Petra Klinge - Managing Life with Neurological Symptoms
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- čas přidán 30. 06. 2024
- Petra Klinge discusses “Managing Life with Neurological Symptoms” at the 2018 EDS Global Learning Conference in Baltimore. The slides used are available in PDF from bit.ly/2018ConBaltimore
A doctor who can learn from her patients -- sounds like the best doctor ever.
She did my surgery absolutely amazing. Thank you doctor.
‘If you cannot connect the issues, consider Connective Tissues’. Genius.
Where are upright MRI’s available? Teaching hospitals?
How frequent is developing Achalasia II when I’ve had EDSh & Pituitary empty sella, spinal problems from Sa - C1 & C2; lumbar and thoracicfu#ion#, tumor s, disc bulging and lack of when my bladder I’d full.
Dr. Klinge is amazing. I just traveled from my home in Tucson to see her in Rhode Island. I have classical EDS and finally after 27 years I got my diagnosis of tethered cord. She could see evidence of mine on MRI so my tethered cord is in-between occult and regular. I have surgery with her in March. The she is the sweetest doctor ever and has given me so much hope.
How did it work out?
Had surgery with her last March.
Hi, did you call to make an appointment or did they require a doctor referral? Any info appreciated
@@deann2609 You need a doctors referral along with a Full spine MRI, urodynamics study, and EDS diagnosis via geneticist. She will review your MRI's and then decide if she wants to accept you as a patient. She accepts those she believes she can help. You can also call her office and ask what her current requirements are. She is worth it! All the best.
@@kristinwallace6551 Thank you very much - very helpful
"Patients are the physician's partners"
❤❤❤
Wow... great dedication to her passion! As a nurse myself recently diagnosed at 55 I have so much to learn ...
Very informative and interesting, and I adore the zebra and giraffe graphic! I feel so much better that there are professionals on our side with this much dedication.
Thank you for the informative video. Love the doctor, wish there were more like her.
Love her! I was decompressed and untethered by Dr Heffez. If I ever need another surgery, I will go to her.
This was a beautiful presentation. Thank you so much. I loved the far graft info that was a fun thing to learn. All you said made so much sense. You might consider talking with veterinarians as they have some very interesting insights as well for human doctors that have made advances in different parts of medicine on both sides of human and animal medicine. Thank you for addressing the contrast issues and position issues in MRI. So frequently lesser drs will say " your scan is perfect you are the healthiest person I've seen according to this" but you are extremely symptomatic and unable to do normal activities of daily living. Thank you for sharing your knowledge 🙏 thank you for listening to your patient as well. You are an incredible dr.
just wonderful. thank you so much.
Extremely informative thanks so much
Dry helpful! I’ve learned so much Dr, Kline!
Absolutely fascinating and fantastic. I take it as my responsibility to teach my physicians what I have learned all the time. The ending was wonderful. I laughed at loud at the patient who insisted on having the test for mast cells…that’s exactly what I would have done and you are an amazing doctor for believing her. I have instructed many drs, including my husband, on mast cell activation (I have the anaphylaxis type ) which he said was a 15 minute blip in medical school. If someone could clarify the symptoms of bladder, bowel and legs I’d appreciate it. I certainly have them.. sudden urge (Depends in my future?😂) , occasional FI, but the leg symptoms are RLS (thank god for gabapentin) rather than the numbness and tingling plus RLS I had when it began 12 years ago. A restricted histamine diet definitely played a role in improvement. Because sharing information is important, I was transfixed by how the skull, sagging brain, atlas, cervical spine etc played a role. 12 years ago, mostly in bed for nearly two years and no one knew what was wrong except that I had developed non-IgE mediated anaphylaxis, I was diagnosed with fibromyalgia at Mass General and also at Brigham and Women’s Mastocytosis Dept because my lab results were repeatedly 1 point shy of WHO guidelines so, like everyone else, I had to help myself. One of the key things I did was find an Orthogonal Chiropractor who did multiple x-rays of the skull alignment then after mathematical calculations adjusted my atlas using a computerized machine that blows a puff of sound waves (I think) to make the adjustment. Holy sh*t, what a difference that made to the quality of my life. Yep, I have the typical curve in my spine, had the worst head angle and straightest cervical vertebrae the chiropractor had seen yet. Why this works is because when the head sits correctly on the atlas, the ensuing gravitational change goes down the entire spine which eventually falls closer to correct position. For the first time in years I stopped having sciatica. I only figured out I have hEDS a few months ago. A schoolmate (we are in our 60s) also figured out she had it too after being sick for years. I developed anaphylaxis to so many things after taking Cipro, she developed severe nerve damage after taking Cipro..and doctors still don’t do a 3 minute Beighton test before prescribing it. I will keep the tethered cord and possible lipoma in mind and ask for mast cell testing if I get to that point. Also for the hypotension, using Trioral (Amazon) every day as a WHO recipe sodium supplement has also changed my life by reducing FM to minimal and nearly eliminating CFS by keeping my blood pressure higher. Thank you so much for this lecture.
She was my surgeon 😊 absolutely the best there is
re 19:35 diagram. How do people get upright MRI imaging? It doesn’t seem to be readily available.
Only some facilities have them - and most not in US.
I found an orthopedic and sports medicine center with an open / positional MRI machine that can do an upright MRI. It's 2 hours away from me.
Very interesting!
Could EDS cause Epilepsy? Because I have both of them.
I know a few people with EDS who also have Epilepsy and according to specialists it is connected since EDS can and does affect how the brain functions and communicates with the body. I hope this helps 🙏🏻💕
What if your allergic to contrast dye :(
👏
Link for seeing the slides pdf doesn't work. Is there a way to fix it please?
I have these on my spine n i didn't have myleograpg