Danny Chats Ep32 Wilson's Disease; Special Guest Emilia Quezgo
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- čas přidán 9. 09. 2024
- Danny Chats Ep32 Wilson's Disease; Special Guest Emilia Quezgo.
My guest Emilia is from Mexico and she talks to me about her experience of being diagnosed with Wilson's Disease and how she has struggled to get the correct medication.
The main Wilson's Disease medications are not available in Mexico so Emilia has had to apply for a special permit and gets them from Canada or America.
As many of you will know, being without medication can be deadly to a Wilson's Disease patient so not having medication available can be a big problem.
Emilia is now using her knowledge to try and help other Wilson's Disease patients from Mexico get access to the correct mediation too.
You can find Emilia on Instagram @wilsondisease_mx
Thank you for watching this video, if you found it interesting please hit the like button and remember to subscribe to my channel for more videos.
If you have any questions or you would like to join me for a chat then please give me a message on either Facebook or Instagram.
Facebook - / danny.hiles
Instagram - / danny_hiles86
Buenos días! Marvellous. Never tired of these. ! Your channel is improving i see. Revelling site.
All the best!
Thank you so much for your informations about Wilson's Disease. Please continue your work for other patients, great help. Maybe you can do more interviews about this disease. Greetings from Germany, Andrea
Hello Gruner, thank you for watching and I am pleased you found it interesting. I do plan to do more interviews but I have been very busy recently.
Would you be interested in having a chat and recording something?