MY TUMOR STORY TIME PART 4: PHEOCHROMOCYTOMA RECOVERY

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  • čas přidán 10. 05. 2017
  • A lot of you have asked me a lot of questions about my tumor that I was diagnosed with, and had removed in 2011. This is the second in a three part series talking aaalllll about my tumor. Sorry it's so incredibly long. I wanted to be thorough.
    When I got my diagnosis I was unable to find a survivor of this type of tumor, and I had no one to talk to about it, or ask questions, and I really could have used a happy ending story from a survivor as I approached an incredibly dangerous surgery. I hope this series can help even one other person who is going through this struggle, or inspire those of you who need motivation to keep going. Keep going. Keep asking questions. Keep looking for answers. You're not alone. ♥
    Intro music by Alexander Osborn: / indie-rock-showreel-music
    www.alexanderosborn.tv
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    Follow Katrinaosity...
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    Mail:
    Katrina Sherwood
    PO Box 1126
    Culver City, CA
    90232
    Hi, I'm Kat, and I make lots of DIY videos, about everything from DIY jewelry, home decor, gifts, and crafts, to Gluten Free recipes, No-poo hair care, DIY hair extensions, how to make sugaring wax and arabic wax for natural hair removal, and how to make a bracelet out of a toothbrush. Here you can watch videos about friendship bracelets, whitening your teeth with activated charcoal, or even skip on over to my second channel for Story Time videos and vlogs!
    Shiny, Pretty Things!
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Komentáře • 139

  • @guida79
    @guida79 Před 7 lety +49

    Thank you Katrina, it was an honor to hear the entire story through these four videos! What a strong, strong woman you are, and still somehow humorous after all of it. You're an inspiration! ❤ Much love to you, beautiful ❤

    • @TrishasMusic
      @TrishasMusic Před 7 lety +1

      Courtney Guydo isn't she? Found her channel through Shane, and love her videos! 💕

    • @V33b3r
      @V33b3r Před 6 lety

      my sentiments exactly!

  • @MonMon-iy5ik
    @MonMon-iy5ik Před 5 lety +22

    Found out today I have a phaeochromocytoma, and you're right, having a real life person explain it from a real life perspective is making it (slightly) less scary so thanks

    • @dylmoco5673
      @dylmoco5673 Před 5 lety +1

      Hey Monica! im going through the same thing and is kinda scary lol. Do you have facebook or insta so i can ask a few questions if you don't mind? my instagram is dylanmoco. thanks :)

    • @erinlundy3357
      @erinlundy3357 Před 4 lety +1

      Hi my so. Is going through this right now. Where are you located ? I’m so scarred for him because this is so rare. We are in NJ and have been going to this amazing hospital in PHILADELPHIA. I have so many questions. Could you contact me? Thanks

    • @sabyasachideKol
      @sabyasachideKol Před 3 lety

      I am going through the same issue. Tumor in adrenal gland can anyone here to help

    • @fernandozepeda7612
      @fernandozepeda7612 Před 3 lety

      @@sabyasachideKol I am about too go trough this too, my metanephrine test came out and the doctor said i have a high probability of having pheo , i am scheduled for a scan on Monday

    • @traceyhateley3925
      @traceyhateley3925 Před 3 lety +1

      @@fernandozepeda7612 scans dont always pick up tumours. 2 months since your post ..hopefully all is well. .x

  • @malloryedwards846
    @malloryedwards846 Před 5 lety +15

    I know that I don't know you, but I just wanted to tell you I am so proud of you! You advocated for yourself and listened to your gut instinct! You have been through so much but you didn't let it define you or use it as a crutch. You used it to empower yourself and now your sharing your story for others! Your a rockstar! Never Forget that! Your here for a reason! God Bless!

  • @bethcompton8669
    @bethcompton8669 Před 5 lety +29

    My mom was just like you. She had been sick through her childhood and adulthood. Pretty much the same symptoms. They gave her this drug and that drug. I never remember my mom ever not being on medication. In 1996 (she was 45) she thought she she was having just one of her usual "bad headaches" turns out she actually had menengitis. Drs didn't catch in time so it caused a stroke and left minor brain damage. Affected her walking, reasoning, memory. After 4-5 mos in the hospital she came home and my brother and became her caregivers. Three days after comin home she began vomiting. Not normal oh I have a stomach bug vomiting either. It was some exorsist projectile vomiting. My brother and I were still teenagers and had no clue what we were in for but we always had to carry a bucket with us ever time we went anywhere or kept one by her bed and chair at home just in case. She was still on all the meds she has been on before the meningitis plus a few extra due to the blood pressure and stroke issues. After 4yrs of me fighting to get her help with the vomiting she had been admitted to our local small town hospital and was in ICU and was slowly dying in front of me. I fought harder (cussed the Drs and nurses) to get her transferred to a bigger more suited hospital in Indianapolis (4hrs away). When she got there one of the Drs that happened to see her was just a neurologist. He ran all kinds of tests including a 24 urine catch. He found her pheocromocytoma. She had a large one on one adrenal and 2-3 tiny ones on her other. They couldn't do surgery anytime soon cause of the other issues she was having til almost a yr later. It was a tough surgery cause they didn't do laparoscopic surgery for that then. She was not a tiny lady by this point and so it was a huge incision across her stomach. It took almost another yr for her to heal because she had complications with the incision and needed more surgery on that. When she finally came home she came home with a GINORMOUS gaping hole (as deep as my hand from fingertip to wrist and as wide as 6in) in her stomach that I had to unpack and repack twice a day. After everything we were finally told that this tumor is what had caused ALL her issues her entire life. The vomiting was due to the rushes of adrenaline out of nowhere. Unfortunately from all the surgeries she ended up with 2 hernias. Which they couldn't do anymore surgeries because she was to high risk. The damage had been done. She passed 3yrs ago from sepsis due to a blocked bowel that was caused from the hernias that were caused from the surgery to take the tumor out. I was 19 almost 20 in 1996 when I started being her caregiver. I spent 20yrs of my life fighting for her cause she couldn't fight for herself. I applaud you lady you're a beast remember that. Do you have to take any meds now? My mom had to take hydrocortisone pills daily cause she has no adrenal glands.

    • @calliecooper99
      @calliecooper99 Před 3 lety +5

      So sorry for your loss sending prayers 🙏🏻❤️

    • @traceyhateley3925
      @traceyhateley3925 Před 3 lety +3

      i have never heard a story so sad. God bless you honey x

    • @dreamyjeannie3385
      @dreamyjeannie3385 Před 2 lety +1

      So sorry Beth for your loss. I’ve just been diagnosed with 2 pheochromocytoma’s after being sick most of my life. Last year I had one adrenal tumor, this year, I have 2. Not waiting for #3. Get them out of me. I’m cautiously optimistic. This has been a long old haul for me too. I can’t do another 10 years of this crap.

    • @gaiseric9518
      @gaiseric9518 Před rokem

      I'm very sorry to hear what happened. You and her both went through a lot. Takes tenacity to be there and help through all of that. I have a lot of respect for you.

    • @keelybaby17
      @keelybaby17 Před rokem

      Bless your heart you sweet soul you are an amazing human fighting for your family 🤍🤍🤍

  • @alisagrant1308
    @alisagrant1308 Před 6 lety +14

    Congrats. Glad you're doing well. I finally heard you say your right adrenal gland had the pheo. My original pheo was in the left and now I have CHF and kidney damage because my blood pressure was super high for years. I too met the same disbelief from my doctor about the tumor being so rare and that I probably didn't have it. If he had just checked, I probably wouldn't have these residual issues. I almost died and was in the hospital for almost a month. Unfortunately for me, I am having additional issues so it looks like something is developing in the right adrenal gland. My aunt had her right adrenal gland out due to a pheo and seems to be doing well except falling asleep rapidly and loosing hair. I'm starting to not sleep, can't handle stress, swelling like a balloon and the hbp is returning, and constipated. Actually, it appears that I had bilateral pheos initially or a larger and a smaller one. We'll see. I'm complaining as loudly as I can to my endocrinologist. Thanks for sharing your experiences. Take care.

  • @guida79
    @guida79 Před 7 lety +12

    Just have to reiterate again- literally love you so much even through we don't know each other.. I'm so incredibly lucky to have known you through this platform! Can't wait to hear any other story times from you, your way of talking and conveying things (even the non-medical ones like the stalker video) is just so captivating. You were definitely born to be on camera 😊❤ Thanks for keeping your fans involved!

  • @Sunnykhutan
    @Sunnykhutan Před 5 lety +1

    Brilliant video Kat. You are truly courageous.

  • @somexp12
    @somexp12 Před 3 lety

    Feeling a lot of vicarious joy listening about the positive reversal that came from this procedure. I always imagine medicine having life saving, but minimal visible, effects. Such a night and day description is wonderful to hear about.

  • @isabelbiggin4433
    @isabelbiggin4433 Před 4 lety +12

    I’m an aspiring nurse so just to hear those mistakes are insane! When I go into the field I will definitely make sure I try not to make these foolish mistakes that could have cost you your life! I just can’t believe that crap.

    • @123JWJWJW
      @123JWJWJW Před 3 měsíci

      Read Bed Number Ten. It is about a patient who had Guillian-Barré syndrome and her fight to live

  • @efranco2268
    @efranco2268 Před 3 lety

    Omg. You are so amazing! You had me in stitches at 8:00 or so describing the removal of the wires....honestly had to catch my breadth. Such an amazing young lady! Thanks for this series. It’s very helpful.

  • @gaiseric9518
    @gaiseric9518 Před rokem

    I'm just happy to hear you had a happy ending after all of that. That is a very long road of suffering, I can't even imagine.

  • @30h3feargod
    @30h3feargod Před rokem +1

    YOU HAVE SOME REALLY AMAZING RECALL AND CLARITY CONSIDERING THE MIND ALTERING DRUGS YOU HAD FOR YOUR ONGOING LIFELONG SYMPTOMS. I CAN SO RELATE TO SO MANY THINGS YOU HAVE SHARED. AFTER WATCHING YOUR STORY I NOW FEEL JUST A LITTLE HOPE THAT I STILL MAY GET SOME ANSWERS. THANK YOU AND THANK GOD FOR EVERYTHING

  • @Laurieb2851
    @Laurieb2851 Před 6 lety +1

    I just had a MRI for something else entirely, and everything was just fine, except, I have a tumor on both adrenal glands. After watching your videos, I am a bit worried now that it is going to require surgery. I was told to wait a week and if I hadn't' heard from my primary physician, to call her. I am very thankful for your videos, and I am so glad you survived and feel a lot better then you had for years. I have a girlfriend, who after a hysterectomy she developed a massive infection and almost died. She could have sued, but like you, she was just so thankful to be alive.. Thank you, Kat!

  • @lagunamiller
    @lagunamiller Před 6 lety +3

    You have a very soothing personality. I love watching your videos!

  • @pjrhrb
    @pjrhrb Před 2 lety +4

    I have all your symptoms and they discovered a small cyst on my left adrenal. I am seeing a specialist next week and hopefully I can finally get a diagnosis soon. Your video has given me encouragement to hopefully finally have a cure. My BP this morning with 3 different meds was 190/90.

  • @lrose2001
    @lrose2001 Před 3 lety +1

    Thank you so much for these videos! I am so lucky I found these because searching pheochromocytoma usually just brought up medical advisories and not actual stories. I am having symptoms consistent with pheochromocytoma and am getting a test for a possible diagnosis soon, and these videos made me feel so much better. It really humanized the experience. Ever since my symptoms have aligned more and more with this and learning it can cause sudden adrenal crisis when untreated which can lead to death, I have been on edge and unable to sleep in fear I am not going to wake up. This really gave me hope that I can survive this.

  • @lianepetersoncampbell3238

    Thank you for sharing your experience... you're amazing!

  • @corrywilms3662
    @corrywilms3662 Před rokem +1

    Kat bless honey you have helped this mother to come to terms with this, so that I in turn will be able to assist my darling son . As we just begin this entire process along a road you have already travelled. I can only hope for an outcome like yours, and have the faith in our Australian doctor# that you placed in your American team. May your pathway remain tumour free. Love and best wishes for your future 💕

  • @katie.a.d
    @katie.a.d Před 7 lety +3

    This has been so hard for me to watch, andI feel so selfish saying that. I have recently been told that they finally think they know what's wrong with me: this tumor. I have been too scared to even go to the lab to give my urinalysis so I could be totally fine...but it doesn't look like it could be anything else since, like you, they have been trying to figure out what is wrong with me for years. I am so happy you are okay and that your life is better. And thank you for making this. While it does scare me, it makes me feel less alone and like I can conquer this.

    • @weezyjay2523
      @weezyjay2523 Před 2 lety

      I hope all is well. Did you have the pheo?

    • @katie.a.d
      @katie.a.d Před 2 lety +4

      @@weezyjay2523 no!! It was suspected at this time but I did not! 🤗

  • @PrincessPeyten
    @PrincessPeyten Před rokem

    OMG kat I’m so sorry for what you went through that’s horrible🥺🥺🥺 you’re so strong tho there’s nothing you can’t handle💪🏻💪🏻💪🏻

  • @sbmichele4440
    @sbmichele4440 Před 7 lety +8

    You went through allot!! You are definitely one tough chick I enjoy your channel and hearing your story time videos

  • @stasia5463
    @stasia5463 Před 7 lety +11

    You are so strong!

  • @firefawnakl
    @firefawnakl Před 6 lety

    Hey there Katrina! Im so sorry you had to go through so, so much. I'm currently going through the same process (the endocrinologist is 99% certain I have the same tumor). I was wondering some things about what risks of surgery were communicated to you? I know you mentioned it was very risky and I have a suspicion my docs are downplaying the risks to me so want to better educate myself. Thank you again for making this video series. It was like listening to my own journey but Im still early in it.

  • @annamaezingmeow
    @annamaezingmeow Před 7 lety +10

    you are the sweetest person ever

  • @Rose-qr4xn
    @Rose-qr4xn Před 2 lety +4

    I am having surgery for a tumor on my adrenal gland in 3 weeks. January 12, 2022.
    I’m having it done at the Carling Adrenal institute in Tampa FL. (Dr. Carling) I’m a widow so my girlfriend is going to go with me. “girl trip”!!
    The tonsil issue was like mine. After 9 continuous strep throats I found someone to take them out. I was 64 years old!!! No more throat infections! Yay! I fall asleep while driving too. I’ve slept off the side of the road in some bizarre places.
    At least you have a husband and father. Both my husband & father have passed. Being alone through all this is stressful.
    I don’t have the “phytocy…” type tumor you had. They just said it should come out because of its size.
    You’ll probably never see this, but I just wanted to thank you for taking the time to make these videos. I’m sick all the time and those around me just yawn when I mention what i’m feeling.
    Im 67 now and would just like to feel better.
    Anyway, the Lord has cared for me every step of the way and has opened doors to the right doctors. These earthly bodies just weren’t made to last forever!! Im looking forward to my new body at home in heaven. Revelation 21 & 22.
    PS: Wow! You are sure beautiful!! God Bless! Vickie

    • @rainshelton9434
      @rainshelton9434 Před 2 lety

      How are you doing?

    • @Rose-qr4xn
      @Rose-qr4xn Před 2 lety +4

      @@rainshelton9434 Thank you for remembering me!! The adrenal tumor was larger than it measured on the CT scan. I’m so glad I had it removed! I am doing GREAT! It’s been about 12 days since the surgery and the pain at the surgical site is less each day. I am a widow so I’ve learned to slow down and only try to do one thing a day. Today I loaded the dishwasher. I still get exhausted very quickly but I’m retired so there’s no urgency to go anywhere. Yay!!🎉🎉. I’m still waiting for the pathology report and I will get new blood tests on Feb 7.
      Your story was such an inspiration to me! I’m really looking forward to a healthier, more energetic 2022 now that the ugly tumor is out of my body. I have one hurdle: I’m very anemic but I have a good hematologist who is watching me. With the adrenal tumor removed, perhaps that will improve as well.
      If the Lord tarries, I plan to get out there and enjoy my grandchildren and pontoon boat this summer! Thank you again for your encouragement! I found your video’s just in time! Vickie in Georgia 🍑

    • @rainshelton9434
      @rainshelton9434 Před 2 lety

      @@Rose-qr4xn Praise God! I'm happy to hear you're doing well! I'm not the video creator. I'm currently doing the 24 hour urine test and found the video on CZcams and saw your comment. I couldn't leave without asking how you were doing. Praying for you ❤️

    • @Rose-qr4xn
      @Rose-qr4xn Před 2 lety +1

      @@rainshelton9434 It sounds like you are at the beginning of your journey. I hope & pray that your experience is as successful and uneventful as mine has been. You are now officially on MY prayer list Rain🙏. This is my humorous response to those asking about me, “ I had it removed because I don’t want it to go up with me in the Rapture and mess up my “new body” and white robe! Blessings! Vickie

    • @rainshelton9434
      @rainshelton9434 Před 2 lety

      @@Rose-qr4xn Thank you for your prayers, and I love your response! Seeing how the world has been the past couple years, I don't think the rapture is too far off!

  • @Maddygirl2017
    @Maddygirl2017 Před 6 lety +10

    Monday is my test for a Pheochromocytoma, so watching these have been the only reason I’m staying sane. Thank you so much for these ❤️

  • @1andonlytoy
    @1andonlytoy Před rokem

    Thank you so much. I’m going through the same thing right now. My first urine test came back positive from the Mayo Clinic. I just did my 24 hour urine test and should hear back from them tomorrow. Watching your videos seems like im hearing you talk about my life. Thanks again for sharing.

  • @breathlessinbedvlogs
    @breathlessinbedvlogs Před 5 lety +5

    watched all four parts, you certainly went through it! so happy you are still here. i just did the 24hr urine analysis so part of me is torn on wanting an explanation on everything & possibly a cure but also fuck, so scary i hope i do not have this!

  • @matthewkenna1053
    @matthewkenna1053 Před 6 lety +1

    Katrina thank your for sharing your story. I also have had this Pheo tumor. Well I have had 2. My first was 11cm phoe on my left adrenal glad. Had surgery on 7/3/14. My 2nd phoe was 12/3/16 which was 1cm. Currently I am going through genetic testing. I had a scare in June with high blood pressure thank god I tested negative for another tumor. Again thank you for sharing your story.

  • @robynholman673
    @robynholman673 Před rokem

    Hi! I dont know what made me look this up tonight but Im glad I did. Its funny even though you did a great job of explaining all the nightmares you went through I think very few people will really understand. My story is very similar to yours in most ways. I was very sick in 2018 i was 41) although I can go back to when I was a teenager and guess when it really started. By summer of 2019 I had gone to the ER, urgent cares, labs, specialist, etc. 49 times. They labeled me "drug seeking" and always asked who my psychiatrist was. It was the worst year of my life. My episodes were debilitating. My thoughts so fast I wouldnt speak to people, I never slept, never went to the bathroom, headaches, BP 230/150 daily. I was down to 80 lbs but my legs felt like 200 lbs. Anyway..obviously they eventually found it, ans I survived surgery. But after I felt like my entire personality was just a tumor. I would try to do things that "robyn" would do. But it felt like a lie. My urine analysis came back as 4530! Its supposed to be 50-100. The weird thinv was I felt good that day... completely normal. It was really nice to hear someone speak about it thats had a similar experience. We are few in number. ❤️

  • @annem2969
    @annem2969 Před 7 lety +5

    Holy cow! You really told that story well. I listened to all the videos all in a row. I cannot believe all of the things you went through! I could relate to seeing that nurse in ICU. I had sepsis from a bladder infection and was in a medically induced coma. I just remember having a terrible night and when I saw the nurse I was so relieved! She stayed right with me. If you get pregnant, make sure you are monitored hormonally - and be especially cognizant of depressive feelings/hallucinations, etc. Let them know right away. Other than that, enjoy your life. I was totally riveted hearing your story. You sound like you are a nurse or a Doctor the way those big words roll of your lips:). You have been through hell - I am almost scared to watch the vid about being awake during surgery. That us a fear of mine. I will definitely subscribe! Good luck! ❤️

  • @Catherinajorgensen
    @Catherinajorgensen Před 5 lety +3

    I’m waiting for the results from my urine collection and blood test. Thank you so much for these ♥️

    • @weezyjay2523
      @weezyjay2523 Před 2 lety

      How did it go? What were your results? Hopefully great!

  • @sheenasanchez5921
    @sheenasanchez5921 Před 4 lety +3

    I believe I have it too it’s really scary , I thought it was just me making myself sick but now I know what it is I’m getting my results soon but knowing more people had it and they also shared they experience is so comforting I wish I could talk to more people but glad you okay

    • @sandralyngabion4129
      @sandralyngabion4129 Před 4 lety +1

      How are you now? I'm having the same problem now.

    • @Krisexyable
      @Krisexyable Před 4 lety

      SHEENA SANCHEZ how are you now?

    • @sheenasanchez5921
      @sheenasanchez5921 Před 4 lety

      krista weatherford I’m okay but my result came back normal , my stress hormone levels were normal but idk I’m still feeling the same way and nothing has changed so let’s see

  • @sarad8496
    @sarad8496 Před 7 lety +5

    you are a very strong woman.....love watching your videos.....would you do a storytime on why you break computers and things :-)

  • @cristiwatjen7226
    @cristiwatjen7226 Před 2 lety

    Thank you for your videos,it helped me alot,I’m still trying to get the drs to do something about it

  • @soniasoto4936
    @soniasoto4936 Před 4 lety +1

    Omg girl u r strong. The thing about friends they are not around when you need them. I am 53 they found a small mass in my right side. I feel ok now but I need surgery.

  • @mannettegaray2589
    @mannettegaray2589 Před rokem

    I am watching your testimony, and it’s basically me. I am scheduled for an adrenal vein sample this upcoming Tuesday sept 13, and then pre op for adrenal tumor, also I have 2 lipomas on my adrenal area. Blessings to you.

  • @moonlitfaerie26
    @moonlitfaerie26 Před rokem

    Had bloodwork my Ald and renin was high just had 24 urine tests waiting on results and scheduling a ct I’m on 4 bp meds for my bp can’t keep it controlled a lot of what u said I can understand I’m so glad u were able to get it figured out! Bless u and thank U for ur story!

  • @stephaniedominguez1174

    Thank you for sharing your story.

  • @tim8732
    @tim8732 Před 5 lety +7

    Thank you for the video like you I had the same to her that went undiagnosed for something like five or six years it wasn't until I lost my job lost my girlfriend lost my place to live but I was diagnosed with a tumor on my left adrenal gland the damage was done my life was destroyed then I went into surgery have the tumor removed and it was benign my blood pressure went up to 340 over 140 during the procedure and I almost died I had a stroke a month after the surgery and I think I know why I got to stroke it was because my blood pressure was so high I underwent the surgery at 62 years of age the tumor was 4 cm by 3.8 CM by 3.6 cm in size and like I said it's gone my life will never be back to normal because all I lost prior to finding out that I had that surgery doctors agree that too much adrenaline or epinephrine as it's called makes a person wide-eyed everybody's out to get me and that's how I was but I didn't know why I was that way my girlfriend could care less she dumped me kick me out of her house and I had my surgery as a homeless person living out of my car 4 months after the surgery I'm still without a place to live and stand trying to get my life together but it 863 it's a difficult thing I've lost so much sometimes I think I'll never get back to where I was and I probably won't people think my story is amazing but that does little to make me feel better again because I've lost so much thank you for your story well it's not nice knowing somebody else went through when I went through it's at least interesting and I care for you take care bye

  • @daeshaelyse5209
    @daeshaelyse5209 Před 7 lety +6

    do you have a video about frying machines? I would love to hear about that. very interesting. I love your videos by the way

  • @captaindanp
    @captaindanp Před 6 lety +1

    I have this condition. I am going in for surgery in just under a month. Phenoxybenzamine is horrendous, I have been on it since diagnosis about 2 months ago. Its been really helpful for peace of mind watching your videos. Thank you.

    • @Katrinaosity
      @Katrinaosity  Před 6 lety +2

      Best of luck to you! I'm sorry you're dealing with it right now, but you're already a champ for making it this far alive! It definitely took a long time for the medication to get out of my system, but it's worth it.

    • @captaindanp
      @captaindanp Před 6 lety +9

      Katrinaosity I made it out alive. I'm 4 days post op and feel so much better. Swollen and sore but better 😊

    • @calliecooper99
      @calliecooper99 Před 3 lety

      captaindanp praying for you ❤️❤️

  • @nicolejohnson952
    @nicolejohnson952 Před 4 lety

    Hi Katrina, what is the name of the blood test they have available now? btw I'm really happy for you!

  • @nannajaysadventures
    @nannajaysadventures Před 3 lety

    Thank you for sharing your story

  • @nannajaysadventures
    @nannajaysadventures Před 3 lety +1

    I haven't had surgery yet, but I had a hypertensive crisis and ended up in ICU. My hand and part of my arm is just as you described

  • @Underdog77
    @Underdog77 Před 5 lety +5

    Thank you for sharing you experience, it was really helpful. I am in the process of getting my diagnosis confirmed. One question, my first symptom was tinnitus too; you said all of your symptoms went away after your surgery, does that mean your tinnitus went away too?

  • @sandraleblancsmith1008

    OH My Goodness Katrina thank goodness they didn,t kill you. God Bless You and may you have a beautiful life from now on ,Love Always Sandra XO.

  • @Astro_War
    @Astro_War Před 5 lety +4

    I am just about to do the 24hr urine test this coming week....your story has given me an invaluable insight and I thank you for sharing :)

  • @Fedko3037
    @Fedko3037 Před 5 lety

    Thank you Kat. Tell us, did your allergies go away?

  • @ArtByKevinZapata
    @ArtByKevinZapata Před rokem

    Jesus what a trooper what a story.
    I feel that I have inappropriate response to adrenaline/exertion physically or emotionally POTS like symptoms extremely lightheaded and dizzy elevated blood pressure went upright. I should get tested for Pheochromocytoma.
    I have Lyme disease Bartonella and mold
    and just tested positive for Graves’ disease hyperthyroidism
    Leaky gut, maybe MCAS. Pretty sure I developed sleep apnea. I have an appointment for that soon.
    Insomnia, so scared, pretty much housebound for the past five years. I’m terrified, I need help desperate.

  • @keelybaby17
    @keelybaby17 Před rokem

    Thank you for sharing your story you are inspiration 🤍

  • @janquinn261
    @janquinn261 Před 4 lety +1

    Do you know if your experience was typical? I'm facing this same surgery and this is terrifying.

  • @weezyjay2523
    @weezyjay2523 Před 2 lety +2

    How often did you get headaches and were they always excruciating?

  • @sevenandthelittlestmew
    @sevenandthelittlestmew Před 5 lety +3

    I just had surgery to remove my adrenal gland because I had a functional tumor on the right gland. It helps to see someone else talking about their experience. I did not have open surgery like you (they do most of these laparoscopically now, I guess), but it was still kinda scary.
    I also had to pee ALL. NIGHT. after the surgery, and it was like I could not stop. 🙄

    • @sevenandthelittlestmew
      @sevenandthelittlestmew Před 5 lety

      Ok.. just saw your scars, and you had laparoscopic, too! My incisions are all in the front. They let me out (my get out of jail free card)of the hospital within a day.

    • @calliecooper99
      @calliecooper99 Před 3 lety

      Praying for you 🙏🏻❤️

  • @abbaranearts6069
    @abbaranearts6069 Před 5 lety +2

    You mentioned that after your surgery you had bouts of being cold and shivering. I think it might have just been post anesthetic shivering. Apparently it’s pretty common.

  • @mandyrose5822
    @mandyrose5822 Před 5 lety

    Which anti anxiety med were you on? Did you have trouble getting off of them? Ty

  • @autumnwiden3825
    @autumnwiden3825 Před 3 lety

    Thank you so helpful

  • @pankajyadav-wn7nv
    @pankajyadav-wn7nv Před rokem

    Hey Kat.. You are a fighter, you fought for your life and courageous enough to get it back. My Name is Pankaj Yadav. I am from India. I am also facing same issues, not all symptoms but some of it. I am in hospital right now in endocrinology ward. I just watched your videos. So i am writing it to you. Doctors are testing all the way to be double sure that it's phaeo. Let's see. 😊

    • @tiltedmacha
      @tiltedmacha Před rokem +1

      Hey bud.. How did it go? How large was your tumor?

  • @AMRsti93
    @AMRsti93 Před 3 lety +4

    When my doctor said he thinks I could have pheochromacytoma I looked it up and thought no big deal they're benign and they just go in and cut the tumor out. Now after watching this I'm terrified. I had no idea this surgery is that dangerous. I'm confused because people get kidney transplants all the time and are fine. Why are arenal gland surgeries so much more dangerous?

    • @weezyjay2523
      @weezyjay2523 Před 2 lety +1

      What were your results? Did you have pheo?

  • @soniasoto4936
    @soniasoto4936 Před 4 lety

    I feel bad for you your Doctors & family thought it was all in your head. You know your body and you didn't give up you saved yourself. But most of all you had wonderful doctors to operate you.

  • @kevinsnyder2026
    @kevinsnyder2026 Před 4 lety +1

    Did you stop with the palpitations. PLEASE REPLY

  • @anaRuiz-zh1lf
    @anaRuiz-zh1lf Před rokem

    I take cortef and Florineff. For Addison’s. I pre diagnosed myself, I went to Duke University to be treated for Addison’s.

  • @hopesands2381
    @hopesands2381 Před 3 lety +3

    Jesus girl you escaped death so many times apparently. I'm so glad you're here to tell your story.

  • @MommaBearsCorner
    @MommaBearsCorner Před 6 lety

    sounded like a dog which was comforting... too funny. your blessed and much stronger for all this. Great humor. but brave. no way would i let a student do this, i just could not allow him no matter what but you telling the story was funny; even through its very scary to even think of. and that stupid nurse should have NEVER put it in arm. i had that done to me one time and i pulled it out and demanded to leave the hospital. it hurt so bad! I had a colitis attach. People have no idea how painful that is. She should have been written up for that. they are suppose to know better. like you need that too. shame on that nurse. glad your so much better now. Your right, they saved you, your blessed. keep the happiness.

  • @AmyEveGrace
    @AmyEveGrace Před 2 lety

    I just paused your video at the point where you said you break computers and disrupt electrical signals. I have the same thing and always have. I knew two other people who have Pheo tumor who have the same electrical disruption I’m guessing you are an empath and a sensitive as well. I wonder what the connection is here?

  • @realtrickybilly
    @realtrickybilly Před 6 lety

    For "paranormal" like messing with electronics and other paranormal problems I suggest the books of Dr. Joseph Murphy (author of the Power of Your Subconscious Mind). Changing your thoughts to the positive will move things to the positive. Btw. I am glad you got free from pheochromocytoma, huge improvement.

  • @daaiyathemerciful5031
    @daaiyathemerciful5031 Před 6 lety

    Lol im subing wow your cute and funny and your great at telling your story im so familiar with your story because it happened to me it's so true and funny

  • @kathynicklas9845
    @kathynicklas9845 Před 3 lety +1

    I’m being tested for this right now. I didn’t realize the surgery was so intense!! 😳

    • @weezyjay2523
      @weezyjay2523 Před 2 lety

      Hey how'd all the testing go? Did u have the tumor?

    • @kathynicklas9845
      @kathynicklas9845 Před 2 lety +1

      @@weezyjay2523 no, i didn’t. They didn’t find anything wrong with me.

  • @soniasoto4936
    @soniasoto4936 Před 4 lety

    You r blessed your husband stood by you

  • @nutrirebyanaluarrivillaga2646

    Wow I do that to electronics also! So weird!

  • @erinlundy3357
    @erinlundy3357 Před 4 lety

    Hi my son is going through all of this we are at the final step of them figuring it out. We get that special scan on Monday. I have so many questions are you able to call me? Or message back and forth? This is so rare and we are on the east coast in NJ. I don’t know if any doctor that does this surgery. Thanks so much. ♥️

    • @weezyjay2523
      @weezyjay2523 Před 2 lety

      I hope all is well. Did your son have the pheo?

  • @RobinPalmerTV
    @RobinPalmerTV Před 6 lety +2

    OMG I need grounding mats so I can discharge myself throughout the day or things fry, myself included. Pleased to come across someone else who is highly charged.

  • @niemapowell6115
    @niemapowell6115 Před 3 lety

    Omg girl I thought I was the only one that went true this Surgery I literally think I was the only one with this curse every thing u went true I had it I went in a coma an life machine it was so bad I still have anxiety about I had the tube in my neck an it was the worst feelings ever it was a nightmare

  • @empond6188
    @empond6188 Před 3 lety

    I just dropped off my urine test yesterday and am waiting to hear back and I BREAK MACHINES TOO!!!!!!

  • @1971khaos
    @1971khaos Před rokem

    LOL...this video has scared me.
    My adrenal tumor is 2.6cm they want to wait til its 4cm. Im have nearly all your symptoms minus the female only ones.

  • @topsi91
    @topsi91 Před 4 lety

    When i was in the hospital with pneumonia this year, catheter should be put 2 times... it is such a uncomfortable and kinda painful experience :/

  • @craiggarcia2702
    @craiggarcia2702 Před 4 lety +3

    Was the tumour completely gone

    • @AMRsti93
      @AMRsti93 Před 3 lety +2

      Her whole gland got taken out

  • @einsyt17
    @einsyt17 Před 6 měsíci

    Hello ..just checking if you are still alive ..

  • @bobbiemauk1879
    @bobbiemauk1879 Před 2 lety

    They scanned the meds so they can charge for it.

  • @arthurbecerra1444
    @arthurbecerra1444 Před rokem

    How do u live now is it a better life back normal. I’m dying and thirsty for norma life. Can u please call me to give me comfort and say everything is going to be ok. Please I’m alone and have no possibility of a normal conversation I tend to forget a lot and my feet are always swollen and hurting a lot. Tend to talk a lot to myself.

  • @stanleysiao4646
    @stanleysiao4646 Před 2 lety +1

    Being medically boarded out due to brain tumour operation removal. All corporates retrenched high cost long term workers. Very traumatic. Operated 2013. Very sad with all these illnesses. I prefer suicide due to pain, effects of operation. No point of surviving. It like hell everyday after operation. I am a man Christian protestant. I cannot have sexual intercourse. It living like gay for the rest of life. I am man. Unable to manage

  • @leiladixon9486
    @leiladixon9486 Před 3 lety

    Are you O - ?

  • @MyMason100
    @MyMason100 Před rokem

    At 5.00 I bet the Breaking Machines is all the radiation you've had over the years ?? My Brother in his early 30's and his Son as an 18 tr. old both had this same condition , they were told from the beginning it was typically benign tumors on the adrenal gland , both had bad headaches and high blood pressure. That was about 35 yrs. ago for Brother and 30 yrs. ago for his son. All came out well and no other problems.