Caregiver Training: Sleep Disturbances | UCLA Alzheimer's and Dementia Care Program
Vložit
- čas přidán 11. 02. 2018
- The UCLA Alzheimer's and Dementia Care Video series provides viewers with practical tools you can use in a variety of settings to create a safe, comfortable environment both for the person with dementia and the caregiver.
To learn more about the UCLA Alzheimer's and Dementia Care, please visit www.uclahealth.org/dementia/c... - Věda a technologie
This is good advice. The problem is when you do it day after day after day it drains you of your own life because you’re just living for the person that you’re caring for all the time and that is very hard. We do things like this all the time or I should say, I do things like this the caretaker too. My mom has a perfect life. I’m the one that doesn’t have a life.
That's exactly how I feel, my life stopped and I am a wreck and my mom is getting all my time and energy. I have never been so tired.
This has been my experience as well. Overnight my LO turns on every bedroom light, every 30 to 90 minutes, asking if everyone is okay. This can go on from 10 pm to 6 am. During the day he doesn't want to do anything. As soon as the sun starts rising he falls asleep.
For the carers and others in the house it's like torture. We're all exhausted.
I think this approach is actually very helpful to manage the situation.thats what I have been counselling my family to take care of my mother diagnosed with vascular dementia back 2 year.
I wish more hospital staff were trained in Dementia care. The last time I had to stay on a ward this elderly lady kept wondering to and fro from the toilets, which were opposite my bed. The poor thing was very disorientated and kept going through my bag of clothes, probably thinking it was her stuff. She also thought my bed was her bed so she kept trying to get in it with me. I was too unwell to get up and lead her to her bed so I called a nurse to help her. The nurse just told her to get into her own bed and walked away.
After several more of the lady's expeditions the nurse ended up yelling; ''you're keeping everyone else awake, get back to bed and stay there!'' Needless to say none of this helped the confusion in any way
That's really sad. They're the professionals. They should be trained for this.
Not everyone in a hospital, rehab, assisted living, or nursing home is nice. :(
Even me i lost my temper im caregiver takecare dimentia😐😐😐
I’m actually watching some of these videos for my Health Care Aide course, to prepare for the Long Term Care exam (tomorrow). So we are being trained 🙂 but, I guess it also depends on the location, and the care workers themselves, as to how they treat patients that have dementia/Alzheimer’s.
So sad 😞
I wish this actually worked,none of these methods help because they just get back up from bed anyway. and no one in the house gets any sleep.
I agree that's why they need to be put into a nursing home it's a heartbreaking thing to do believe me my mother had Alzheimer's and my sister has it now also and it's just ripping my heart out of my chest but soon we won't be able to handle her and I keep telling my other sister she's got to go I don't want to end up committing murder and go to jail
I can't have a new job because I have to take care of my dementia father.. My father is heavy smoker... Everyday is so tough for me and him.. He's angry everyday and keep asking the same question.. If i ignored it or answers all of his questions, it's end up with arguments.. He's curse all the time..
@@poodledog8479 man I in the same shoe but mines is my father and he has lost some much in life and seen so much 88 years but body of 20 years olds he can talk for 6 hours none stop and no ting make sense there is none that can shut him up I got super pills 💊 they work for 1 hour max and he is up and talking crazy making ever female his wife I lost my mom 2 years ago and this happen to him 9 month ago I feel your pain I use to get upset mad want to fight try kicked him out saying words I would never say to a dog I would fight my kids my wife because of him lost my job sold my business lost 45 k in 8 month just taking care of him not knowing why is this happening to me none of other family would take him in until I told my sister one day look I am losing my mind you want a free place I got a big house really big house thanks to good and told my sister that my wife me & you can do this as team and have my lil kids help at time and then pills man I tell you what I’ve been seeing no changes I try my best to show noting but love we all do still same says words to us all I mean them mean words that hurts the crap out your feelings says things that I can’t even have people to com over because he just won’t stop hugging and kiss people I’ve done the walks I’ve done the pills I’ve done the reading over done the what he wants not us we have all become liars because of him we make things up like there is no tomorrow I’ve a Covid-19 because of him and he had also but it shit me down like dog did noting to him just made him sleep for a day I’ve try so much things that I just want to give up believe it or not I’ve even questioned GOD and hope he forgives me because it’s hard I mean really hard to see that person that made you and now your taking him a him to the bathroom shower and feeding him because he dose not know how to eat at times or wash up at times as a man with kids man it’s killing but I know one thing I would go sleep and my car if it makes him happy I go homeless if it helps him I do anything before I send him out my house what made me wake up one I was reading this book Called ( QURAN) and that’s when I’ve made my discussion that the only way for me to seek happiness is to see him happy and me being there when he is in need mom or dad
But in your case might be different I will say this if possible if try your best by just saying your right and no matter what you do never let your feelings or your joy get in the way because people like them can be hell for us but in gods eye this noting but a test because he’s got you something that you can’t even imagine it’s funny how I say this to my kids be good at school you get to pick your toy end of the month sounds child’s right but in god words and his worlds this how he tests us some with health some with wealth some with issues like us I know might’ve know this already but because I am here and I seen your comments the only thing I can do is share a day in my house and letting you know if I could be of any help I am here I will pray for you and your family friend... from what I know people like them don’t get to live to long (btw) so spend time with them even if they hate you I feel your pain things that they say or do is just nonsense like opening the water and just washing the floor or putting everything in there packets be smart your are be strong you are be ready you are be thankful that have to be because you will make it believe in your heart friend
year ago. hope they are still well... trazadone or ambien helps if they are compatible. doses arent standard, much less, and work just as good.
@@richardkendall7190 The drugs just make them take off their diaper in the night, shit and piss everywhere, and finger paint with their bodily fluids..
There comes a point in time when enough is enough.
I have come to so many of these videos to see if it’s something I’m missing and to piece together knowledge from every one I run across: however the tips and approaches are certainly helpful but realistically the formula of information given isn’t working in real life at least for my case as a caregiver…… 😢 but definitely Thanks for the pointers
Ya make the actor of the caregivers 50% more agrevated. And it doesn't end with agreeing. It ends with the same scenario happening over and over.
These caregiver videos are so unrealistic. No matter how nice you talk to the patient, a lot of them are still combative and the same problems happen over and over. My mom wakes up in the middle of the night and won’t go back to bed until I get up and make her go back to her room. Sometimes she’ll just sit there and stare off into space. I’ve never been so exhausted in my life.
Yes, no matter how ĺnice you talk to them they don't seem to understand anything.
My mom is almost 90 and there are no activities she can do anymore. Keeping her awake in the daytime is impossible, night time is terrible for me as her caretaker, she wants to get up 10 times in the middle of the night for different reasons. She needs to be watched 24 hours a day, I can never leave her alone. She thinks she can still get up and go to the bathroom etc but she is to weak she will fall. I have never been so tired in all my life.
When my husband is in the throws of Sundowning it seems he is in his own world, and so determined to achieve his task at hand…it’s so terrible…we’re we live the weather is extremely hot, too hot to go out during the day for even walks,,,,,so as well as everyone else during the lockdown, now we face excruciating summer..so we are stuck in the house….no sleep at night…it is heartbreaking, while at the same time so upsetting and frustrating…..I am always exhausted…..This disease consumes the caregiver of any free time….I love my husband so much, and care for him with my heart, it saddens me to be taking this journey…..
It is so difficult; it drains you of your life. God give all of us strength.
I appreciate the time and effort that goes into making and presenting these videos. For non-caregivers, it gives them some idea of what caregivers go through. I have three sisters (two of whom, say they "oh, I know what this is like" but have never spent a single minute caring for mom), all removed from the caregiving process. I mention this because there's a strong misrepresentation, among many, that dementia patients just sit in a chair and quietly watch TV all day. Nope, that's not even close to how it goes. I currently average 4-5 hours of (interrupted) sleep each night. A lack of sleep, I can deal with. Mom's increasing desire to wander and her refusal to stay hydrated - those are issues that I struggle to manage.
For all of the caregivers out there - Thank You!
For all of the non-caregivers who truly want to help - Thank You! Learn and educate yourself before you rush in and say to the caregiver "okay, I'm ready to help". The caregiver already has their hands full, they don't need to add training to their day.
Yes my situation exactly. I also go around with a knot in my stomach just waiting for the next big fall. She does not take direction well. In short spurts, but nothing sustainable. So I find my self pleading with her to just sit for a while. We can’t even watch a whole show together. Her mind won’t shut off. She is physically very strong, but she still has fallen trying to pick up things or straighten out things.
I love the second approach
The fact that the mom still thinks her son is a kid and is worried about getting him off to school is so bittersweet. Like she looks at this frown man and her dementia makes her think “oh he’s just a kid, he shouldn’t be up this early!”
Nice sentiment but I agree with others on here that it doesn’t work when the dementia sufferer is non-compliant. Dad (86) will just get up again and again and will get irritated with us even when approached with patience and respect. He needs to go to a home but Mom doesn’t want him to for fear of abuse. He may end up burning our house to the ground one day though with his turning on the stove burners and forgetting to turn them off once he leaves the kitchen.
I keep doors locked, keys out, switch off gas hob, kettle, toaster etc when I'm not using them. (In my case it's my husband with dementia). 'had nearly 50 years together and I'm a lot younger- always thought I'd be able to care for him 'til the end, but this has almost broken me and I think a care home is next step. He'll hate it and not understand...
Don't know how you're all coping.
I became a caregiver for my father and it feels like my life is forever changed.
😔
They're probably not all coping....there could be lots of stuff they don't mention
@@salehmalaeb4715
No one talks about this part of life. Its completely exhausting
I am in the same position as you. Fate stuck me with this. It sucks. My Dad is 86 and may be around for awhile. Sacrificing my best years for another sucks. Best wishes to you.
@@celticspirit1
My father passed 6 weeks ago. He was 83. It makes absolutely no sense that parents aren't supposed to die. They're are always supposed to be there for us. It seems like everything that hasn't happened yet are part of our golden times. People and things that were important to you now fade into a background. I'm not saying hug and hold your parents everyday because there is a daily grind. Just know not everyone does what you do, but if you are, they appreciate it. Just sharing. 🙏
@@chrislim7976 Sorry for your loss. Agreed that parents are our protectors and providers in the first half of life and in the twilight of life we care for them. I hope you find peace in your life. I’m 52 and realizing that the only person in this World you can rely on is yourself. Love yourself and put yourself first now since you cared for your Dad. I have a sister who is doing nothing in the care for my Dad is just looking for his money. Take care and best wishes.
This is all nice & tidy but it’s not reality. Reality is that they wake up repeatedly and start being aggressive, angry and bored.
My mother no longer trusts that the clock is accurate. She sometimes insists that the darkness of midnight is either 6AM or 6PM. Dusk or dawn.
How awful
Interesting, my husband is convinced that all clocks and watches are just wrong and need to be mended. They aren't. And he's lost his natural sense of time of day (and even of what season it is). Very wearing.
The biggest tip I give you all is patience and understanding
This was a really good video that explains things that can lead to sleep disturbances.
great if cooperative ----if turning into mean old person who will not listen and fights everything this is useless
Stevareno ..ask your doctor of anti-psychotic medication. That works
I have extreme dementia issue with grandmother, her son took her of medicine for dementia, diabetes, pills for calming down and for sleep. She sleeps in mornings, in nights she screams, beatens up my mother, keeps us all awake, she is hungry every 15 minutes. She can walk, but she keeps disturbing my mother to do things for her. We are dead knockered not having rest and sleep. I ask social office for help, but in my country Serbia social workers are careless. My father is making things worse for his mother. His wife which is my mother is having hard time sleeping couple of hours if at all, because grandmother always wants her help. Grandmother is over 90 years old, very active and very aggressive towards my mother. I asked and requested grandmother to be moved to old people facility, her son doesn't allow it. What to do ?
This all sounds good advice. However the reality is nastiness, loads of naps in the day and not being able to stop it. Reluctance to go anywhere. 8 wakeups and back to bed. Anger at medication. Anger at the thought of a sitting service. Constant requests to end it for him.
Yes, recognise all this except reluctance to go anywhere. Sadly I'm now too tired to drive safely and to cope with him when out.
Someone gave their parent cbd oil and said it worked and they dont yell in the night. They said it slowed the dementia down it was amazing they can carry a conversation. Someone suggested sleeping pills. Its good to ask ppl who are already going through this to get tips.
What is cbd oil?
My grandmother is a diabetic who only whats to sleep. She also has dementia. She wakes up in the morning to eat a bit of food and a few minutes later wants to go back to sleep. She doesn't feel well and is always tired. At night she wakes up countless of times to use the bathroom. It sucks seeing her like that.
I wish it was that easy.
Right its not easy😢
Thank you
Remarkably profound; akin to a book that's known for its depth and insight. "Better Sleep Better Life" by Various Authors
Yeah that shit works for 10 mins till they get up again
My mom is mostly blind but still gets up through night making racket and opening closing drawers coming in my room telling me to wake up and make coffee she needs to get ready to see friends then gets mad at me when I try to get her back to bed. Im trying to get her in care home but very difficult, very hard to get help every one short staffed. Ive been doing this for 2years im exhausted also by myself got a brother that watches her when im working. Got another brother and sister but they won't help.
Please contact Doctor Akhigbe to get his herbal medication for your mom cure from dementia
Message him on Whats App.
It sucks that your brother and sister won’t help.🤬
This is me and my daughter said I repeat the same conversations
Not all patients answer like same 😢
For some reason the second alternative is even more depressing than the first, encouraging and playing along with their delusions. I do not doubt it keeps things calm betwwen both parties but it just seems deceptive.
Fritz so you want to argue with a demented person and make them agitated?
@Stephen Wilder I hope if I ever have a grandchild they are as kind and patient as you. I'm sure she loved you very much :)
Fritz, the reason you don't argue with them is that whatever they say at that moment is their reality. In their mind it is as plain as day that they need to get to work on time - or whatever the issue is. They think their thinking is normal and if you try to argue with them they are just going to get more upset and keep insisting. Think of it this way, if you are convinced someone took your money you are going to be upset and if I say "Oh Fritz no one took your money, go watch tv." You are going to be mad. You are going to look at your wallet that you clearly remember putting money in and think that I am insane for telling you to sit and relax when someone has your money. (I use this example because I work at a nursing home and this is a situation that regularly happens with one of my residents. He is convinced a man takes his money.) The better approach would be to say "Oh Fritz he went to the bank and deposited the money into your account" or "Oh my goodness that is so awful that someone did that! I am going to go get him, call the police, what ever it takes" yadayada You can't argue with someone else's reality. The important part is calming them down and making sure they know they are safe and you are going to make sure that no one takes advantage of them. When I use these tactics usually the man is able to sit back down and 9 times out of 10 he thanks me for helping him with his situation. You have to remember that 1. They are going to forget very shortly after the event. 2. If you argue with them, mid way through the argument they are just going to know they are mad, you are annoying them and that you must have done something wrong. This is when they start getting even more upset and more physical. When that happens...believe me all of a sudden they have a lot of strength. This is when they punch you or hurt you or even fall or hurt themselves. I know not lying is one of the commandments but, that's when the whole idea of different realities come in to play. If you are convinced you have a red pillow and I tell you that yours is the blue one, you aren't going to just sit there passively, you are going to tell me that you are quite sure you have the red pillow. We want our loved ones to be calm and as least confused as they can be so, we do our best to just keep everything running smoothly. I hope I helped with my explination!
@Stephen Wilder You're doing the right thing. Keep doing what you are doing.
@@Lucailey Your explanation was very good indeed. It helped me understand and I'm sure it will help others.
My grandma's routine everynight is waking up by 9Pm until 3 am then keeps on crying w/o any reason or sometimes she just hallucinating, Worst is when she was shouting over and over and even say a bad words . She keep insisting to stand up even she cant.
Sometimes she ask us to put her on bed eventhough she's already there, and its really annoying 😣
Tsss can anyone help us how to deal with it. ?
You poor thing, maybe anticipate 9 pm and try to distract her with a snack or drink, I use warm tea. Usually the prospect of getting warmer helps me redirect the behavior. Of course you get annoyed your only human, but big respect for you taking on this challenge, so many could not. God bless
Sometimes medications can make hallucinations worse. Is it possible that the timing of when the medication is taken can be changed so symptoms are less severe? Maybe some sort of distraction may help. Like ask them since they're crying if they would like a glass of water, and lead them to get some water.
For bed, since she can't stand up but still wants to be put in bed... Maybe ask if something else is wrong like if they're trying to say they're cold? Or maybe redirect their attention to something else.
What can you do when you can't give them over the counter sleep aide at night and the dad gives it to her.
2am at night really
Twist ending: she actually does have a job that starts at 2:30am.
Sleepy time time bed alarm
why is it important to move them from the bed to the chair if they wake up in the middle of the night? If they are compliant staying in bed, wouldn't it be wise to keep them in bed so they can hopefully go back to sleep? Wouldn't moving them wake them up even more and be more confusing when you are telling them it is 3am and it's time to sleep?
I think they want them to associate the bed with sleep only, not waking activities.
@@angelkz7427 while I agree with this principle will work for “normal thinking people“ I don’t think it applies to the various stages of Alzheimer’s disease. They just don’t think logically.
Now imagine working as a CNA on nightshift with 16 residents who behave like the lady in this video
Am like this don't have dementia and only 49
I’m exhausted. My mom has dementia and I’ve been taking care of her since I was 23. I’m 33 now. Nobody understands my exhaustion and just brushes it off like I’m dramatic. I never ever get a good night sleep. She wakes up every 10 mins and then my rage increases. I wish there was a medicine am that can just let them sleep and not wear off after time. Curse this fking disease. Got me hating life and her.and my useless siblings.
I’m 36 and I’ve been looking after my father with dementia for the past 1.5 years. I’ve had to scale back my work hours to part-time so that I can spend more time at home. My social life is non-existent. I’ve never been particularly interested in getting married or having children, but if I did want those things, I have no idea how I would make it work because my dad occupies so much of my time. It’s hard not be resentful at how I’m losing my peak adult years - I can’t imagine having to deal with this for 10+ years. You’re incredibly strong to have coped with your mom for so long. I hope things get easier for you
I would rather play Fortnite than have dementia
All thanks to Dr Aba for curing my dad from this deadly Dementia disease am forever grateful sir
How did that happen can you explain
Hi just to say I got vascular dementia. back in 2019 my girlfriend Aimee snagg I don't remember her I don't know her she said Jack is me remember Aimee snagg I said who are you Is me remember Aimee snagg I said I'm sorry what I don't remember that Aimee snagg is my girlfriend and my career
Ambien
Here is working advise: get a night shift carer.
Antipsychotic at bedtime get them back on schedule...
Not for my dad, antipsychotics before bed time made them even crazier and more agitated and he kept on waking up throughout the night anyways 😢
CBD
CHUCK NEWCOMB we just started this for my grandma! And a sleep time tincture 🤞🏼🙏🏻 morphine doesn’t even keep her asleep so hopefully the natural route will
Did it work?
Made no difference to mine.
Milk does work. Keeping them in the room is another thing
You are assuming these people wont bother you for there addictions and will properly behave. Hilarious.