MyCP Webinar Selective Dorsal Rhizotomy in the real world
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- čas přidán 18. 04. 2023
- Dr. Jeffrey Leonard, chief of neurosurgery at Nationwide Children's Hospital, talks about selective dorsal rhizotomy (SDR) to reduce spasticity in children and adults with cerebral palsy. He describes the selection criteria for candidates for the procedure and discusses the amount of practice variation there is in the U.S. He describes how the procedure is done in detail include intra-operative videos and explanations. He goes on to show before and after videos and then describes a study that the CP Research Network is planning to determine the best age, effect modifiers and the optimal physical therapy treatment.
Dr. Leonard comments at 50 min 40 sec that every patient that has SDR in Saint Louis has Achilles lengthening surgery. The comment is untrue. In our patients followed for 20-28 years after SDR, 21% had Achilles tendon lengthening. We published our data.
I live in La Mesa California and I am having difficulty finding a orthopedic 5:47 surgeon for my son who is 44 years old with hip dysplasia. He is in a lot of pain with movement. He does not walk Do you have a program here in San Diego California? If so, do you know of any doctors that treat CP in adults? My son has been dealing with this pain for several months. He does not talk but I know when he is in pain
Thank you
Hi Pamela. There is GREAT program in SD. Dr. Hank Chambers has an adult son with CP and is a very caring orthopedic surgeon. I don't know if he does adult ortho work too but if not, he would know who to refer to. I am glad to track down a contact for their clinic if you cannot find it.
I found the clinic, thank you very much
So there isn’t any treatment for adults over 40 y/o
Dr. Leonard says that for the right candidate, he would consider SDR for adults of any age. We are planning to do a lot of research into treatments for adults more but are first trying to get a representative characterization of the issues that adults with CP face. Please considering taking our adult wellbeing and pain survey on MyCP.
user-il5jc7bd9e I commend you are taking on this difficult research topic. A comparative study of CP treatments is welcome. Our St.Louis group had NIH grant to study SDR vs Baclofen pump. It was impossible to recruit patients for the study.
Mr. Grsoss - would you list the 9 research publications for the public?