My MS Story Update: 5 Years Living with Multiple Sclerosis [ Signs, Symptoms, Causes and Treatment ]
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- čas přidán 6. 06. 2024
- Hello everyone, Today, I'm going to share My MS Story Update: and all about my 5 Years of Living with Multiple Sclerosis. Also, you will learn more what are the signs and symptoms, causes of multiple sclerosis, and treatment. Here's an update to my MS story to talk about how I'm doing after 5 years of living with Multiple Sclerosis! As a yoga teacher and an MS survivor, I want to share how my symptoms have evolved throughout the years and be an inspiration to show that MS is not the end. From living with MS at a young age to being a young man with MS, listen here to stay positive!
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📺 Watch My Other Videos:
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• 5 reasons why you shou...
★ MS Yoga: Twists and stretches for spinal fluidity
• MS Yoga: Twists and st...
★ MS and I: Am I following the Coimbra protocol?
• MS and I: Am I followi...
★ Workout threshold with MS
• Workout threshold with MS
★ MS Yoga: Ease your MS symptoms - Pamper Your Neck
• MS Yoga: Ease your MS ...
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Causes of Multiple Sclerosis ❓
The cause of multiple sclerosis is unknown. It's considered an autoimmune disease in which the body's immune system attacks its own tissues. In the case of MS, this immune system malfunction destroys the fatty substance that coats and protects nerve fibers in the brain and spinal cord (myelin).
Myelin can be compared to the insulation coating on electrical wires. When the protective myelin is damaged and the nerve fiber is exposed, the messages that travel along that nerve fiber may be slowed or blocked.
It isn't clear why MS develops in some people and not others. A combination of genetics and environmental factors appears to be responsible.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" CZcams channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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Hi Seb! Thanks a lot sharing your story and updating! I have been recently diagnosed with MS and you helped me to calm down and start believing in possibility of good quality life. Please keep us updated!🙏
Hi Olga! Thank you so much for your comment. Stay strong and know that it gets better with time :)
Thanks for sharing,our MS community is so small. It helps to see others describe some of the very symptoms we see.
Seb, glad you are as well as you can be. I just wanted to tell you, I remember watching MS videos on CZcams and yours was the first one I watched back in 2016, I don’t know how I knew but I had a strong gut feeling I had MS. Anyway, I was lying on my decking floor outside watching your story. I was so ill I could not find any comfort, the cold outside made me feel a tad better, and that’s when I came across your story. This was about a month prior to diagnosis. That year I had about four or five relapses. I couldn’t walk, vertigo, loss the use of my right arm and my speech went too. So, I just wanted to tell you thank you because you gave me hope and strength to carry on with the battle I had ahead, I didn’t feel so alone. Soon as they realised how severe it was, I had an option to take tysabri or lemtrada, I had the weekend to decide. I opted for tysabri, since then Iv only had one relapse. So hard isn’t it to no longer be the person you was but the person Iv become because of it is all that matters. I’m stronger, wiser, more appreciative of life and thankful. Much love to you seb
My support goes out to you stay positive stay strong 💪🏼 and dont let this disease define you. God willing and a cure will come soon for this horrible disease. Or at least a treatment that can guarantee no progression. There are already many advancements, so have faith and be strong. ❤️🙏🏻 blessings
Thank you for sharing, Adele! Stay strong and positive, sister!
Whomever left that comment has no soul. So don't let it bother you.😊✌.
I won't!! Thank you :)
@@LifeofSebMS .. Good.
I am thankful you talk about MS. You are an excellent teacher about MS. I was diagnosed a year ago and am already in a wheelchair. You help me (as you said) to stay positive and to have being me the goal, even with changes and despite negative thoughts that I also deal with. Be well, Seb.
Thank you so much for your comment. You make it all worth it. Stay well and remember that you are perfect the way you are 🧡🙏🏻
I was diagnosed Christmas Morning 2013. Glad to see you're making it!
So good to hear from u again .
Thank you for speaking for us! Love,
MS girl
Your positivity is so contagious,💗
Thank you Seb for being a voice for young people with MS and being open and kind. It’s wonderful to heard you are stable and doing well... sending you positive vibes that you remain this way for the foreseeable future 😊
You are one strong man and I wish you all the best.✌🏼
Thank you for all the honesty and info. Our 15year old granddaughter has AE and onset juvenile lupus and heard last week that definite MS. I wanted to learn more how to help her and also stay positive. You helped me there. She just went back to school after a year...and we pray that the stress is not too much for her. The heat in this country does not end so we have high electric bills to keep her cool as that is a definite onset. She is on anti seizure meds as well as prednisone and some chemo meds, has tremors now but has mot had a major seizure or stopped breathing 4 months now. She started on hemp drops which we know helps with trembling. Eyes are affected too but she is walking again.
So for each diagnoses i try learn more.
Thanks again and wishing you positive life be encouraged as you do really make a difference.
Seb, good to hear from you again. ❤️🌞
Glad to see ur doing better... sending my support to you 🙏🏻 and hope for a cure soon.
Thanks for sharing this, Seb. It is very inspirational and important you share your experience here. MS is most of the times a silent condition, so speaking about that is really important. Thanks for that!
Seb, you are not only courageous but an inspiration to us all!! God Bless!!
So glad you are doing as well as you are Seb.I hope the angels, legions of them, always watch over you and protect you from all ill. Please keep the videos coming. Jim
Thanks for the video Seb! Keep up the good work and ignore the haters :)
Glad to see you doing so well. I too looked fine two years ago, and have gone downhill fast in two years. It is ok. I can still walk, with some difficulty, and I often use a cane because of balance problems, but I am thankful for what I still have, after 16 years of MS. Stay positive, dear Seb. I love seeing your updates and am encouraged by your positive attitude.
I'm going into year 4 now. A year after we found out I lost my husband of 20 years. The year after 3 of our 4 dogs passed. Stress has made everything worse. Struggling to survive. I'm definitely at my worst right now. Stress, grief. I miss my husband. I'm trying to turn it around but it's very difficult. I'm in relapse right now. I'll check out the medical marijuana. Great videos and I enjoy your story and glad you put it out there!
Hey Bill I am putting this link out as encouragement for people suffering with MS. As Seb has brought up the use of Marijuana there is a new CBD product with the company that I work with no THC but the supplements that I'm suggesting help the body to heal itself hope you have time to take a look and contact me. ZThis is to help you and those you are in contact with. czcams.com/channels/OGf4nW0HRG3KJHk0R8UemQ.htmlsearch?query=MS
I pray the angels help you Bill! Hand in there!
@@yogicfly4bliss trying to. Just found out my mom has about a month to live. Terminal cancer and she didnt tell anyone. Were not that close and I live far away but wish I could go home. Lost my one and only friend here. Life is definitely testing me.
I’m sorry Bill. I really hope things turn around for you
Glad you are doing well!
You are so right, we have enough barriers having MS. We don't need fellow MSers to question us. I have a physical symptom of MS that people can't ignore (I use a cane), yet I know there are plenty of symptoms that don't show. Thanks for sharing, I've subscribed to keep up. Take it easy :)
What an amazing update. I'm glad you are doing well. I've so many questions to ask....best wishes. Dean
Thanks for your comment :) go ahead and shoot me your questions :)
Thank you, Seb!
I love you and I thank you ! Positive vibes for you and loved ones .
The same to you!
If something is taken from you it makes something else stronger. If you're no longer able to go partying I'm sure you've found other more fulfilling ways to have fun! An 'advantage' of being Ill is that it gives us a more vivid appreciation of life!
Amen!!
I have recently been diagnosed with MS as well. I'm 53 yo, married with 5 kids, My symptoms are mostly in my legs. I walk like I'm drunk, but can correct if I take my time and concentrate on my gait. I do get tired in the evenings. My feet hurt when I walk long distances esp in malls ( I hate malls) My wife and kids like malls...I will stay in the car and watch netflix until they are ready to go home.
This is my treatment for me and I hope it works for you if you have ms. By the way.. I am also type 2 diabetic, a1c -12.3, diagnosed 12 years ago. I took the medication that all doctors give. (blood pressure, kidney, cholesterol etc) I weighed 200 lbs, I am 5'8, I spoke to a friend who is a physical therapist about my condition, I'm also a physical therapist assistant. He recommended that I change my diet and do an intermittent fast....I DID! that was March 2, 2019. I lost over 50 lbs, my lowest recorded weight was 142, however after the holidays I weighed 154. I plan to keep it around 150 to 155. I have reversed diabetes, my a1c dropped to 5.4. I no longer take medication. yes...thats right, I DO NOT TAKE MEDS. I did the keto diet and eat mostly in the evenings. I start off with bullet proof coffee in the morning and then dinner in the evenings. I drink water all day (no sodas) I snack on pistachios, almonds, walnuts, cheese if I have cravings. this has worked for me.. This year I am trying a vegetarian diet, pretty much a keto without the meat. My philosophy: Good things going into the body, Good things coming out. stay positive, try not to stress, keep a hobby. and be happy. I have to may things to do and to live for. I will not let this slow me down. Try this, you will see a change in your body, mind and spirit.
I cant believe that person left a comment like that! if they had MS then they should understand exactly how it is to have MS. You have the right to comment and give your feelings about MS. I have found having a CZcams channel is amazing as I have met so many lovely an inspirational people who have supported me and helped and who I hope I have helped and supported too. I am sure you having your channel it has done the same for you too. Please ignore that other comment and carry on doing what you do. x
Indeed it has! Thanks foe your support and stay strong sister :)
I love you ..you are so honest and yes just because you can't see a disability physically doesn't mean we don't struggle ..in fact I think personally it's sometimes more challenging for people to understand our struggles and feeling vulnerable all the time ..
Just because people assume nothing is wrong if you are not in a wheelchair or walking with walking aids .. believe me it's a real struggle a war within.. for people to understand if you look fine on the outside..
P.s I was diagnosed 2 months ago.. I experienced similar symptoms as you ..thank you for sharing ..
p.s I use to run daily 😔sadly can't do that now but I started yoga flow and it really helps me with anxiety balancing and strengthen my muscles and spasms.. anyway you are brilliant
Hey, the comment you received had me up on the edge of the sofa! That exactly makes MS difficult for those who suffer from it and for family members and loved ones. Nobody knows how good or bad you are feeling because it just simply doesn't show!!! I had months of extreme vertigo and then dizziness and light-headedness and looked normal! Not even tired or worn-out or anything like that! I was diagnosed at 47 this summer and people (who don't know how sick I am) tell me all the time how good I look for a woman my age (I've always taken great care of my skin).... It's almost absurd! If we look at it from the positive side: at least it doesn't make life more difficult for us looking at a tired face every morning! Thank you very much again for your videos. They're very encouraging! Let's stay optimistic!!! Best from Hamburg, Germany
Hey sis, some comments can be infuriating so I’ve learnt to not take it personally. Stay strong and don’t let anyone make you feel bad!! 💪🏻🧡
Hi Seb thanks for sharing your problems with MS, I also have most of the problems that u suggested but I'm now using my Disability scooter as I can now only walk around 20' feet with out tripping and falling but listening to u talk has really gave me good feelings about the future so please keep them coming take care & stay safe ✌peace✌😀
Thank you for watching and stay strong!!
WISHING you HEALTH and HAPPINESS from the BOTTOM of my HEART ❤ I hear you every thing you say is so TRUE ABSOLUTELY 🙏🌈✨🌠
I send you love. Thank you for sharing.
You have the right attitude! I was diagnosed 20yrs ago and it is very much a mourning of your life as it was. Shrug off that idiot after all some MSers were assholes before they got MS
Seb...i love your pure vibe.
The person thag wrote the coment probably is having a battle with himself and probably dosen't understand what you are trying to do here.
So far im blessed that i found you.
My case is really weird or at least really not so common.
My middle sister has MS as well..but she was diagnosed when she was about to have 18 years... she just fall one day and she stop walking or even moving her arms....it was really, really bad. Now she is fine and become a nurse....
When i got my diagnosis about 2 months ago days before my birthday #33 ...when the doctor call me to tell me i remember crying 😢 because i didn't want to stop walking or not be able to raise my toddler and my new born baby.
After i recover my sight from my left eye and recover the full correct movement of the left side of my body....went to the doctor really scared and telling him..the history of my sister with MS..
He told me Astrid...MS works diferent in everyperson...so focus in yourself and we will make sure you are in good hands.
What i want to say with this is..that...its ok and its no one's fault how the MS reflects in their bodys.
We all toguether can talk and share and give suport.
You Seb...are making a lot of good in every person thaf get your videos and feel the suport...and the feeling of..."im not alone in thi"...
So Thank You.
Very informative. MS possibly and Cerebral Palsy has me forever in it's grip. Thank you for invaluable firsthand experience and information with your MS symptoms and treatment. Our symptoms are nearly identical but the medical bureaucracy here prevents a diagnosis of MS or no MS. Hearing a patient's wisdom is superior, in my opinion, to a PhD.
Sending you love ❤️
Hi Seb. Thank you for making these videos. I'm reaching out to you for my husband. He was diagnosed with an aggressive form of MS two years ago. He is functioning at 2 % brain capacity for someone his age (he's 43.). He is sitting here with me and we are watching you videos. He's trying not cry (it started when you said your heart and thoughts are with others that have MS). I was wondering if there is any way that maybe you could actually talk to him on like a face time or something sometime. He can't talk very well, but he is definitely responding to your videos. Either way, thank you again for doing these videos, we greatly appreciate them. All our love and prayers
Love from Portland, Oregon! I have my lumbar puncture scheduled for April 3rd to check for banding. I'm trying to stay positive no matter the result, but as I'm sure you know, it is so easy to lose hope (especially in the beginning). Your videos have been a blessing to me and seeing you talk openly about your struggles and successes has helped me tremendously over the last 4 months. If you could talk to yourself just after you were diagnosed or when you were in your darkest times, what encouragement would you give? At what point were you able to get back to "living life," and what kind of resolutions/decisions/conclusions were involved in that process? Thanks again, Seb, and best of luck on your path.
Hello Nathan, thank you for your comment and questions! In fact, I find it so inspiring that I will make a whole video to answer these questions, which must furthermore be relevant to any patient coping with the diagnosis.
Stay well!
So sorry some cannot appreciate the fact of invisible illness. I can relate and glad you clarified that issue. Best...
🤗🧡
Amen thanks for being honest
I also was a party boy from Toronto ;)
You are a fine young man, I hope your Mamma is proud of you
Can't wait to get my MM card.
What strain do you use for the tremors?
So glad it's helping you.
when your friends party have then face time you and it will be like you are there having fun with them, you will just be in a different place, but still having fun. Don't give up what you enjoy, just find a different way to have the same experience, you deserve to live your life your way, I live in America and we always find a way to have fun.
Bless you Seb. I too like a drink but the drink like me
Stay strong
Thank you for sharing!!!
Are you still taking the other medications ?
Hi, the person who left this comment must maybe suffering more than you because of MS but that doesn't excuse it. I've had MS for 15 year and have been lucky enough to be spared by the attacks (meaning nothing visible on me) but it a daily struggle. Thank you for sharing
I have a hideous brain tumour but my hair covers the gaping hole in my skull.I can walk but lose my balance people think Im drunk. i was given 4 to 6 months 4 and a half years ago. People look at me like there's nothing wrong, even the ones that know the score lol. I would love someone to try and call me out for looking healthier than a brain cancer patient could look lol
Tatty that's amazing that you have out lived your life expectancy! I have been working with a woman with glioblastoma who was given 6-18 months to live. She is in palliative care right now (as of this past Saturday) and has lived 3 years with multiple surgeries and radiation. I can't tell you how it broke my heart when the supplements I had her on for 5 months after I started to work for her and her family she stopped taking. You may ask why? Because she came home in Sept 2017 with a clear MRI! Everybody was so happy. She has 2 young children 4 & 7 and many friends they were jumping for joy. With that news, she decided she no longer needed the supplements. I tried explaining to her that she was NOT CURED, but stubborn and proud she ignored me. 3 months later she had a 2 cm tumor and the road has been rough ever since then. She went in every other direction but back to what she had been taking.
If you are interested in finding out more contact me. Here is a link to some great stories to encourage and give hope! God bless you czcams.com/channels/gPGj0FyNaT_51fb-M39QMg.htmlsearch?query=brain+tumor
i can relate to your missing your old body abilities. I miss dancing the night away and running and being able to take the stairs two or three at a time and runnin g up the stairs for excersize and beig more physically active. Smdh
My mom was just diagnosed she’s having a lot of symptoms we haven’t seen the neurologist yet ! It has been so hard and it’s been three days since they told her . I am so scared, but god will not leave us alone he knows why these things happen but he knows why , he has a purpose he always knows why . I just hope my mom can live for a long long time and live free symptoms . I wish you the best life possible ❣️
God bless everyone ! Believe and believe and have faith :(.
Viridiana I want to encourage you for the sake of your mom to have a listen to some testimonies of answers to prayers for people with MS and a host of other problems. czcams.com/channels/OGf4nW0HRG3KJHk0R8UemQ.htmlsearch?query=MS
Contact me if you are interested because it is definitely worth it. My mom fell in 2011 broke her hip at the age of 88 and I live overseas and she in the States. I was scared knowing what a broken hip can do at that age. I ordered product I had been taking for a few months and knew how well it worked for me, so she started on it and now she is 95.5! Still living at home and taking her shakes every day. I know it isn't MS but the desire for your mom to live out her life is the same as my desire. God bless you!
I have a lot of the same concerns as you I got diagnosed this year and should’ve been diagnosed a few years sooner because there are things that makes sense now just because you’re optimistic doesn’t mean you shouldn’t say it I’m hoping in five years I can talk like you
It’s horrible to think about what we should have known and what could have been prevented… hence the importance of raising awareness 💪🏻🧡
Seb, how do you deal with the loss of what your mind and body could do? I got the diagnose about 10 years ago. Used to be a classical ballet dancer and the spasms, loss of balance, double vision and feeling that my body is not mine but someone else is controling it. I still get angry and frustrated (which has an efect on my boyfriendaswell). Did mindfulness, Yoga and therapy. I still get frustrated and angry, loosing my balance and falling to the floor or forgetting where I left my bike keys.
I wander what your experience is and how you deal with these issues?
i get that too, that i dont look disabled just by looking at me until they see me walk and my dizziness. this disease sucks! i don't do very well at night or past 3:00 pm.
I was diagnosed in July 2014 with RRMS. I take Tecfidera 240 twice a day.
Me too.
Seb, I'm new to your channel so forgive me if you already answered this. How much this vlog on CZcams is helping you, regarding both your day to day life and maybe your mental health? Which were your expectations when you started on CZcams?
Btw, I admire how much you share, your attitude and your quiet dignity. Lots of love form Italy!
That person with the bad comment maybe they are just I a bad place right now and taking it out on others. I also have a question, how is your liver still?
In what form is your medical marijuana? ( BTW, your powerful message does not require a music track! )
What about the Coimbra treatment? Did you move forward with it? If you stopped, why you did so?
Check my latest video ;)
That's horrible to say you can't speak.... 😔🙏 I have this problem with my lupus.... I wish you well
Supposed to start G soon.
My jaw really dropped when you brought attention to that person who made that insensitive comment. It's a bit crazy to hear how ignorant someone even *with* the disease can be.
It's infuriating! Thanks for your support :)
Have you ever tried medicinal mushrooms
People that suffer from an inmune disorder should not go through stressful situations and need to exercise and eat a very healthy diet. If you work you won't be able to take good care of yourself and the stress at work would trigger your bad symptons
seb,,,my name is mark i live near detroit i U S A ,your story id very much like mine,,,i`m about to turn 61 years,,yhe older you get the harder it gets,sorry to tell you that,,,but don`t worry about other people say,,thats there story,,,not your,,do your besr
Is anyone here got better treatments for bowel movement control
My hands shake so intensly when i am nervious ... I never use a pen for writing now and i used to like calligraphy. I also climb the ladder so sloly to avoid tripping.. I dont use a medicine as i choose not to.. I dont know but i am afraid that i may get an attack. I would appreciate if someone share his experience if he choose not to take medicine... Thanx feb for sharing and congrats🌹
It's so hard to watch one's old self fade away :( but stay strong and remember you will always find the creativity to find ways around it ;)
@@LifeofSebMS indeed sir.. Thanks for support❤
Good for you.. I’m proud.. I have not tried medical marijuana I have more lesions than the Dr can count in my brain and before I started ocrevus and spine and I have to have the infusion every 6 months
I have a disabled plate on my car and people think y am I parking In a disabled spot my saying is “I have MS,MS does not have me”!
Natalie Cole is the baby in the photo yours? How are you doing
Medical marijuana is legal in Ontario Canada as well. My sister and a good friend has MS. Must ask them if they have tried it.
It will help for sure 🙏🏻🧡
Do you feel stiff using your fingers? I cannot write cuz of that feeling!! Are you still using vitamin D3? How do you use marijuana? Is it description by your doctor?
Hey Da-Lava, my fingers do feel stiff! However, the marijuana has helped with that. Check my latest video for a more thorough answer to this question ;)
Which medical marijuana configuration are you using? You look good, sound great!!
I'm new to your channel.
I'm also new to an MS diagnosis myself. April of this year. I've been on the medicine Baclofen since I was diagnosed because I had uncontrollable spasms. Since taking this medicine I've had zero. I don't know if you've heard of this medicine ? maybe you should try it
The music was too loud and was distracting but in all not necessary
How can we connect with you more? Do you have Facebook, Instagram, an e-mail etc.?
Check my latest video for an answer to your question ;)
Vitamin d did something for you?
Please write the scientific name of your medication that you took!?
Hello handsome ❤️
I am sending you positive thoughts for recovery. You can do it ...I am using Dr Joe Dispenzas method and doing better and better . I wish same for you . Blessings !💚💚💚
What is illness to the body of a Knight-Errant? What matter wounds? For each time he falls he shall rise again and WOE TO THE WICKED!
It’s ok to be upset and sad.,,,, auto immune disease is hard and MS is hard. But think about this. MS patient will have nearly normal life expectancy, it impacts the quality of life but compared with tumors and cancers. We are lucky.
You’re right 🧡
The music is irritating but otherwise 👍
Not partying is not something that you should do all the time anyway so you really can't contribute that to having MS. Everyone who has a brain knows that they can't do that when they start to get older. The people that don't end up dead or have serious problems later in life from drinking.
Party on dude ;-0 sorry, just picking on you. Comments on the "but you don't look sick" type of comment or thinking you aren't entitled to "owning" MS because you don't look sick enough! seriously? You think we would take MS advice from someone was obviously not doing well? People do not know or would not be able to guess that I have MS unless they have neurological training and experience. Afterall only like 1 in 1000 people have MS so the would more likely think I am drunk or high ;-0
Please write the scientific name of your medication that you took!?