My Symptoms with Functional Movement Disorder (FND series episode 2)
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- čas přidán 3. 08. 2024
- Hope you enjoy the 2nd video of my FND series. Today's is about the specific symptoms I get from my Functional Movement Disorder.
I'm going to be uploading every day for the next week. These 7 videos are going to be all about FND (Functional Neurological Disorder) and the variety I have, Functional Movement Disorder. Hopefully you'll find these interesting and informative!
If this is your first time here on my channel, welcome! I do a mix of different videos here including ones about what I get up to with horses (dressage, reining, and carriage driving amongst others) but if you're not horsey there's plenty of other fun stuff to enjoy including vlogs. Hope you enjoy!! - Sport
I have a movement disorder amongst other things. I've had it for 29 years. I can't really walk without my legs severely shaking, jerking and spasming after. I can't tell about it openly. I appreciate your channel.
Thank you so much for sharing so much of your personal life. I feel such embarrassment talking about the symptoms because I can't control them. I scream at my body to control them & just can't... It's been emotionally draining. The symptoms you have mentioned I always thought were just my experience & never knew the right words for them. Thank you so much. 🙏❤️🙏
I'm so glad this has been helpful!! I didn't share this for a long time as I was worried about judgement but I've realised there really isn't anyone out there being open and discussing their experiences with FND and when I was first diagnosed I found that incredibly frustrating. It makes you feel so alone in it all. Trust me I've shouted at my arms and legs before now 🤣... it's frustrating but I try to just laugh about it now as sometimes you just have to go with it 🤷♀️😂😃
@@YeyOrNeigh I thank you for that, so much! I've been dealing with this for 8 years without knowing what it was.. I'm still arguing now with dr's because there's no tips on mental health with it or symptoms. So I appreciate you who really are, in everyway your own expert. 🙏🏾❤️🙏🏾
Really informative, thank you!
I loved the "we'll talk about that later". 😁
🤣 yep that should be my catch phrase!!
Thanks for sharing. I like the detail and the clips of examples
It was really nerve wracking for me to share those clips but I'm glad it's been helpful for people!!
This video is so helpful for me as someone who is doing their research on the disorder considering its likely that I have it
Really amazing video! I apologise I wasn’t fully aware until you popped this video up. You are so engaging and I think this channel will grow and grow! You are amazing!!😀😀😀😀😀
Awww thanks!! Yeah not many people know about FND so don't always realise what it is I'm talking about 🙈! Thanks for all the support you're so kind 💕
Enjoyed your video.Very informative. Thanks for sharing your experience
Glad it was helpful 😊
I say this as I get myoclonic seizures in my leg arms and face and involuntary head movements/head nodding facial grimacing and I discovered wearing glasses helped calm them down i have mild hyperopia and astigmatism my.
Thank you so much I have many of these symptoms & waiting on a neurologist referral. This came to mind again last night (even though it is always there in some form) when I had an episode which leaves me walking with both feet turned in & short arms much like a t rex:( I did think at first that it could be parkinsons due to my age but when other symptoms started i.e. the gait, it has made me wonder. Approximately, 3 years ago I experienced neck spasms about 33 times a day but my gp put it down to my arthritis...hmmm, now I am wondering if all the symptoms I have experienced were the start of neuro issues. I agree it is so frustrating when you lose the words. I was at hospital the other day for an appt for my heart & the receptionist told me 3 times where to go & she may as well have been speaking another language. I could hear the words but couldn't process them to put into the actions...got sent back to her 3 times from different depts until I finally understood:( Take care.x
hi friend! I also have FND and I was just diagnosed recently. I have lots of the same symptoms as you but my gait is different and I have it in episodes. Just looking for community :) feel free to reach out
Hi! Yes there are always variations between us FND warriors but it's still great to chat to others and help each other out. Always here if you want a chat 💕
@Blank Blank It's tough when you first start out but always here if you need some support
Hey!
I am 19, i get tremors and i have muscle twitching.
The thing about my tremors are that they developed gradually unlike in case of FND where you have sudden onset of symptoms.
and the thing is my tremors are present all the time like 24x7. I don't have resting tremors neither i have movement tremors these are i would say postural tremors like when i take my hand to a particular position i get tremors but the amplitude of my tremors reduces when i am distracted also all of my MRIs, CT scans and all other test reports are normal. No doctor that i have ever shown my symptoms to was able to give me a proper diagnosis of what i have. Do you think this might be FND?
I know you are not a doctor to diagnose me with a situation but just wanted to know that did you also had similar symptoms.
Sorry for not responding earlier!!
Sorry you're having these issues, I know how tough it can be when you're dealing with unknown conditions. FND can be so varied so just because your symptoms don't exactly match mine or someone else's doesn't necessarily mean anything. It can come on gradually (and actually I had some small symptoms in the months leading up to when I got my big "crunch" so to speak). The fact the CT and other tests have come back normal does perhaps point towards FND. I'd definitely recommend you have a brain and full spine MRI, and nerve conduction studies if you haven't already, as those were crucial to ruling out other conditions in my case. The fact it happens in certain positions for you could mean it's a nerve pinching which would get picked up on those tests.
FND isn't diagnosed purely on an excluding other conditions though, there are a few neurological tests that a neurologist can run to check but they do depend on your symptoms, the fact the symptoms reduce when distracted is one of them but there are some others. I'm no doctor 🙈 so I'm only working off my experience and what I've learnt through a lot of research, so I'd definitely recommend seeing a neurologist who knows about FND. Are you based in the UK?
@@YeyOrNeigh Hey!!!!
Thanks for replying, So, since the time i wrote this comment, i showed my symptoms to some other doctors as well and they asked me to get some more tests done (NCV, EEG, EMG) all came back normal, apparently my doctors think i have essential tremors. I told my doctors that lately i am also experiencing muscle twitching all over my body these are small twitches just like an eye twitch but I experience them all over my body (biceps, thighs, calfs, neck, back) these twitches lasts for few seconds only. But my doctors diagnosed me by assuming that the condition that i have is either parkinsons, hyperthyroidism or essential tremors they didn’t consider FND so i am still confused because amplitude of my tremors varies a lot, sometimes it is bad (specially when i am nervous) and sometimes i feel like I don’t even have tremors (distracted or when moving my other hand or when walking). Btw i am not based in UK but most probably next year i’ll be there for my masters degree.
@@darshanrathi1600 Yeah I get the muscle twitching too. It's good that the doctors are looking into all the possibilities. These neurological disorders can all look very similar from the outside so it's good you've got the doctors looking at all your test results. Hopefully they'll be able to give you some more support now you have a diagnosis!! That's exciting about your masters. What are you looking to study?
@@YeyOrNeigh I'm looking for a masters in material science, currently i am doing my bachelor's in mechanical engineering.
Have your tried wearing glasses to control them , I suggest getting your eyes checked .