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"Angel Applicant"-An Excerpt from a New Scleroderma Documentary
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- čas přidán 29. 06. 2023
- When Ken first studied Swiss-German artist Paul Klee in art school, he had no idea that he would be diagnosed in 2000 with the same disease Klee suffered from: scleroderma.
“After learning that Klee also suffered from the same progressive form, diffuse cutaneous systemic sclerosis, I became really inspired by how it propelled his creativity,” Ken says. “Often feeling powerless to the disease myself, I felt compelled to share his story-a scleroderma awareness piece disguised as an art film.”
And so, Ken created “Angel Applicant,” a documentary on both Ken’s and Klee’s experiences with scleroderma. This video shared here is an excerpt. “I want people suffering from scleroderma to feel less alone, to feel represented in a culturally meaningful way,” says Ken.
It’s already won a prestigious prize-the SXSW Grand Jury Prize for Best Documentary feature. There are more film festivals on the way, and Ken hopes to be able to share with an even broader audience down the road.
“My deepest gratitude to the people who’ve dedicated their lives to unraveling the mysteries of scleroderma,” says Ken. “It’s why I am still here to even have the opportunity to share this story.”
For #SclerodermaAwarenessMonth-which is anchored with World Scleroderma Day on Paul Klee’s birthday, June 29-we asked Ken if he’d share more about this film and how he views research as a critical part of being able to tell his story. Read our full interview with Ken online at bit.ly/kens-st...
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