There are no words for your loss, my father had also FTD, and there is the posibility for me to inherit this dementia, now I am 39 and I began to be afraid that I will have this awful disease.
My father was diagnosed with the Hereditary version of ALS and he died 6 months later. If I have that mutated gen that was responsible for my father’s ALS, the chance of me having ALS, FTD or both is more than 80% I was told a few months ago. Never went through with testing since I had no energy and far too much pain for anything besides making the most of what little time we had left. It went fast, but the quality time I got those months will always be worth more than anything else. They are both rotten diseases, I saw a documentary on FTD and well, that was hard to watch. Can’t imagine living through it. Lots and lots of hugs, healing vibes, energy, warm hugs and all else that is good for anyone suffering from anything ❤
I was diagnosed FTD 4 mths ago, I’m 42. I have been using Audio Visual Entrainment or AVE and it has worked wonders in the short term for me every day, now I just pray it is helping me for the long run!
You’re, correct so far as in that there isn’t one test to determine FTD or any other dementia, however if you have symptoms coinciding with noticeable atrophy to regions of the brain showing up on an MRI, it’s pretty safe to assume.
Thanks, that was terrifying. Was looking for information on FTD when I saw your clip. I'm fixing to turn 66 and I present with every symptom you mentioned. OMG, WTF. It was good while it lasted I guess.
Do you eat sweet foods? A lot of people with ftd seem to have high sugar diets. Maybe try a paleo diet and see if you feel any different after a few months
Please educate yourself on mykotherapy medicinal mushrooms they definitely help to ease the symptoms. We also try a very low induced TENS device to stimulate brain functioning (new neurons connecting) with my husband.
Give a trusted family member power of attorney as soon as possible so they can deal with the burdens financially and medically on your behalf with no additional legal battles and loss of income to fight for you
@@JJ-xz1so That is the millilon $ question. I can only describe what worked for me when I was younger and that was massively increasing the size of my neck muscles with hard exercise like pushups and inversion. It somehow holds the blood vessels open or makes them larger, and thus increases drainage. Not totally sure but boy did it work for me. My intelligence and energy shot through the roof and I felt almost superhuman. But the trick is maintaining it when you get older. I am convinced surgery can be performed to correct it, but it must be different in each person's case. Probably some hidden structural damage inside the skull or neck messing things up.
That's interesting. I recently had an issue with my hands going numb at night. Drs couldn't help, but i worked out it was my neck position. Id wake up, not moving my body, but subtly aligning my neck, then the numbness would stop.. Also think re ftd, theres a diet link. Often ftd sufferers are sugar crazy
My son was 33yrs old when diagnosed with FYD, so young, terrible disease, he died at home 4 years later, nine months ago. Heart breaking
Sorry for the loss. May his soul R.I.P
I am so sorry for your loss. Sending you peace, strength and love.
😢sorry for your loss 😢
There are no words for your loss, my father had also FTD, and there is the posibility for me to inherit this dementia, now I am 39 and I began to be afraid that I will have this awful disease.
I'm sooo sorry for ur loss ✝️ 🙏
My father was diagnosed with the Hereditary version of ALS and he died 6 months later. If I have that mutated gen that was responsible for my father’s ALS, the chance of me having ALS, FTD or both is more than 80% I was told a few months ago. Never went through with testing since I had no energy and far too much pain for anything besides making the most of what little time we had left. It went fast, but the quality time I got those months will always be worth more than anything else.
They are both rotten diseases, I saw a documentary on FTD and well, that was hard to watch. Can’t imagine living through it. Lots and lots of hugs, healing vibes, energy, warm hugs and all else that is good for anyone suffering from anything ❤
I was diagnosed FTD 4 mths ago, I’m 42. I have been using Audio Visual Entrainment or AVE and it has worked wonders in the short term for me every day, now I just pray it is helping me for the long run!
Sorry to hear that, I hope it does help you in the long run
Can you tell me what kind of doctor do I go to for AVE as I’ve never heard of it and my husband has been diagnosed with FTD as well. Thank You!
If you or someone you love gets diagnosed with FTD don't try to fix it. You can't. Live the rest of life to the fullest. I know.
Neurosurgeon also found extreme hoarders a behavioral symptom of FTD unlike other Dementia cases
Nice lecture
Thanks
Bruce Willis having FTD brought me here.
Same here, I wanted to understand his illness. It’s so sad
Me too
Same. Wanted to understand this disease. Sad for Bruce
Me three! WE LOVE BRUCE WILLIS! ICONIC ACTOR!
Agreed. So sad. Love bruce
You’re, correct so far as in that there isn’t one test to determine FTD or any other dementia, however if you have symptoms coinciding with noticeable atrophy to regions of the brain showing up on an MRI, it’s pretty safe to assume.
Neuroquant MRI, is a way of seeing if one has brain shrinkage
My mother's was from a fall over the
Dishwasher
Thanks, that was terrifying. Was looking for information on FTD when I saw your clip. I'm fixing to turn 66 and I present with every symptom you mentioned. OMG, WTF. It was good while it lasted I guess.
Do you eat sweet foods? A lot of people with ftd seem to have high sugar diets. Maybe try a paleo diet and see if you feel any different after a few months
Please educate yourself on mykotherapy medicinal mushrooms they definitely help to ease the symptoms. We also try a very low induced TENS device to stimulate brain functioning (new neurons connecting) with my husband.
Give a trusted family member power of attorney as soon as possible so they can deal with the burdens financially and medically on your behalf with no additional legal battles and loss of income to fight for you
@@nanolight4337 Thanks
Pretty sure I got this after having chemotherapy
Please stay strong, you will be fine.
@Annabelle Watson Apologies, I had to delete my original comment.
Treatment.... let's say... nothing. I know it very well. Just patience.
This disease have fully medicines or this has only frequency of the disease decreasing by medicines n this deseas after some years increasing
Why can’t they find a cure for this? 🤬
Because maybe it's lifestyle based? No money in correcting peoples diets. Lots of money in finding a pill to help the symptoms
B/c a lot of money is ,add from memory units for people with this condition.
Brain toilet - lack of CSF drainage.
How is this fixed?
@@JJ-xz1so That is the millilon $ question. I can only describe what worked for me when I was younger and that was massively increasing the size of my neck muscles with hard exercise like pushups and inversion. It somehow holds the blood vessels open or makes them larger, and thus increases drainage. Not totally sure but boy did it work for me. My intelligence and energy shot through the roof and I felt almost superhuman. But the trick is maintaining it when you get older. I am convinced surgery can be performed to correct it, but it must be different in each person's case. Probably some hidden structural damage inside the skull or neck messing things up.
@@tenminutetokyo2643 Thanks for taking the time to reply. It's fascinating.
That's interesting. I recently had an issue with my hands going numb at night. Drs couldn't help, but i worked out it was my neck position. Id wake up, not moving my body, but subtly aligning my neck, then the numbness would stop.. Also think re ftd, theres a diet link. Often ftd sufferers are sugar crazy
@@JJ-xz1so Tidy Bowl
My husband was told he has FTD. I need help 🥲
I'm here to help. Please let me know how I can support you during this challenging time.