What is Neurofibromatosis?

Neurofibromatosis, often referred to as NF, is a group of three genetically distinct disorders that cause tumors to grow in the nervous system and can affect many parts of the body. Dr. Karen VanderLaan talks about the multidisciplinary team at Helen DeVos Children’s Hospital that specializes in treatment of this condition.
Link for more info:www.helendevoschildrens.org/Ne...

[@leprechaun2665]

Thank you very much, I wish more people knew about nf

[@wastelandwarriorz665fanacc8]

Somebody with Neurofibromatosis should start a restaurant called cafe Olay

[@freespirit_17]

😂 I have NF1 and your comment made me chuckle...

[@dhorizinquijada7827]

I have nf too and this was 😂

[@samaratuinstra3170]

Yasss let's doit

[@charleneowen5984]

I have Nf1 but I get ringing in my ears, and have had balance issues, not bad but I do at times.

[@wastelandwarriorz665fanacc8]

Latly I get ear ringing

[@nomadsaurabh9557]

Charlene Owen how much tumor you have

[@Christine-ys5iq]

I have NF1

[@MrJamiez]

I randomly get ringing in my ears, not all the time!

[@samaratuinstra3170]

That's my doctor I have neurofibromatosis type 1 my family found out when I was like 2 and I'm scared about if them by bumps are going to be on the outside or the inside mainly because I don't want them on the outside

[@primitivodominguez4742]

Samara, hope this message finds you well. My Nephiew was just diagnosed with NF1, and I’m trying to find someone who has who can recommend anything that helps as well as answer some questions i have. Starting with the most basic of questions: Have you found a change of diet to be beneficial at all?

[@bloodtraitorsrule]

I also have NF 1 and have for 26 years recently I have become worried about the out side neurofibromas.

[@Christine-ys5iq]

I have the bumps in the outside

[@dark20blade88]

I was born with NF & i got bumps on my back arms & 1 somewhat big one right in the palm of my right hand

[@Christine-ys5iq]

I have a few bumps. I've been asked what they are. And tell people I have NF1.

[@kyressa]

I have NF1

[@booksarelife3923]

my mum has nf I'm not sure which and I'm worrid cuz I've only recently found out it was serious.

[@madislater3430]

did you find out? if not ask her

[@arnabbiswas9461]

My Newrofribama problem please madicin name please help me

[@madislater3430]

what

[@AuthorRahsaanAli]

Nf1. Mines are primarily on the outside. Shit is not a game. In many cases those whom do not have it choose not to associate themselves with those that do. Chances of being in a relationship with a person without it are quite slim. Albeit there are some that tend to ride with you but indeed fear being chastised when they do. At lest in my experience. However you must carry on and be strong.

[@dark20blade88]

I was born with neurofibromatosis.

[@madislater3430]

same ,nf1, you?

[@dark20blade88]

I have all three