Waiting to be discharged - portacath issues
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- čas přidán 20. 05. 2024
- It's day two after the surgery and we just want to go home. But we're delayed because no one knows how to de-access a port-a-cath. However, Elin is doing really well, tolerating fluids and food, tolerating being in her wheelchair and she has had that all important post-surgery bowel movement.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp
I am so happy that Elin is going home! Alice should have a wonderful weekend with two birthday parties!
Good news I'm glad Elin is going home
Glad Elin is going home now ❤
That's good news I'm glad she's doing well tova she's such a sweet girl ❤❤❤❤❤❤❤❤
Wonderful news tova ❤❤❤
Great news of Elin going home from Hospital. ❤️❤️
Elin is so giggly 😂
Hi Tova, hi Elin. Lovely to see Elin is going home. I hope Alice lets you have restful nights. I get my hairbrush from Morrisons. It’s their de tangle brush. I have long hair too.
Yay elin.
HOME SWEET HOME ♥️♥️♥️♥️♥️
Thats awesome news
Tova are you going to wash her beautiful hair when you get home??? I'm glad Elin is in a good mood today
😮😊
Glad Elin doing so well. If u n Elin dad is port train can u do thing like that cannula out of port r allowed to do that when Elin is in hospital xx
I love Elin's smile. She is such a beautiful child. You are a wonderful mother to her and her sister. God bless all of you.
what's happened Elin Her Body😱
Can you not just put a hair band in her hair to keep her hair back, as she has such wonderful hair