I Have An Autoimmune Disease • The Try Vlog
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- čas přidán 16. 06. 2024
- Do not take no for an answer
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EXTERNAL CREDITS
Devlin McCluskey
"what a terrible thing, to doubt your own reality" realest thing ever said
Korndaddy is so sweet and pure. He doesnt deserve to feel pain. He's deserves all the love and kittens in the world. We love you Zach. I hope everything gets better
@sophia frost 🙏❤
Jacklyn Ray i rate you 1/100.... your welcome
Yeah but he still supports circumcision,. and not even for religious reasons.
Hedwig what wrong with that
wow i just gave this person 1k likes
Your doctor sucks. No trained professional should ignore a pain that keeps someone awake through the night without full evaluation.
Yep. It's super sad, but it happens a lot. I remember one story about a women who lost a lung because her doctor ignored the signs of cancer due to her wight.
It's the sad political climate we're living in thanks to doctors punishing chronic pain patients thanks to drug abusers and the DEA and CDC punishing the rest of the doctors who actually want to help by burying them under mountains of paperwork and giving them restricted pain guidelines when prescribing narcotics or they threaten to take their license.
@MissKayRose And even when the pain is physically shown, doctors still won't do anything for pain.
Sage Park IKR
CAN YOU SHUT UP ABOUT ZACHS DOCTOR? THE THING THAT ZACH HAS ONLY AFFECTS 1 PERCENT OF PEOPLE most diseases that dont affect alot of people are very hard to diagnose beacuse there isnt enough research on them because most of the research is going on the bigger ones like cancer and lukimia
The same thing happens with many females. Doctors blame pain on periods
Landri Elizabeth jup, I'm always iron deficient even though my diet is fine "well must be very heavy periods". No I don't have very heavy periods. Please diagnose me properly
Well you do have to remember that a huge number of people do come in with complaints that aren't the result of a serious condition. Doctors usually rely more on objective measures like lab tests.
True, but lab tests won't always give them the information they need for the right diagnosis. Especially when we are talking about rare diseases. Objective is great, but it only gets you so far as a physician. You have to listen to your patients, especially when they are still chronically having the same issues after making the changes you suggest.
They also like to blame everything on your weight if you're overweight. My abdominal pain was just gas and I needed to eat healthier. Turned out my appendix ruptured.
Or they say that you're making it up, and that you're being dramatic.
Having a desk near Eugene would literally be hell
*The guy doesn't have a off switch*
'I give it three weeks'
*'like all Zachs relationships'*
Straight up savage
I would love to have that kind of coworkers. At least he does those things straight and honestly. That kinda a teasing is still good - and I bet if you have a bad day you can talk about it and say that please stop for today.
I have gotten sick and tired of cowerkers who talk behind your back or plan with others to bully you etc. And don't talk with you or overall communicate.
Nagarath16 yeh that's true
"Every pain I have... CANCER. It's cancer." Literally me.
Megan sammmeeee
Megan omg it's me I have a pain somewhere and I'm like '' CANCER I have CANCER''
Megan same. When ever I get a pain in my chest. I'm like.. oh god.. I'm Haveing a heart attack
All new updates about this game. shortlink.im/pzC1Z
Latest game videos. shortlink.im/8R8T4
Chronic pain is no joke. Good job Zach and everyone else going through anything similar 💕
🙏🏻
Thank you for this. I just found out, I have an AUD too.
This video made me cry because I can relate. I was suffering from extreme abdominal pain and bleeding for almost a year. It got so bad I couldn't even walk 5 feet to the bathroom without passing out. I couldn't take care of my son I stopped eating and I became very depressed. I went to the Drs and the ER more time that I can count and finally I got an amazing nurse in the ER who insisted that I be admitted. Turns out my blood count was almost half OD what it should be and if I didnt get admitted when I did I could have died. I got diagnosed with borderline severe ulceritive colitis and now I can raise my son. I am so grateful for that nurse.
You go!!!!!
I also have very bad abdominal pain. No bleeding. Have been dealing with doctors telling me it's all in my head or there is nothing they can do for me for almost 5 years now. I also have been to the ER more times than I can count. I've also seen pretty much every specialist that there is and they just tell me that it's either a problem in my head, as if I'm creating it out of nowhere or that it's nothing. The pain puts me to my knees I will be in the fetal position hysterically crying in pain and feeling like my upper stomach is going to rip open it's so bloated and painful feeling. It's the exact same spot every single time above my belly button. I am on a painkiller that helps when I'm allowed to take it, but if the pain is in the middle of the day, when my doses are at morning and at night, then I have to just suffer. They took me off of long-acting pain meds and put me on just the Breakthrough medication but I can only take it in the morning and at night. And like a lot of places in the world with the opiate epidemic and everything doctors are trying to get as many people as they can off of opiates and unfortunately because I don't have a known diagnosis they think I'm just looking to get high. Which is one of the most frustrating f****** parts of all of this. I haven't been able to work for almost 5 years and I feel like everyone has given up on me. I don't know what to do anymore. I'm glad that you got help and that you can look after your little one now, so I'm very happy for you!
Sounds just like me. It took years to finally get a diagnosis. The bleeding was so bad and I passed out in the shower once. So glad you got diagnosed. It took a doctor who's wife had the same disease to finally diagnose me.
This was me :(
I love stories like this! I’m so happy for you!!! ♥️
I had the same problem, but luckily after two years+ of suffering, a PA listened to me and now I’m on medications and finally after a year, we can get my heart back to normal without medications! Eek! I’m so excited!
How all is well for all of you! ☺️
"Oh he's riding a bike. Good for him" so cute. Hope he gets better
gabriella autoimmune diseases are un curable.
n Quinn I'm talking about his pain. It may not be curable but seems like the medicine he's taking is helping
there is definitely a feeling of relief to get a diagnosis. it's a confirmation that it's not just in your head and it is real.
Rebecca i know right. my back has hurt for years. for at least 3 years. i would complain to my parents everyday, and finally j told them that MY BACK HURTS. TAKE ME TO THE DOCTOR. so we went and i have 2 curves in my back ;)
true.almost 2 months without knowing anything.then when i was so close,a doctor finds out i have addison disease.
I have auto immune hepatitis. Basically my immune system kills my liver. I also have fibromyalgia and I'm in pain everyday. Be heard, the doctors study medicine to help us, keep asking , keep vocal.
Bleach thanks! I try my best lol
I was originally diagnosed with a Factor XII Blood Deficiency, but it didn't explain everything that was happening. After nearly 10 years of my mom, then me, arguing with doctors and insisting on testing we read a tip online to request that they put a note in the records that THEY turned down the testing. After that they were a whole lot more open to it.
We later found out that not only did I have a blood disorder, but some "normal" blood cells were getting though and getting attacked, which started eroding my muscles. This could have been helped out 10 years prior. The chronic pain I have could have been lessened, but no. Doctors need to listen. If a patient needs a test done, it needs to be tested for.
I hate it when doctors don't listen. My mom has the autoimmune disease Hashimoto's thyroiditis, and has been recently testing positive for lupus :( I'm glad you found someone who actually listened and helped you
I have Hashimoto's disease too =)
I also have hashimotos, I was lucky to get dx at 7
I still have chronic muscle pain, some ppl have acted like it should be fixed just bc I'm on hormones for it, but idk
i'm going into the doctor's soon to get a consult, but they think i have hashimoto's and it's a bit terrifying to think i have an autoimmune disease.
The way your doctor ignored your concerns are triggering, irresponsible.
But it happens so often, to so many people. Kudos to Zach for not backing down until he got answers, and much, much love to him for sharing his story and encouraging all of us.
I don’t understand why doctors would do this, at least try to help your patient. But at the same time, that just means more $$$ in America. I’m really fortunate to be in Canada since I’ve gotten surgery on my eye and went to the hospital a bunch of times and all for the cost of $0. The only money spent on me was for certain prescriptions or medical tape for my eye patch.
Tbh I've had more doctors not listen to me than listen.
Just Jia it happened to me too actually. It’s surprising how much that happens. That’s why I’m going into medicine actually! Trying to change the system.
Yeah it happens to women a lot
"ITS YA BOY CORN DIDDY" NEEDS TO BE THE OPENING OF EVERY BUZZFEED VIDEO 😂😂
Anusha Madhusudanan it's korndiddy
Anusha Madhusudanan hey demons, it's me, ya boy. KORNDIDDY
Anusha Madhusudanan "cOrN dIdDy."
Anusha Madhusudanan ii
It does!!!
i’m a 13 year old girl and in the process of being tested for Ankylosing Spondylitis. as i’m young, the doctors arent explaining to me what’s going on in my body. i just wanted to thank you zach for making this video as now i’m comfortable knowing what’s going on in my body. you’ve reassured me that, although it sucks, it’s okay. so thank you zach, really.
Praying for you and hoping you'll get better sweetheart ♥️♥️♥️
Hey, I hope you see this! I’m 20, got diagnosed with a.s. when I was 17. Never let someone treat you or tell you it’s not as bad as you think. Your pain is valid! Take things slow, don’t push yourself, take care of yourself!!! You’re going to find different things that help and others that make it worse, what works for others won’t always work for you. I hope you’re doing okay ❤️❤️
Bruh me too im only 13 years olf and i dont wheres the pain coming in my body it so depressing ever since quarantine started
To be honest...doctors ignoring your pain & saying it's nothing is sadly quite common. Glad you got an answer though
You may not be the tallest try guy.
You may not win all the challenges.
But I know one thing...
Because of the pain you handled all those years...you are the strongest try guy...or atleast I think so
Misma Misma that made me tear up a bit Zack really is strong
Zach's always been my favorite (I still love the other three)
Len Kagamine are u even a fan u know he hates his name spelt zack it’s zach
I've been crying for 6 days straight
preach
Zach, our little Jewish muffin, is going to be okay
As someone with a connective tissue disorder called Hypermobile Ehlers-Danlos syndrome, which causes joint dislocations/subluxations (partial dislocations), ligament and tendon ruptures or tears, intense chronic pain, and other varied and distinctly unfun issues, the takeaway of this video is advocate for yourself, *loudly*, *often*, and *don’t stop until someone listens*. I cried the day I was diagnosed, not because I was upset, but because I was thrilled to have a name after 33 years of seeking answers to why I was being injured so often, and so severely, with no one bothering to find out the root cause. The scared came later - and then the pissed came. I’m looking at being in a lifetime of severe pain and increasingly restricted mobility, and it didn’t have to be that way. I could have had years in which I had the knowledge that I need to protect my joints. If something is wrong, and you’re not getting answers, *speak up often, loudly, and don’t stop until you get answers - because you don’t deserve to live like that*.
I've also EDS. I understand everything you're saying. My mom discovered it at 35 and before nobody believes her. I've exactly the same symptoms that you're describing, I'm 17 and I feel like a 70 years old person. Because of the operations I got big scars and I feel really bad about them. I want you to take care of you and I wish you the best!
Wow your comment is a big mood. Kept being told my joint issues were overuse, and that my pain was due to anxiety/depression.
My uncle had EDS too, I’m pretty sure he was the first person in the UK to be diagnosed. It got so bad he has to be fed through a feeding tube to his stomach(I think he doesn’t talk much about it to me) and has nearly died multiple times he’s also confined to a wheelchair. If they had diagnosed him years earlier he would be so much better and able to enjoy his life more.
Yo I have hEDS too
I'm on a feeding tube because of EDS it caused my stomach to become partially paralyzed I have type 3 which is difficult
Welcome to the try guys, know your roles.
Ned- the father👨🏼
Keith- the funny one😂
Zach- the adorkable muffin🌸
Eugene- the hottie✨
Also a couple sad faces:
:((((((((((((((
All of them are funny tho 🙄
Mr. Duck ifkr 😍 I find Keith the hottest and funniest
Eugene-the alcoholic
Starjaws AJ we know but Keith is the funny one like he hold be the class clown
zach is an adorable muffin he’s literally so cute lol
"I mean living hurt...."
Damn Zach...u broke my freaking heart💔
My prayers are with u ❤
Zach's fans should be called kornflakes.
Jonah Lieb omg yes!!
boiiiii I love cornflakes
*kornflakes
Kornflakes
YES
As ironic as it sounds, finally being able to get an diagnosis or “label” of some sort is actually the light in the midst of hopelessness when you have been suffering for way too long. Best to all who have been going through tough physical and or mental health issues and know that hope always comes after you go hopeless for a while. (And hope you feel better soon Zach!)
"we hold on to zach's medication" we love our dads
Nursing student here, in my little sliver of experience with being out in clinic and from dealing with a chronic illness myself, as a patient, I can fully support what Zach says. When you go to the doctor, dont downplay how you're feeling. If the symptoms you are experiencing is ruining your life say it! If it takes screaming at the doctor then do it! You are the patient, you are advocating for yourself and unfortunately not all medical staff take patients seriously as long as they can sit, composed and have a conversation. Fight!
I have no diagnosis for why I'm so achy and my joints hurt, pretty sure it is autoimmune but after an MRI on my wrist they said it would go away. Finally I changed my whole diet to an anti inflammatory one and it all went away. I've since cheated on the diet to an extent and the pain is back. Moral of the story, if the doctors have nothing good to say, either try more doctors or turn to the internet and try other things.
The problem is that (especially as a female) if you freak out then you are just being emotional and get dismissed that way :/
JOHN Q STYLE
Rheumatoid Arthritis is an auto immune disease. MS is an auto immune disease. Lupus is an auto immune disease. Fibromyalgia is an ANA. There are over 100 different types of auto immune diseases out there where the body is tricked into attacking itself. Over 3 million women suffer from an auto immune disorder / disease.
REALLY DUDE!!!!????!!!
TheImpiroGirl true. there are some doctors (i used to have all through childhood) who would sit with you for as long as it took and ask you questions about every part of ur life and how whatever is going on with you is affecting it. and then they would help u solve ur problem. now that i'm an adult my docotrs (different hospital) are completely different. they just want to rush you out of there and they are rarely paying full attention. i once stood up in the doorway so ths doctor would leave. because she basically continue to tell me my pain wasn't enough for her to do anything about it. so i stood in the doorway and told her to sit down and listen. i explained she didn't know my life (i had just switched doctors) she wasn't with my since I was a baby and she didn't know my extremely high pain tolerance. i told her that the pain was affecting my ability to sleep, go to work, and continue my schooling. i told her she needed to help me and that doctors are there to help you solve problems that are negatively affecting your life. she finally listened to me and helped
it's hella scary because they basically hold ur life in their hands and i feel i'm kind of talking to a god because of how much they can screw you over or change ur life. but they are just people who have a lot of things on their plates and are likely incredibly stressed out. tell them like it is, they are there to better ur life.
Zach! Optometrist here. If one or both eyes suddenly become red, painful, and light sensitive, go see your eye doctor right away! There is a high incidence of something called uveitis (inflammation inside the eyeball) in patients with Ankylosing Spondylitis and related auto-immune diseases. If left untreated it can lead to permanent vision loss and glaucoma. Don't see your GP - they usually misdiagnose this as conjunctivitis.
Everyone here needs to like you comment in hopes he sees it!
ken tran go see an ophthalmologist (an eye doctor), not an optometrist.
DizzyCtube I have that disease
Even though I don't think I have this thank you for informing everyone :)
DizzyCtube I
I was diagnosed with Ankylosing Spondylitis about a year ago. When I was first diagnosed, the whole drive home for the doctor's I was crying. My best friend told me about this video, I watched it as soon as I got home and it gave me so much hope. Thank you, Zach. The past couple of years have been hell, but this video made me feel not so alone.
Zach: don't lick it
Keith: how am I supposed to taste it then?
Zach is a baby in an adult body. Must be protected.
M potato013 HE IS A BABY JELLYFISH!! SO CUTE AND SQUISHY
I agree!
You sure it's not the other way around?😂
*MUST*
Zach is so cute, we must protect him at all costs
Abbie Johnson must protecc!
Abbie Johnson whose
Abbie Johnson who
Abbie Johnson I don't want to
Abbie Johnson hes too precious for this cruel world
Thank you so much for putting your diagnoses out there. I’ve lived with Autoimmune for 41 years and it’s very miserable. Good Luck to you and I’m very happy you finally got answers.
I bet he has ankylosing Spondylitis.
Edit: I knew it. That’s what I have, and the pain is horrific.
OMG I died when he said " What up it's your little jewish muffin". I love the try guys!
He's Jewish??!
Amanda Thompson yes
i was your 1k like :)
Why is Zach single. He is so lovely and honest and amazing. ❤️❤️❤️❤️
Bear Dickson ikr? maybe thats his choice tho. He has many health issues to deal with.
Lol , because y’all dint hit him up
TheBestPlayerDead i would if i could.😁 he seems like a really nice guy.😊
donyanaticSone yeah probably his health problems
Right?!? Like I want to date Zach!
"I wouldn't lick it"
"Well then how am I supposed to taste it? "
Omg I know this video is pretty old-ish, but watching it made me kinda happy. I was recently diagnosed with type 1 diabetes and I hate it. But seeing one of my favorite people also suffering from an autoimmune disease makes me feel less alone :)
i don't think i've ever realized how cute he was until this video...
ItsJustMeDiana I did. Every time I watch a try guys video I think "why is he so damn cute?" Lol
ItsJustMeDiana same!
Im glad to know im not alone, seriously!
Dude me too... he got better. I think?
He's so adorable!!
This video just shows that everyone has their own personal issues off camera. I love it
i think it's quite sad, and frankly fuels my depression to a point where i'm in a spiral of intrusive thought i can't get out of, thanks.
I never knew how much I would relate to this, first time I watched this video, I was healthy. Since then, I went through hell and back, doctors not believing me, my own parents thinking I was faking my pain, getting told that it's all in my head, then getting told that it's a mystery and I should just learn to live with being in pain 24/7 because they don't know how to help me...
I questioned my own sanity, more than once. I thought about euthanasia if there really wasn't a cure because my life was no longer a life, I could barely do anything without crying in pain...
After all that, almost giving up because I just didn't think I could do it, I switched doctors for the god knows how manyth time... And she figured it out.
It was 8 weeks of shots and now I'm trying to piece my life back together because my body is severely weakened by a long time of being able to do nothing but lie in bed.
I'm getting better and all because I didn't give up. You know your body, you know when something's wrong and don't let anyone stop you from getting better!
I've been taking Humira for Ankylosing Spondylitis for over a year now, and I know how you feel.
There are days where I completely forget about the intense back pains that woke me up every night.
Congratulations on your treatment, fellow Humirian.
i wish i get prescribed humira too, people talk about it like a miracle. my doc put me on nsaids rn and said that she’ll prescribe me biologics only if none of nsaids help. i’m so afraid of nsaids especially considering my stomach problems and the fact that i can’t stop smoking
zach is such a pure cupcake he doesn t deserve this
• stefi • zach*
"Heard"
Marissa Moore "witnessed"
Jon Doe yea sure
czcams.com/video/sfapm5Y5NIA/video.html
Learning to advocate for yourself with medical experts to dismiss what you're feeling is a lesson that also took me years to learn. It's hard. People who don't experience chronic pain have no idea. It affects your body, it messes with your mind, it makes you question yourself. So when a doctor says its in your head...glad you finally got it figured out!
I really love that you shared this. I have been searching for a diagnosis for two years for a number of symptoms. Going to doctor after doctor, which test after test. It is so frustrating! Living in constant pain and fear is awful and I am so happy that you are sharing your journey. You are giving people hope. So thank you!
I know this is an older video but I want to say I am so happy you made this video and you continue to talk about AS! My stepdad was diagnosed in his mid 40s after years of back issues! He had a few unnecessary surgeries and so much pain! In addition there are the other symptoms as well. He finds keeping active is so important! It took so many doctors to finally figure it out. I am so happy you found answers at a younger age.
Zach doesn't deserve to go through such pain.. My heart shattered when he said, "Living hurts." Hopefully he gets better :)
It never gets better. My son has this and the bones continue to grow and fuse together until they form a sort of plate making it hard to move. Only then does the pain kind of subside. But then your movement is limited.
You cant really "get better". I have the same thing and the joints in your back hurt pretty much constantly. Your joints will only fuse together if you don't take medicine though, so it is manageable.
1. Your apartment is super well decorated. 2. I am glad to hear you are ok and there is medicine you can take. 3. Your advice is amazing. Thank you. 4. You guys should certainly start doing vlog updates on your life like once a week each.
zach is too precious to go through this :(
ZACh ZACH!!!! ATTIONION
I WAS GIVEN CBD oil/cream/gummys/drops idk. It helps with pain. And pain related to autoimmation diseases!!!!! And many other things Guys please like I want zach to see this. I want to see if this helps
Zach won't see this, they don't work at buzzfeed anymore
Zach has already confirmed he smokes weed so I'm sure he already knows and has known for awhile.
You look totally different! We can tell you're well rested and not in pain. You look way happier.
thanks
Nooooo
Our Jewish muffin is crying 😭
Bethany Fisher j e w i s h m u f f i n
this is my new favorite nickname for any of the try guys
I’ve just been diagnosed with this too. Got really emotional watching this because it’s like you were talking about my life word for word. Being diagnosed with scoliosis was the first triumph but then a spinal specialist told me it’s not severe enough to be causing me pain. Multiple years, X-rays and blood tests later and I finally have an answer. Thank you for sharing your story, it definitely made me feel less like an alien. Xxx
Oh my gosh! I love this video!!! So amazing!! I have multiple illnesses! I have endometriosis, PCOS, at risk for AS (same as what Zach has), and other possible disorders. From these I also have OCD, depression, PTSD, dermatillomania, trichotillomania, and other mental illnesses that go along with chronic pain and being told it's in my head. So, thank you Zach for being so open! I love this video so much! It really shows the destruction that can come from people saying constantly that they don't believe what you're going through. Amazing video!
idk why I lost it at "we hold on to Zach's medicine"
Yes! People need to be their own advocate when dealing with medical professionals. I'm glad your feeling better and treatment is working!
AllyOC1 Amen
AllyOC1 it is disgusting; if you are not "textbook" they do not want to be bothered with you. None of them think out of the box and get extremely agitated if you tell them you researched info.
In this day and age of "modern" tech I can't believe how frustrating it is that the med community has NOT evolved.
Cee Cee Exactly
Cee Cee yes don't trust doctors because they are always wrong listen to yourself and only yourself. You are an idiot if you think that none of them think outside the box. If it is as easy as reading a textbook then why don't you do it? Do you even know how hard it is to become a doctor?
Oh god going through all that pain sounds awful. I really admire your strength.
I think people underestimate how powerful a diagnosis can be. I'm Autistic, and was diagnosed later than I probably should've been. To have a name for this thing you're going through, its incredibly important.
Zak, OMG thank you. its nice to finally find someone else that feels the way like i do. I have lower back problems and doctors dont believe me. i cry everyday in pain and Im soooo taking your advice and keep pushing them to investigate.
thank you....
Charlotte in UK
I really don’t understand how Zach is single - it hurts me I am a Kornbuddy for life
Darcey Haynes i think he's gay honestly
He’s korndiddy but he’s my korndaddy 😏 😂
It’s cause he wants to be single I think he has commitment issues
M HJ nope
Chi awh
I want to thank Zach so much for this video. I also have an autoimmune disease and it went undiagnosed for years. I yelled and screamed at healthcare professionals and they all told me it was in my head. The heartbreak is real because the doctors make you feel crazy even though your pain is real. No one talks about autoimmune diseases enough or understands why those of us who have them are limited. It still makes me feel less human sometimes, but seeing more people talk about their invisible illness makes it easier!
Thank you Try Guys!
Kiana Wills it's awful when you hear the doctors say it's in your head. I got that for 5 years. it's so awful. xxx
Kiana Wills I'm right there with you. It's impossible to describe the feeling of a doctor looking at you and telling you your pain is all in your head.
I also am with you. My invisible illness despite being on very strong medication still makes me suffer on a daily basis.
I love watching videos like this! I was finally diagnosed with a chronic pain disorder and nothing is more relieving than finally getting diagnosed when you’ve been told no for years!
Loved this video! My husband was diagnosed with AS after he experienced a really bad airborne jump while in the Army. After weeks of excruciating pain where he literally had to be picked up out of bed, an army doctor finally used their brain and resources to give him the extra tests and care he needed and figured out what was going on. Unfortunately with the official AS diagnosis he needed to be medically discharged. This disease is so rough to watch someone go through. Zach, it is so inspiring to see you still enjoying life (Humira is a total game changer)! I can’t wait to show James this video to show him that even with physical limitations you can still be successful and find your niche in life.
"It's all in your head" you can't imagine how many times I've heard that 😖
Cece Dawson. Do you have a diagnosis yet?
Rachel Hartjes nope, still nothing
Cece Dawson. What are your symptoms?
Oh Rachel 😓 I’m sad for you that you’re being told this and that you’re still without a diagnosis. It could well be ‘in your head’ as our brain controls our nervous system and every pain we feel, hence why our pain receptors are screaming when other ‘healthy’ people’s stay quiet 😞 what are your symptoms / what do you believe you have? I wish you the best of luck xx
Andrea B. Awe, well thank you! But I was actually just responding to cece's comment. They're the ones without a diagnosis. I have Ehlers-danlos syndrome. It's often very underdiagnosed so I like to spread the word. ♡
As a nurse who has worked for over 24 years in the medical profession, even I have had problems with getting the doctors to listen to me when trying to get the necessary orders needed to help a patient. Any nurse will tell you nothing is more frustrating than knowing something is wrong with your patient, but nothing is being done about it. Thankfully , now,I work with a great team of nurses, doctors, and therapists who really listen to what their patients are saying and try to help them. To all my fellow peers out there, LISTEN to what your patients are telling you and always go with your gut. No person should have to suffer for YEARS like Zach did.
14Babsie i just want to THANK YOU for listening to your patients.you are a wonderful person.
This is what I don't get - why is it so common for doctors to either not believe or to minimize what their patients are going through? Do they really think *that* many people are malingering? Or is it more of an ego thing, in that they can't diagnose it off the top of their head, so they assume it's the patient that's wrong?
THANK YOU, as Diana said, for listening and advocating for your patients. I know nurses that go through the exact same thing, sometimes to the point where they can diagnose a patient before a doctor will, but the doctor won't listen.
That's what makes me think it's an ego thing, instead of doctors truly wanting to help their patients. Obviously, not all doctors, which is why I think standing up for yourself and/or finding a different doctor (if you can - it's not an option for a lot of people) is the best thing a person can do for themselves. It's hard to, because doctors are supposed to be the authority. It's also so common for doctors to do this that it's a skill that has to be learned.
14Babsie thank you for understand.
-a fellow spoonie 🥄
I hope you have a wonderful day, you wonderful person. ♥
I completely agree Ive worked in the nursing field for 10 years if someone just came out of surgery and sent them to a rehab with only tramadol when the really need is some hydrocodone I just don't understand
I just watched yours & Kelsey's videos about the pain you both suffer from. I needed to hear that today. Thank you for the encouragement.
I’ve been sick for almost 11 months now. I feel nausea 24/7. All the doctors I’ve seen have no explanation. It’s so hard to get through a day when I feel like I’m going to throw up. I’m getting a test done tomorrow, it might all be resolved. I’m so nervous.
Even worse, I’m nervous that it might all be in my head
How have things been after the test? I do hope it got better.
What was it?
It's so great being validated. Whether what you're dealing with is mental or physical, finally knowing what it is, is one of the best things in the world.
Anyone else read that as violated?
He actually looks healthier and happier tbh good for him
Thank you so much for being open and honest about your invisible illness!! So many people suffer and are dismissed because they don't "look" sick. So glad Humira is helping!
I am SO happy you got diagnosed and are finally living your good life!!!! I was diagnosed two years ago with Ehlers-Danlos Syndrome and I cried from relief. Relief that someone finally listened to ME. I wasn’t making up all the pain and I wasn’t crazy or a whiner. It was real. I say congratulations to you and continue to be well!!!
YA BOY CORN DIDDY 😂😂
Anusha Madhusudanan corn is with a K in his world
Rachel Lopez It's because his last name is Kornfield so it's with a K
Jade Tiffanie I know
I legit relate to the whole 'doctor not believing' thing. Ever since I was a baby I couldn't breathe through my nose, like no air what-so-ever. After years of the doctor just saying it was allergies and after years of nose sprays and pills my mom finally put her foot down and he finally referred me to the Ears Nose and Throat and in 3 minutes she looked up my nose and immediately said I needed surgery. So at 11 i had nose surgery and it's been 6 years and I can breathe through my nose now. 😂
Your mum is awesome!! But I'm sure you know that already.
Same thing with me and IBS... there is no cure.. doctors are all confused... they say its stress..
i hope i get to feel healthy someday too! c:
Allergies are the worst and it seems primary care Drs don't fully understand them. I just bypass them and see an ENT. After two major sinus surgeries, I can now breath and smell through my nose. My worst fear used to be having my mouth covered and dying because I couldn't breath through my nose.
As someone who got told by a Gastroenterologist that I had IBS... 5 years later, after it kept getting worse, I was diagnosed with Ulcerative Colitis and now Crohn's. Honestly, IBS is like the go-to diagnosis with digestive issues and it's super annoying. See a GI (or a different one if they refuse to do a scope).. It was super annoying that this one GI told me to stop stressing WHEN IT WASN'T IBS. If there's blood, it's doubtful it's IBS.... BUT that's just my experience... and now I also have Arthritis that flares with my Crohn's, as well as Subclinical Hypothyroidism and more!
+lys Going through something similar as well. The doctor i have now, is a nose/ear/throat "specialist". Absolute quack. And still, after years... No reason/diagnosis for my ear problem -_- All he does is do a temporary fix, and repeat when the problem reoccurs. As well as recommend surgery for no real medical reason.
I'm only 22 but for a few years now I've been experiencing a lot of pain just, everywhere. I have lots of weird little tender points where the slightest pressure makes me gasp from pain. Often my entire body feels achey, almost bruised, like I've just been beaten up. I've been told I may have fibromyalgia (my mother has it too) but no one can really pinpoint it, and usually doctors seem to think I'm too young or its in my head when I mention being in pain often. I'm hoping to find some sort of diagnosis for it someday, but until then it's exhausting. I have a job where I stand on my feet about 9 hours a day, and it leaves me in so much pain that I don't want to do anything when I'm off work because my legs and back and hips are in so much pain. If doctors could live a few days in my life they'd understand it's not me being overdramatic.
Ohhh my love ♥️♥️♥️. Is it better now? I hope you're okay baby. Such a terrible thing to go through
I have Fibro too and even before you mentioned fibro I thought you might have it. HOWEVER - rule out EVERYTHING else first! Insist on being tested for stuff. Good luck!
Maybe look up ESD and Hypermobility spectrum disorder. I'm not saying it is, I don't know you and am not a doctor. But I've been diagnosed with fibro and then also HMSD which explained my excessive pain and other symptoms too x
Fibromyalgia here too gal /:
Yeah, like your body should know it's "too young" to have those symptoms 🙄 I hope you can get some answers.
I've been struggling with this type of situation for the last decade. Ty for doing this video and opening up about it. It's gotten harder the last 6 yrs for me bc of very addictive strong medications my doctor put me on its made it impossible to have another doctor willing to take me on as a patient. My doctor doesn't listen & brushes everything off while my quality of life has exceptionally gone down the last couple years to where I'm not the same person at all. I feel stuck in this perpetual limbo of knowing I'm losing, my husband & kids are losing but I'm feeling 100% hopeless that there's any kind of help. I'm happy you were able to get a good outcome, considering the situation. Hopefully this video will help other people so they don't end up where I am bc they trust they trust the wrong doctor and think they are getting help.
Says "I'm not oka.."
Me : "IM NOT OKAYYYYYY
Mrs Me my chemical romance?
you honestly can't escape us, us emos are everywhere
Grace Jordan that is true
KiLLjoYS MaKe SoME NoicE
Mrs Me I promise
Thank you for being so open and making this video Zach. I have many friends with endometriosis who experienced the same maddening frustration with medical professionals. Something needs to change within the medical system so people don't have to fight tooth and nail to get the answers and care they need. Especially when there is pain involved.
Ouch, endometriosis sucks :( my best friend has fibromyalgia and also went through the same maddening cycle of being pushed from doctor to skeptical doctor :( so glad you and she both got a diagnosis eventually.
I have endometriosis and I went through this same aggravating cycle. I honestly couldn't stop crying watching this video- I really appreciate people being real about health issues and the medical world in general. 👏🏻🙌🏻❤️
I relate to this so much! Thank you for making this video. I’m dealing with chronic pain right now and because I believed it was just a migraine for so long I’m currently unable to work. Living with chronic pain is hard. Working with it is harder. I hope to get back to work and get over this pain soon. I’m very happy that you found the answers you needed in time to be able to keep working and living your life. Good for you standing up for yourself!
Awwww I'm so glad he's doing good. He's so optimistic about everything. Love Zach he's awesome 💙
The try guys should have their own channel
NMP99 if I'm right, i believe buzzfeed doesnt let them have individual channels :/
NMP99 if hey did that would be the only buzzfeed related channel I would watch
Buzzfeed main channel are the most famous one. Try Guys is their anchor shows. So, Buzzfeed is their main channel.
Wendy Morales ladylike does
Yeah "The Try Guys" are BuzzFeed intellectual property. Even though the group probably came up with the initial idea; it was while they were employees of Buzzfeed. If they were to leave, they'd have to change their groups name to something not even closely resembling "Try Guys". They'd also have a non-compete period where they cannot produce similar content with the same group for an agreed upon period time (can be up to 2, to even 7 years in California) without risk of law suit and forfeiture of all moneys owed in arrears and departure payments.
Thank you for making this video. I have scoliosis and ankylosing spondylitis. I have heard many back diseases and auto immune diseases called "invisible disabilities" because you look ok to everyone but inside you're feeling the chronic pain. I was diagnosed 9 years ago and it took so long to be diagnosed. Doctors didn't believe me of course. You give hope that just because I have a auto immune disease doesn't mean I can't have a job I love and a life. I had to go to a rheumatologist and they KNew exactly what was wrong and I had a MRI too. I'm 26 years old. Just wanted to say thank you for making this video.
LAURA M when i,was 10 I had reactive arthritis no doctor believed me until I got my rhumotoligst
SimplyxSabrina see if you can get a test from your Rheumatologist about the b27 and b7 markers on your cells. I had the b7 and that helped my rheumatologist diagnose me. Also, my sister has psoriatic arthritis and IBS but I do not have IBS. Honestly no trigger point injections, epidurals, nerve coatings, or humira Simponi or Cimzia helped my pain go away. Just a little bit at times. I am still holding out hope for remecaide and other options. Never give up hope and don't take no for a answer. Where there is a will there is a way is my motto. I hope any of this helps you. I'm sorry you're in pain and I hope you find relief soon. ♥️
Gabriela Ferro I hope you are doing better now♥️
same for me! i have spondylitis, scoliosis, and psoriatic arthritis
i didnt find out until i was 24. doctors dismissed me for YEARS
Me and my sister have scoliosis and arthritis. She was diagnosed 5 years ago and me three years ago but it was years of chronic pain before finally getting to the xrays and having a diagnosis.
Thank you so much for sharing your story. Far too many spoonies (people who have a chronic illness/illnesses) have to suffer for years due to doctors disbelieving them and not taking their pain seriously. Your message of “don’t take no for an answer” is the best advice you can give to anyone who knows that there’s something wrong with their body. Your pain and suffering is valid even if it isn’t visible to others, don’t give up until you have the answers you need to help give yourself a better quality of life ❤️
Zach I love you more than I thought I could! 😊😊 I also have AS and the whole video I'm like "yes! YES!... he gets me!!" All while sobbing because I have felt so alone during this journey.
You're amazing! ❤
Hate when doctors doubt their patients .-.
Small example: I had laryngitis and couldn't use my vocal cords, but I could let out a slight wheezing sound if I tried to scream. The doctor told me to speak even though I wrote down that I couldn't. The only thing my doctor told my mom was, "She's too afraid to speak." What the heck, doc.
I'm so glad I have a good doctor. I've got a lot of health problems and she always believes me when I tell her something.
Hands up for all of us with invisible illnesses that nobody else understands or believes, I got you🙌 💞
Thanks :)
Ellie Baker yes😞
Ellie Baker that makes me feel better. I have anxiety disorder, it's gotten better. But I still get so anxious sometimes that I start to cry. I'm crying right now cause I look back and see all the things it stopped me from doing. I'm still in middle school, I really hope it doesn't come back. But it's people like you that make me feel better.
Ellie Baker My mom has pulmonary fibrosis. She was diagnosed about 20 years ago and has to deal with it but there is no cure and she is currently living with it and her scarring.
Misophonia is soooo badddd
I totally get you Zac! I have had pain since I was 13/14yrs old (20ish years) and I only, finally had a doctor try to figure out the pain a couple of years ago and I finally got a diagnosis of Fibromyalgia. I am on sooo much medication and I am pretty much trapped in my body/house. I am trying to support getting medical cannabis legalised in my country but it is slow going and I and many others are still in pain. I am so happy for you finally getting a diagnosis!!! It is amazing when that finally happens. It is too bad that there are so many people who don't believe in a lot of chronic pain issues. Thank you for this vlog!!
Zac, i need you to know , im absolutely crying right now. I dont think youll ever see this but i was diagnosis with AS today. I had a very similar journey as you. Being told im fine ,then ti scolisis, which was hella mild to pain i can't sleep and cant function, i thought i was going crazy. I also did my first Humira injection today as well. Thank you for shedding light on an 'invisible illness '
You have no idea how much this video changed my life. After watching it I had the courage to schedule my own MRI for my back. The MRI confirmed Anklyosing Spondylitis. Unfortunately mine comes with a the SEVERE tag, so mine is even more rare. I've been on Humira since and it's helped me release a lot of the stiffness/pain in my spine. It's taken 13 years from the start of this road to the diagnosis. I'm still waiting on my disability hearing because mine has forced my neck way out of place. Thank you much for coming public with this, it really honestly did change my life. A year ago I couldn't go around the block and yesterday I just walked over a mile. It really is an insanely painful disease that I could be put on higher painkillers than Methadone, but choose to supplement with cannabis instead. If I could afford enough cannabis I would drop my pain medication. I do not like the opioid high.
DId you tied cnabis oil?
I hate the feeling opioids create as well. That feeling of not being in a right state if mind or not being in control!!
Thank you Zach. I have suffered with chronic pain for 26 years. Very few people understand the psychology of chronic pain suffers. You nailed all of the key points, waking up in the middle of the night, not sleeping, and the self doubting. I was kicked out of the Navy after 17 years for botched surgeries and the VA refuses to cover it. I’m glad you got the help you needed.
M
I just tested positive for the gene of this, and the blood test showed lots of inflammation, my joints crack and crunch and hurt, i find out tomorrow about my xray results and its so comforting hearing someone else who is going through what i am, thank you for making this video
I’m late but needed to see this so much I was just diagnosed officially with classic and vascular Ehlers danlos syndrome and it’s definitely the most painful thing I can personally imagine I’ve been dealing with it forever and I relate with all of your exhaustion 🥺 ty
If LadyLike got their own channel then I feel like The Try Guys should get one too!
Aeron James true
thats the double standard guys
Aeron James buzzfeed is sexist towards men... but that's nothing new
Sweet! Bruh
How
Sweet! No they're just more worried about women having power because it's usually men who have more "power"
as a collective we are all part of the 'KornHub'
This is my experience almost exactly! I've been suffering for years - often not sleeping, doctors had no idea what was wrong, people didn't believe me, I started to feel like I was crazy, etc. - I used to say if one more doctor told me I was "fine" I was going to scream my head off right there in the doctor's office. When I finally got diagnosed with Spondylitis last week and found out I might also be in the process of developing Crohn's (I guess the 2 diseases often go together), I felt intense relief and almost felt happy instead of being upset, because this meant the monster that had been ruining my life for years finally had a name and the doctors could treat it. It just shocked me how much this sounded exactly like what I've been through! Doctors really need to step up when it comes to autoimmune disease, I feel like it shouldn't have taken this long to get a diagnosis.
We love you Zack! Big respect for being so strong and not giving up on your health. You are a huge inspiration
Rheumatologists are God's gift to man. None of my family believed me when I said I was in the worst pain. They also thought my rash was nothing special when I know I never experienced anything like that before. Well, what do you know? Once they finally decided to do a blood draw they could see something was wrong and after a week of being hooked up to steroids I got diagnosed with lupus. Be persistent even when you're speaking to a "professional" who doesn't believe you. You have to believe in your own reality.
Madochée Bozier yes!👏👏👏
Madochée Bozier I 100% agree!🙌 I hope all is well with you and God bless!✨
I have Ankylosing spondylitis and Rheumatoid arthritis. There isn't a day that I don't have pain even with the prescription drugs.
#morethanabadback
indeted075 me too.. so sorry.. hang in there ❤️
I also have a.s. Stay strong friends
I have a positive Rheumatoid factor and I'm a HLA-B27 gene carrier and I've been having terrible lower back pain at night. I have just been reffered to a rheumatologist today.
Rheumatoid Arthritis runs in my family and my uncle has had some nights where he was in so much pain he couldn’t even move to take his meds. Now I’m starting to have pain more and more often and I have to do some exams to see if I have it too. Hang in there, you’re so strong every day💪🏼😊
I have Rheumatoid Arthritis and I feel like I started to have lower back pain that doesn't go away and watching this I feel like I might have the possibility of A.S too. How can I get a proper check up to know if I have A.S ?
I just found this from the one you guys released today, i just keep feeling amazed from finding someone with my same diagnosis. It gets better!
Humira did wonders for my psoriasis and psoriatic arthritis. Good for you finally getting the help you needed!
We must protect Zach at all costs. He's too precious to loose!!!!*wraps Zach in blankets and plasters a 'fragile' sticker on him*
Sahar Fujiki2004 this way up ⬆️
Sahar Fujiki2004 Lmao
Dudebro13454 Bro nope, Ned does. Keith has a fiancé, but Zach is single.
Haha this is so cute
Yeah, anyone who tries anything to hurt our Corn Muffin will be locked in a room with Eugene when he's feeling particularly stab-y.
Zach is so right - if your body is telling you something is wrong, LISTEN TO IT. Finding the right doctor can be a challenge, but don't give in or give up. About 15 years ago, I started getting these weird flus about every other month. Recovery took weeks with each episode, and I felt like warmed over death most of the time - plus I was sleeping 10-12 hours a day - which basically meant all I was doing was working, eating and sleeping. I was told by a doctor it was stress, but I felt like crap even on vacations. Finally, I changed doctors, and I was diagnosed with Chronic Lymphocytic Leukemia with a good prognosis. My life is now normal except I still sleep a lot - but now know that is both necessary and normal for me. A lifetime pneumonia shot (recommended by my wise goddess of an oncologist) stopped the flus. Zach, I totally get your joy at finding answers.
I had gallstones and it was years before we actually got that result and it was a relief when I found out that my gallbladder had to come out
May I ask a personal question? How did you go about getting a diagnoses? Was there anything from a regular blood panel that gave it away? I ask because I have suffered from odd bouts of not quite flu with vomiting every other month or so for about 2 years now and have been unable to get any answers.
Michelle - Yes, a regular blood panel revealed that my white blood cell count was about 8 times normal. From there, they did a specific test to verify CLL and then did a number of genetic tests to determine a prognosis. My flus were entirely respiratory, though, caused by CLL-compromised immunity. Good luck to you!
Why an essay
Lily's Life
That's not necessary to comment. Please be respectful.
Awe Zach I’m glad you feel better! Sorry about you having to go through all the pain for such a long time
But I’m glad your better
THIS IS EXACTLY WHAT I'VE BEEN LOOKING FOR!!! You literally explained how I feel every freaking day of my life! I am going to talk to my chiropractor, who is also a good friend, and see if we can check this! He has been suspecting an autoimmune disease for a while but I had no clue where to go with this! It is awful but I sooooo hope I might be close to an answer!