Decreasing my Cancer Med Dose - Verzenio/Abemaciclib | Quality vs. Quantity of Life

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  • čas přidán 6. 09. 2024

Komentáře • 402

  • @SamanthaL
    @SamanthaL  Před měsícem +82

    This video is about my own experience and understanding, and I am not a doctor, so please talk to yours before deciding to make changes to your cancer medication.

  • @AndiSchneider
    @AndiSchneider Před měsícem +144

    Anyone who feels they need to judge Samantha for her choice, with her doc supporting her needs to back off. She is battling cancer and being a mom to a beautiful baby girl. Do you think if you were in her shoes you would want people being judgmental towards you for making choices for your own personal health? I’m in GI failure, I spend most of my day running to the bathroom and it is horrible. I would do anything to take that away. I’m on IV nutrition because it’s the only way my body can get nourishment. You deserve to have the best quality of life and o know that always worried you won’t make it to a bathroom isn’t fun, it consumes you. If I only go to the bathroom 6 times a day that’s a good day. I understand why you would lower your dose because it’s miserable.

    • @SamanthaL
      @SamanthaL  Před měsícem +13

      Thank you, and I’m so sorry for what you’re dealing with

    • @sharondalynnewton7562
      @sharondalynnewton7562 Před měsícem +8

      I can certainly relate. The thing is that to get less opinions, you share less. That’s just a part of life. Even with friends/family. They think they’re being helpful. She has to do what is best for her. Period. It has to be her decision and hers only. Because it’s HER life that is being affected. Enjoy the time you have with your family and friends because NO one is promised tomorrow. One thing I do know is on earth we aren’t meant to stay. Death happens and life goes on for those left behind.

    • @EleanorWeldon
      @EleanorWeldon Před měsícem +3

      I’m so sorry that you’re going through this. Thinking of you today❤

    • @pjk1714
      @pjk1714 Před měsícem +3

      Completely agree with you ❤
      Hope in your case you have a supportive team and options are being considered to provide some quality of life.
      Everyone deserves a chance 🌻🦋

    • @Sarappreciates
      @Sarappreciates Před měsícem +3

      I like to think most people ask or make suggestions out of a sincere desire to help without realizing how judgemental they can sound. I wish you a long and happy life, but none of us can stay forever. My breast cancer is metastatic, and time feels so fleeting since my diagnosis. I try to let it go when people say stupid things because life's too short to foster hard feelings.

  • @lhcoastal1387
    @lhcoastal1387 Před měsícem +103

    I have so much respect for you. These are tough decisions. Your body, your life, your choice. It's not just surviving, it's living. Wishing you the best of luck.

    • @SamanthaL
      @SamanthaL  Před měsícem +10

      Thank you!

    • @jimgeiger4816
      @jimgeiger4816 Před měsícem +9

      Samantha you said you felt like a loser...that makes my heart hurt. You are far from that. I like the way you have thought all of this through so thoroughly. You can't control how your body reacts to things like medications. I'm continuing to pray for God to heal you so you can enjoy life without the worries you are now experiencing. You are a warrior so just continue to think of yourself in that way. ❤

  • @lindafrederick9041
    @lindafrederick9041 Před měsícem +55

    As an oncology nurse I have had hundreds of patients going through treatment .
    Every patient is a whole person not just a number. It’s your body your quality of life. You need to spend quality time with your precious little girl.continuous diarrhoea would be very detrimental to your life. Be proud of your progress and do what’s right for you

    • @SamanthaL
      @SamanthaL  Před měsícem +10

      Thank you! You sound like a great nurse because I know some who don’t think like that 😊

    • @cathy5070
      @cathy5070 Před měsícem +5

      100% support here for the decisions you make for your life. I appreciate the education and truth you provide. Thank you and as always wishing you and your fmly the very best.❤

    • @audalice1
      @audalice1 Před měsícem

      Samantha, you describe the whole drug tolerance so well. Having had cancer, I know that attitude plays a huge part and yours is superb. Enjoy your wee girl, your family and the summer. I wish you the very best. ❤

  • @thenextepisode4140
    @thenextepisode4140 Před měsícem +54

    My mother has stage 4 breast cancer as well. Her medications were changed and adjusted from time to time because her body seems not to tolerate the side effects. I have been watching your videos since day 1 and decided to comment now to tell you that you are such a blessing to everyone. Not all people have the courage to share what they are going through. You are a strong and lovely person inside and out. I will include you on my prayers. Please continue to be an inspiration to us. God bless you and your family.

    • @SamanthaL
      @SamanthaL  Před měsícem +4

      Thanks so much for watching. I’m glad your mother has you and hope she’s doing ok!

  • @CheekyMama58
    @CheekyMama58 Před měsícem +42

    You're a total winner. This is your life - not anyone else's. You, your husband and your team make the decisions that are best for you and your family. Nobody should judge this. ❤

  • @cynthiajswenson5383
    @cynthiajswenson5383 Před měsícem +21

    My son who has epilepsy does just as well on half dose as full dose. This is important as it's easier on his kidneys. 💖💖💖

  • @jaxa5719
    @jaxa5719 Před měsícem +39

    You are far from a loser or a baby. You are one of the strongest people I know of, and have nothing but admiration for your level of coping.

  • @SmilingBeaver-ou7nc
    @SmilingBeaver-ou7nc Před měsícem +20

    Do these people not realize how intelligent you are? We support you and respect all of the tough decisions you have to make in regards to your health journey. Love and Prayers from Florida ❤💙🧸🙏🙏✨

  • @janeellis4926
    @janeellis4926 Před měsícem +14

    The negative comments are terrible. You are doing nothing wrong. I can totally relate to wanting treatment but also wanting to live a quality life.

  • @rhondawhatley1591
    @rhondawhatley1591 Před měsícem +9

    For those who judge f off. She's doing what's best for her and her life. Se ding prayers Samantha I'm behind you no matter what

  • @ritaharmon
    @ritaharmon Před měsícem +8

    You do whatever you want to do. It is your body and your life! Don’t let anyone else tell you what to do with your own body❤

  • @i_love_rescue_animals
    @i_love_rescue_animals Před měsícem +8

    I haven't even watched 2 mins of the video and let me tell you - it is your life and *most people have no idea what you are going through. I think choosing quality over quantity is very sensible. I am trying to recover from just food poisoning right now and feel like I need to throw up and have diarrhea and this is day 4. Just this is very rough (talk about feeling like a baby). I can't imagine going through what you've been through already. All the best to you, Samantha and family. ❤

  • @mirandathetempest7
    @mirandathetempest7 Před měsícem +6

    You are super smart and certainly NOT A LOSER!!! GIRL! Many courageous words come to mind when I think of you, but loser certainly isn’t one of them. You go forth and enjoy your best life with that baby girl! ❤

  • @Dmcsw-xg9cq
    @Dmcsw-xg9cq Před měsícem +8

    I had low anterior resection for rectal cancer and navigating life after was so challenging. It’s hard to explain the anxiety around the unpredictable nature of the urgency. It’s all consuming. I get it! ❤ Wishing you the best!

  • @kellysue7554
    @kellysue7554 Před měsícem +9

    Happy Birthday Samantha! You are correct that very few people stay on 150 verzenio long term. I started on 150 and lasted 6 weeks and got diverticulitis. I had severe stomach cramping and diarrhea on 150 daily. I switched to 100 and found it to be much more tolerable even though I still have bad days just I don't have them near as often. My oncologist told me the 100 is just as effective. There will be more studies done on dose reduction but so far it seems to work just as well. Being able to enjoy life is very important! I usually take 1/2 an immodium if I'm going out to eat and that has worked well for me. Wish you continued success on the 100's❤

    • @SamanthaL
      @SamanthaL  Před měsícem +2

      Thank you for sharing this!

  • @michaelajoseph6856
    @michaelajoseph6856 Před měsícem +8

    I do not take any medication as you do but I have IBS/SIBO and had diarrhea 8-9 times a day inspite of loperamide tablets. I had also accidents in public and I had to stop eating fiber in order to get a bit better. In that respect I understand you fully. Quality of life is important at all times. You are a wise and strong woman. 🌷

  • @rosemaryroutte7379
    @rosemaryroutte7379 Před měsícem +12

    Samantha no one has any clue to what continuous diarrhea can do to your body unless they have or are going through it. My poor husband went through this and never had a chance to make it to the bathroom. He kept loosing weight and nothing would work to help him. Finally after loosing all his nutrients and down to 103 lbs he got permission from
    his 5 Doctors to go into the hospital for a central line in which he would be given nutrients to help him gain strength. We knew it wasn’t going to stop the diarrhea but just to be able to see and enjoy visits with friends was so exciting. Treatment didn’t work and he passed away with a week while still hospitalized. He was under 100 lbs. Please continue doing what is best for you and I pray your dosage change continues to improve your diarrhea. Some people don’t realize that this problem can kill you . He died from failure to thrive and malnourishment and the cancer wasn’t even listed. You are a smart woman who knows your body. God bless you and anyone else who is going through this same problem. I will continue to pray for all of you.

    • @SamanthaL
      @SamanthaL  Před měsícem +1

      So sorry to hear about your husband but thank you for sharing this

    • @rosemaryroutte7379
      @rosemaryroutte7379 Před měsícem +3

      @@SamanthaL I’ve been following you for so long but never mentioned it before. The main thing is you know your body so keep listening to it.

    • @clairebeever3038
      @clairebeever3038 Před měsícem +1

      Hi Sam I’m on the same drug I started off on the high dose could just not tolerate the 150 I felt terrible soooo tired stomach cramps sick daily I was scared but went to a 100 and six months on still terrible… my oncologist said the same I was so worried but really can not function on a 100 he said in the trails everyone starts at 150 because that way they can go down in dosage…. So now I’m on 50 morning and night …. I have had to drop my hours down to three days at work so financial I’m struggling 😢as you already know with cancer mentally and physically really is enough … I really do think some people don’t get it …. There are so many things to consider …. I still feel sick everyday and the fatigue is terrible I wouldn’t dream of judging anyone’s choices… obviously I will stick with it hopefully may feel a bit better in a few weeks only just changed to the lowest dosage….. thank you so much for explaining and sharing your choices openly …. Happy late birthday 🎂 you do you and I’m soooo hoping it does settle down for you too … cancer medication side effects can be Grimm 😢 your doing amazingly well sending nothing but positive vibes and much ❤❤❤love

    • @cindyscharr457
      @cindyscharr457 Před měsícem

      God has blessed us all by giving us Samantha as our voice. Watching the person you love die is devastating. If only what we know now we could have known then. Always remember that you did your best.

    • @rosemaryroutte7379
      @rosemaryroutte7379 Před měsícem

      @@cindyscharr457
      Thank you Cindy for your kind words. If only his family thought so.

  • @carolinelvsewe
    @carolinelvsewe Před měsícem +23

    This is wonderful news Samantha!!!🎉 You are managing YOUR body. If part of the dose is leaving your body anyway, reducing the dose seems very wise. Living life is THE point. You are doing such a great job!!! You are an amazing example! ALWAYS great to see your name pop up. God bless you and bring you better health every day.😊🤗

    • @SamanthaL
      @SamanthaL  Před měsícem +4

      Thank you :)

    • @bobs1356
      @bobs1356 Před měsícem

      Tell her that if her cancer comes back.

    • @janinealexa567
      @janinealexa567 Před měsícem

      @@bobs1356 GO AWAY

    • @jeanineburke8862
      @jeanineburke8862 Před měsícem

      @@bobs1356 Your comment shows that you don't know the first thing about Stage IV cancer. Keep your cruel and ignorant comments to yourself. Samantha is doing just fine.

    • @cathy2142
      @cathy2142 Před měsícem +1

      @@bobs1356you can show yourself out. 😠

  • @ChaiChai1965
    @ChaiChai1965 Před měsícem +20

    This is a VERY common practice for that medication! Dont feel badly about it. The trutb is, they tend to start patients out with the highest dose of chemo to see if they can tolerate it. You deserve quality of life. Happy birthday!

  • @ukmary1968
    @ukmary1968 Před měsícem +8

    Once again I’ll say this. You make the best decisions for you with the information you’re given. That’s all we can do is the best for ourself.

  • @TweetyPAK7
    @TweetyPAK7 Před 17 dny +1

    Having recently been through a bout of 'reah (unknown cause) I went through similar things--being scared to go out, not eating or eating crackers, having an accident as soon as i got out of the car after racing home white-knuckling the steering wheel hoping I'd make it, taking Imodium. It's stopped now but still iffy on the cramping. So definitely what you go through so often would be life altering. I hope this new regimen will continue to work better for you. Your summer seems to be fun with your little girl and family.

  • @suzannebranscomb1711
    @suzannebranscomb1711 Před měsícem +11

    You have to live your life and do what you have to do. Sending prayers to you 🙏🏻

  • @bakers47
    @bakers47 Před měsícem +11

    Hi Samantha! You are not a loser, you are a warrior!! I, too, have stage 4 breast cancer that has metastisized to my spine. I have been on Verzenio 150 for 2 years. It is a VERY HARD DRUG and can be humbling at times due to diarrhea. 😢 I have never considered going down a dose I think because I'm doing so well on 150, I don't want to jinx it. Your video has been very helpful.
    HAPPY BIRTHDAY!!

    • @SamanthaL
      @SamanthaL  Před měsícem +2

      Thank you! I’m so glad you’re doing well!

    • @bakers47
      @bakers47 Před měsícem +1

      You got this!!

  • @standup2982
    @standup2982 Před měsícem +8

    You do what’s right for you and block anyone who is vile about it. Sending love from England ❤

  • @dannycarr4321
    @dannycarr4321 Před měsícem +2

    My dad has stage 4 lung cancer, he was on 600mg a day Entrectinib, had terrible side effects, every single one you could think of, could literally do nothing, could not even stand up, tweaked his diet, and time of day taking them and reduced it to 400mg a day and no longer has any side effects, back to walking the dogs and is even planning on coming into work to help out this week (not been in since March). He has a scan at the end of august to see if the drugs are working 🤞🏻 As a family we never realised how much it impacts everyone around the person it’s affecting mentally as well as the person, but when you come to terms with it and hear all the positive outcomes of people that are lucky enough to get targeted therapy or immunotherapy drugs, it does give you hope. I hope the pain eases off for you and things get back to as normal as they can, you are a fantastic person, you have got this 👊🏻

  • @pasulliv1
    @pasulliv1 Před měsícem +8

    I always wondered how one standard dose was the same for everyone, regardless of your weight, so reducing sounds reasonable to me, given you are small in size. I am sure your oncologist will tell you if reducing is dangerous. Glad you are working this out. You look great, and your hair is coming back!! Yay

    • @SamanthaL
      @SamanthaL  Před měsícem +3

      Yeah me too! It makes sense if you think about it. Thank you!

  • @cathy2142
    @cathy2142 Před měsícem +6

    Im like that too. You are not a loser. Your body is responding to medicine and you cannot control that. It is not your fault. It is ok if you need to adjust meds❤

  • @CT-ht5lz
    @CT-ht5lz Před měsícem +2

    You do you Samatha. As a stage 4 breast cancer patient with leptomeningeal disease and spine cancer I too am trying to have quality of life over quantity. If I have to be asleep 18 hours a day then I have very little quality of life. You choose what is best for you and do not listen to the nay sayers. You have 1 life. Enjoy it to the fullest while you can. None of us have any guarantees, we could all get hit by a bus tomorrow. Enjoy your hubby and your baby girl. Sending love from Texas!

  • @marthainsalaco9266
    @marthainsalaco9266 Před měsícem +4

    You are not a loser for wanting to feel the best that you can be❤Some of these treatments can have the worst side effects on one’s body…U keep doing what feels the best for you honey 🥰I hope that you will start to feel a little more comfortable with your treatments xxoo

  • @itsmahsa2541
    @itsmahsa2541 Před měsícem +4

    A lot of people think that just because they know someone who had cancer then they can think they are doctors and give opinions on subjects and circumstances they know nothing about.
    Don’t let it bother you, it’s just sadly the nature of many humans to just give a opinions without thinking.
    Good luck and thanks for taking us along with you on your journey.

  • @arlenesanchez5677
    @arlenesanchez5677 Před měsícem +4

    Awe, Don't ever be hard on yourself. Just do what ever works for you, and alway's keep a positive attitude. Nerver self blame, alway's choose Life and a Positive way of living❣️🙏

  • @gilliansgoggleaccount7657
    @gilliansgoggleaccount7657 Před měsícem +5

    Samantha, I totally understand why and what you are doing. After BC 8 years ago at 42 , I'm now entering menopause and suffering a lot so made the decision with my amazing gynaecologist to go on HRT even though my cancer was ER/PR+. Life is for living and not suffering xx

    • @callyflower
      @callyflower Před měsícem +1

      I have done HRT for 8 years post cancer. So far so good. Best wishes for you.

    • @gilliansgoggleaccount7657
      @gilliansgoggleaccount7657 Před měsícem +1

      @callyflower oh that's amazing to hear. Thank you and delighted to hear you are doing so well xx

    • @elizabethconroy7665
      @elizabethconroy7665 Před měsícem

      Well said
      Warm Hugs
      Good Luck ❤

    • @bchmom03
      @bchmom03 Před měsícem

      I too am doing topical HRT creams, estriol/progesterone. Had stage 1 grade1, HER2-, plus vag estriol for vaginal and urethral health. At 64, Had a dbl mast, lymph-nodes clear. Low onco score. I cld not do the letroazole. Horrible side effects. Already Have osteopenia. Caused terrible depression. I Had a hyst at 46 and one ovary removed. So that was in my favor with BC being found post-menopausal. left breast ILC was 4mm in size and had 2mm DCIS in 2 areas of rt breast. At my age, quality is def needed. I have a 6th grandchild on the way. Very active. Doing what my Functional Onc MD recommends. Praying for you Samantha!

  • @maggieg5719
    @maggieg5719 Před měsícem +6

    Samantha, it’s your body, your choice. Only you know what you are going through. God didn’t put any of us on this earth to judge others. Until someone has walked in your shoes, can they judge you! Until then, we all need to just support and pray for you. I wish we could do more. Know that we love your videos, we love you, and we look forward to always hearing from you. ❤🙏

  • @Loveliishanny
    @Loveliishanny Před 4 dny +1

    Another thing to remember about dose reduction is that ALOT of patients reduce the dosage. The 150 mg is almost intolerable. I vomited for days and repeatedly had to call off work after trying multiple things each day. Also, when these medicines are dosed, they dose the highest effective amount. That means that lower dose CAN and probably are effective . It’s also dries you out significantly. So when you add vomiting, diarrhea and general dryness, that’s a lot more detrimental to your health than trying to stuff the meds down your throat . I can’t take it without taking a host of preventatives b4 hand which can be alot more troublesome for overall health

  • @melcerra2375
    @melcerra2375 Před měsícem +4

    So glad that reducing the dose has helped. Quality of life is so important.❤

  • @carolescharacters
    @carolescharacters Před měsícem +6

    Thanks for updating us Samantha, that must have been a difficult decision to make and I understand why you hung on so long before reducing your dose. I’m happy that life has improved for you and pray you have continued good scan results. Hope you had a lovely birthday and continue to enjoy the summer with your family 🩷

  • @rebeccakarlsson1395
    @rebeccakarlsson1395 Před měsícem +14

    Man. I know that feeling of “why aren’t I tougher?” It’s so hard, especially if you’ve always been a strong person. It’s also scary to reduce/take a break from the meds that are supposed to be keeping cancer at bay. It’s great that your doctors are supportive. It feels way less scary when they give you the green light. I’m taking a med break myself for at least one month. Second time I’ve done this in 4 years. I wish I didn’t have to, but side effects are just too bad.
    Enjoy the improvement Samantha. You’ll surely start building up strength now. It’s worth so much. Happy Birthday (whenever it is/was❤). I think I remember that you are also a Cancerian like me.

    • @SamanthaL
      @SamanthaL  Před měsícem +1

      Thanks! I hope your break goes well!

  • @marieanderson6266
    @marieanderson6266 Před měsícem +1

    You are way too hard on yourself. You are in a battle for your life and the fact that you continue to fight this for you and family is admirable. Be kind to yourself, you desrve it.

  • @number7195
    @number7195 Před měsícem +3

    Hi Samantha, Happy Birthday, and thank you for sharing your experiences. Im also on a combination of Verzenio and an estrogen blocker, Letrozole. I had a hysterectomy for stage 1 endometrial cancer in '18. Thought it was done, that's what they told me. The cancer recurred in the actual scar tissue! I then had more surgery in the scars and underlying tissue. Thought I was Ok again. It came back a third time in my lymph nodes. Ugh. So I had daily radiation for 6 weeks. My surgeon then put me on the Verzenio in addition to Letrozole. I work full -time and could not tolerate the lack of appetite (no taste either) or diarhea on 150 mgs of Verzenio. I'm also a petite slim woman and my doctor first took my dosage down to 100 twice a day and then to 50 in the morning and 100 at night. I can now function normally all day. Originally the doc told me to take immodium, but I have IBS (c) and got constipated in one day!
    So I now can tolerate the meds long term. There are other side effects that I hate on sexuality, but of course, my life going forward is number one. I've had three scans (get them every 6 months) since being on these two meds and I've shown NED. (no evidence of disease). So keeping fingers crossed. We are very fortunate to now have this important drug called Verzenio....its just that people tolerate it in different ways.

  • @lindacraig5056
    @lindacraig5056 Před měsícem +2

    People Have no idea what we go through.So we have to make decisions that are best for us and no one should judge you for those decisions.You look great Samantha. stay strong

  • @michaelajoseph6856
    @michaelajoseph6856 Před měsícem +5

    Nobody can make decisions for you except you. Wishing you a beautiful summer. Be blessed and be well! 🙏❤️🌷

  • @motherofthreeb6337
    @motherofthreeb6337 Před měsícem +2

    It's your decision. It's your life and you're the only one who has to live it. No kne knows the hard decisions of cancer treatment unless they were faced with it. Keep making decisions you feel are best for you!

  • @margaretness2857
    @margaretness2857 Před měsícem +3

    I love that you are so conscious and intenional about deciding how you want to have power during your illness; you are an inspiration. Quality of life is so important when you are stage 4 and you have a beautiful daughter; what is the point of being so incapacitated for the rest of your life; you strive to find the balance of treatment and you are the only one who can find what is balance for you. Good for you!!!!!! The judgy haters have not been in your shoes and don't really get it. Keep listening to yourself; you are in charge.

  • @karenkingrey6142
    @karenkingrey6142 Před měsícem +6

    Your videos have really been such a source of strength for me. My last (🙏🏼) round of chemo is 7/22 and I sure hope it is the last round. The things people/dr’s/nurses do not tell you about chemo is massive. And, although my treatment is different, I always appreciate your honesty & openness. God bless you! And….Happy Birthday!!!!!!🎉🥳🥳🥳🥳🥳🥳💖💖💖💖🤗🤗🤗 I hope this is the very best year so far!!!!

    • @SamanthaL
      @SamanthaL  Před měsícem +2

      Thank you! I hope your last chemo goes well! That’s awesome :)

    • @sharondalynnewton7562
      @sharondalynnewton7562 Před měsícem +1

      I went to chemo class where I learned all the the different medications I would be taking and possible adverse reactions. They should be where the port would be placed and how they would access it. Very informative. Plus I had to sign informed consent for the medications that would make me lose my hair and the possibility of it not growing back.

  • @nobaloneymahoney7940
    @nobaloneymahoney7940 Před měsícem +1

    More prayers for you and Grey and your daughter to continue to enjoy life despite overcoming a plethora of obstacles ❤

  • @stephaniewilson5284
    @stephaniewilson5284 Před měsícem +1

    I like that you do you! Quality is way freaking better than quantity. Living in misery is NOT living. I think your wisdom is exceptional. Trusting your intuition is huge. The effects of the or elongation life or cure can be totally brutal.

  • @marlaedwards1664
    @marlaedwards1664 Před měsícem +3

    It’s been awhile since an update. Praying you are well 💜

  • @Catherine3296
    @Catherine3296 Před měsícem +6

    Hello Samantha, you know your body and if lowering the dose is making the symptoms better then that’s a good thing. God bless 🤗🤗

  • @rebeccaherder8296
    @rebeccaherder8296 Před měsícem +1

    They don't know about this med. I weigh 300lbs and couldn't tolerate 50mg of verzenio every other day bc it was damaging my liver. Unfortunately I don't think any of the cdk4/6 drugs will be tolerated by my liver. I'm not metastatic. Was taking verzenio for early stage high risk of recurrence. Cancer sucks but you rock. Stay tough honey.

  • @Pinkdoor507
    @Pinkdoor507 Před měsícem +3

    Your very brave to make these decisions and even more to share. I have worked as a nurse for almost 20 years with very serious illnesses, there are no right and wrong decisions just wants best for you. All of that gi distress is also not healthy either. So many become totally isolated because of gi. Praying for you

  • @randomhominid9816
    @randomhominid9816 Před měsícem +1

    I don't think you need anyone's approval but I know you're doing your best and I totally respect your decisions and your courage and telling your story. This is such a hard, hard thing your going through and I'm so very much rooting for you. A belated happy birthday to you.

  • @lorileewalters2018
    @lorileewalters2018 Před měsícem +2

    Samantha, please don’t ever call yourself a loser, you’re so far from that, that breaks my heart, my mom told me I was a loser with nothing to offer, you are an amazing beautiful young woman and never call yourself a loser 🥰👑your a princess, love you 🥰💝❣️❣️❣️❣️

    • @SamanthaL
      @SamanthaL  Před měsícem +1

      👸 thank you

    • @lorileewalters2018
      @lorileewalters2018 Před měsícem

      @@SamanthaL no thank you needed, it’s the truth. I got your back girl❣️❣️❣️❣️

    • @kathygillman5450
      @kathygillman5450 Před měsícem +1

      I have stage 4 colon / liver cancer. I too have diahrea 10 to 15 times a day. But this isn't about me as it's a long story. I understand your decision 💯! You, my dear, are not a loser, a baby or anything negative . You're a Warrior and a lovely one at that ! It sounds like you've made an educated decision w the Oncologist support. I am at a loss as this struggle is so real and people don't always understand how horrible you feel, the worry of having an accident when out etc. I am sending you a big virtual hug and prayers. You've got this and thank you for sharing this difficult content. I understand how hard it is to talk about. Thank you though for sharing.❤

  • @MMargaretRiley
    @MMargaretRiley Před měsícem +6

    So glad you're having a great summer, Samantha. Good for you!

  • @karenknight9565
    @karenknight9565 Před měsícem +4

    Happy Belated 28th Samantha!!! Sounds like you had a good one!! I had to make the same decision with my oral chemo pill. I still question myself but like you the diarrhea was unpredictable and absolutely no fun! Nobody should judge anyone else’s choices… we do that enough ourselves ! Enjoy that baby girl!! Much love as always! Karen 💪🏻🩷

  • @nadineF
    @nadineF Před měsícem +2

    You are such a brave person and mom. Wishing you a full recovery and a wonderful life!

  • @TheMic74key
    @TheMic74key Před měsícem +2

    We are all built differently and your body is telling you what it can and can’t handle….doesnt make you a loser at all. Your body has an intelligence so listen to it. I was on a low dose steroid and it was making me crazy….my doctors just kept saying oh it’s a low dose…you should be fine but my body was saying get this shit out of our system. …….follow your heart….no need to explain anything….praying for your recovery❤…Happy Birthday….🎉

    • @SamanthaL
      @SamanthaL  Před měsícem

      I know someone with a similar story. Thanks for sharing :)

  • @janinealexa567
    @janinealexa567 Před měsícem +4

    Good for you! You know I’ve always been a huge advocate for you doing what is best for you, your body and your life. Life is not just meant to be lived, it’s meant to be enjoyed! You do your research and make good decisions based on what you learn and talk with your doctor. Your 19:09 videos help so many and I am grateful that you share! I also hope you had a FABULOUS birthday! 🥳 Sending lots of love! 💝

  • @user-nd2mh7tg4t
    @user-nd2mh7tg4t Před 14 dny

    As someone who has lost her sister to this disease I love you. I love the way you balance your world. I know now I would choose a dose that would let me enjoy this world. My sister was so chemo upped she could never leave her bed. She was sick. Suffering. And it took her away. She didn’t want people to see her. At the end she wished she had not been so hard on her body. Do what feels good for you. I want to live. Not just exist. So I support you so much!!!! Love Tracy

    • @SamanthaL
      @SamanthaL  Před 14 dny

      I’m so sorry for your loss. I’m glad your sister had you to care for her 🥰

  • @maryjaneclester6310
    @maryjaneclester6310 Před měsícem +2

    OMG - you need to have quality of life. You are doing what is best for you. Great that the lower dosage will be effective.. Be kind to yourself - you are a very strong woman. You have gone through so so much… thanks for sharing…
    Happy belated birthday…💕💕💕🙏🙏

  • @crustyrash
    @crustyrash Před měsícem +2

    Samantha, Kudos to your courage and honesty in being frank about quality of life in living with cancer. I think as a society we are programmed to think, “oh I’m going to beat this thing, etc.” At least at my agency we assess risk based on mg/kg bw/day which is essentially your analogy of a 300 lb person vs 150 lb person. Peace and be well

  • @silvialogan9226
    @silvialogan9226 Před měsícem +4

    Samantha, ignore those mean comments and if your oncologist tells you that you can reduce the dose if if is causing you side effects, you listen to him!

  • @pbj91
    @pbj91 Před měsícem +2

    It’s actually very normal to need a Verzenio reduction. I don’t know why they start people on the 150mg dose when they know nearly everyone (90%) get diarrhea! I was doing ok on 100mg until I had a “diarrhea attack” one night with cramps and stomach pains that came every few minutes like labor. Diarrhea and vomiting for hours. My oncologist lowered my dosage a second time to 50mg. No more diarrhea and fatigue is much better, so just know you can lower the dosage again if needed. The lower dosages are showing the same benefit. You keep doing what’s right for you ❤️

    • @SamanthaL
      @SamanthaL  Před měsícem +1

      I’m glad you’re doing better on the 50!

  • @regnnicole
    @regnnicole Před měsícem

    Do not worry about what others think. What’s important is what’s right for you and your journey. It is about quality of life versus quantity of life. I 100% support you.

  • @pattycat923
    @pattycat923 Před měsícem +2

    Hi Samantha I’m taking Ibrance and Letrozole for breast cancer. I was on 150 mg Ibrance. It made me so nauseous. I couldn’t eat for days at a time. They dropped it down to 100 mg & that is working for me. They said they could drop it down to 75 mg if need be. I thought the same thing as you how can 100 or 75 mg work the same as 150 mg. They said studies show it works. I’m good on the 100 mg. Last PET 2 weeks ago was good, next one September 17. You have to do what’s best for you and your quality of life. ❤

    • @SamanthaL
      @SamanthaL  Před měsícem

      Thanks for sharing your experience 💕

  • @kristyhuber7835
    @kristyhuber7835 Před měsícem

    As my oncologist said to me at the beginning of my breast cancer journey, we don’t want the treatment to be worse than the disease. Unless someone has been on this journey, they have no idea what it’s like. I’m sorry you’ve had such a hard time with your meds and I’m glad you’re doing better with the med change.

  • @dianemiller6440
    @dianemiller6440 Před 25 dny +1

    Hi Samantha, I am sorry I haven’t written for awhile. I have followed you for a long time and come to know a bit about you through your sharing. Even though you share with us, I see you as a private person and would never want to overstep. You have always been very thoughtful throughout your cancer journey about the decisions you make. Let’s face it, you are making life and death decisions. I always want to convey that I support and care for you. I trust and know you will always do what you believe is best for you.
    Gosh, listening to your challenges with diarrhea…how tough. It sounds like you have better freedom now. Thank goodness! I feel better about that. Now, wonderful Samantha enjoy life, Grey and little one💕. A belated Happy Birthday 🎈🎈🎈
    Wising you the very best of life. Caring thoughts to you and your family. Diane

    • @SamanthaL
      @SamanthaL  Před 25 dny +1

      Thank you for the comment. Hope you are doing well 💕

  • @bchmom03
    @bchmom03 Před měsícem +2

    Samantha, Happy Belated Bday!! I understand the quality over quantity for sure! Could not take the AI meds. Life needs to be lived to the fullest for sure. Enjoy your precious family! Praying for you.

  • @hillanne100
    @hillanne100 Před měsícem +4

    For anyone who has or will be negative, go somewhere else!! This young lady is doing what is right for her with the assistance of experts, makes me sad that people think it is ok to say negative stuff, GTFU

  • @carolinenelson4362
    @carolinenelson4362 Před měsícem +2

    You're on the same meds as me. I dose reduced to 100mg after 2 months. Some days are better than others. Yesterday I had D 10 times and was so weak. It's such a rough life to be on these meds and trying to carry on. I too love hiking. And I had to poo off the trail because I couldn't make it. I feel stuck near homes and bathrooms. It's not the best life but we carry on. Thanks for sharing.
    (Inflammatory b.c. de novo to bones Oct 2022 er + only.)

  • @janebray5150
    @janebray5150 Před měsícem +1

    I think you are sensible. I know what it's like to suffer such frequency and urgency. You feel like you can't function in normal life. I am glad reducing your dosage us enabling you to have a better life. Enjoy summer ❤

  • @catherineedge5446
    @catherineedge5446 Před měsícem +2

    Happy birthday, Samantha ❤❤❤ It's wonderful to hear you're doing what's right for you ❤️❤️❤️

  • @ladeenbrody4963
    @ladeenbrody4963 Před měsícem +3

    I feel like lower doses can still work....with a better quality of life. I get it.

  • @sherrithomas4350
    @sherrithomas4350 Před měsícem +1

    Happy birthday! You are so beautiful and I hope you continue to adjust and do well with the lower dose. I cannot imagine going through the side effects you have had after having a baby and back surgery. Please don't be so hard on yourself. I am still praying for you and your beautiful family. ❤

  • @user-vs8cu4lx3n
    @user-vs8cu4lx3n Před 27 dny

    I can't believe people give you so many comments about your treatment and how you're doing things wrong. You're doing the best that you can in this situation!

  • @ajmantis
    @ajmantis Před měsícem

    I didn’t expect to relate to this video, but I have crohn’s and I can affirm that chronic diarrhea completely sucks the life out of you, even if you’re not having it 10 times a day. even once a day is enough to do it! you’re not weak for not just “dealing with it.” it’s awful, and you deserve this better quality of life. honestly, I think listening to your body and making that decision shows your strength much more than not listening to it would’ve. and happy late birthday!! 🎊 🎉

  • @erbiumfiber
    @erbiumfiber Před měsícem +1

    Sorry about that whole issue, you have way more patience than I ever would. I can say that plain rice does help some people produce, umm, "firmer" products if you get my drift. Also, for me, personally, cucumbers but that may be just me. But the rice thing is something they used to recommend a lot before things like Immodium were available. Best of luck

  • @kelsonl6084
    @kelsonl6084 Před měsícem

    Don’t even worry about the people saying “what if” in the comments. Don’t even waste your time on them. Lots of love ❤ I can’t believe how many people have similar stories of patients not being believed; I hope your story will save many lives with the awareness of cancer in young people

  • @patriciacano3549
    @patriciacano3549 Před měsícem

    Samatha, you shouldn’t ever have to apologize to anything.💪💪you do what works for you! We all love you and pray you and your family!!!🙏🙏🙏

  • @helenemartin9535
    @helenemartin9535 Před měsícem +2

    I totaly understand you. I decided to decrease my dose of Ibrance to 75mg to be able to work and have a social life. Your decision is perfectly normal. The real deal is to get 6 months of the max dose for this type of medication. You did it. Enjoy.

    • @SamanthaL
      @SamanthaL  Před měsícem +1

      Thank you. How are you doing on the lower dose? 😊

    • @helenemartin9535
      @helenemartin9535 Před měsícem

      @@SamanthaL yes, this is the lowest dose of Ibrance and because my Ki67 is only 7% I do 2 weeks on, 2 weeks off. I am PIK3CA mutated. My job is demanding : I am a post doc researcher.

    • @helenemartin9535
      @helenemartin9535 Před měsícem

      ​@@SamanthaL I'm much, much better. I can do my job, see friends and manage my fatigue.

    • @SamanthaL
      @SamanthaL  Před měsícem

      Great to hear!

  • @janestafford4403
    @janestafford4403 Před měsícem +1

    Listen to your body and not to the naysayers. You are your best judge of what works.

  • @user-sj8mf8jn1z
    @user-sj8mf8jn1z Před měsícem

    You have nothing you need to justify to anyone for any reason‼️ Your journey is yours alone. I pray your life will be long and fulfilling and good health will be yours🙏‼️

  • @peachbelleable
    @peachbelleable Před měsícem

    As someone who has pooped their pants in public before, I could not imagine living with the fear of that happening every day. The anxiety would absolutely be debilitating. Quality of life is so important to consider. Kudos to you for being brave and choosing to do what makes you feel the best. ❤

    • @SamanthaL
      @SamanthaL  Před měsícem

      It was honestly just a matter of time before it happened. Thank you!

  • @tammyorr721
    @tammyorr721 Před měsícem +1

    Losing weight can cause decreased life expectancy with cancer. So you are very wise. Repeating myself here, but I'm a retired nurse and you are my hero! I don't think that under your circumstances I would be as wise as you are. Your illness is gonna hinder your ability to make decisions. So if you're this wise under these circumstances then my word is just Wow! And I don't know if it would be sufficient or even ok with your treatment since pads can irritate your skin and maybe precipitate a yeast infection but I love Poise pads long length and maximum are wonderful. And I carry a bag with a few pads, panties, shorts or pants, wet wipes, and a trash bag in my car just in case. I have MS so my body does what it wants and I sometimes get a bad upset stomach so I have some limited expetience with this sort of thing, not to the degree you do of course, but I love my pads and wore them 3 days a week at work for years. And you may not have ever needed the dose you were on. Even drugs given a long time can vary in effectiveness in different people. We don't know as much as I wish we did and it's nobody's fault. The human body is miraculously complex. I wish so much that you could see yourself as I do. I wish I could help you somehow so that's why I tell you so much that you probably already know. And just know that I see deeply into people cause of how I was raised and I see nothing but a hero in you! Your decision making is amazing!

    • @SamanthaL
      @SamanthaL  Před měsícem +1

      Thanks for this comment! 😊

  • @brooks6348
    @brooks6348 Před měsícem +1

    Good for you! Hope you had a wonderful birthday. My sister had such a time with diarrhea that she wore a diaper for safety after a horrible accident in public. Prayers for healing!

  • @odettec1
    @odettec1 Před měsícem +2

    Happy Belated Birthday Samantha Lynn. I hope your day and year are full of love, happiness and peace. 🎉🎂🎈🎁🎉

  • @cindyscharr457
    @cindyscharr457 Před měsícem

    Your 28 and great! Living with MBC you often feel like a walking experiment. No one knows your body like you do. Yes it is all about quality of life! I am glad that you are a voice for your viewers. It is a reminder that we all need to and can adjust our medications, diet, and exercise too. About a month ago I quit my multivitamin and I feel better physically because I did. Unexplained of why but the fact is that I do. My injection every 21 days is still the same dose for almost 4 years. I did receive it during chemotherapy along with other drugs. Now just the target drug, so I feel fortunate.

  • @PIA-tj5hc
    @PIA-tj5hc Před měsícem +1

    Your life your family your choice!!!
    Do what’s best for you and your family🌞🌞🌞🌞

  • @cathy2142
    @cathy2142 Před měsícem +3

    So glad you are having improvements❤. Praying for you

  • @jeffszmiett2600
    @jeffszmiett2600 Před měsícem +1

    Thank you for sharing this difficult journey and all the real life effects of cancer. You are doing such a great JOB!

  • @Denymarie123
    @Denymarie123 Před měsícem

    You and your doctors know what is best for you. Quality of life is also important. Your daughter and husband are all that matters!!! I support you 💯 and love following you. You’re not a loser!!!

  • @lou3065
    @lou3065 Před měsícem

    Samantha, God bless and keep you. Everyone must make these very difficult personal desisions when facing this chronic disease. No one should judge your decision. You love life and your family. I pray the best for you.

  • @RF1972.
    @RF1972. Před měsícem +6

    You know your own body the best...❤

  • @cristielstone5449
    @cristielstone5449 Před měsícem

    I am on perjetta and congenti as my HER2 treatment. Perjetta is also a beast but sending ⁶ worse when combined with chemo . So sorry that you are dealing with so much. You are not a loser or whimp for changing the dosage. Hang in there, kiddo. We all care about you.

  • @catdoganddramaqueen8487
    @catdoganddramaqueen8487 Před měsícem +1

    Your body, your choice. Cancer treatment is brutal but you have to also look after your other physical and mental health. If you get too run down or over wrought emotionally, you risk other infections and depression which in themselves would reduce the effect of the cancer treatment.

  • @BirtheBrasel
    @BirtheBrasel Před měsícem +2

    Thank you so much for sharing. I love the way you are handling your heath. It helps me more than you know

  • @marychisholm3415
    @marychisholm3415 Před měsícem

    I have no doubt that you have put a lot of thought into your decision to decrease the medication. Everyone is different and you have to do what is best for you. Thanks for sharing sweet girl.

  • @vivienleigh4640
    @vivienleigh4640 Před měsícem +1

    Here we are again, you feeling that you somehow need to defend the choices you make. It's your body, and your life, Samantha, and people should just accept that and be thankful for that you share your journey in the hope that it might make someone feel less alone. I don't have cancer, that I know of, but I know what it's like to have diarrhea for a long time. You get drained, literally. You don't just lose weight, you lose energy. Everything feels so much harder - and you're dealing with cancer and at the same time trying to live a life that at least resembles some kind of a "normal" life. You're no good to anyone if you don't have strength ❤

    • @SamanthaL
      @SamanthaL  Před měsícem

      I love explaining my reasoning in hopes it’ll help someone else with similar decisions to make. You’re right about the energy and I should’ve mentioned it. It’s the best decision for my family as well, not just me. They need me to be there for them right now too :)

  • @beckymellon8135
    @beckymellon8135 Před měsícem +2

    I do the same exact thing and if I had a choice to lesson the meds and enjoy leaving my house it would absolutely be worth it. That’s amazing you haven’t gotten any fishers from the diarrhea I would have so many if I was continuously having nine bouts a day🤞🤞🤞 I hope this dose really works out for you ❤️❤️❤️✌️🤞

    • @SamanthaL
      @SamanthaL  Před měsícem +1

      I have been extremely cautious about that because it destroyed my life last time haha. I think I have a small one currently but hoping it goes away and doesn’t turn into what it did last time. That’s another reason why I switched doses and should’ve mentioned that

  • @mamat5264
    @mamat5264 Před měsícem

    You are managing your care the way you need to in order to live your life. I was having awful side effects from the aromatase inhibitors they wanted me on for BC. I stopped taking them because I didn’t want to be miserable for the next five years. I wanted to live and enjoy it.