What to Expect at a Remicade Appointment

Sdílet
Vložit
  • čas přidán 1. 07. 2024
  • Hello everyone! In today's video, we follow CCYAN Fellow, Leah, as she goes to her remicade appointment for her IBD and talks about her experience with it.
    Be sure to check out more about Leah, IBD stories, and other information at our website: www.ccyanetwork.org/
    Enjoy!
    Do not own the rights to the songs used
    rosa-Vinyl.
    sleep tight-elias
    Sunday Morning-Robert Lilly

Komentáře • 48

  • @heathersanders4027
    @heathersanders4027 Před 4 lety +28

    My 11 year old son is going for his first appointment in the morning. He's scared, so we watched your video together and it was really helpful. Thank you for posting this to take some of the "fear of the unknown" away. :)

    • @crohnsandcolitisyoungadult4493
      @crohnsandcolitisyoungadult4493  Před 4 lety +5

      That is wonderful to hear! Happy we could calm some nerves, hopefully the appointment went well.

    • @marykayandelle
      @marykayandelle Před 3 lety +4

      how is your son? my daughter is 11 and going this week. we feel so alone.

    • @christianh4723
      @christianh4723 Před 2 lety +1

      I know it's been years since your post, but I hope your son is doing well and the Remicade has been successful for him. My first flare was at 11 years old.
      Now, after a long period of remission I am in the midst of another that reared its ugly head at age 29. Starting Remicade within the month.

    • @angelahonan9395
      @angelahonan9395 Před rokem +1

      My son was diagnosed at 11 as well. I hope your son is doing great. ❤

  • @idlikemoreprivacy9716
    @idlikemoreprivacy9716 Před 24 dny +1

    Thank you so much for sharing this first person view. Most helpful for me.

  • @brandonsmith7527
    @brandonsmith7527 Před 5 lety +12

    I was diagnosed with Crohn's about a month ago. My doctors prescribed me with Remicade earlier this week and I kept studying until I now just found this video to see how they even give the Remicade to patients. So I wanted to thank you for helping me and others better understand how Remicade works.

  • @darrenjlabas
    @darrenjlabas Před 2 lety +2

    Great video I sincerely appreciate you sharing. It has made a difference. Thanks

  • @Red-ob1pr
    @Red-ob1pr Před 5 lety +2

    Thank you 🙏🏽

  • @chalymarnelson4970
    @chalymarnelson4970 Před 4 lety +1

    You help me understand thank u now I feel ok to do what have to do!!

  • @noxtinker2936
    @noxtinker2936 Před 5 lety +5

    Btw if you don’t wanna get stuck a bunch find a dumbbell and use it for 5-10 min a day and drink a lot of water the day before that helped me a bunch

  • @xxohjohnnyboyxx
    @xxohjohnnyboyxx Před 2 lety +5

    Thank you for this video. Helped put my mind at ease. Just got diagnosed with Crohn’s at 29 and its been a lot to process. Hoping that Remicade helps treat it. Sucks that its a life long infusion. Thank you.

    • @christianh4723
      @christianh4723 Před 2 lety +1

      I hope it works for you!
      First diagnosis was at age 11 for me and now I am in another flare... age 29 as well. Courage and luck to you on the journey.

    • @kubilibitrus790
      @kubilibitrus790 Před rokem

      I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on CZcams , keep saving live sir .

  • @tiffyfaith8
    @tiffyfaith8 Před 2 lety

    I have hidrentist and my doctor put me in a referral for this. Came to youtube to learn more! Thank you for the info.

    • @kubilibitrus790
      @kubilibitrus790 Před rokem

      I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on CZcams , keep saving live sir ...

  • @madamlt5758
    @madamlt5758 Před 2 lety +4

    I have my first infusion coming up in a couple hours. I’m pretty nervous 😟 thank you for the video though it has put my mind a bit at ease. I just hate them not being able to find a vein and then having to walk around for a couple weeks with bruising on my hands and arms.

    • @kubilibitrus790
      @kubilibitrus790 Před rokem

      I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on CZcams , keep saving live sir .

  • @marlynj1984
    @marlynj1984 Před 3 lety

    Thank you for sharing. Appreciate this video. I will be having my first time soon. Do you work?

  • @codyclaeys2008
    @codyclaeys2008 Před 3 lety

    I have AS for a long time now and I’m going to be starting my first infusion within next year

    • @Xeromith
      @Xeromith Před rokem

      I've had AS for 40 years, over the last 20 years, I've been on Embrel now Simponi. This will be my next step, probably this summer 2023.

  • @johnschirloff836
    @johnschirloff836 Před rokem

    I have CROHNS DISEASE since 2010.
    Do you Feel Sick or Upset Stomach after REMICADE IV INFUSSION????

  • @shaunturner1067
    @shaunturner1067 Před rokem

    Tell me more about renicade I on imredi at Min with little effect and was on prednisolone again little effect

  • @michelleremmerden8354
    @michelleremmerden8354 Před 4 lety +1

    Remicade can be infused at home! No long waits at infusion offices and one on one with a nurse!

  • @Anglie777
    @Anglie777 Před 6 měsíci

    Hello dear,can you tell us about the adverse effects of this treatment.?any other tests you have to do.?

  • @johnschirloff836
    @johnschirloff836 Před rokem

    Can you go to Work Day after you have your IV REMICADE INFUSSION or should you stay Home for Few Days After????
    Are you Tired Exchusted usually after REMICADE IV INFUSSION????

  • @noxtinker2936
    @noxtinker2936 Před 5 lety +7

    This disease sucks hope you’re feeling better with it and don’t get a immunity to this drug like I did because when that happens it sucks

    • @kubilibitrus790
      @kubilibitrus790 Před rokem

      I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on CZcams , keep saving live sir ...

  • @aprilshelton9355
    @aprilshelton9355 Před 4 lety +2

    My Rhumatologist suggested I start infusion. I’m just so concerned about weight gain, hair loss, and I’ve been trying to lose weight too with no success. I had a baby 19 months ago. Iv take humira currently for a type of arthritis. Thank you for the video! It was helpful

    • @marlynj1984
      @marlynj1984 Před 3 lety +2

      Hi April. I was taking humira as well and my body developed antibodies fairly quickly. I’m nervous about all the things you mentioned as well.

  • @MrsAlmaTrumble
    @MrsAlmaTrumble Před rokem

    Was on Remicade for years for my Crohn's till last November decided to take a break from it. Had bad side effects from it. My doctors want me to retry it now.

    • @kubilibitrus790
      @kubilibitrus790 Před rokem

      I was absolutely delighted grateful with the immediate treatment I got through ( Dr imenherbal ) channel on CZcams , keep saving live sir ...

    • @fishandchips1762
      @fishandchips1762 Před rokem

      Why would your doctor suggest a dumb thing like that when you have had previous bad side effects to it. ?

  • @bobhanson540
    @bobhanson540 Před 22 dny

    I am on a medicare advantage plan how much will this cost

  • @BautistaIsolina52
    @BautistaIsolina52 Před rokem

    Thank you for sharing. ? Side effects? 4 hours 😢

  • @jenniferrobertson7931
    @jenniferrobertson7931 Před 2 lety

    I dtart my first round today

  • @marenwilliams2787
    @marenwilliams2787 Před 6 měsíci

    Benadryl is a sleepy pill

  • @MEL-TV93
    @MEL-TV93 Před 2 lety

    getting the iv is the worse part, one time i got poked 8 times

  • @urandurparthu1526
    @urandurparthu1526 Před 5 měsíci

    wait a minute does an oncologist give us biologics treatment, not gastroenterologist

  • @presidentdutoaster7921
    @presidentdutoaster7921 Před 2 lety +2

    Remicade treatments don't work for me. I have doubts about the composition of the remicade. There would be mouse cells. The only alternative that I have found is quite simple to do. It is without side effect.
    In a glass, you mix:
    - 1 spoon of turmeric
    - 1 tablespoon of olive oil
    - a little pepper
    I did not extend this treatment more than 3-4 days.
    I no longer need to go to the hospital. My gastroenterologist once told me that my natural alternative is part of a cult, yet it has been working very well for 10 years. I had a few seizures and got away with turmeric. The medical staff are always trying to sell you medicine. When they injected me with cortisone, I also needed calcium ... Natural solutions work better, are much less expensive and have far fewer side effects.

    • @theelevatorstation
      @theelevatorstation Před 2 lety

      would you be able to dm me you way of doing this ? I would love to try for my crohns treatment

    • @theelevatorstation
      @theelevatorstation Před 2 lety +1

      idk if you can dm on here but I would love to get in contact with you about this method it seems interesting

    • @kyra5067
      @kyra5067 Před 2 lety +1

      You sound really dumb. Everyone's body is differen't. My colon is fucking bleeding, some olive oil and turmeric is not going to solve it alone...