Dr. Boster - I was diagnosed today with MS. You’ve helped me prepare for this appointment the last 4 months. Thank you for giving me knowledge and calmness so that I could truly have a dialogue with my new neurologist. At the end of the appointment she cautioned me about reading everything I find on MS on the Internet, as you have done. I told her that I’ve landed on a neurologist from Ohio. I watch every one of his videos carefully. Dr. Aaron Boster. She smiled quickly (as I could see on my computer monitor). “Oh he’s fantastic! I’ve seen him present in person. He’s a wonderful source of MS information! I am thrilled you found Aaron.” Thank you. I’ll be sticking around.
I just wanted to to say THANK YOU doctor. I was diagnosed last month. The doctor told me with his back to me “You have 3 legions on your brain, you have MS”. No explanation after that, he walked out the room. Your videos have been my explanation until my appointment with a specialist. From the bottom of my heart,thank you for helping inform me. All the best!
Thank you for doing this, I was diagnosed in October and have had a horrible time trying to cope. After finding your videos and binge watching I feel a lot better emotionally and mentally knowing more information. Seriously, thank you. Will, San Fransico California
You are welcome Will. No one was around to help my family when my Uncle was diagnosed with MS. It makes me feel great to think that I can help someone else and their family. Not to mention, someone impacted by MS on the other side of the country! TY for watching and TY for supporting the channel with your comment! #WeHaveMS
If I may add something that may help you cope with MS. We must first mourn the loss of our old self. What I mean by that is we do things differently now than before so go with the flow. Ask for help and find new ways to do things. Know that you are not alone. Talk to a friend or someone close to you often let them know how you're feeling. Most importantly listen to your doctors ask questions, cut out bad habits if you have any exercise and drink lots of water. Hope this helps buddy.
Hi Will, I was also diagnosed in October and totally flipped my world. As a Personal Trainer I went from teaching 17 Bootcamps/week to MS and all it’s hurdles? It’s taking me a while to re-adjust my life and totally understand what you’re going through. What’s helping me cope is learning as much as I can about MS and my individual symptoms, doing everything possible to strengthen myself. Eating super clean and green Makes a huge difference! I’m binge-learning from Dr Aaron also which is a huge dose of hope and so appreciated! Together “we can make MS as boring as diabetes” Dr Aaron We can do it!
@@bellatopiaaa8397 I'm 40 and just got out of hospital and was diagnosed. I was racing people at the ice arena skating backwards around the rink 2 weeks ago. 10 days ago my waist down began going numb then arms and hands. Hard stuff. All the best to you. This is hard to think about.
I'm counting the days until my first neurological appointment. My PCP and I suspect MS. I am a psychologist, and in discovering Dr. Boster's videos, I've discovered that I'm suffering from "doctor envy". I so wish this extraordinary man was my doctor. Dr. Boster, I am grateful, both personally and professionally, for the way you educate, motivate, and care for your patients and the wider audience. Thank you for all you do and thank you for being you. ❤
The impact of being newly diagnosed is unavoidable . But then I have to combine that, with the knowledge that I've been dealing with this for many years . And as someone newly diagnosed . One of the most difficult things for me to wrap my head around . Is how long my illness has gone untreated . I am having difficulty looking at my situation, excepting my situation. And then making decisions about my situation. And somehow in this process, I am not finding the light at the end of this tunnel . In my isolation, these videos have become a source of education and reassurance . They somehow also allow me to feel connected while at the same time completely disconnected . Thank you for your efforts to do these videos. As they are offering me and everyone watching them. A glimmer of light.
Please help me Sammi. Please pass this video along to friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
I’m so happy to have seen this video. I’m 16 and got diagnosed with ms last month, right at the start of school. When I first heard of MS I felt relived because it wasent cancer or anything terminal, but in the following days I quickly became anxious and scared of what my future looks like. But friend’s family and my neurologist all helped make me feel better and know this is manageable once I start a DMT. But yea the internet is really a dangerous place when your newly diagnosed, but I’m glad there is people like you on it. Thank you so much!
The chickens are back!!!! The quality of your videos just keep getting fancier and fancier. Haha. We appreciate the work that goes into making this channel. It did take a few years for me to feel comfortable with my diagnosis and just accept it. Now, I love it when it comes up in conversation and I tell someone that I have MS. They always ask a million questions! I love educating people and showing them that I may have MS , but it is not slowing me down!
Right on Maggie Mae! TY for the comments on the videos! I'm trying to up my "videography game" best I can! Mostly learn from watching CZcams videos on how to make better CZcams videos LOL!
Tell you what, I wish they'd had this video 22 years ago when I had my diagnosis. Or 19 years ago when I had my first relapse (a brain stem lesion) and my MS suddenly became super-active. The resources you provide for patients are just what we need to move our lives forward and give us the tools to... live! If you're also a patient, or family or friend of a patient, looking for MS info and you're confused and scared and seeing your life flash before your eyes - then you need to watch the videos from Aaron Boster. He makes MS a lot less scary and a lot more (his word) boring. Boring MS sounds like it would definitely be the best MS to have.
Again great advice! Thank you! When I was first diagnosed, I wish someone would have told me, "It's time to put YOURSELF first." Just like on an airplane, place your own oxygen mask on first, before helping others. People with MS need to practice excellent self-care to manage both physical and emotional issues. It's been the hardest part of my journey. It's imperative to practice self-care from day one, even if the symptoms are minor in order to MAINTAIN current health status and keep this disease BORING. Dr. Boster, tell your patients to be selfish with self-care from day one of the diagnosis.
Excellent advice regarding self care. Please help me Linda, by passing this video along to a few friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
Those first few days, weeks, months and year can be so scary. When I was first diagnosed back In 2008, I was desperate to hear or read ANY stories of hope from patients that had had ms for years that were still walking, thriving, and living their lives as “normally” as possible. I clung to any story of hope. But it wasn’t until I saw you at OSU that I actually FELT hopeful for the first time. It is incredible how much better you feel physically when you start to feel hopeful. In my opinion, This is probably your most valuable video to date! Giving hope and being real about what MS *isnt* (a death sentence among other things) is the most important message a newly diagnosed patient could hear! :)
This is exactly what I needed! I was diagnosed the end of my first year of college and after a few months of countless Dr appts and MRIs I got a diagnosis of clinically isolated syndrome however I have had many more changes and questionable symptoms my dr.s dismiss. Many of my questions and concerns go unanswered and ignored , but this is now my go to this channel,my mind can rest at ease. Thank you !!!
TY Teagan! I'm stoked that my videos help you better understand the disease! #WeHaveMS Happy Holidays! (just to state the obvious: no vid here can ever replace talking to your provider. These vids are only to provide medical education)
I know it was difficult to cope with in the first two years. As depression, anxiety, memory loss,ur attention span decreases alot and the worse is the fatigue....but most of all the ppl around u dnt understand how and what is happening to u because u look normal by appearance... I have lost person I love because he just couldn't understand what is was going through that lead to a stress on our relationship. Anyways life moves on and waits for noone. so do wat makes feel happy and less stressful. Thank you Dr. Aaron.
Thank you for your care and support. I was recently diagnosed and have been struggling with the fear that has come with the diagnosis. my biggest fear is that i am a father of three young children and i am concerned i wont physically be able to keep up with the daily routine. I want to be active and since having the symptoms it has been difficult but bearable. I sometimes find myself thinking negative and i start doubting myself and my capabilities. I am glad i found your videos because i have felt alone through some of this. It is difficult to put into words how i feel physically and understand what i am feeling. You are a blessing and i look forward to your continued support. Thanks again -Zack
I often tell people that the first week, months and year can be a dark place but I think it is a normal process. It does get better with time and understanding. In some of us the MS diagnosis can even be a relieving experience at the time, since it means it's not something much worse. Thanks as always, it's great to have a channel like this with information that is accurate and reassuring to all of us. :P
TY for being such a constant source of support Ichabod. I'm grateful to you for helping share my content on Reddit (I got scolded when I did so myself, opps). I really appreciate you!
I feel very, very blessed to have you for a doctor I know I have the stupid disease but I also have a lot of blessings that keep me going. Thank you for being the man you are. We appreciate you more than words can say. Thank you, doctor b, thank you.❤❤❤
God bless you, Sir. I'm newly diagnosed, and scared out of my wits. I'll consider you a part of my team in understanding and more importantly, fighting this condition. Again,many,many heartfelt thanks. I needed this.
Thank you from the bottom of my heart. I’m newly diagnosed & my Neurologist ordered the MRI’s & Spinal Tap and then said “yeah, you have MS. It’s RRMS, I’ll start you on Ocrevus, you’ll be fine.” That’s it. So grateful for this message. The message I never got. TY
As well as having MS I also run, with my wife, a support group in the UK for newly diagnosed. I will use this video on our page. For those who are newly diagnosed the advice is sound and simple to understand and to those of us who are further on down the line (2-4 years diagnosed) we see we are doing the right thing with this video confirming all we do works. Thank you Dr. Boster! X
Someone newly diagnosed on one of my Facebook sites with questions & concerns and your video popped up and I posted it for her. Total God that this video made some time ago shows up. (I usually post your page as a resource - and you’re friends with my neurologist!)
Doc, this is one of the most important things you could post a video about. I was so lost my first year. Would love to see potentially a mentorship program in your clinic for newly diagnosed. I'd gladly volunteer! Glad to be battling this with you sir!
Hi again, Dr Boster. This made me feel a lot better. I was diagnosed in December. My uncle had the disease and I thought my own MS would mirror his - a very progressive type of MS with complications which led to other illnesses. My uncle had experimental clinical trials. I'm proud of him for paving the way for me and other MS sufferers before he passed away. And I'm extremely grateful to you, Dr Boster, for these videos.
WY Daisy! You can help me by sharing this video with friends, so we can get this message out as many folks newly impacted by MS as possible! #WeHaveMS!
Never subscribed so fast to a channel! Thank you for sharing your wisdom, and for stressing out that no MS patient is comparable to another, this is so important for people to consider, especially when deciding how to treat the disease.
Great video. Thanks for putting this information out there. Despite being diagnosed more than 20 years ago, I learned a thing or two. However, you alluded to the one thing I wish people knew but you didn't specifically say it. That is, not everything is MS related. People who have MS still get all the things that others catch. Not every symptom we experience or add-on disease relates to MS. We still get colds, we can still get things like osteoarthritis, diabetes and thyroid disease. Because we have MS we aren't suddenly immune to all other ailments and MS is not the only explaination. These are independent of MS. I wish people understood that if you have shortness of breath, the most likely reason, may be an upper respiratory infection, just as it was prior to diagnosis. I think this is part of that "filter" you speak of.
Thank you Dr Boster. I was newly diagnosed during lockdown (UK). I am so pleased I found you and your videos. Along with my neurologist and the wonderful MS nurses who have been there throughout this strange time you are my filter!
So glad I found your channel! My fourth neurologist diagnosed me with having MS at end of 2016. The three neurologist before thought I had a stroke and possibly a rare disease called, Hashimotos Encephalopathy. MS was not a front runner, due to my age (51 at the time). I’ve been on Aubagio for two years now without too many issues. My biggest problem with MS is terrible numbness in my toes and my balance is off at times. Other than that, I’m doing OK! 😊
THANK YOU. That was one of the best videos I've ever watched related to MS. Thank you, thank you. It's full of hope and positivity and that is exactly what I need. You strenghtened my decision to start a DMD! 🙏 Have a great day - Océane, a MS warrior from France.
I was diagnosed about two weeks ago, it will at least one month till I get to see someone that is able to prescribe medication. I am really happy to learn that my son is safe.
Thank you Dr Boster for this video. I was recently diagnosed with MS, but other than this channel, I don't have anyone to turn to or who support me through the difficult times (and there have been quite a few ). People tell me it can't be all that bad because I don't look sick. I don't really have anyone I can just talk to who understands what having MS is like and the havoc my body goes through on a daily basis.
Please help me by passing this video along to a few friends Tracey! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
Faige here, best greetings from Jerusalem. I was diagnosed a few months ago with MS, though I've probably had it for the past ten years. In 2009 I arrived in the emergency room with tingling and numbness up to the chest, did a spinal mri which somehow only got me a prescription for Lyrica from a senior neurologist, which I didn't take. I'll add that I don't get along with most medications cause of side effects. In 2012 a bus door closed on my leg and tore my ACL and I've been blaming my limping around on that ever since. I managed to be misdiagnosed by everyone from the family doctor to the orthoped to the physiotherapist to the psychiatrists I saw for relief from the anxiety and depression (thank God I never got along with psychiatric medication either, except for benzodiapimines, to which I am hopelessly addicted). A round of outpatient rehab at Hadassah Mount Scopus a year ago included a session with a normal neurologist, who didn't buy the story with the bus door, ordered an immediate mri and the rest is history. I will soon take my second round of Ocrevus, and I eat better and take a slew of supplements. Most important, I have a strong team of community, caretakers, 5 married kids and 22 cute grandchildren, a large extended family who blamed my anxiety on my abusive marriage situation (I'm now 55 and divorced). Ironically, I'm starting to be blessed with some complacency: it was God's will that everyone including me become deaf, dumb and blind and that I managed to limp around for 10 years. Your explanations are very helpful. Tip: after a while of taking LDN, though I was cynical at first, I now attribute to it a decent night's sleep. Thanks for reading my story. I'd love to hear your reply. Regards from Jerusalem, Faige Glasomitsky, email address faigeglasomitsky@gmail.com, tel. 972 2 5710632.
I sure wish I had found something like this whenI was diagnosed! I discovered you via Stuart at MS News and Views. You were the first doctor that I heard say something uplifting about being Dx with MS. Your sense of humor really made me feel better! And your availability now to answer questions has given me ammunition for dealing with uncaring providers!
Love it! Thank you! I’m a little over a year into diagnosis of Multiple Sclerosis (MS). Currently I’m on Rituxan of course to treat Rheumatoid Arthritis (RA) and off label for MS. It works for me! I’m in remission from them both! I have no RA flares or breakthrough MS brain lesions. This video was so helpful and reminds me of the importance of treatment. Thanks again!
Thank you, doctor b, you are the best doctor in the world. Most caring loving smart on my side on your patient side. Being our advocate, I appreciate you more than words can say. And I thank you for every single thing you do for me. Thank you for helping all of us. W think crazy disease that scares the s*** out of us? But you help us calm down and see what we can do to live a normal life. I thank you from the bottom of my heart for being my doctor I love you. I really do you're a great man!! And the best doctor I've ever been to!! The best doctor in the world!! ❤❤❤
I just passed my 1st year anniversary. It is always on the forefront of my brain. I am a cna and work 8 hours a day on my feet walking with a cane. I know I have had symptoms for many years but it was always said to be my anxiety so I fear I am farther along than known. Thank you for this video. I have drop foot and pains all over and trigger fingers in both hands which I’m not sure is related. I keep going as much as I can.
Keep fighting Patty! If possible, please help me. Please pass this video along to friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
I was diagnosed 4 weeks ago and was feeling a bit down for the past few days - and then I discovered this video! I felt just such a large weight being lifted off my shoulders watching this. Thank you from the bottom of my heart for sharing and making this information accessible to all of us around the world. The way you deliver helpful information is so comforting for us going through this journey. Subscribed and keen r o keep watching and learning with this great community!
Beautiful talk Dr, Thank you Shock comes in stages at onset of symptoms (Though, as you say, not mandatory for everyone) Frequent skips in Thoughts, Words & holds - Suddenly you take an hour to setup a wireless printer Balance issues - Dangerous, slow onset may make you careless - Risk of falls None of the things happen suddenly, I still remember my Dr upon diagnosis asked me to do weekly thrice PT sessions, stop riding motorcycle, take good Insurance etc - No way to realize importance at THAT time
TY for sharing Raguraman. Have you considered compiling your journey and perspectives into a short booklet? I think it would help a LOT of folks. Just a thought.
@@AaronBosterMD I had made one half pager bullet points to give a talk in MS Society here @ Chennai, India - Fate decided me to have a bad day & I skipped the meet, with everyone saying "Don't apologize", Forgotten about it :-) Later saw wonderful bloggers who articulate sequence in Internet viz. shift ms, patients like me, Everydayhealth, Chronic blogs etc
I so appreciate this video. I needed to hear this. A lot of us newly diagnosed MS patients do not have a resource to turn to like this. Your channel is very unique in that you take not only a medical aspect to coping with MS, but also an emotional one as well. Thank You.
YW Sqatch Box! Please help me by sharing this video with friends so we can get this message out as many folks newly impacted by MS as possible! #WeHaveMS!
I'd like to thank you for doing this video. I don't know how I could take MS in a breeze (probably because I'm a person who take things by the day) when I was diagnosed. My husband just became okay with it - like a boring thing, an everyday thing. It's been almost 2 years of MS for me. I regularly do at-home physiotherapy and sometimes do massage that is specific for nerve conditions. I think we have to be strong mentally to be able to overcome some limitations. Hey, I even walked again after a waist-down paralysis. Took me 6 months, but the spirit has to be there. Thanks again, for sharing. I hope this will help those who are more newly diagnosed. At almost 2 years, I'm already bored of clinics and MS.
YW Syazwani! Please help me. Please pass this video along to friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible.
Dr Boster, you are a legend.Thank you so much for the endless support you give all of us with MS. All of your videos are great and informative. Julien from Ireland👋
Thank YOU! I am about to be officially diagnosed at 54. It is a shock. But I determined to face this and live my best life. Thanks for the positivity. I 2ill continue to follow your advice. Merry Christmas!
Diagnosed in June and have seen the nurse Ben waiting since then to start treatment. Server rapidly evolving MS. I've had 4/5 relapses since October. Given nothing to help. I love your channel, it really helps, your an angel ♥️
Thank you for this and all of your videos. I was diagnosed in Oct 2017, and I'm still getting to know this disease. There is so much on the internet about MS, it can be overwhelming. When I found your channel, it was a relief. I think I had three binge sessions over a week and watched all of your videos. It was so calming and you are straightforward. Now when I see something stirring on one of the MS groups, I come check your channel to see if there is a video on it before letting any info dig into my anxieties and ruminate. So, thanks... for this channel and all of the work you do for we who aren't your patients, but receive your insights. Cheers!
Howdy Ravintsara! Please help me. Please pass this video along to friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
Thank you for this video! I think it will help the newly diagnosed. I've been diagnosed for just over a year now. I consider myself kind of lucky. I was a bit unsure and worried when I was first diagnosed and had to go to my PCP for some routine bloodwork. Turns out that the nurse at my PCP's office also has MS. While I wasn't happy that she had MS it was a big comfort knowing someone else who has it and is still living their life. She didn't sugarcoat the disease but it did give me a sense that things are going to be okay and that I would adjust to this "new normal" of mine.
Thank you for being so informative. The doctor I saw, spent no time answering my questions. He just wanted to talk about meds. I am curious if head trauma (domestic violence) can be a potential cause? That is when I noticed speech issues, memory issues, etc. Thankfully my speech returned to normal, though I still have trouble remembering words/names here and there. The trauma was in 2018-2019. My recent MS diagnosis came 01/24/23.
You are truly an amazing person, you and this community give me the strength to keep fighting this annoying disease, and like you said I hope we eventually get to a point where MS becomes boring.
Thank you so much for this video. I was just recently diagnosed and I felt truly defeated after my appointment, as if I had been given a death sentence. Your words of encouragement lightened my load and gave me a bit of courage, strength and determination to learn more; take things one day at a time; and make important lifestyle changes. Thank you again
I have been diagnosed with MS this May, 4 months ago. Even though I have met MS warriors before that moment, that looked like they would go on with their lives normally and with MS under check thanks to new meds, I felt and I'm still feeling perplexed and sad because I am afraid I'll be discriminated at workplace and dating and may bring children with MS later. Your video makes me feel a bit better. I have already started DMT and sooner or later I'll join a local community center.
I suspect an MS diagnosis is in my near future and have been petrified of the unknown. I found your channel and have been watching bits and bobs and ended up subscribing. This video was in my recommended this morning and I am so glad I watched it. I could feel the fear leaving when you said I won’t die *from* it but *with* it. That helped immensely. I can’t thank you enough.
Thank you so much for this amazingly, wonderful, & encouraging video. I was just diagnosed with MS today & I've just been in shock/all over the place but this helped so much. Also, thank you to everyone in the comments for sharing your stories. It also helps to see other people's journeys. Thank you so much again & I hope everyone is doing well💜🙏.
Wow doctor Buster I feel you're caring in this video more than any of your other videos I've seen thus far I really appreciate this so much it's a hard idea to wrap your mind around love the chickens by the way I used to work on a chicken farm with Rhode Island Reds! Also just to add your videos are also caring as well just wanted to say
Sometimes I feel the emotional impact of the diagnosis is the hardest part of this disease. I really appreciate your dedication to your patients and to this CZcams channel!!!
Thank you , Dr. Boster. This was something I needed to hear. No one known in my family, nor in my husbands, has been told they have MS. I found out last week, that this is what I have. Though, I am unsure of it's form. I have gone nearly a year with chronic pain, unable to eat solid foods, my limbs burning/tingling, and I wasn't taken seriously until I finally reached a good PCP and Neuro Physcians. I am starting my Treatment with Tecfidera. I haven't had anyone to sit down and speak with on the matter of MS, nor have an understanding support on the matter. My husband worries, of course, but , it is hard to explain the pain and the symptoms you suffer with and no one around you gets it. I needed to hear that there is a village in which I belong. That I can seek support from and give it to as well. To all of those newly diagnosed, Welcome to the village! We will get through this together!
Thank you very much for this very helpful video. I was just diagnosed 4 weeks ago and have to change all my plans. I was so sad, frustrated and disappointed, but now after watching this I feel better.
I've now seen two of your videos and they are very encouraging. I haven't been diagnosed yet but a week ago I saw my surgeon (who did a complete joint replacement for my right knee) because of the emergence of some odd symptoms that my primary care physician thought might be related to the surgery. The surgeon suspects late onset MS, prescribed a brief course of Prednisone, and is referring me to a neurologist. It takes a long time to get in with a neurologist where I live so I have a bit of a wait ahead of me. I'm so glad to find your channel. I think it's going to help me be patient and not be overtaken by anxiety. Thank you!
Thank you for this video. I will definitely subscribe. I unfortunately am one who is someone with MS abd a daughter of someone with. MS. I’m also one of 5 in my extended family with MS. My dad was actually misdiagnosed (with transverse myelitis) in 2014. After my diagnoses in 2016, my neurologist, an MS specialist in Portland OR, asked to see my dad and was able to change his diagnoses after viewing his MRI. Surprisingly she asked if we have a German background, which we most definitely do.
These kind of videos might helpful to the people who are newly diagnosed as they have many questions in their minds going around. I was diagnosed in 2016 and no one ever heard of this disease(especially in India where not even 1% of total population has it). It was very hard to get any information regarding it and I tried alot to understand and become comfortable. Your videos are very very motivational and helpful Dr. Boster. Thank you so much.
YW Sravani! Please help me by sharing this vid with friends/family. I'm hopeful it can reach the ears of as many folks newly impacted by MS as possible!
Congrats Dr.Boster, very good+nice+useful video indeed, not too short and too long, pretty perfect. That is exactly what was not available online (as far as my google says) and everybody has been looking for. One suggestion though, when mentioning twins with MS it seems to me very important to stress the fact, that in case of identical twins, only 1 in 5 cases both develop MS (while in the other 4 cases just one sibling has MS) - so even with exactly the same set of genes and a pretty similar lifestyle (general area, sunlight, water, food, etc.) it is not a done deal (rather a mystery, actually).
Right on Martin! Please help me. Please pass this video along to friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
Thanks Dr. Boster, this was a helpful video that gives me some hope. I was thinking about my future with my projects and had little hope. CZcams and your videos make a big difference in my life. Thank you for your help and time.
THANK YOU Dr.!!! I Appreciate your empathy to our condition and your compassion for everything that we are going through. I follow your channel and I look forward to your insight. Having already gone through Cancer treatments, I feel that I have a leg up on the acceptance when I was diagnosed yet I am constantly looking for MS information and I feel that your up to date, level headed and professional approach to this disease has Really helped me...Thank You!
Before I was officially diagnosed, I was seeing a neuro who basically refused to diagnose me because I had 1 symptom. He also didn't "recognize" my lesions because they weren't bright white spots and ignored the spinal tap showing 11 oligoclonal bands in my spinal fluid. And even after all that wanted to put me on medication but only gave me 3 options. I had 2 relapses on copaxone. I do have a new neuro who couldn't believe what the first one told me and got me on the right path. Been on aubagio since 2018 and haven't had a relapse since.
This was very reassuring after a few months of getting Mris and a spinal tap i thought i had prepped nyself for the duganose until i got it today and shit absolutely broke me uncontrollably crying and sobbing. I dont remeber the last tome i ever cried and ive been shot and didnt cry but the fear has been overwhelming. This really helped me get my act back together in terms of optimism
Dr boster I’m from Australia was diagnosed with Ms 4 mths ago 2021. I live alone and still finding it difficult to accept especially when at the moment am relapsing and in pain. My neurologist is 4 hrs away that makes it hard. Will keep tuning in to you hoping you can make my journey a lot easier to accept.
I was diagnosed 3 Augusto 2018 and I didn’t stress out until my mother tryed to live my MS thru me. My father died from ALS. And she always sais I coudn’t have it without knowing what was just thru crazy things. I made the ice chalenge for help people listen more things and when I start to work my page on FB with Tapping for a smile I found my first vídeos with MS that I told for her to see and she never listen to me and just good to say that I’m not good enoight acuse me of everyrthing. I don’t need time to live with MS just need space to learn to know how works and when I only start to listen to my feellings, to you and my Dr I start to get better and better results. My mom put me on bed and still don’t admit that because for her help is take what you want and arrast the person how you want. Now try it And I don’t do it anymore and complain I am bad for her. I am tired of her not the MS. And thanks for your vídeos Dc Boster Love them and some helo remember things that we forgot
YW Swati! Hey, here's a to action: Please share this with friends so we can get this message out as many folks newly impacted by MS as possible! #WeHaveMS!
Thanks Dr B! I’m in my first year so super helpful! My moms an identical twin as luck should have it both their daughters (my cousin and I) have been diagnosed recently with her the year before me. We both have different paths (which my mom struggles to understand sometimes) I am lucky So far my ms has been pretty boring! And I’m hoping when I get to start the DMT it will remain this boring! But I know how fortunate I am to be stable and boring so far! I’m also thankful for the community here as some online communities can be medical “competitions” and can be a really scary place for the newly diagnosed. So thank you for this community and the education you provide!
You're welcome L C! Please help me by passing this video along to a few friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
Thanks, so much for posting this video; more comforting than you may imagine. I was just diagnosed on November 9th and really didn't have the chance to ask many questions... Thank you.
Was diagnosed 2 weeks ago and had to be admitted right away for steroid infusions. My neurologist team seem to really be on top of it right now. I was told that your channel would be very helpful. My next step is to make my boss understand that I can still work since my abilities are being questioned.
O wow I love this so much... I am just over one year diagnosed... and this week I am one year on a DMD. Watching this just helped my self confidence so much. Thank you for taking the time to share... I found your channel a year in... but wasn’t ready for it until I found it!!
Aaron Boster MD just rewatched! One to two years.... made me feel so good just to hear that said. The moments get better and better - increasingly more good ones than bleh ones. That said, hearing that it’s ‘normal’ to still be getting comfy in my skin 14 months since DX.... thanks for the reply too - big smile here 🙂
TY Mario, and I could use your help! A Call to action: Please share this with friends so we can get this message out as many folks newly impacted by MS as possible! #WeHaveMS!
Dr. Boster - I was diagnosed today with MS. You’ve helped me prepare for this appointment the last 4 months. Thank you for giving me knowledge and calmness so that I could truly have a dialogue with my new neurologist. At the end of the appointment she cautioned me about reading everything I find on MS on the Internet, as you have done. I told her that I’ve landed on a neurologist from Ohio. I watch every one of his videos carefully. Dr. Aaron Boster. She smiled quickly (as I could see on my computer monitor). “Oh he’s fantastic! I’ve seen him present in person. He’s a wonderful source of MS information! I am thrilled you found Aaron.” Thank you. I’ll be sticking around.
Susan, thank you for sharing this - it makes me feel great and inspires me to keep at it! #StrongerTogether
Dr Boster is a rock star!
I just wanted to to say THANK YOU doctor. I was diagnosed last month. The doctor told me with his back to me “You have 3 legions on your brain, you have MS”. No explanation after that, he walked out the room. Your videos have been my explanation until my appointment with a specialist. From the bottom of my heart,thank you for helping inform me. All the best!
Thank you. I was just diagnosed this morning over the phone and it was brutal.
Thank you for doing this, I was diagnosed in October and have had a horrible time trying to cope. After finding your videos and binge watching I feel a lot better emotionally and mentally knowing more information. Seriously, thank you. Will, San Fransico California
You are welcome Will. No one was around to help my family when my Uncle was diagnosed with MS. It makes me feel great to think that I can help someone else and their family. Not to mention, someone impacted by MS on the other side of the country! TY for watching and TY for supporting the channel with your comment! #WeHaveMS
If I may add something that may help you cope with MS. We must first mourn the loss of our old self. What I mean by that is we do things differently now than before so go with the flow. Ask for help and find new ways to do things. Know that you are not alone. Talk to a friend or someone close to you often let them know how you're feeling. Most importantly listen to your doctors ask questions, cut out bad habits if you have any exercise and drink lots of water. Hope this helps buddy.
Hi Will, I was also diagnosed in October and totally flipped my world. As a Personal Trainer I went from teaching 17 Bootcamps/week to MS and all it’s hurdles? It’s taking me a while to re-adjust my life and totally understand what you’re going through. What’s helping me cope is learning as much as I can about MS and my individual symptoms, doing everything possible to strengthen myself. Eating super clean and green Makes a huge difference!
I’m binge-learning from Dr Aaron also which is a huge dose of hope and so appreciated!
Together “we can make MS as boring as diabetes” Dr Aaron
We can do it!
@@bellatopiaaa8397 I'm 40 and just got out of hospital and was diagnosed. I was racing people at the ice arena skating backwards around the rink 2 weeks ago. 10 days ago my waist down began going numb then arms and hands. Hard stuff. All the best to you. This is hard to think about.
I wish my neurologist was as caring as you!!! I wish you were my neurologist, thank you for your kind words of encouragement!!!!
I'm counting the days until my first neurological appointment. My PCP and I suspect MS. I am a psychologist, and in discovering Dr. Boster's videos, I've discovered that I'm suffering from "doctor envy". I so wish this extraordinary man was my doctor. Dr. Boster, I am grateful, both personally and professionally, for the way you educate, motivate, and care for your patients and the wider audience. Thank you for all you do and thank you for being you. ❤
Hi Doctor Wagner. Did you receive a diagnosis yet? I hope you are well.
The impact of being newly diagnosed is unavoidable . But then I have to combine that, with the knowledge that I've been dealing with this for many years . And as someone newly diagnosed . One of the most difficult things for me to wrap my head around . Is how long my illness has gone untreated . I am having difficulty looking at my situation, excepting my situation. And then making decisions about my situation. And somehow in this process, I am not finding the light at the end of this tunnel . In my isolation, these videos have become a source of education and reassurance . They somehow also allow me to feel connected while at the same time completely disconnected . Thank you for your efforts to do these videos. As they are offering me and everyone watching them. A glimmer of light.
Please help me Sammi. Please pass this video along to friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
I’m so happy to have seen this video. I’m 16 and got diagnosed with ms last month, right at the start of school. When I first heard of MS I felt relived because it wasent cancer or anything terminal, but in the following days I quickly became anxious and scared of what my future looks like. But friend’s family and my neurologist all helped make me feel better and know this is manageable once I start a DMT. But yea the internet is really a dangerous place when your newly diagnosed, but I’m glad there is people like you on it. Thank you so much!
I hope you are as well as can be young man. 👍 ❤
The chickens are back!!!! The quality of your videos just keep getting fancier and fancier. Haha. We appreciate the work that goes into making this channel. It did take a few years for me to feel comfortable with my diagnosis and just accept it. Now, I love it when it comes up in conversation and I tell someone that I have MS. They always ask a million questions! I love educating people and showing them that I may have MS , but it is not slowing me down!
Right on Maggie Mae! TY for the comments on the videos! I'm trying to up my "videography game" best I can! Mostly learn from watching CZcams videos on how to make better CZcams videos LOL!
Tell you what, I wish they'd had this video 22 years ago when I had my diagnosis. Or 19 years ago when I had my first relapse (a brain stem lesion) and my MS suddenly became super-active. The resources you provide for patients are just what we need to move our lives forward and give us the tools to... live!
If you're also a patient, or family or friend of a patient, looking for MS info and you're confused and scared and seeing your life flash before your eyes - then you need to watch the videos from Aaron Boster. He makes MS a lot less scary and a lot more (his word) boring. Boring MS sounds like it would definitely be the best MS to have.
Again great advice! Thank you! When I was first diagnosed, I wish someone would have told me, "It's time to put YOURSELF first." Just like on an airplane, place your own oxygen mask on first, before helping others. People with MS need to practice excellent self-care to manage both physical and emotional issues. It's been the hardest part of my journey. It's imperative to practice self-care from day one, even if the symptoms are minor in order to MAINTAIN current health status and keep this disease BORING. Dr. Boster, tell your patients to be selfish with self-care from day one of the diagnosis.
Excellent advice regarding self care. Please help me Linda, by passing this video along to a few friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
Aaron Boster MD I will definitely do that. Thanks again for all you do.
Those first few days, weeks, months and year can be so scary. When I was first diagnosed back In 2008, I was desperate to hear or read ANY stories of hope from patients that had had ms for years that were still walking, thriving, and living their lives as “normally” as possible. I clung to any story of hope. But it wasn’t until I saw you at OSU that I actually FELT hopeful for the first time. It is incredible how much better you feel physically when you start to feel hopeful. In my opinion, This is probably your most valuable video to date! Giving hope and being real about what MS *isnt* (a death sentence among other things) is the most important message a newly diagnosed patient could hear! :)
Right on and TY Charity! I'm hopeful I can reach as many folks recently diagnosed with MS as possible!
This is exactly what I needed! I was diagnosed the end of my first year of college and after a few months of countless Dr appts and MRIs I got a diagnosis of clinically isolated syndrome however I have had many more changes and questionable symptoms my dr.s dismiss. Many of my questions and concerns go unanswered and ignored , but this is now my go to this channel,my mind can rest at ease. Thank you !!!
TY Teagan! I'm stoked that my videos help you better understand the disease! #WeHaveMS Happy Holidays! (just to state the obvious: no vid here can ever replace talking to your provider. These vids are only to provide medical education)
Teagan Miller j
I wonder what kimd of symproms you have? I also have benign type so far
I know it was difficult to cope with in the first two years. As depression, anxiety, memory loss,ur attention span decreases alot and the worse is the fatigue....but most of all the ppl around u dnt understand how and what is happening to u because u look normal by appearance... I have lost person I love because he just couldn't understand what is was going through that lead to a stress on our relationship. Anyways life moves on and waits for noone. so do wat makes feel happy and less stressful. Thank you Dr. Aaron.
I want say THANK YOU!!! It's been driving me nuts. I been worrying and even a little bit scared. You are a blessing to me. Thank you! Big Help!🎆🎆🎆🎆🎆🎆
YW Abby! #WeHaveMS
Thank you for your care and support. I was recently diagnosed and have been struggling with the fear that has come with the diagnosis. my biggest fear is that i am a father of three young children and i am concerned i wont physically be able to keep up with the daily routine. I want to be active and since having the symptoms it has been difficult but bearable. I sometimes find myself thinking negative and i start doubting myself and my capabilities. I am glad i found your videos because i have felt alone through some of this. It is difficult to put into words how i feel physically and understand what i am feeling. You are a blessing and i look forward to your continued support. Thanks again -Zack
I often tell people that the first week, months and year can be a dark place but I think it is a normal process. It does get better with time and understanding. In some of us the MS diagnosis can even be a relieving experience at the time, since it means it's not something much worse. Thanks as always, it's great to have a channel like this with information that is accurate and reassuring to all of us. :P
TY for being such a constant source of support Ichabod. I'm grateful to you for helping share my content on Reddit (I got scolded when I did so myself, opps). I really appreciate you!
I feel very, very blessed to have you for a doctor I know I have the stupid disease but I also have a lot of blessings that keep me going. Thank you for being the man you are. We appreciate you more than words can say. Thank you, doctor b, thank you.❤❤❤
I wish I would have gotten my diagnosis from a doctor like yourself! Your humanity shines through!!!
God bless you, Sir.
I'm newly diagnosed, and scared out of my wits.
I'll consider you a part of my team in understanding and more importantly, fighting this condition.
Again,many,many heartfelt thanks. I needed this.
Thank you from the bottom of my heart. I’m newly diagnosed & my Neurologist ordered the MRI’s & Spinal Tap and then said “yeah, you have MS. It’s RRMS, I’ll start you on Ocrevus, you’ll be fine.” That’s it. So grateful for this message. The message I never got. TY
As well as having MS I also run, with my wife, a support group in the UK for newly diagnosed. I will use this video on our page. For those who are newly diagnosed the advice is sound and simple to understand and to those of us who are further on down the line (2-4 years diagnosed) we see we are doing the right thing with this video confirming all we do works. Thank you Dr. Boster! X
TY for helping get this message out to the newly diagnosed Flood & Fidler!
Someone newly diagnosed on one of my Facebook sites with questions & concerns and your video popped up and I posted it for her. Total God that this video made some time ago shows up. (I usually post your page as a resource - and you’re friends with my neurologist!)
Doc, this is one of the most important things you could post a video about. I was so lost my first year. Would love to see potentially a mentorship program in your clinic for newly diagnosed. I'd gladly volunteer!
Glad to be battling this with you sir!
TY Matt AND right on! Let's touch base with Traci our amazing Social Worker and brainstorm!
Hi again, Dr Boster. This made me feel a lot better. I was diagnosed in December. My uncle had the disease and I thought my own MS would mirror his - a very progressive type of MS with complications which led to other illnesses. My uncle had experimental clinical trials. I'm proud of him for paving the way for me and other MS sufferers before he passed away. And I'm extremely grateful to you, Dr Boster, for these videos.
WY Daisy! You can help me by sharing this video with friends, so we can get this message out as many folks newly impacted by MS as possible! #WeHaveMS!
A Champion. A hero
Thank you, still waiting on final diagnosis, but I'm prepared I think.
Thanks Dr Boster. Love your videos and so glad i found your channel, so i can live long and prosper
You Got This!!
Never subscribed so fast to a channel! Thank you for sharing your wisdom, and for stressing out that no MS patient is comparable to another, this is so important for people to consider, especially when deciding how to treat the disease.
Great video. Thanks for putting this information out there. Despite being diagnosed more than 20 years ago, I learned a thing or two. However, you alluded to the one thing I wish people knew but you didn't specifically say it. That is, not everything is MS related. People who have MS still get all the things that others catch. Not every symptom we experience or add-on disease relates to MS. We still get colds, we can still get things like osteoarthritis, diabetes and thyroid disease. Because we have MS we aren't suddenly immune to all other ailments and MS is not the only explaination. These are independent of MS. I wish people understood that if you have shortness of breath, the most likely reason, may be an upper respiratory infection, just as it was prior to diagnosis. I think this is part of that "filter" you speak of.
Howdy Susan! You highlight a most excellent point! TY!
So much more insightful than my doctor
You are my go-to for anything MS!
Thank you Dr Boster. I was newly diagnosed during lockdown (UK). I am so pleased I found you and your videos. Along with my neurologist and the wonderful MS nurses who have been there throughout this strange time you are my filter!
So glad I found your channel!
My fourth neurologist diagnosed me with having MS at end of 2016. The three neurologist before thought I had a stroke and possibly a rare disease called, Hashimotos Encephalopathy. MS was not a front runner, due to my age (51 at the time). I’ve been on Aubagio for two years now without too many issues. My biggest problem with MS is terrible numbness in my toes and my balance is off at times. Other than that, I’m doing OK! 😊
Glad you're doing OK April! Here's a playlist on balance: czcams.com/video/YmHOgkXfJvQ/video.html
THANK YOU. That was one of the best videos I've ever watched related to MS. Thank you, thank you. It's full of hope and positivity and that is exactly what I need. You strenghtened my decision to start a DMD! 🙏 Have a great day - Océane, a MS warrior from France.
Cela me fait grand plasir Oceane! Merci pour avoir regarder!
I was diagnosed about two weeks ago, it will at least one month till I get to see someone that is able to prescribe medication. I am really happy to learn that my son is safe.
Thank you Dr Boster for this video. I was recently diagnosed with MS, but other than this channel, I don't have anyone to turn to or who support me through the difficult times (and there have been quite a few ). People tell me it can't be all that bad because I don't look sick. I don't really have anyone I can just talk to who understands what having MS is like and the havoc my body goes through on a daily basis.
Please help me by passing this video along to a few friends Tracey! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
Thank you I'm in tears God bless you this is new 🙏 💛
Faige here, best greetings from Jerusalem. I was diagnosed a few months ago with MS, though I've probably had it for the past ten years. In 2009 I arrived in the emergency room with tingling and numbness up to the chest, did a spinal mri which somehow only got me a prescription for Lyrica from a senior neurologist, which I didn't take. I'll add that I don't get along with most medications cause of side effects. In 2012 a bus door closed on my leg and tore my ACL and I've been blaming my limping around on that ever since. I managed to be misdiagnosed by everyone from the family doctor to the orthoped to the physiotherapist to the psychiatrists I saw for relief from the anxiety and depression (thank God I never got along with psychiatric medication either, except for benzodiapimines, to which I am hopelessly addicted). A round of outpatient rehab at Hadassah Mount Scopus a year ago included a session with a normal neurologist, who didn't buy the story with the bus door, ordered an immediate mri and the rest is history.
I will soon take my second round of Ocrevus, and I eat better and take a slew of supplements. Most important, I have a strong team of community, caretakers, 5 married kids and 22 cute grandchildren, a large extended family who blamed my anxiety on my abusive marriage situation (I'm now 55 and divorced). Ironically, I'm starting to be blessed with some complacency: it was God's will that everyone including me become deaf, dumb and blind and that I managed to limp around for 10 years. Your explanations are very helpful. Tip: after a while of taking LDN, though I was cynical at first, I now attribute to it a decent night's sleep. Thanks for reading my story. I'd love to hear your reply. Regards from Jerusalem, Faige Glasomitsky, email address faigeglasomitsky@gmail.com, tel. 972 2 5710632.
TY for sharing with us Faige! You are NOT alone! #WeHaveMS
Thank you. My dx was 2002. Having a resource like this in 2002 would have made the early year's much easier.
TY for sharing that Tim. I feel like we're both working to change that!
I sure wish I had found something like this whenI was diagnosed! I discovered you via Stuart at MS News and Views. You were the first doctor that I heard say something uplifting about being Dx with MS. Your sense of humor really made me feel better! And your availability now to answer questions has given me ammunition for dealing with uncaring providers!
right on Michael! #WeHaveMS
Love it! Thank you! I’m a little over a year into diagnosis of Multiple Sclerosis (MS). Currently I’m on Rituxan of course to treat Rheumatoid Arthritis (RA) and off label for MS. It works for me! I’m in remission from them both! I have no RA flares or breakthrough MS brain lesions. This video was so helpful and reminds me of the importance of treatment. Thanks again!
Thank you, doctor b, you are the best doctor in the world. Most caring loving smart on my side on your patient side. Being our advocate, I appreciate you more than words can say. And I thank you for every single thing you do for me. Thank you for helping all of us. W think crazy disease that scares the s*** out of us? But you help us calm down and see what we can do to live a normal life. I thank you from the bottom of my heart for being my doctor I love you. I really do you're a great man!! And the best doctor I've ever been to!! The best doctor in the world!! ❤❤❤
I just passed my 1st year anniversary. It is always on the forefront of my brain. I am a cna and work 8 hours a day on my feet walking with a cane. I know I have had symptoms for many years but it was always said to be my anxiety so I fear I am farther along than known. Thank you for this video. I have drop foot and pains all over and trigger fingers in both hands which I’m not sure is related. I keep going as much as I can.
Keep fighting Patty! If possible, please help me. Please pass this video along to friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
I was diagnosed 4 weeks ago and was feeling a bit down for the past few days - and then I discovered this video! I felt just such a large weight being lifted off my shoulders watching this. Thank you from the bottom of my heart for sharing and making this information accessible to all of us around the world. The way you deliver helpful information is so comforting for us going through this journey. Subscribed and keen r o keep watching and learning with this great community!
Beautiful talk Dr, Thank you
Shock comes in stages at onset of symptoms (Though, as you say, not mandatory for everyone)
Frequent skips in Thoughts, Words & holds - Suddenly you take an hour to setup a wireless printer
Balance issues - Dangerous, slow onset may make you careless - Risk of falls
None of the things happen suddenly, I still remember my Dr upon diagnosis asked me to do weekly thrice PT sessions, stop riding motorcycle, take good Insurance etc - No way to realize importance at THAT time
TY for sharing Raguraman. Have you considered compiling your journey and perspectives into a short booklet? I think it would help a LOT of folks. Just a thought.
@@AaronBosterMD I had made one half pager bullet points to give a talk in MS Society here @ Chennai, India - Fate decided me to have a bad day & I skipped the meet, with everyone saying "Don't apologize", Forgotten about it :-)
Later saw wonderful bloggers who articulate sequence in Internet viz. shift ms, patients like me, Everydayhealth, Chronic blogs etc
Thank you Dr Boster
I so appreciate this video. I needed to hear this. A lot of us newly diagnosed MS patients do not have a resource to turn to like this. Your channel is very unique in that you take not only a medical aspect to coping with MS, but also an emotional one as well. Thank You.
YW Sqatch Box! Please help me by sharing this video with friends so we can get this message out as many folks newly impacted by MS as possible! #WeHaveMS!
Thank you doc. Just diagnosed and worried. This helps, a good start.
I'd like to thank you for doing this video. I don't know how I could take MS in a breeze (probably because I'm a person who take things by the day) when I was diagnosed. My husband just became okay with it - like a boring thing, an everyday thing. It's been almost 2 years of MS for me. I regularly do at-home physiotherapy and sometimes do massage that is specific for nerve conditions. I think we have to be strong mentally to be able to overcome some limitations. Hey, I even walked again after a waist-down paralysis. Took me 6 months, but the spirit has to be there. Thanks again, for sharing. I hope this will help those who are more newly diagnosed. At almost 2 years, I'm already bored of clinics and MS.
YW Syazwani! Please help me. Please pass this video along to friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible.
Took me 5 years but I'm doing ok with it now. You have helped so much. Tysabri is amazing, last mri said no evidence of new activity.
Dr Boster, you are a legend.Thank you so much for the endless support you give all of us with MS. All of your videos are great and informative. Julien from Ireland👋
Thank YOU! I am about to be officially diagnosed at 54. It is a shock. But I determined to face this and live my best life. Thanks for the positivity. I 2ill continue to follow your advice. Merry Christmas!
Diagnosed in June and have seen the nurse Ben waiting since then to start treatment. Server rapidly evolving MS. I've had 4/5 relapses since October. Given nothing to help. I love your channel, it really helps, your an angel ♥️
Thank you for this and all of your videos. I was diagnosed in Oct 2017, and I'm still getting to know this disease. There is so much on the internet about MS, it can be overwhelming. When I found your channel, it was a relief. I think I had three binge sessions over a week and watched all of your videos. It was so calming and you are straightforward. Now when I see something stirring on one of the MS groups, I come check your channel to see if there is a video on it before letting any info dig into my anxieties and ruminate. So, thanks... for this channel and all of the work you do for we who aren't your patients, but receive your insights. Cheers!
Howdy Ravintsara! Please help me. Please pass this video along to friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
I'm happy to pass your videos along! I do tend to post your videos as comment responses to questions I see pop up in the MS Facebook groups.
Fire Video Dr. 🔥
Thank you for this video! I think it will help the newly diagnosed. I've been diagnosed for just over a year now. I consider myself kind of lucky. I was a bit unsure and worried when I was first diagnosed and had to go to my PCP for some routine bloodwork. Turns out that the nurse at my PCP's office also has MS. While I wasn't happy that she had MS it was a big comfort knowing someone else who has it and is still living their life. She didn't sugarcoat the disease but it did give me a sense that things are going to be okay and that I would adjust to this "new normal" of mine.
right on Erin!
Thank you for being so informative. The doctor I saw, spent no time answering my questions. He just wanted to talk about meds. I am curious if head trauma (domestic violence) can be a potential cause? That is when I noticed speech issues, memory issues, etc. Thankfully my speech returned to normal, though I still have trouble remembering words/names here and there. The trauma was in 2018-2019. My recent MS diagnosis came 01/24/23.
You are truly an amazing person, you and this community give me the strength to keep fighting this annoying disease, and like you said I hope we eventually get to a point where MS becomes boring.
Goal = Make MS Boring!
Thank you so much for this video. I was just recently diagnosed and I felt truly defeated after my appointment, as if I had been given a death sentence. Your words of encouragement lightened my load and gave me a bit of courage, strength and determination to learn more; take things one day at a time; and make important lifestyle changes. Thank you again
You brought up tears when saying " ..you have me.."
I have been diagnosed with MS this May, 4 months ago. Even though I have met MS warriors before that moment, that looked like they would go on with their lives normally and with MS under check thanks to new meds, I felt and I'm still feeling perplexed and sad because I am afraid I'll be discriminated at workplace and dating and may bring children with MS later.
Your video makes me feel a bit better. I have already started DMT and sooner or later I'll join a local community center.
I love ur videos it helps me get through recently being diagnosed with ms.
I suspect an MS diagnosis is in my near future and have been petrified of the unknown. I found your channel and have been watching bits and bobs and ended up subscribing. This video was in my recommended this morning and I am so glad I watched it. I could feel the fear leaving when you said I won’t die *from* it but *with* it. That helped immensely. I can’t thank you enough.
Thank you so much for this amazingly, wonderful, & encouraging video. I was just diagnosed with MS today & I've just been in shock/all over the place but this helped so much. Also, thank you to everyone in the comments for sharing your stories. It also helps to see other people's journeys. Thank you so much again & I hope everyone is doing well💜🙏.
You got this!
Wow doctor Buster I feel you're caring in this video more than any of your other videos I've seen thus far I really appreciate this so much it's a hard idea to wrap your mind around love the chickens by the way I used to work on a chicken farm with Rhode Island Reds! Also just to add your videos are also caring as well just wanted to say
Sometimes I feel the emotional impact of the diagnosis is the hardest part of this disease. I really appreciate your dedication to your patients and to this CZcams channel!!!
TY for supporting the channel with your comments! #WeHaveMS
I’ve said it before, and I’ll say it again...I wish you were my neurologist! I learn so much from your videos. Thank you, sir! Much respect!
And I mean exactly that ❤
Hugs! #WeHaveMS
Thank you , Dr. Boster. This was something I needed to hear. No one known in my family, nor in my husbands, has been told they have MS. I found out last week, that this is what I have. Though, I am unsure of it's form. I have gone nearly a year with chronic pain, unable to eat solid foods, my limbs burning/tingling, and I wasn't taken seriously until I finally reached a good PCP and Neuro Physcians. I am starting my Treatment with Tecfidera. I haven't had anyone to sit down and speak with on the matter of MS, nor have an understanding support on the matter. My husband worries, of course, but , it is hard to explain the pain and the symptoms you suffer with and no one around you gets it. I needed to hear that there is a village in which I belong. That I can seek support from and give it to as well. To all of those newly diagnosed, Welcome to the village! We will get through this together!
Thank you very much for this very helpful video. I was just diagnosed 4 weeks ago and have to change all my plans. I was so sad, frustrated and disappointed, but now after watching this I feel better.
Thank you for the information of multiple sclerosis since I've been diagnosed a year ago and it's been a war with DMTs and medications
I've now seen two of your videos and they are very encouraging. I haven't been diagnosed yet but a week ago I saw my surgeon (who did a complete joint replacement for my right knee) because of the emergence of some odd symptoms that my primary care physician thought might be related to the surgery. The surgeon suspects late onset MS, prescribed a brief course of Prednisone, and is referring me to a neurologist. It takes a long time to get in with a neurologist where I live so I have a bit of a wait ahead of me. I'm so glad to find your channel. I think it's going to help me be patient and not be overtaken by anxiety. Thank you!
Thank you so much from someone just diagnosed and who needed to hear these words.
Two weeks into this and I can't thank you enough for this simple video. I look forward to the rest.
I was just diagnosed a week ago (12/21/18) the day before my birthday and it has shaken up my whole family. But we have hope!
Right on Awai! You got this!
Thank you for this video. I will definitely subscribe.
I unfortunately am one who is someone with MS abd a daughter of someone with. MS. I’m also one of 5 in my extended family with MS. My dad was actually misdiagnosed (with transverse myelitis) in 2014. After my diagnoses in 2016, my neurologist, an MS specialist in Portland OR, asked to see my dad and was able to change his diagnoses after viewing his MRI. Surprisingly she asked if we have a German background, which we most definitely do.
These kind of videos might helpful to the people who are newly diagnosed as they have many questions in their minds going around. I was diagnosed in 2016 and no one ever heard of this disease(especially in India where not even 1% of total population has it). It was very hard to get any information regarding it and I tried alot to understand and become comfortable. Your videos are very very motivational and helpful Dr. Boster. Thank you so much.
YW Sravani! Please help me by sharing this vid with friends/family. I'm hopeful it can reach the ears of as many folks newly impacted by MS as possible!
Thank you for all the work you do for the MS Community! Another Great Video.
Thank you. Thank you so very much !!
Congrats Dr.Boster, very good+nice+useful video indeed, not too short and too long, pretty perfect. That is exactly what was not available online (as far as my google says) and everybody has been looking for.
One suggestion though, when mentioning twins with MS it seems to me very important to stress the fact, that in case of identical twins, only 1 in 5 cases both develop MS (while in the other 4 cases just one sibling has MS) - so even with exactly the same set of genes and a pretty similar lifestyle (general area, sunlight, water, food, etc.) it is not a done deal (rather a mystery, actually).
Right on Martin! Please help me. Please pass this video along to friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
Thanks Dr. Boster, this was a helpful video that gives me some hope. I was thinking about my future with my projects and had little hope. CZcams and your videos make a big difference in my life. Thank you for your help and time.
THANK YOU Dr.!!! I Appreciate your empathy to our condition and your compassion for everything that we are going through. I follow your channel and I look forward to your insight. Having already gone through Cancer treatments, I feel that I have a leg up on the acceptance when I was diagnosed yet I am constantly looking for MS information and I feel that your up to date, level headed and professional approach to this disease has Really helped me...Thank You!
Before I was officially diagnosed, I was seeing a neuro who basically refused to diagnose me because I had 1 symptom. He also didn't "recognize" my lesions because they weren't bright white spots and ignored the spinal tap showing 11 oligoclonal bands in my spinal fluid. And even after all that wanted to put me on medication but only gave me 3 options. I had 2 relapses on copaxone. I do have a new neuro who couldn't believe what the first one told me and got me on the right path. Been on aubagio since 2018 and haven't had a relapse since.
This was very reassuring after a few months of getting Mris and a spinal tap i thought i had prepped nyself for the duganose until i got it today and shit absolutely broke me uncontrollably crying and sobbing. I dont remeber the last tome i ever cried and ive been shot and didnt cry but the fear has been overwhelming. This really helped me get my act back together in terms of optimism
Rewatching after a year because suddenly its as hard as it was the first day and im terrified but listening to this puts me at ease
Dr boster I’m from Australia was diagnosed with Ms 4 mths ago 2021. I live alone and still finding it difficult to accept especially when at the moment am relapsing and in pain. My neurologist is 4 hrs away that makes it hard. Will keep tuning in to you hoping you can make my journey a lot easier to accept.
I was diagnosed 3 Augusto 2018 and I didn’t stress out until my mother tryed to live my MS thru me. My father died from ALS. And she always sais I coudn’t have it without knowing what was just thru crazy things. I made the ice chalenge for help people listen more things and when I start to work my page on FB with Tapping for a smile I found my first vídeos with MS that I told for her to see and she never listen to me and just good to say that I’m not good enoight acuse me of everyrthing. I don’t need time to live with MS just need space to learn to know how works and when I only start to listen to my feellings, to you and my Dr I start to get better and better results. My mom put me on bed and still don’t admit that because for her help is take what you want and arrast the person how you want. Now try it And I don’t do it anymore and complain I am bad for her. I am tired of her not the MS. And thanks for your vídeos Dc Boster Love them and some helo remember things that we forgot
I was diagnosed with MS yesterday. Thank you so much for this video! It helped give me more and more hope
This is so appreciated, as I go through the testing process. Thank you Dr Aaron. And the chickens are the perfect ending. 💛
Thanks Doc
YW Swati! Hey, here's a to action: Please share this with friends so we can get this message out as many folks newly impacted by MS as possible! #WeHaveMS!
@@AaronBosterMD Yesss definately Doc
Thanks Dr B! I’m in my first year so super helpful! My moms an identical twin as luck should have it both their daughters (my cousin and I) have been diagnosed recently with her the year before me. We both have different paths (which my mom struggles to understand sometimes)
I am lucky So far my ms has been pretty boring! And I’m hoping when I get to start the DMT it will remain this boring! But I know how fortunate I am to be stable and boring so far! I’m also thankful for the community here as some online communities can be medical “competitions” and can be a really scary place for the newly diagnosed. So thank you for this community and the education you provide!
You're welcome L C! Please help me by passing this video along to a few friends! I'm hopeful to get this message out to as many folks newly diagnosed with MS as possible! #WeHaveMS
Thanks, so much for posting this video; more comforting than you may imagine. I was just diagnosed on November 9th and really didn't have the chance to ask many questions... Thank you.
I love this guy
Was diagnosed 2 weeks ago and had to be admitted right away for steroid infusions. My neurologist team seem to really be on top of it right now. I was told that your channel would be very helpful. My next step is to make my boss understand that I can still work since my abilities are being questioned.
You go this SpoonProductions. And we are here supporting you.
Thank you so much for providing an information about this as I have been diagnosed recently pls do share more Information about MS
Thank you so much, Dr Boster...every bit of what you said is so true.
You are very welcome
Thank you. I was diagnosed in May of this year. You are helping me learn more. Especially right now when the world is so crazy.
You are so welcome
O wow I love this so much... I am just over one year diagnosed... and this week I am one year on a DMD. Watching this just helped my self confidence so much.
Thank you for taking the time to share... I found your channel a year in... but wasn’t ready for it until I found it!!
Howdy SpicySpaceCake!
Aaron Boster MD just rewatched! One to two years.... made me feel so good just to hear that said. The moments get better and better - increasingly more good ones than bleh ones. That said, hearing that it’s ‘normal’ to still be getting comfy in my skin 14 months since DX.... thanks for the reply too - big smile here 🙂
thanks doc! as a future colleague and as a patient (6 months). You have the power to transmit your knowledge in a very human and understandable way.
Thanks Aaron a massive positive vibes coming from your video keep posting it makes sense in the weird mixed up world of MS thanks again happy New year
TY Mario, and I could use your help! A Call to action: Please share this with friends so we can get this message out as many folks newly impacted by MS as possible! #WeHaveMS!