Neurofatigue After Stroke - What It Is And Tips To Manage It
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- čas přidán 28. 06. 2024
- Neurofatigue after a stroke is not like regular fatigue. It can make you feel like you’re swimming through concrete or that you’re so exhausted you can’t keep your eyes open. Today, let’s talk about why it happens, how it’s different from regular fatigue, and what you can do about it.
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Time Stamps:
00:00 Intro
00:16 What is neurofatigue?
00:40 Why does neurofatigue happen after a stroke?
01:39 How is it different from regular fatigue?
03:03 How long does neurofatigue last?
03:42 You’re Not Lazy, You’re Healing
04:30 Tips to Manage Neurofatigue
08:25 Outro
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Music from epidemicsound.com
Medical Disclaimer: All content on this channel is for general informational purposes only. It is not intended to serve as a substitute for medical advice or treatment from a physician or qualified healthcare provider. Talk to your doctor before starting a new exercise or therapy regimen.
I had that while in rehab; even getting out of bed and eating a meal, or showering & putting on clothes wiped me out. My whole body would be heavy. When I would go home to visit, my husband would ask me why I breathe hard from the car to inside the house? He would sometimes say I am not doing enough exercise, and to do more. I finally told him that this experience has been the most difficult of my life, and if he couldn't be supportive, I WILL find someone else to spend time with, and I say this to the other people in my life who think I'm not doing enough to "GET BETTER"!!! That's more tiring than the stroke itself!!!
So very well said
My sister once asked me why I breathe so hard. I told her I was tired can't they just see it. Annoying.
I'm feeling depressed now cos I lost my apartment. It was demolished while I was in the hospital. The thought of that along is draining. Right now squatting in a tiny space with a friend and it's so tiring. Huh
I feel you , honestly sometimes I just hope I don't wake up, I'm not scared to die, people don't understand at all, I also hate when my wife is like your doing so great when It's taking everything I got just to take a couple steps
I feel like my legs are full of cement and I can barely move them every day. I’m two months out from my stroke and I’m doing home health rehab OT/PT. I also did two weeks of inpatient rehab. I sleep 9 to 11 hours every night and sometimes take a short cat nap during the day. I don’t feel like I can get anything done. This Nurofatigue is real people. It’s no joke!
Oddly, I've found myself really tired, and I struggle to do more, but my children are telling me to chill and take it easy. But I've been hard on myself because I can't do what I feel I SHOULD be able to do. In other words, I'm harder on myself than others are on me.
Thank you for letting all of us know that what we're feeling is normal and OK.
Boy is that true😅😅. I feel lazy and I'm not bouncing from job to job. Glad I live by myself so I don't care when something gets done. 😅😅😅😅
❤️
You Just made a difference in my life thank you!
Thank you for this. I had my stroke January 2, 2024 and while my physical recovery has been remarkable, I’m dealing with severe fatigue. Add agoraphobia that I’ve been dealing with for a couple of years now and going out and doing something like grocery shopping or appointments is utterly exhausting. I do take two naps a day and if I miss one or take it later than usual I feel it for days afterwards. I’m glad to hear that I’m not the only one and it’s completely normal. Thankfully I live alone so if I ignore a chore or find I’m too tired to shower for a couple of days it doesn’t impact anyone else.
What got you back walking and stuff all over had is shit therapists that don't know shit
My son and dad would call me lazy. My depression and lack of energy caused my son to leave to live with his mom, and it literally left me feeling even more broken
It's hard. I have been called lazy. Thank you. I got to put in grace and quit being so stubborn. It is hard to ask for help. In my mind, you see me struggling., but I disgress..I want the help and I have to ask for help
I totally understand these feelings!
All true very. Lots of abuse guilting feelings of low morale it absolutely SUCKS
This is one of your best videos 👍
I have got a stroke eigth months now, your videos they are very helpful to me. My recovery was going fine until few weeks ago I felt so tired, but now I understand. Thank you God bless you.
Very useful information , thank you very much
My husband who had stroke 2 years back, has lack of initiative to try to do some things on his own, he expects someone to help him out .I wanted him to become independent (not fully ) like prior to stroke,if I insist he gets angry
Please give me some tips to help him to do his routine things on his own
Secondly , he is very comfortable doing exercise when therapist is there, but never tries on his own to perform any simple exercise .How to motivate him or make him understand that the more he does , the more he will regain or benefit from it .
As a caretaker , I don't know how to handle this issue , it gives me a lot of mental stress.
I will be really grateful if you help me out .
Thank you
Agreed! It’s so difficult to encourage our SS to improve and not push them too hard.
I am in the same situation you are in. My husband had a stroke in September. He also isn’t motivated to do any of his therapies at home. He does fine when he goes to see his therapists. I am also in need of tips to motivate him to do what he needs to do without him getting angry at me. I hope your husband is doing better as well as you. ❤
You hit this subject right on the spot! Because my family is exactly thinking this of me! They're used to My old self that I was a working machine and demanding so much and now recovering from a Stroke I've told them let me recover and it's like I tell them to demand more of me they just don't get my "pains"they say I've had broken bones and I'm like it's totally different but I'm thankful to God 🙏🏻 for giving me the joys of having this Stroke happen to me and not any of my family members because they would be a horrible mess they'd be hating life and questioning God "why me"! But I'm the Most thankful and happiest person Alive because of this Stroke! Thank You again for this wonderful video. Have a wonderful and blessed weekend 😎
Thank you for letting me know im not lazy ,Im healing. God Bless you work ,keep it up .Im 70 had a stroke but recovering,you answer a lot of questions my wife and I have been having.
Thank you for sharing more information on this. I am 9.5 years out from having an acute stroke (Ischemic) in the pons of my brain at age 50. I have foot drop and that is usually when I know (the foot will start dragging) before it hits really bad. I have had problems with neuro fatigue on and off for those years but usually big social events (where there is lots of talking in the room) and or when I have done many activities. My husband can usually recognize first when it is about to come on. Being in cement is a perfect description. Everything goes, my speech, physical abilities etc. It is frightening. As of late it seems to be coming on more. My adult children are probably the ones that do not understand why I do not work although my daughter saw neuro fatigue hit me on Christmas Eve and I think she may finally understand.
I needed this. Best advice I got from a Dr who fights Gullien-Barre "go ahead and get tired, but don't get exhausted" I get revered faster when I dont get exhausted.
Wow!! I couldn't understand why I had a funny head feeling and I have to sleep straight away.. may only be for 20 minutes to half hour .. I don't feelnguily after hearing this. Thank you. 💝
I'm almost 13 years post and taking a shower still wipes me out.
Oh no!!!
Agreed. I am 9.5 years out and bathing is one of the most exhausting things.
@harley8680 I figured out why it does but I can't change it. I have to step in the tub - all the slanted angles to funnel water to the drain. My brain gets overwhelmed.
I hate the thought of grocery shopping anymore. Getting in and out of my car, and if I'm lucky enough to get one of those carts, even Getting in and out of one of those is a chore😢😢😢
I ONLY go to stores that have the scooters or the drive thru, and that was BEFORE my stroke as my bone on bone arthritis in both knees is severe, even using a rollator is challenging. Now, I pace myself through the day, was in hospital due to mental/physical/financial stress caused by the stroke, and the respite was needed.
You and this channel have been a blessing to me...i have gotten more help and information from you GOD bless you ma'am! And i pray GOD bless my fellow stroke survivors! Romans 8:28!
It's going on 2yr since my stroke and I still don't feel like myself. It's so hard for my family to understand so I forwarded this video to them 😢
The last 10 months has been the hardest in my life. I get so scared sleeping at night because of muscle cramps (Spasticity) the pain gets so much i cry just to turn on the bed then waking feeling like your whole body is casted in cement. 😢
Thank you so nuch for this, I't's 7,omths since the stroke and I'm MORE fATIGUED THAN EVER BEFORE. Missed my Church service beccasue I just didn't have enough energy to get out of bed that I felt so guilty and was so angry with myself but after hearing this I stopped the anger.And I have a very hard time asking for help - my house is a mess too. Thank you for the videos. I need to esercise properly per your videos. They do help ,
I'm home from rehab, and just going to the bathroom, washing up, dressing, what to eat/not eat drink, it's enough that anything gets done AT ALL. Try to use my body to do tasks, since I don't have my homecare set up yet, still wiped out on the most simple things. Stroke is NO JOKE!!
I call myself lazy. It's difficult to be kind yourself
@lizgolden97 It really is, but like with all things in life, you can get better with practice ❤️😊
Watch negative thoughts.treat yourself the same as you would treat your best friend. - your reality follows the quality of your thoughts
@@PostStrokeOrg I'm trying
I am 6 months out from my 3rd stroke. I am tired ALL of the time. I push myself a lot. I am also having trouble sleeping.
5 strokes for me. doc only now of 3. ...... 2 no way i see a doc !!!!! a year off docs drugs yay !
Wow 5?! My first 2 happened in 2014 a week apart, 3 months of Speech, PT & OT & gradually I made it back to work after about 6 months. This 1 they said was closer to my spine & I'm still in therapy for it. My benefits are running out at work. Coming out on SSDI, no one seems to know whats causing them or why. Thats the worst part. Trying to stay strong, you do the same! Thanks so much for responding!!!
You have been so helpful. I have learned so much from you.
It definitely comes and goes.
Thank you for sharing this! ❤
Thank you for bringing awareness to this very important topic 😊
Thank you. I needed to hear this,
Thank you for helping me understand.
Yes this is what I needed to know, Thak you!
Tks, i couldn't understand why i no longer had motovation or enthusiasm to do ANYTHING!
Very affirming vid, thank you---especially that a) it (fatigue) exists; and, b) it's a uniquely fatiguing fatigue. I'm about 8 years from my thalamic, Left brain, right hemiplegic affected. Every day is a new day. I figure, if I wake up alive, excellent---I surely can go Bother. or Annoy Someone. THAT makes me happy! I found I had to learn to recognize I am fatigued even as I experienced Being fatigued---beyond exhausted--it's not even exhausted, it just IS Fatigue. I appreciate that makes no sense or may sound like Jabberwocky to anyone who hasn't experienced this fatigue in their marrow, but for those of us who have/do/are? It ain't no Joke. It's nice having the company of other people's reflections & comments with these vids---So helpful. Thanks.
Very helpful thanku
What a great video
I'm almost 3 years post the TBI and I was wondering if it will ever get better. I have to get into bed daily at 5 PM because I start losing the ability to speak and walk. I remember my mom called me lazy when I was around 3 months into my recovery, and it made me so mad! I asked her how she would feel if in order to every time you take a step it's like your shoes are on the wrong feet and think of how much mental energy that would take. Put the shoes on the wrong feet for a day, and that's how it feels.
P
Excellent video all true
There sure isn't much out there regarding strokes .
Tell me about it,! This and spasticity are on rotation with me weekly.
It’s so frustrating when I’m working on something and I’m interrupted so then I have to focus on something else, which is usually semi important, but still I want to be able to complete a task I’m working on.
It’s been since Feb 2022 I had my stroke. I’ve really got this. I’m exhausted after doing my duties I use to do before or after my 8 to 10 hour day. I was a hairdresser and stood all day. I now can do the laundry and dishes. I cook the meals but I have to get showered around 5 pm and I’m dead the rest of the day. If I go to to grocery store I have to go in the morning then beat the rest of the day. I have numbest the whole right side. I feel so tired in my brain. It’s more brain fog for me. Thanks for helping me understand this.
I get frustrated when people say," I get tired too". If they really knew. smh
Thank you so much! I was being so hard on myself because I can’t do what I used to! I used to do a lot and not even think twice about doing multiple things during a day. I had my stroke in June of 22, I’m still recovering and all my drs say I’m probably the best I’m going to get. My neuro has stated that I have post stoke fatigue syndrome. I’m learning to mange my expectations of what I can do each day.
Of course! Life can look a lot different after a stroke ands it’s hard because you want to judge yourself against your pre stroke self. But that’s just not helpful. I’m glad you’re finding way to be kind to yourself❤️❤️
Thanks!
Thank you SO much for your contribution to Post Stroke!! ❤️
I would have never understood this until I saw this video. Your videos are so helpful, specially to a caregiver like me. ♥️
I am year two and am still dealing with this and sensory overload😢tfs❤
Hello Dr Elyse
I watch your videos with great interest. They are a valuable source of information. Thanks for the same.
I had a brain stroke three years back.
My right side is paralysed.Your video is proving very useful in the recovery process.
My worry is fingers which close easily but does not open.
Would like your view on this.
Thanks
Rajan
I’ve found that my body feels heavier after my stroke that seems to improvement as the weeks go on
And I thought was just meds thanks God for you
I am only 3 mos post. My problem is shakey, trembling. The way i feel after the flu..
Lots of rest for you, this was me also for a long time - a good 6 months or more.
Facts
@agohio8366 ❤️
Thank you so much for this video. Exactly what I'm going thru right now, swimming thru concrete. OMG! I thought something weird happened to me. So my question is. Does it go away? If so, when?
Can stress bring this on?
I'm 41 and I find the combination of fatigue from stroke and fatigue caused by persistent AF makes it impossible for me function normally some days. It has now been 3 months and I am thankful to be walking and talking but quality of life is failing me.
I’m going to give this video to all my friends and family
Please do!! I hope this helps them better understand ❤️❤️
I find the nastiest part of post stroke fatigue is other's pig ignorance.. thanks for this video
Halo Elyse i just wanted to say science has made very little progress on nurostudies specially parylysis due to stroke they just have initial treatment and you are on your own immune response of the body.i myself am a hemmoragic stroke patient and I have spoken to best neurologist and surgeons they don't have the answer in short I want to say there is no cure for parylysis if by God's grace your recovery happens well n good or else you just die in a hope waiting one day you will recover.
Mine is trouble speaking.
for e.g. it may turn out to be something different
Good morning, Beautiful. Interesting ink 💖
Thanks so much! It's from my favorite movie, Howl's Moving Castle 😊
@@PostStrokeOrg Ah. Sounds vaguely familiar, but I'm not sure. I'll have to check that out.
Love studio Ghibli too. 3 weeks after coming from 3 months rehab. I am better than i was by far, but hate that i will never be anything like i was, and that hurts because I was so busy in the past. @PostStrokeOrg
❤❤❤❤❤
How long can it last? I have days often, but I’m starting 3 rd year post stroke
I just want to finish things.
Having neurofatigue teaches you who your friends are… and aren’t.
👍👍❤
Is that Calcifer from Howl's moving castle on your arm?
Is it the same as chronic fatigue syndrome? And my boss expects me to still do miracles at work.
Even though, I'm not that guy anymore. What about oxygen supplements? Or therapy.
I think it’s similar, my neurologist has called it post stroke fatigue syndrome
Can you please let me know if it's possible to still have neuro fatigue after 1 and a half
I still have it and I’m almost 2 years post stroke
I had a AVM and in hospital for 3 months and can’t see half my vision. This happened 10 years ago and still feel lazy. Can I still have this? I never want to leave the house is that part of it?
I used to think it sounded like depression but I’m just not depressed so I didn’t understand why my body was acting that way.
Strokes are very misunderstood. Every one is different 😢
Feel exhausted, but can’t sleep
Great information but It's too long for somebody with neurofatigue. Thanks
Thank you for everything you do ❤
Thank You ❤