What I Eat In A Day With Gastroparesis
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- čas přidán 14. 06. 2018
- What I eat in a day with Gastroparesis! Gastroparesis is the partial paralysis of my stomach. It limits the amount of food I can eat, as well as which foods I can eat. Follow me around for two days to see what I eat. I also analyze the nutrition I get from what I ate using Cronometer. Link below.
cronometer.com
The views expressed in this video are my own and do not reflect the views of Mount Sinai Hospital.
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What can I not eat?
Gluten, dairy, beans, red meat, uncooked vegetables, dates, figs, eggplant, peppers, corn, artificial sweeteners, artificial colors, peaches, plums, dried fruit, a bunch of other fruits, vinegar, fried foods, and more.
What conditions do I have?
Hypermobile Ehlers-Danlos Syndrome (hEDS)
Postural Orthostatic Tachycardia Syndrome (POTS)
Gastroparesis
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WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes (EDS) are a group of more than 13 genetic connective tissue disorders that affect the joints and ligaments, blood vessels, gastrointestinal tract, and autonomic nervous system, among others. The most common type of EDS is hypermobile EDS (hEDS), which used to be known at type III. Some of the most common symptoms and co-morbidities of hEDS include chronic joint pain, joint instability and dislocations, dysautonomia, and GI tract dysmotility.
MORE INFO ABOUT EDS:
🧬 www.ehlers-danlos.com/eds-types/
🧬 bit.ly/2N95xTE
MORE INFO ABOUT POTS:
💓 www.potsuk.org/what_is_pots2
❤️ cle.clinic/2p1lByR
MORE INFO ABOUT GASTROPARESIS:
💚 mayocl.in/2BRQTuR
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
🤍 bit.ly/2MLUYXI
#geneticcounseling #rotations #EDS
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Thank you for sharing your experience with gastroparesis, it helped remind me that I'm not alone in this battle with gastroparesis.
I have to force myself to eat everyday it's so painful I am in the hospital now because of it. I never new it was so many people dealing with it this helps me not feel alone
Jazzy Floyd I just left the hospital a week ago feeling the same thing, I had a stricture in my stomach and also was diagnosed with gastritis, I can barely leave my house but it’s so nice to know I’m not by myself
Jazzy Floyd, try eating just fruit. Look up Dr. Robert Morse.
I was diagnosed yesterday
@@alecmay3805 im so sorry about that it sucks i hope you are feeling better
@@Jewlz4ever thank you so much hun will try
Try being a foodie with EDS... I can always drink something if I don’t wanna eat... miso soup is great... I even learned how to make it...
OP
Do you ever feel hungry so you get a lot of food on your plate but end up eating like 3-5 bites, because you end up full and your stomach hurts?
yeah i do that quite a lot honestly
@@IzzyKDNA do you ever get terrible stomach cramps? Spasms? I get them every single day.
Literally what I'm going through
I can’t thank you enough for all these EDS vids 💗💗💗💗💗💗💗 you have no idea how helpful it is to find someone else who has these weird symptoms that I’ve had my whole life. Love you!!❤️
I'm so glad they are helpful for you!!
I was just diagnosed with gastro paresis after 1 yr of not being to digest anything properly, having irregular bowel movements and terrible stomach pains.
It’s strangely comforting to finally have a diagnosis to explain what is going on with my body after having my gallbladder checked, colonoscopy, endoscopy, appendix, several different blood tests all coming back negative.
Thank you for sharing your experience and bringing awareness to GP to help others☺️❤️
I'm so glad you got diagnosed! It takes way too long for most people to get a diagnosis. Hopefully you can start receiving adequate treatment to help your symptoms! good luck
I think I might have GP, I recently tried carrot juice and it so far helps dramatically. I get upper stomach pain and stomach bloating. I use a good organic carrot juice from Whole Foods or similar store.
Hey so the doctors in Missouri suck ass. They do not know how to do their fucking jobs at all. Even worse I was born with Type 1 Diabetes and I received nothing. I went through the brain hemorrhage and the stroke and even after 26 years I got nothing. Diabetics if they are given nothing they will go through gastroparesis.
😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
Trust me multiple people and multiple doctors wanted me to die. Missouri doctors fucking suck ass and I have only met 1doctor in Missouri I liked and I had a friend with Schizophrenia who fucking lied all the fucking time. She told a church of 50 to 60 children that I was going to die. Multiple people did not like me because I am mixed with black and white.
كيف علاج كسل المعده
I am so depressed…this just confirms what I have been dealing with my whole life basically. It’s worse now it landed me in the hospital. Thank you for these videos. I am not sure what to eat at all and this points me in the right direction.
This is such a great a great video for us GP sufferers! Thank you 🙏🏼😊
These kinds of videos usually aren't great but being newly diagnosed i found yours and it was actually so helpful! thank you SO much!
Thank you soooo much for posting this video. I was diagnosed with gastroparesis and gastritis last week. I felt as if NO ONE understood!!! I find myself in the bed all the time. Thanks again for posting this. Praying for you.
Try fasting. It has helped me.
Thank you so much for posting this video! I was diagnosed with this today. Glad to know that I am not alone. Very helpful video
Your GP videos are really helpful to me! I’m waiting to get a gastric emptying study, I’ve been having awful symptoms like pain, nausea, weight loss, getting full early, etc since having a GI virus last summer. In the meantime I’m struggling to eat healthy and high calorie stuff so it’s helpful to see what others eat
Glad I found your channel. This is my life
I’m so happy to find this video I have GP also and I’m been having trouble figuring out my diet and this helps me find some new things that I could possibly try and see if it will work out for me or not
I’m in awe at the things you can eat
I can't afford doc but for past 8 months or so I can only keep food and drink down 1-2 days out of a week and sometimes it's 10 hours after I eat and it's still not digested and I puke. Lost about 30 lbs. Never had eating disorder in life. Glad to find so many people with tummy issues on here.
omg I'm so sorry to hear this. Definitely sounds like it could be gastroparesis. I know you said you can't afford a doc right now, but if you are able to in the future, I'd highly suggest going to a GI and demanding a gastric emptying study to see if it's gastroparesis. There are meds you can take to speed up motility if it ends up being gastroparesis. Wishing you the best
I'm in the exact same situation as you. I hope you find some relief
I’m going through the same thing as well! You’re not alone.
I have gastroparesis and I have tried all the meds for it one caused my heart to palpations really bad. I'm sick 80 percent of the time :( and I don't have many friends on top of everything
Izzy Kornblau what are the meds you refer to? Some have awful and irreversible side effects such as metochlopramide (sp?). Docs don’t even like to prescribe it they are afraid. I have scripts for Linzess, Trulance and Amatiza. They are actually IBS meds and it’s a coin toss to see which may work at any given time. I also have antiemetics such a as zofran. What am I missing? Anything else I should ask for or try?
Thank you so much for these videos, my nutritionist suggested I might have it and it makes perfect sense from everything ive read. I feel full even when I havent eaten or have barely eaten and im nauseous so often, i have safe foods like you such as rice or smoothies that hurt less than bread or sweets but even those can sometimes cause pain and sickness.
I been forcing myself to eat to.medical marijuaana helped me
Yeah I can understand force-feeding! Medical marijuana made me a bit hungrier and helped my nausea!!
Same. That's the only way I can eat
Helps me too
I am the same as all of you but I have been warned that thc slows down my stomach even more. I hate this cycle
@@amandawouters6189 a lot of GP patients on the group support I joined on FB said that dr's just say this so you can stop taking it
I honestly feel like i have this so ill be going to the doctor soon to get diagnosed. I gets soooo full & bloated after like 3 - 4 bites of food & my stomach will be hurting like i just ate so much food. The only time i can eat & not get full is when I’m high :(
Why is that? Is it because anxiety about food is low cause you are more relaxed? THC makes me ravenous hungry which gives me anxiety. I cant use it. I use lemon balm and staying in a ketogenic state for mental health.
That sushi looked amazing!
I eat once a day because of this. Gastroparisis plus gerd plus i have hiatal hernia. I’m gonna have surgery.
Loved this -!!
i only recently started having these problems, i have no idea why :( it sucks! i wish i could be as positive as you, ive been dealing with chronic health issues for the past 10 years, chronic fatigue, depression, IBS, gerd, and now gastroparesis has decided to join the club! At least life isn't forever!
I'm sorry you've also been dealing with health issues. What has helped me the most is connecting with others living with similar symptoms via Facebook groups and social media. I think it really makes me feel understood
I went for a doctors appointment on Friday and told her of the chronometer website and she loves the idea of it helping me to maintain my weight, which is really hard for me to do.
I have GP too, and I so relate to not being able to eat a lot at once and certain foods but theres a lot of food you ate in this video that my doctors told me stay away from like avocado and nut butter (too high in fat) and nuts and sweet potato and broccoli and tomatoes (especially with skins). I'm really happy youre able to digest those, I wonder why I can't.
Wow just got diagnosed I thought I was alone! My family keep making remarks that they don't want me to be anorexic but I just can't eat too painful. I use to eat for 3 days ignoring the pain then spend 4 days in pain. But now that i can't do that i have no idea how to eat without fear.
Same my mother thought I had an eating disorder
Bro I swear I’m starting to develop this, this days I lost my appetite completely and also then my stomach bloats and hurts like crazy, like palpitating pain wtf I just wanna eat
BiMbOh CoOkIe I feel the exact same way I hate it & I’m so skinny but I just can’t eat🥺
Fr but I’m a big dude and it’s kinda sucks😂😂 I’m 17 5:11 and was 260 but now I’m 245 the only time I can eat is when I smoked some dank🤦♂️
I literally only eat once per day but I'm still freaking gaining ugh!
If you have gastro P you aren’t worried about GAINING weight. This isn’t a diet culture.
Michelle Nar sounds like hypothyroidism and/or adrenal fatigue.
I only eat once a day but pretty high calorie at that time. I can handle higher fat which helps. I am not gaining weight but i also have to fast a lot to feel better which burns fat. Fasting makes me feel the BEST. Also coffee and mct oil in the morning.
Why do you care about weight gain or loss? This illness is serious like GTFOH with that diet culture stuff most of us are just trying to survive
I feel you when it comes to the clear liquids. I've noticed that even though I love apple juice it causes cramps and sometimes acidic feelings in my gut. I've been eating, like, 90% smoothies and salads this summer and it seems to be helping.
You can do salad?? I keep being told not to and I want a salad SO BADLY
I enjoyed learning about your routines.
Some of my experiences: I find when i track my nutrients in these apps i look closely and it doesnt always include all the nutrition its suppose to have in each food so i find they are not accurate? Its certainly a good idea to study it.
Im so glad for you that you can eat such a wide range of foods. Amazing!
Is it possible the miso soup had msg neurotoxin or other disruptive chemicals? Im just at the beginning of learning safe foods trying cooked mashed carrots right now. Goal is some type of calorie dense soup I can have with beef, chicken, bone broth, butter, carrots, celery, ginger, salt, & pepper. I do fine with higher fat. I have also been mostly in ketosis for 4yrs to manage other health issues including mental .
I cant have eggs yet due to weak immune issues thanks to having the the virus which possibly could have damaged my vagus nerve slowing my MMC & emptying.
Im inspired how many foods you can eat. I cant eat high carb let or frequent meals due to my sLuggish MMC, it needs atleast 10hrs but I feel best if i fast 20-24 hrs between meals. Sounds crazy but it guards my energy and misery. I also have sibo. Trying to figure all this out is crazy.
I feel i have a hard time drinking enough fluids sometimes because I bloat with them too. So i try to drink them slow in my fasting window starting early morning.
I take 3 betaine hcl when i eat also apple cider vinegar to keep my system acidic which has been a game changer for absorption and serotonin regulation for good mental health. I use lemon balm herbal tea x2/day for anxiety. Also ginger tea. They seem to keep me more calm after i eat - as most all eating can cause me anxiety. Im trying to not have fear of food but when you react so much its making me eat less and less. I do deep breathing, strength training, walking, and manual gut massage. I would like to learn more about vagus nerve health as i read this can be very healing.
Leaning into prayer and scripture is my saving grace. I hope healing for everyone here in this space of digestion disorder.
Thank you for your video.
Peace to you. 💕
ive been following you for a while ty for this im currently pegj fed but eat small amounts this looks like a huge amonut compare to what i can eat just shows me how much i do need the tube x
can you please do an updated one of these? x
Hey Izzy, love all your videos, so helpful and you seem like the sweetest person! ♥ I think my kid might have EDS or hypermobility syndrome with gastroparesis. He's hypermobile and keeps complaining of nausea, heartburn, low appetite (usually screams NOOO! when I tell him dinner is ready), he's also really thin and short for his age but he almost never vomits.
Is it possible to have gastroparesis without a lot of vomiting?
Everyone with gastroparesis is different...I think some docs will say yes and some docs will say no. For me, my gastroparesis was mild, and I dealt mostly with SO much pain and nausea, but some people vomit dozens of times each day. It's super important to get tested for gastroparesis so he can get the right treatment. Good luck!
dos water just go in fine? thats whats been going on with me, soild food just SITS there forever making me sick, but water is fine as long as its on an empty tum
I got diagnosed with Celiac and Gastroparesis at 31. When I was 31 my gall bladder quit working but doctor wouldn't do anything and had to get another. It caused damage and pain to my vagus nerve. I got the gall bladder removed and then other symptoms of things continued. Having Celiac and GP is challenging. I went to a Nutritionist and I was given specific guidelines which were so particular, it gave me major anxiety. They had me measuring every morsel. I know not to eat fresh veggies, but to eat only cooked. I still have issues with broccoli . I was also told not have much citrus , and low amounts fiber at a time, and eat small meals more often. After 6 yrs, mine insides have not healed and the acid is eroding my esophagus. I've tried 2 prescriptions, Dexilant and forgot the other, to help digestion but it caused severe bowel issues and side effects. I recently had blood work done and some of it was off . I'm having heart palpitations and my LDL and MCH are low. I suggest have your vitamins and bloodwork checked. I'm trying to figure out what I can do because I don't absorb nutrients do to the damage to my insides. I understand what you're going through.
I struggle with high sodium diet and having gastroparesis :/.but if I don't my pots gets bad -_-.
I found the meal replacement IdealShake Superfood by IdealShape is pretty easy to digest. It has a lot of vitiamins and you can make it as thick or liquidy as you need too. It doesn't have a lot of calories but it doesn't hurt my stomach like other meal replacement drinks do
That's awesome! Thank you for telling me about it! :)
Pro tip.
How did you get a diagnose for that? I have stomach problems, but no diagnose at all so far. I think I might have this.
Do you have a tube for supplements and meds for times you are too nauseous and vomiting to help with nutrition?
I feel like a lot of people think you have to eat healthy Bc you have stomach issues. I wish they would understand that your body will only tolerate certain things and if they end up not being healthy then so be it.
Exactly! Like, some healthy foods hurt us more not less
Just so you know she eats a lot more than most people with severe GP. She’s lucky she can tolerate all that food which is sad to say cuz it really isn’t a lot but it’s a lot more
Than a lot of GP sufferers can tolerate
Ty for your videos ❤❤❤
I didn't know I have gastroparesis until I did the empty test. I didn't understand how some days I feel healthy and others I wasn't able to eat at all. Until I did a test and I found out that my immune system is out of balance. When I increase the th1 cell all my gastroparesis symptoms are gone. When I increase the th2 cell I have digestive problems. I hope this help.
I eat very similar to you. I can’t digest animal products. Miso soup feels good on my tummy though. Smoothies are my savior. I relate SO much to what you go through!!!! 😔
Survey Question for EDSers with Gastroparesis (GP) or w/o GP; Who has chronic Gastrointestinal Esophageal Reflux Disease (GERD)?
Hit "Like" or comment if you prefer. Thanks for responding, and thank you, Izzy for another informative vid! 🙂👍
What is your numbers for mild gastroparesis? Below 35 was abnormal for me. I had 31. Just curious.
Do you supplement with any vitamins/minerals/etc?
You have a whole lot of fiber intake in this video. Surprised you handled it so well.
Also what is the food program you use to track your intake?
Her GP is probably mild in comparison to some people
My Dr told me fiber is ok if it's blended. Certain well cooked veggies are ok too. I definitely cannot handle fresh apples or tomatoes or nuts though.
Amazing same symptômes since 10 years . All doctors thinks that was due to my scoliosis but i was a unique case no one could inderstande me or help with my stomach desorders. I had a lot of pain from childhood . Now i've similar problèmes. But have any one some kind of osteoporosis ? And vit D decreasing ? I think that have a link with all this stuff 🤔
Have u an idea about this case of vit D ?!!!
what method of medical Mj Do ya use :)
I have the same, if you have gastroparesis you are very likely to have an overgrowth of candida eating the candida elimination diet helped me tons!! Good luck also look up ‘Montreal healthy girls’ videos tons of good info there!!
Can you eat cooked carrots? How about cucumber and tomatoes? Im trying to develop my safefoods.
Yes!!! Hydration is my problem...water currently bloats me like crazy 😂 we walked around tonight and I started getting dehydrated but I had also drank so much water I threw it up...I was so sad my Dr just told me about he migraine diet...I think I'm cutting out bananas for a while...my only go to fruits are banana and applesauce. Watermelon also makes me pretty sick...the cramps the next day are rough.
Can you share the link for the food app. My goal is 1500 Cal's. I only make it 4-5 days a week but this week I did have a 2200 day!!! Yipppeee lol yes!!! I do a lot of salt too...
Adding in a protein bar a day helps so much with energy for me
I should say that I was at around 600 a day in Jan.
How were you diagnose with this?
I have gastroprisis what do you do when you get in pain I hate going to the hospital?
How do you manage actual food with gasterparesis? You are so strong all I can manage is yogurt four times a day.
Water gets stuck in my stomach I get slashing? Like 4+ hours later I can still feel the slashing in my stomach....did you ever expirance this?
The doctors just said my 1 year old has gastroparesis so that’s why I’m here to learn
Hi Izzy...I do not exactly have what you have, but I have a condition, caused by an abdominal operation in my small intestine after by gall blabber was removed, (non-cancerous cysts), my small intestine was damaged during the operation, now I have narrowing and scarring in several places in my small intestine. My whole diet has changed. I can only eat very small meals. I can only eat soluble fibre based foods, and some days just liquids I am in pain each day from eating. I am scared to eat some days. It is like playing Russian Roulette each time I eat something. I tried to eat half a banana the other day, I was in pain. I then tried just a quarter, which is better. I am having trouble finding foods that do not cause me pain or land me in Hospital. I was thinking about drinking protein shakes, do they help? I am a single Mum so I am scared to go to the hospital and leave my son with a relative, which he hates.
Revisiting this video. First time I watched it was before my gastroperesis diagnosis. Now rewatching after my diagnosis lol. I’m flaring up big time and food just seems like an impossible thing for me right now.
idk if i have this but here’s my symptoms
ANYTHING i eat or drink makes me so nauseous.
lost 30 pounds in 3 months
constant nausea 24/7 usually worse in the morning and at night.
I kinda have an appetite but when i actually try to eat it just makes me feel sick.
i also quit smoking weed cold turkey 20 days ago if that has something to do with it.
Do you eat fermented foods. So easy to make. Vegetables, sea salt. Distilled water. Easier to digest and you get more nutrients from the food. Beet kvass is also easy to make. Beets, water, salt. You can also use whey in the fermentation.
I developed temporary gastroparesis, after some years of severe anorexia, purging type at 13 and after totally spiraling downwards at age 16, 19 , and 20.... My worst episodes ever, where I ate more or less nothing than half of a fat free, sugar free Yoghurt ( 90 ml~ 49 kcal) and max. 2 slices of low ckal, fat free crisp bread (~ 25 kcal each) , of course without anything on it, basically breaking these "bread" into 16 pueces each and sucking those tiny pieces until rhey were already dissolved before eventually swallowing, or 125 ml (150 kcal) juice and 2 cookies(~ 150 - 200 kcal) a day for weeks.
I still remember when I suddenly had to have my wisdom teeth removed under anesthesia, urgently, because they were pushing other teeth sideways and were so complicated located, a part of them wrapped around the biggest nerve in my lower jaw, ripping that nerve meant eventually no feeling in the gum, lower lip, lower teeth, etc.... - so there was no way doing it without general anesthesia .
But i was near my " goal" weight of 55 lbs , at 62.6 lbs/ 5.1/ 20 years, I really, really tried to gain weight before the operation, because I really was afraid of the doctors not checking my potassium levels ( which they did not carefully enough, it was the last thing before it went black, when they put the mask on my face and I pushed it away and slurred, babbling, begged them , crying, to double check my bloodwork for potassium !!
(the most important , because i knew my average level was 2.6.at best, that's about 1.0 under the lowest normal level which can alredy cause abnormal heart beat and even heart failure , that doesn't respond to electric defibrillation, because the lack of potassium - easily said - affects the nerves ability to respond to drugs or defibrillation.....and you die..... though they send a message to the muscle to contact, it doesn't get where it's supposed to get and the muscle cells don't have the ability to respond and the heart stops and nothing can be done....)
When I woke up I was on a heart monitor and 40 % potassium solution in 1000 ml of of 0.9 saline....
And I would try to eat, but every time my heart rate would go up to 150 , even lying still, after mote than a few bites and even if I tried to eat in the evening and try to sleep through the pain and bloating, I would vomit the next morning, after having the food on my stomach for 12 out 16 hours - (not a big meal......2 slices of toast with cheese or a salad....leaving out the foods that usually are said to may cause problems for IBS, reflux etc) not because of the calories, but because of feeling so sick and my heart racing and my stomach and throat burning, though I slept sitting up with 4 pillows.....It took over 10 years until my digestive system was ok again and if I have a period of relapsing that is longer than 3 month, it all starts again .....
I can somehow imagine how it must feel to feel like that 24/ 7 though I screwed my body up willingly and on my own.....for 26 years now.
I'm sorry, this doesn't belong here....I just.....sunk into some dark memories.....I feel like an asshole bevause I could eat , but still .....can't.....and sometimes wish I couldn't at all, so I wouldn't have to fight constantly, these 2 of 3 parts in my head....one that's health, one that wants to binge and purge and one that wants to sew my mouth shut.....forever..
I've heard of many others who develop temporary gastroparesis after an eating disorder. I'm sorry you had to go through all of this. Thank you for sharing, and I hope you are in a healthier place now with your eating disorder now.
Sleep for 15 minutes after 3-4 hours after food , it helps with food going down.
I have Gastroparesis and I had 1/4 of my lower intestine removed and I watch you and I feel so much better as but liquids so me better but meats hurt me more sometimes
i recently recovered from an eating disorder and i know it’s not the same, but my metabolism and digestion is (temporarily) weird. i can’t drink too much hot drinks else i get dizzy and light headed it’s weirddd. i’m very sensitive to drinking on an empty stomach
wow congrats on your recovery! i know it's not the same, but i've definitely heard that a gastroparesis-like state can appear in the beginning from an eating disorder recovery b/c your stomach isn't used to digesting. Wishing you the best of luck with everything and hopefully these symptoms go away soon!
How were you diagnosed? I had a endoscopy and colonoscopy with several biopsies, but the doctors couldn'tfind any reason for my constant stomach aches after eating. I have had diarrhea for almost a year now and have no diagnoses, and can't figure out what to eat to help my body. I love your videos, they help me remember that others go through health problems similar to mine :)
Hey! I was originally diagnosed clinically, as we weren't sure what else was going on at the moment and I didn't want to undergo the radiation from a gastric emptying scan. But most people get a gastric emptying scan or do a smart pill. and they just came out with a breath test as well. Wishing you the best of luck in figuring out what's going on!!
I had a gastric emptying test done. You eat radioactive food and your stomach gets scanned for 90 minutes or more to see how it digests.
@@sarahrobinson518 .Can you explain how that test went.
Matt skeletor hi! I have gastroparesis and for the gastric emptying test after I ate the food they took images right after I ate and intermittently for four hours or so and for my second test it was the same thing except they took images all the way up to 7 hours. From talking with other people with gastroparesis or who have had it done it’s been around the same deal (minus the second test, the first test was easily diagnosable but the second was done because my doctors wanted to get a bit better picture of how my stomach works).
Alyssa Kuhn can you taste the radiation...?😰
It's been a very lonely ride.. I'm now 48.. I have no colon anymore but do have small intestine stomach ect.. sick everything i eat no matter what it is.. I can't st nd and cook anymore because of my back and lower legs and feet.. pots.i live in a small city now.. so i dint ha e good docters here so I have to basically try and diagnose the MCAS..im allergic to so much.. its just a mess..
I have IBS and now I fear of food because every time I eat I throw up so I’m scared of eating now
I have EDS and low blood sodium. Do you know if these go hand-in-hand? I pretty much salt every meal.
Hmmm I don't think I've ever heard them being connected, unless you have gastroparesis too and there's some sort of imbalance between all of your electrolytes due to a lack of their consumption (other than sodium, since you said you eat it with every meal).
I tend to have low sodium as well
My doctor used my salt addiction to help diagnose my EDS lol. I’m not gonna try to explain how she explained it to me but she indicated that there is a major connection.
This is my life. Do you have to eat early in order to sleep? I can't sleep much because of this.
Can we (me too) eat cooked spinach?
What is the name of the app you mentioned that measures vits and minerals consumed?
I think it was called chronometer or something like that!
Have you heard of mast cell activation sydrome girl? sounds like the symptoms overlap and I have EDS and POTS and its common for mcas to happen alongside these 2. :) xxxx
Is stomach pain common in gastroparesis??? Coz i have all other symptoms other than stomach pain....plsss help
Can I ask you how often do you go to the bathroom in a week
I have hypermobile type Ehlers Danlos syndrome and most of the related issues. My doctor finally put me on the prokinetic medication Mestinon (Pyridostigmine), which stimulates the vagus nerve, and it has been a miracle at treating my gastroparesis, intestinal dysmotility, and IBS-C. It's also done really well at treating my POTS. Thankfully researchers at Mayo Clinic and Vanderbilt have repurposed this older medication as a new option to treat POTS and digestive motility issues!
High fiber foods I have a terrible problem digesting. I can’t do ANY apple. If if cooked into applesauce.
How do you get diagnosed with gastroparesis? My husband has cyclic vomiting syndrome but he also has these flares of nausea and vomiting undigested food. He’ll have these burps that smell like rotting food. Even a sip of water will make him vomit. This can last for a few days. And then he’ll be fine and go back to his normal issues with cyclic vomiting syndrome. They both seem like completely different issues. He has had a endoscopy, colonoscopy and ct scans. They’ve never done a swallow study or anything like that. He cannot eat food that is too greasy, fatty or spicy. Also, when he goes through these flares he’ll lose about 10-15 pounds. He used to weigh about 250, now he is 160. And that’s just from his GI issues. It’s honestly pretty scary. You might not write back. But I follow all your videos and I am pretty certain he has gastroparesis or something similar
I barely eat at all. Sometimes I might have like a small yogo or a chocolate but that will be enough for me. I don't really get a hungry feeling. At the moment in a day I will have a small bowl of cereal at 9, a yogo at 3, then a milk and something tiny to eat at about 9 or 10pm. I don't feel hungry at 9 or 3 but make myself eat because of work.
Izzy have you been tested for helicobacter pylori?
I'm sorry that you have to experience this. I lose weight really easily(it's been a big struggle since I was diagnosed with UC) and if I don't eat a lot for 3 days I can go down 5 lbs, I cannot imagine what you go through. You probably know so much more than I do but I take Cruciferous Vegetable tablets and it has helped me so much. I don't know if it would do the same for you but I figured I would tell you (:
I have chronic gastroparesis. And it's worse than my muscular dystrophy cardiomyopathy and everything else wrong with me. My digestion gets into a limp mode during sleep. Just gut wrenching starving pain and nausea all night and being sick or recovering from the worst experiences of my life. Daily.
How do you even get gastroparesis?
Why do you need the extra sodium?
Have you ever tried FODMAPS diet?
I love yes soup. The tomato carrot bisque. No chunks.
I was diagnosed a few days ago. It's horrible. And since I am only ten, they are having trouble finding out what's causing it.
@Alexa Thank you!!!
I don’t know if I have Gastroparesis. I used to eat a lot in a day but I had a super fast metabolism. I was 10 pounds lighter too. When I wake up in the morning no matter what, I feel so full and sick. It always feels like there’s a lump at the top of my stomach. I have gained 10 pounds because I force myself to eat . I’m eating how I used to eat when I was lightener but now for me, it’s over eating. If I don’t force my self to eat or over eat I will eating nothing all day and not physically be hungry but mentally . My doctors and family say that it’s acid reflux because it runs in the family but it’s so much more than that and they think I’m crazy. Could it be Gastroparesis?
I'm sorry to hear you are going through this. If possible, I'd say go see a gastroenterologist and ask (honestly demand lol and don't take no for an answer) you get a gastric emptying study or a smart pill to test for gastroparesis. Good luck with everything
How are you able to eat pistachios??
I recently take Triphala, it helps the digestion. It's an ayurvedic treatment hope it helps.
Good afternoon, I hope you are finding more foods which you are able to tolerate. Has the Triphala managed to be of any help? If time and your health allow I would love to hear how you are doing. Hang in there, and do the best you can each day, Heather, GastroGal
I don’t eat anything after 2 pm because I’m suffering all night if I eat after 2pm my stomach finally releases around 11 pm then I can sleep 😴 but I’m up at 4 am starving I try not
to eat until 7 am I have matcha 🍵 tea around 6 am and it helps
Yummy food. But i find my stomach hurts more if i eat any greens or nuts, all of which i love. Can't eat vege burgers either.
I used to get that. I ended up taking some enzymes which definitely helped me. I ended up being able to digest them as my gastroparesis got better.
My nutritionist said nuts not allowed for this.
@@IzzyKDNA which enzymes?
@@flowerarsh8983 I took betaine HCL with protein and a super enzyme from "NOW' brand that was just called super enzymes
Try other brands of veggie burgers. Ones without soy and something called PEA protein instead. Also, I realize we are all different, but no oats or oat flower. Oats of any kind KILL me and oat flower is used as an ingredient in gluten free or low carb foods and in some veggie burgers.
I have seriously considered going on a baby food diet. And with eggs.. you will find organic are easier to digest. Actually, a lot of what you described would cause me pain... especially pepper. Bananas have to be very ripe or they hurt. I take Athletic Greens like it is life or death. It has healed many things, and I was concerned about my allergies, but when I called the company, they were willing to give me a 5-day free sample... I was shocked. Many things I have considered myself allergic to were tolerated! I had toenail fungus and loss of sensation in my left big toe, and it healed that and helped my psoriasis. When I introduced my sister-in-law to it, she said she wishes she had it sooner. The cost is $94 a month, but despite being on disability, I will pay it!
I got diagnosed with gastroparesis because I stopped eating for 3 months and it made me sick to eat got tested to see if my stomach was closed nope turned out half wasnt working. Does anyone else get chronic constipation thoe?
Yes went 13 days not having a bowel movement,even using linzess 72 mcgs and magnesium citrate. Nothing worked. (Obstruction in intestines ruled out)
Yes!
How do you deal with all the symptoms? I'm not coping well at all and all of my doctors have given up. I'd appreciate any advice. Thank you.
I'm so sorry to hear that! It's literally the worst. I haven't been in a prolonged flare for about a year now, but back when I was in a pretty bad flare for a year, it was SO SO difficult. I definitely found a few things that helped me...I used to have an EXTREMELY limited diet (like 10 or so foods). No fruit, dairy, gluten, sugar, nightshade vegetables, legumes, and even more limitations. In the mornings I'd try to make a smoothie with protein and soy milk and take like four sips, wait 20 minutes and take a few more sips. I'd eat like 1/3 of a meal and put it away for later. Finding foods high in calories is good too like nut butters, salmon, and rice. I'm not sure if medical marijuana is something your state allows but it definitely helps my nausea, so might be worth looking into. Also, drinking as many sips as you can of water when you wake up can definitely help nausea throughout the day, though sometimes it can be so hard to tolerate. Ginger sucking candies were sometimes helpful, and nausea meds like compazine and zofran can definitely help some people. Meditation and massage seriously helped me in the moment b/c it can stimulate the parasympathetic nervous system. The vagus nerve is typically underactive in gastroparesis, and since the vagus nerve is the main nerve in the parasympathetic nervous system, doing anything to stimulate that nervous system can potentially increase vagus nerve activity. Sorry this was like so long hahahaha. I'm not sure how much you are able to eat....so this is more advice for if you are able to eat at least somewhat. Hope this can help a bit and good luck!!
Izzy Kornblau Thank you so so so much for replying. I really appreciate it. I hope some of these suggestions work for me!
please let me know how it ends up going!
Don't give up, and Never accept a Dr. that's willing to give up on you! You deserve individualized and specialized care for your condition(s) Keep looking for new Dr.s, opinions, options till you find the balance that's right for you! I know it's very hard, I do but don't give up :) Much love , support and prayers to All my fellow pain Warriors and beautiful zebras !
Lindsay, find me at :
The Insufferable Movement on Facebook
@@IzzyKDNA , Baby food helps me! 😄🖒Thank you sharing your life experiences and tips for everyone! Many Blessings, Much Love Everyone!
Lindsay
The Insufferable Movement on Facebook
Thank you. Great video. Although the volume is really bad
oh no, sorry to hear that the audio is bad, but glad you enjoyed the video. I'll make the next video louder :)
Eat fruits such as apple , papaya, banana, avocado etc for morning breakfast instead of omlet or bakery.
Just threw up my pasta.... oooffff idk what I have but something is wrong with my stomach, to be honest I think it might be like gastric cuz I have all the symptoms, but who knows :)
Does anyone with GP find that if they load up on lettuce with or before a meal it helps their digestion and avoid the crazy pain? It seems to help me avoid the rock sitting in my stomach. Also, has anyone had success with intermittent fasting? Eating one day, then only fresh juice or water the next day? You can still get all your calories with fresh made juices on the ‘no solid food’ day....obviously if it is only water you will have a calorie defecit.
This is all new to me honestly I am having to be very careful of what I eat and drink now and it’s just like she said you never know what can happen. (Sorry for being random just so many thoughts going through my mind).
Miso soup hurts so bad
Chocolate and matcha is awful on my stomach
🥴 having a flare up and came here
do you find red meats affecting you? i feel like ever time i eat a steak or even a burger, i have worse stomach pain/nausea.
Brayley Johnston I’ve actually never had red mead before! I was raised not eating it so I’m not sure!
Izzy Kornblau that's probably a good move haha. i find it very hard to digest. I just got diagnosed with this 2 days ago, so thank you for the video so i know it's livable, i'm bummed but i guess no ones excited when they are diagnosed haha. ❤️
I really struggle with red meat.