ME/CFS Q&A with Dan Neuffer (Author of CFS Unravelled, Creator of ANS Rewire)
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- čas přidán 25. 07. 2024
- Dan Neuffer, author of CFS Unravelled and creator of the chronic fatigue syndrome (CFS/ME) recovery program ANS Rewire shares his wealth of information and experience regarding CFS recovery while answering questions on this topic posed by the ME/CFS community.
HOW TO FIND DAN:
Websites -
ansrewire.com/
cfsunravelled.com/
Instagram - / danneuffer.cfsunravelled
Book - amzn.to/31uqHmO
CZcams - / cfsunravelled1
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TIMESTAMPS
00:00:00 About Dan Neuffer
00:02:09 What is the root cause of ME/CFS?
00:05:51 Why does POTS develop with ME/CFS?
00:08:19 Is there a link between Lyme disease and Epstein-Barr virus (EBV, glandular fever) and ME/CFS?
00:13:01 Can mental health issues such as anxiety and PTSD be the cause of ME/CFS? Can healing trauma heal CFS?
00:16:30 Why are people with endometriosis more likely to get ME/CFS?
00:18:02 What is the connection between migraines and ME/CFS?
00:20:23 What is brain training? What is neuroplasticity?
00:24:37 Why aren’t brain training and neuroplasticity programs found more often in mainstream medicine?
00:27:18 What conditions is ANS Rewire best for?
00:28:02 How could someone give a brain training program the best chance? Why doesn’t it help everyone?
00:32:06 What groups respond best to ANS Rewire?
00:34:26 How does age impact recovery?
00:37:25 Will brain training work for ME, or “just” CFS?
00:39:39 How do bed-ridden people do programs like ANS Rewire?
00:41:23 How could someone give themselves the best chance of having ANS Rewire work? Is there a certain point in your health journey when this is most effective?
00:44:10 Why do some people stop working on recovery once they are partially recovered?
00:46:13 How is ANS Rewire different from other programs?
00:50:54 Why does Dan share recovery stories and strategies of others who don’t use his program?
00:54:24 Is this a limbic system injury? Can retraining the brain help resolve post-exertion malaise?
00:57:07 How does diet impact recovery?
01:01:20 Does spontaneous recovery ever happen? Do people “miraculously” heal?
01:05:14 When can someone consider themselves fully recovered? Can we ever heal to a pre-ME/CFS state?
01:09:14 How quickly can you recover from being sofa/bed-bound?
01:11:59 How come when people put in the same recovery effort, some will recover and some won’t?
01:15:44 What is the success rate with ANS Rewire?
01:17:50 Why can’t some people recover no matter how hard they try?
01:19:43 Can programs with extreme rules cause too much stress and impact recovery?
01:24:00 Where to find Dan Neuffer & learn more
…
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
"Able to do everything easily"... I'm currently doing ANS Rewire, and it took me quite a while to get to the "easily" part, but now I finally understand how essential this is for recovery. I'm almost 60 yrs old and have had CFS/FM for 34 years. I've seen two of the best doctors in the US and have researched this disease for decades. However, I learned more in 30 days on the program than I did in all that time. Only recently have I dared to believe I could recover, and I owe that to Dan Nueffer and his brilliant program! It's doable, BELIEVABLE and affordable! Thank you, Realan and Dan, for the great interview!!
Yes, totally agree!
This is so amazing to hear Tammy! I'm so happy you are finally getting relief from this and found something that works ❤️
I am the same age and have been ill nearly the same amount of time. I started this course last year but stumbled due to difficulties I had meditating. I am resuming now as it makes more sense and has given me more hope than anything else I’ve found. I wish you success and a full recovery!
I’m glad that you’re feeling hopeful. I’m a member of the 34 year CFS research club too.
So tammy how r u doing now?
I have used ANSRewire. I began in January. I found myself overdoing the program and forcing too much.... once I let off the gas a bit and less on boot camping my way through recovery, I am finding a rhythm.... the harder you work, the more stress... the more stress, the less recovery. Find a gentle pace. Dan even says to stop trying so hard. This is one of your top 3 interviews! Thank you!
I agree! I know I have done that as well..if I take a more relaxed approach it is better!
Curious to know which other two interviews you consider to be in the top 3? :)
P.S. Nice to hear that you are recovering!
Well said! And I'm so glad you enjoyed the interview 💫
Yes @fatimaJ I'm curious about that too!
I agree!
This interview was so terrific and I can't thank you enough for it! I took so many notes. I started his program about 2 1/2 to 3 years ago when I hit rock bottom and had been totally bedbound. His program really resonated with me and I loved his multilateral approach. Within in 6 months of doing his program I was doing great, cooking all my meals, doing some light housework and walking 8-10 minutes a day. Then we moved into a new house and guess I got complacent and had a small setback and tried other things and another brain retraining program. I realized though how much more I like Dan's program and am back to doing it again. I do believe I will be one of his recovery interviews eventually!
Yes, you will be, Kathy!!!!
Amazing Kathy! Wow, you have had quite the journey. I'm so glad you found this helpful and are feeling inspired to tweak your approach according to what you know works for you 💛
I recovered from Dan's program. If you want to see my interview search on CZcams CFS Unraveled episode 10.
I wish to everybody to find they way to full health. Recovery is possible. Do not give up
Dan is a rockstar!!!
41 days on his ANS rewire program and I’m doing so well 💜💜💜
I'm so happy for you Sylvia!!!!
Sylvia could you tell us more ? 🤗
@@Pauline_mrt after a month on dans program I was able to sit up in bed, walk to bathroom, afternoon two months, I am walking daily, enough to go see a doctor, I’m still doing his pillars and improving daily. I was completely bed bound for a whole year, now I am on month 3 and I’ve come so far, I did have a crazy amount of symptoms, now it’s so minimal, I’m just so grateful to Dan and his knowledge, hope this helps ❤️
@@sylvia3748 this is so inspiring!! Thank you so much for sharing! Are you a member of Raelan's Facebook group? I would love to see you share your progress there in the future 🤗
@@sylvia3748 how are you now?
49:51 🙌🏻 I’ve been so confused on this, and he just addressed it!! Even if you’re already calm, happy, at peace, etc, your ANS can _still_ be in flight or fight mode, so that means to me that this type of work can still absolutely benefit you!! 🎉
What a great interview! I love Dan and I am so happy that I stumbled over his programme by chance. His multilateral approach is just the best and I like that he makes sure you understand exactly why you do all the stuff. He is a person that I resonate with in general and that I like listening to. He seems very authentic and like somebody you would like to know in real life. Especially his great humor makes the programme so enjoyable!
Thank you both so much!
This is so great to hear, Annyie!!!
I've been eagerly awaiting this interview - and it did not disappoint. :)
From where I stand - Raelan and Dan are the Mom and Pop of the ME/CFS recovery world!
Thank you both for your kind devotion to helping those of us who still struggle.
Aw how sweet of you to say! Haha and made me laugh - had to read your comment to my husband (he loved it also ☺️) And I'm so glad to hear you found this helpful!!
I am half-way through and loving every minute! This is such an excellent overview of the root cause. Very thoughtful and love how he intermixes science with real stories and insights. Love "we've got to move forward any way we can." There are so many gems here. 44:10 is gold. All doctors and people with CFS and related conditions should watch this. Great job Raelan and Dan! Dan has a great holistic neuroplasticity program.
"And now you're not allowed to eat a cookie" 1:00:45 lmao.
I'm so glad to hear you enjoyed this Liz!! And I'm with you 1000%, Dan shares SO many valuable things here. And the cookie comment is so hilarious (and true!) 😂🤣
Wow now that I’m recovering I get everything in this video. Dan is a genius & seems so straight forward w/ genuine intentions! I wish I wasn’t so skeptical of all these programs previously. It’s really hard to figure out where to spend your $$ when you are ill and working less or not working. Thank you both for this amazing video!!
Whats the price of the programme?
Dan is so relatable and truly cares. I like the fact that he doesn't shy away from the tougher questions. In this way he makes it all transparent. I love that about him!
Omg finally these two!!!! Love them both.
Excellent video Raelan! Super helpful information, really great insights. You're both so right about hitting rock bottom. My rock bottom was my greatest blessing.
So glad you enjoyed this, Kay! And yes, desperation and frustration can be powerful motivators can't they. Glad to hear you were able to use that to fuel your journey 💛
Raelan, Thank you so much for bringing CF/FM to the forefront of so many CZcams viewers!!! It was over 20 years ago when I was bulldozed down from this very real struggle. There was not much out yet, and the many doctors I went to begging for my life back, just gave me referrals to shrinks. One doctor even said, "And you look so normal?" It took years for me to get back into life. I know what you are doing helps so many. Thank you, Jenny Stallman
💓💓💓
Awesome interview, now I know his approach-had always wondered....I resonate with his personality....not intimidating, and covered great questions. Thanks to both of you!
Glad you enjoyed it!
I love ❤️ you two , I bought both of your books...I see full recovery by the end of the year, I feel honored by your presence and experience expertise. Along with dans program I did the 3 day lightening process and I am seeing functional medicine experts. It was dans program that made everything possible 💜 beyond Grateful 💜
Thank you so much, Sylvia! And I'm so happy to hear about your progress, and I very much admire your dedication and attitude ❤️
Raelan every single one of your interviews/videos are amazing...but this is my favourite yet...I'm a bit biased because I'm currently doing the ANS rewire...but this was just the dream having you and Dan on the same interview...you are my idols and I owe you both so much for the help and hope you have given me 💖
I appreciate that Keren and I'm soooo happy that you are finding things to help you on your journey (and that I could be a part of that!!) ❤️
Incredible interview. Thank you Raelan and Dan. So informative, balanced and honest. Love your approach Dan.
Thanks for your comment Emma
So happy you found this informative, Emma!
After watching this when if first came out I got Dans Program. It is jammed full of value for anyone going through ME/CFS Fibro. I myself going through Long covid (ME/CFS) can’t thank you enough for being my connection to his program. It has definitely helped. I find Dan to be more relatable than some of the other programs out there and recommend it whole heartedly. Thank you.
That's amazing, Erik! I'm so happy to hear that 😀
Loved this so much!! Thank you both ❤️Great idea to interview heads of different programmes too! I would also love to hear Toby Morrison's (from CFS health) story, I've learnt a lot from him too!
This gives me hope. I’ve been scared by these symptoms and feeling like my future is bleak. Thank you 💚
Are you any better
He talks like my dad who has been ME specialist for over 20 years. All he says is 100% true and right.
who is your dad? this is not really the best advice.
Same for fybromyalgia
Wow Dan and Raelan you are amazing. You humble way. Gives so much trust.
Aw what a kind thing to say, Anna! Thank you and I'm glad you found this helpful in some way 💛
I appreciate the Q&A on age (now 69) and time served (43 years) and severity. And the hypothyroid. I eliminated the autoimmunity through diet, but my thyroid is atrophied. Keep the good news coming please!! 🙏
Such a WONDERFUL interview! What he said about protecting our morale really resonated. And doing 10% only if you feel overwhelmed. Felt so reassuring! This is so hard to tackle. Dan communicated a lot of compassion and understanding through his comments, which is the way I want to treat myself more and more
I agree! Glad you liked it, Steph! 💗
Thank you so much for this!!!!
You're so welcome!
So so so very helpful, thank you so much for these videos they are such a blessing ❤
Wow!! That was so incredibly helpful and inspiring. I’m researching all my options right now and this was so helpful!! God bless you both!! 💗💗
💓💓💓
Omg! Omg, people! Stay calm, this is not a drill 😭 My two gurus 🙏🏼
And me!!! This is just amazing 😍😁💫
😂 This comment has had me smiling all day. Too funny!! And very sweet of you to say Fatima, thank you 💛
@@RaelanAgle Oh, to know that my comment did that! I'm over the moon haha. Thank you!
Fatima, I was thinking the same! 😃 Yay!
Thanks Raelan, great interview.
💓
I have greatly improved by following the advice of a number of people, Dan being one if them. Thank you, guys!
Amazing! So happy to hear that Zozo 🙌
I’m not familiar with ANS Rewire and don’t think that approach is for me. But I really resonated with what this guy is saying and his approach to recovery! Thanks for another great interview!
Glad to hear it Chantelle, and I think it's so great that you know what is for you and what isn't 💛
I love ❤️ you guys so much, I appreciate you’ll 💜
🎄this Christmas will be my 1st year of healing, I know this Christmas It will be a great improvement to last year and it’s all thanks to you two 😇 angels and myself of course 💕
Dan your program is ingrained in my heart ❤️ and it automated during crashes, it gets me back on track 🥰
Raelyn I now have bought two copies of your book 📖 I devoured it and it’s also in my heart 💜
Thank you so much, Sylvia. It means a lot to me 💓
Price of both their books and Dan's programm please
@@lemuelwilliams1205 very easily affordable compared to other programs
Im starting ANS rewire today. ❤️ Everything resonated with me 100%. 🙏 wish me luck
Wishing you all the best with this!! ❤️
How are u today ?:)
@@Philfalki I am so much better. Working part time, living so much more. I am still recovering but I am on my way to full recovery! Ans was a great start but what helped me the most was Jayson and his brain retraining - I can thriwe. Raelan has an interview with him here. ☺️ He is my guide now and I follow his concept. But I feel like everything I did and learn was important. So I dong think that ans was bad I think that Dan is an amazing person I just prefer different style - community, personal calls with the mentor etc. (i still use some tools from and tho). And many people recovered just because amazing ans rewire programm. 🙏✨ wish you good luck on your journey.
Every day for the last month I’ve been listening to your CZcams videos. Wonderful! Thanks. ❤
I’m wondering if FND is under the same ANS umbrella as ME/CFS/FM?
It seems similar with some different set of symptoms.
Interview Annie Hopper who created the Dynamic Neural Retraining System. I'm doing that and it really is starting to work!
Great suggestion Dan! And I'm so glad you've found something that's working for you 🙌
@Dan I have pots-hyperadrenal type, do you think DNRS would help me? How are you doing now?
I can watch and I can listen and I need you both. Other people need the me that was. Thankyou Raelan for contacting me today and thankyou Dan for contacting me on Wednesday I think. I understand the rock bottom bit. I know you can relate to me Dan also because I have to move house too.... Out of a big city apartment into a great big double storey place in Benalla. Furniture? There’s a lot! Oh gawd.... I know you understand. Raelan, Dan knows where those places are. I know where Brisbane is and I know where most US states are because I’ve lived in a lot of your country.❤️to both of you
❤️❤️❤️
I'm doing ANS Rewire at the moment. I've been doing it for about 6 weeks and I am mostly bed bound. My feeling about it was that it's the most plausible reason and solution I have heard and what harm is there in trying, if you are able? Dan doesn't push to do things, so things like movement aren't going to cause huge crashes unless I personally take it too far. I am improving but it is in tiny increments. When I started I could move for 3 mins of floor exercises a day but now I can do 15 mins plus a 3 min walk outside. I feel like the approach is kind of tackling everything at once and gently pushing up on them all.
Because of my situation, with my partner being almost solely responsible for the children, I can't put anything more on him so with food for example, I just cannot cook everything fresh. Instead we are doing things like buying pre-made versions for now which is helping me to occasionally be able to get downstairs and do a batch cook. I can tell it's going to be slow for me but it is better than sitting here waiting for a miracle! I actually had no symptoms for 10 days right at the beginning. I think that was because with my first week I stopped doing anything else and just rested and took in Dan's videos.
This last week I have had the monthly migraine which has thrown me off course and I guess I could be one of those people who says it doesn't work, but I don't feel that. I just think it won't run smoothly. I feel that most people who are attracted to the course would get something from it.
And I am so glad you two did this video! I think you both have something unique in the way you are open minded and listen to everything. Pamela-Rose is the same so it's been really great seeing you discussing things x
In 6 weeks you are doing 5x the activity... I'd say you are kicking butt. Stay with it. I started slacking in my meditation and rewiring because of a set back. I'm back in now and see that I was trying too hard... life has to be enjoyable as much as we can make it. You got this!
@@FreshAgenda Love the positivity!
It's all about doing things at your own pace! It sure is a bumpy road at times. The key is to keep learning from your experiences! "I actually had no symptoms for 10 days right at the beginning. I think that was because with my first week I stopped doing anything else and just rested" You're doing great.
Thanks so much for sharing all of this Jenna 💛
It's like our bodies are extremely over-protective patents that are so afraid we'll get hurt that we have to just sit on the park bench and watch all the other kids play... but at least we are safe. Ha ha. Our body's ability to protect us from real or percieved danger is just incredible!
Raelan. Please try to get an interview with John El-Mokadem. I think you you and your audience will be blown away. I think Dan and John have alot in common when it comes to a key recovery strategy. I would also recommend John's coworker Karen DiMarco... like Dan and John she is also recovered.
Thank you so much for all you do!!
Wonderful, thanks!!
Sooo many women have hormonal issues with ME.I agree with Dan,I think it's to do with the original CNS dysfunction.I used to think it was the cause of my illness but now think these issues are another symptom/result of the CNS dysfunction.
I wish I could leave enough likes to make up for the 1000 ppl viewed this and did not. How? Had to put efforts to CFS recovery on hold to deal with the kidneys. I thought I'd be happy to get out of pain and just be left with exhaustion (I have many symptoms but this is hands down the most debilitating); it turns out it's that much more frustrating to be exhausted when I'm feeling healthier than I have in a long time. At least when I was in pain, I could find excuses for the fatigue. Getting back into the CFS healing, slowly. I wonder if having endo predisposed me to CFS. This is really interesting. I also think all those diseases are one in the same. I'll look into his program because the other 2 brain retraining systems didn't speak to me. Thank you so much for the effort you put in to helping the community. You rock!
Hey Maria! Your comments about the likes had me laughing 😅 Because I would give Dan 1000 likes too - wow he put so much effort into this! Not just during the interview, but we had much back and forth discussion and planning prior trying to see how we could make this the most helpful that it could be. And what you shared about your frustration with the fatigue now makes sense. It's like this invisible chain holding you back! But it seems you are on a great path...hopefully the last of this is behind you soon.
TIMESTAMPS
00:00:00 About Dan Neuffer
00:02:09 What is the root cause of ME/CFS?
00:05:51 Why does POTS develop with ME/CFS?
00:08:19 Is there a link between Lyme disease and Epstein-Barr virus (EBV, glandular fever) and ME/CFS?
00:13:01 Can mental health issues such as anxiety and PTSD be the cause of ME/CFS? Can healing trauma heal CFS?
00:16:30 Why are people with endometriosis more likely to get ME/CFS?
00:18:02 What is the connection between migraines and ME/CFS?
00:20:23 What is brain training? What is neuroplasticity?
00:24:37 Why aren’t brain training and neuroplasticity programs found more often in mainstream medicine?
00:27:18 What conditions is ANS Rewire best for?
00:28:02 How could someone give a brain training program the best chance? Why doesn’t it help everyone?
00:32:06 What groups respond best to ANS Rewire?
00:34:26 How does age impact recovery?
00:37:25 Will brain training work for ME, or “just” CFS?
00:39:39 How do bed-ridden people do programs like ANS Rewire?
00:41:23 How could someone give themselves the best chance of having ANS Rewire work? Is there a certain point in your health journey when this is most effective?
00:44:10 Why do some people stop working on recovery once they are partially recovered?
00:46:13 How is ANS Rewire different from other programs?
00:50:54 Why does Dan share recovery stories and strategies of others who don’t use his program?
00:54:24 Is this a limbic system injury? Can retraining the brain help resolve post exertion malaise?
00:57:07 How does diet impact recovery?
01:01:20 Does spontaneous recovery ever happen? Do people “miraculously” heal?
01:05:14 When can someone consider themselves fully recovered? Can we ever heal to a pre-ME/CFS state?
01:09:14 How quickly can you recover from being sofa/bed-bound?
01:11:59 How come when people put in the same recovery effort, some will recover and some won’t?
01:15:44 What is the success rate with ANS Rewire?
01:17:50 Why can’t some people recover no matter how hard they try?
01:19:43 Can programs with extreme rules cause too much stress and impact recovery?
01:24:00 Where to find Dan Neuffer & learn more
Raelan + Dan = Dream Team! ❤️
Haha aww you are so kind Judith ❤️
ANS Rewire is such a great program!
Glad you think so Syd!
Whats your take on HIT/MCAS related fatigue?
A great video thank you. 🙏 a little sad about the MCAS but I figured as much. I’m hoping that much like the example of someone with a thyroid condition, that if I can calm my nervous system it will either resolve or be much easier to manage. I am hearing about some people having success with DNRS or GUPTA for MCAS, so I will keep on keeping on. A practitioner I would have liked to have worked with in the US said it’s 1/3 to 1/2 the healing with MCAS, nervous system work. ❤️
Very interesting, thanks for sharing that Liz ❤️
Can I just say raelan that your hair looks lovely like that!
Aw thanks so much!! 😊
Regarding migraines, I am in a group called Reid for moms of challenged kids such as autism. The goal of the group is to lower glutamate through diet, supplements, etc and many children improve or recover doing this, but also moms note that their migraines, depression, anxiety etc also improve. Glutamate is one of the main excitatory neurotransmitters, and it is implicated in autism, adhd, fibromyalgia, multiple sclerosis, als, and so on. Implementing Reid protocols have certainly improved fibro and cfs issues for me. For me, though, it is incomplete without other modalities such as neuroplasticity.
Great tip Melissa, thanks for sharing!
My mum has severe ms both have Asperger's am sure as dies my son hypomobility is your pain alot better now is there a book on the protocol
That’s not how I think. I use my mind non stop. A lot of the time it’s to fight the fear. I am strong. I always have been. I can’t believe this thing actually got me.
I have had fibro for 6yrs and my biggest and worst symptom has been a nonstop migraine.
Intestine I had a nine stop migraine 1998 when diagnosed neorosthenia pelvic pain in-between that I've had pots reflux but last 6 years none stop fybromyalgia upper body is your body pain none stop I have no headaches today it's in my shoulders armpits
The connection between endometriosis and CFS could be the fact that both can be a comorbidity of Ehlers Danlos Syndrome (a connective tissue disorder). In my opinion everybody with CFS should be checked for Ehlers Danlos or in general for hypermobile ligaments.
Interesting, thanks for sharing Ale 🙂
Endometriosis is far more common than eds. I don't see a link.
@@LaZappatrice Thanks for your opinion! All the best!:)
Yes I have hds me now fybromyalgia mother severe ms eds father hypomobile CFS epilepsy but CFS now ok was thyroid in the genes the expression
Hiatus hernia link to
Good to see dan looking so well . The long covid phenomenon is interesting ; many ( not all) sufferers present exactly like cfs ; i wonder whether these people have been thrown into ANS disregulation by covid ?
I think that is the case. Covid is not so unlike the dozens of other viruses that trigger the dysautonomia. I would also add fluoroquinolone toxicity and certain other medications can trigger it too.
Interesting point!
Curious what you guys think about mold poisoning and possible subsequent colonization of mold in the body, do you find that people have to treat that and get those toxins out before even trying a retraining program? I feel like my brain is constantly on fire and can't imagine calming the constant panic attacks and seizure activity down enough to make much of a difference otherwise. I've been bedridden most of 17 years, and out of the moldy situation now, but still very severe. Any experience of someone in this situation improving?
Hi Gretchen, sending you a friendly note to encourage you healing is possible from someone who was once in a similar situation. One thing you (and other readers seeing this) may want to consider is how the language you use around your triggers can impact your brain. The P word and the C word, pretty intense and descriptive. I found, for me, it was helpful to generally reframe it as - "I had some environmental visitors in my old house, then was able to reduce unhelpful things in my body and heal my fight-or-flight response." The trigger is just the trigger, it's our brain's continued to reaction to it. My husband was in the same house and was fine.
There are many recovery stories with Dan's program ANS Rewire, the Lightning Process, and the Dynamic Neural Retraining System (DNRS) regarding the same trigger. Dan encourages a holistic approach, so that may involve a diet, a naturopath (though I didn't rely on this or do all the protocols myself), and sauna time at a level that's easy for you once your body gets there. I did Dan's program then DNRS and fully healed from the "house party crashers."
I highly encourage anyone to check out these programs if they resonate with you. And echoing Dan and Raelan -- the trigger doesn't really matter (yes some things might help certain things) -- but the way out has similar themes, and the biggest one is healing the nervous system. I have found people with completely different triggers that their "way out" of CFS was very similar to my own. You've got this Gretchen!
I'm so sorry you've had to go through this, thanks for sharing a bit of your journey Gretchen 💛
Do you suffer CFS or fybro or both
How would ANS dysfunction explain fatigue? Fatigue is a symptom of lack of ATP, mitochondrial dysfunction. Mitochondrial dysfunction could explain the ANS dysregulation. But even so one could imagine that ANS inrerventions could help get the body into a healing state.
Alot of us have hypomobility eds ADHD Asperger's I've found out is linked and I've read the brain us less plastic and takes longer to recover any information in this
Diet can be tricky, because when you ultimately find a diet that doesn’t trigger your ans, you will feel so much better. BUT, it’s not going to heal you, because as soon as you eat a trigger food, you will feel like crap again.
Is brain training same or similar to lightning process?
Hey Sakura, yes the Lightening Process is a form of brain training. But there are many approaches and versions of brain training, LP is just one 😊
Thank you for your reply. This video is really interesting!
Dan Neuffer is a former physicist, what does that mean. Was he a medical doktor, physiotherapist or what....
Agneta fr Sweden
Fibromyalgia pots heartfailure, hyperhidrosis, diabetes type-2
ME/cfs- not diagnosed but if I call me a person with dysautonomia, it would cover almost all.
Ralean....you look as though you are losing your focus? Nice to see...as this is something I go thru and then decide I am not FULLY recovered because I am fading away from what is at hand .....staying in the present....
He did he say that you can exercise with no PEM?
Dan looks glowing with health
Agreed!!
☺️
Be wary of anyone claiming to have a cure for this illness.
i think Dan is right Re SO many things. His attitude is fantastic. i went to a similar course to LP and I felt better after the 3 days ( placebo effect? ) yet at home did not last, I was devastated. I would talk to my tutor and feel better again ( ? placebo effect ) then symptoms back next day..devastated and felt like a failure. I just gave up doing it and I found it exhausting. The person who runs the course tells all she has 80 % success rate ..I find that hard to believe, and I think it is very mis leading. Where is her evidence and like he said based on what
Like i use to say the cause is psychological STRESS
Stress is such a huge factor isn't it Olga 😊
@@RaelanAgle oh yes!!!! 👍
Are you cured now
I did this course when it first came out but didn't get much of an effect. I'd like to re-visit it but unfortunately it is time limited so the lessons are all gone now. It's the only course of its kind which doesn't give lifetime access for some reason...Thats a shame because this illness can go on a long time...
Actually, I don't think ANYONE on the internet gives 'lifetime' access - what if you live longer than me or the program? 😉 It's really a marketing term which I think is a bit dishonest, so I don't use it. Do you use that term in your marketing work at the Optimum Health Clinic? Also, the program is outcome focussed, we want to recover, not keep trying. So another reason why I don't give indefinite access is because as people move towards full recovery, I encourage them NOT to use the program, which is why I like the prompt of the check in. However, as you know, I extend access when people need it at no additional cost, which I did in your case and many others. The key is really understanding WHY we don't make progress. I try to help people recognise that in the program, but also contact people about a consultation when they complete the education to ensure they are engaging EFFECTIVELY. I believe I followed up a couple of times, but you never booked it!? Sorry to hear you are still unwell, hope you make your breakthrough soon.
@@CFSUnravelled1 Hi Dan, I think it is fair to say under this video after stumbling across it, that after paying for your course and it didn't initially help me, a couple of years on I found out that I no longer had access...are you saying you are only expecting you or your patients to live a couple of years? I think most people understand what 'lifetime access' means - continuous access with no further payment. In my experience these techniques and a lot of information can take a long time to sink in especially when patients are unwell, so limiting access like this I'm not sure about personally. I never saw any indication when I signed up it would be limited either, perhaps it is there somewhere....but I would have queried it at the time had I known.
All the other courses I have done I can think of - I've been able to re-visit. The Energy Excellence course for example has updated content I am checking to see if that can help me. After seeing this video I was wondering if yours was the same and I may have missed something. I was hoping I still had access but I didn't.
Anyway I find it rather unnecessarily defensive of you to bring up my work as if I may be unfairly criticising you out of some sort of bias. I work freelance in PPC marketing (local to the UK area) and yes do some part-time work for the OHC (they were local to me) but this is nothing to do with that (feel free to ask Alex). I will try anything as a patient first and foremost, to recover (why i paid for your course and anything which looked like it could help). My ultimate goal is to recover, and I'm lucky to do a sliver of work given my health issues. You gave some more limited access back then yes, and its gone again so I can't review the course content to see if you have updated your approach given further experience - I had tried it as soon as it came out. I don't quite see what it would cost you to simply allow continuous access.
In terms of you 'finding out why it had not work' as a reason to limit access, yes we had an email around that time and you never got back to me. My last email which you didn't reply to said (Jun 5, 2018, 1:51 PM) "Hi Dan, Ah ok I did not realise there was a time limit for the course...thanks for renewing my access for a bit longer...can you tell me what your fees are for consultation?" No reply I saw to that and I just checked my emails. If you had concerns about my work for the OHC you could have asked me that privately, but it seems unlikely that I would be asking to pay for private consultation if I was on some sort of OHC mission. My mission is recovery, and understanding this condition enough to achieve that goal. As ever, we live in hope, and I was hoping that there may be something I had missed which you might be able to help with.
@@stevejhkhfda Well, I think I answered your question about the access above already, so I won't repeat myself. I found your comments unusual and a little perplexing because you know that I extend access where people need it, that's what I did with you. Also I emailed you with an offer for a complimentary consultation on at least 2 occasions. In light of the unusual interaction on facebook BEFORE you enrolled, and these negative comments now, perhaps it's natural for me to feel a little defensive. Let's leave it at that.
@@CFSUnravelled1
"you know that I extend access where people need it, that's what I did with you"
You mentioned it to me once in an email for me. If someone says you have 6 months further free access, that doesnt suggest you universally do it to everyone repeatedly. If anything by stating you have some further limited 'free' access - it suggests further access would be charged. If I knew you did it in general I obviously wouldn't have made the comment.
"Also I emailed you with an offer for a complimentary consultation on at least 2 occasions. "
I have no record of that. I have all other emails where we discussed the course then the final one which I quoted above you didn't reply to according to my records. Not sure what to make of that. It seems odd to get all emails but not those two free complimentary consultations I obviously would have happily taken and cleared up misunderstandings with.
"the unusual interaction on facebook BEFORE you enrolled"
I put your claims to some scrutiny in a public forum, nothing I would deem as that unusual. You must know that there are some major hardcore scientific ME/CFS advocates out there who would balk at even the idea of some psychological intervention. On the other hand I was interested, and purchased your course. You must realise there is a driving reason to that - which is I saw something in it. How many people out there have you found now who are selling courses for ME/CFS - don't you think it is necessary for patients to ask the hard questions after many disappointments and spending countless thousands on treatment? I am surprised how personally you took it to be honest. I appreciate it must not be easy to have to justify claims, but I am a teddy bear compared to what is out there in the ME/CFS world. I have to assume after giving me a little extra access, you ducked to have some consultation directly with me, and thats a shame, because I think you have misunderstood my case and motives, and would probably have found an advocate. Oh well.
@@stevejhkhfda I had a similar experience with this program. In the end, it's a business. A business must make money. When you look at all these 'recovery' programs, none of them are actual doctors. They are snake oil salesmen, Dan just hides it better.
Buried trauma gets in the way
So do you cure yourself or just recover? Isn't recovering the same as a cure?
To me, cure implies it will never come back and I'm not sure we can say that with any certainty? I consider myself cured but that's more of a mindset that I think helps me 😊
@@RaelanAgle I have had CFS since I was 11, I think this came on after I had a virus and got a 105 fever over the summer. I also had the EBV at some point in my life. I am 31 now. The doctors didn't believe me when I told them at 13 yrs old that I was chronically fatigued and weak feeling all of the time. After doing just the standard basic bloodwork, which came out normal, they decided I had depression instead and put me on all kinds of nasty psych meds that wired my brain differently, I believe permanently and I had to be put into an emotional support class in school. Fast forward, I had a miscarriage last spring, and two weeks after I then developed hyeradrenal POTS syndrome, which I feel is connected to the CFS/EBV and maybe even from being on those pills for years. Do you think POTS could be fixed with ANS rewire?
@@tbrownflee3124 ANS rewire can fix absolutely nothing physical in your body. I'm really sorry that these people are promoting it like they do.
@@hellowp1345 Why do you say that? Did you try it yourself, and it failed? How about the DNRS program by Annie Hopper?
@@tbrownflee3124 i say this because I’m very tired of these programs and their shady one-sided marketing. I did not get any better from it back when I was naive enough to do it and nor did anyone I personally know (with M.E).
M.E. is not cured by any online program. It needs actual treatment. ‘Rewiring’ the brain is crudely exploiting some very thin science. It’s pseudoscience at this point.
DNRS is the same. Here is a link about it from a doctor: sciencebasedmedicine.org/dynamic-neural-retraining/
Anyways, it’s difficult to convince patients because they are desperate and want to read that this program works. So I do understand if you just dismiss the warning.
How much dose the course cost very interesting interview
All the details are on the website, but watch the 4 intro lessons first.
Glad you liked it Terry 😊
I'm interested in how these things work. I once had a blog about ME/CFS and these programs would contact me and pay me to promote their program. Obviously, I said no.
I wonder if they ask you or you ask them? Also, I think this promotion of non-scientific programs are getting unethical.
I reached out to Dan because I respect the work he does and asked if I could interview him (and this is all for free). And at the moment, I think all options for ME/CFS recovery are "non-scientific." There just hasn't been enough research.
@@RaelanAgle Thank you for your reply.
I'm influenced by my own very poor experience with this program from when I first got sick and fell into that rabbit hole.
I don't think promoting trademarked programs this is right or fair to M.E patients though, but we will never agree on that. Hopefully things will change for us. All the best.
@@hellowp1345 are you saying you tried Dan’s ANS Rewire system and it didn’t work for you?
@@shaktijo Yes. They do not work for the physical illness M.E/CFS.
@@hellowp1345 I think CFS is part psychological (stress, trauma, etc) and physical (could be vitamin deficiencies, hormones, leaky gut, etc) and both sides must be addressed. Basically trying everything and deciding what works.
If someone is not a Christian whi believes in the bible they might say faith is positive thinking it's not jts to trust in god and sometimes if god should we believe is jesus christ when he chooses can heal in a supernatural way so when positive thinking wasnt enough and it can be instant or gradual when someone reads the bible jesus christ healed many and today sometimes he does supernatural miracles which is probably the lady you said god heal if cfs instantly by faith
When a Christian who I met a few said god healed them by faith its supernatural since many people are positive thinkers and still dont recover from being bad bound sometimes people need miracles.
EMDR therapy is a cure for PTSD! 👍👍👍👍👍👍
Alot of contradictions here I'm afraid. Still some good points but not really any solid conclusions. Thanks for posting.
Thanks for your comment. what contradictions are you referring to?
@@CFSUnravelled1 Ok so the the brain and the nervous system is all one part its not 2 separate parts, in fact nothing in our body is a single part its all one as a whole unit. When we talk about pain we also include fatigue because it the same because its generated by the brain. Autonomic disfunction ,once again I would argue its triggered by chemical releases from the brain. So to say its not all in your head or rather psycho sematic is going against research and to go to the root the brain controls everything in our body. I personally think the brain tells the ANS what to do it would seem. So i guess the contradictions I'm talking about are that this condition (not illness in my opinion, just a different type of body) is not anything to do with our brain. But you went on to talk about Neurological pathways training and the brain controls everything(yes good point but you started saying that the WHO is wrong in saying that. but then saying that its not a thing, Neuroplasticity.
Six years ago I developed Stevens Johnson Syndrome and have been really battling Chronic Fatigue to this day. And from what i have learnt my whole body has gone into permanent defense mode. Any stress, physical or mental causes total fatigue meltdown. It would appear from latest research from Otago University that we develop like a hair trigger in our brain that sends an over load message by way of excess chemical release into our cells inhibiting the cells to use oxygen to produce energy and reenergizing our body.
Don't get me wrong your a top guy and I really enjoyed this discussion and I will always challenge to push for more information. And one thing is that I have altered my life to live with and not to worry about recovery. If I do recover then its only because my system has for whatever reason gone back naturally to the way it was. Im very comfortable with that. Swimming with the river is better than swimming against. I appreciated your impute to this channel so cheers mate, take care and good luck with your research.
@@finnroohomebrewing1846 Dan's program explains the scientific workings in clear detail, if you're into that, in his ANS Rewire program. Programs like Dan's give you the tools to get out of "defense mode." For me, I found surrendering and going with the flow (rather than fighting my body) was helpful exactly like you describe, but then also taking actionable steps to heal. IE accepting my body, but also that it was possible for me to heal, and I could do things to help it heal.
@@HealwithLiz thanks for that. Will check your channel I may have seen it. Cheers
@@finnroohomebrewing1846 I think that "hair trigger" you speak of is the overactive sympathetic nervous system (as opposed to parasympathetic), which Dan does talk about...I'm currently reading his book, and so much of it just makes sense. Best wishes.💖
3:29 "The anus is the part of the nervous system." - Dan Neuffer
ANS