interested in it. I think because I'm so sensitive to medication, it makes me really hesitant, but who knows, we may try it in the future!
@@HealingWithRachael Don't worry about the sensetivity, the drug is even in small doses very potent and there's no need to build up the medication so you can quit any time.
@@dutyofcall7659 ppl do have to worry about sensitivity. Disulfiram can definitely make a person herx and it has a very long half life as well.
👿samentooooooooo👿