Multiple Sclerosis Vlog Difficulties With Parking Lots
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- čas přidán 12. 09. 2024
- Thank you for watching Sara's Living with MS. I created this channel for multiple sclerosis awareness and support. In this episode I share some common frustrations of walking with my disabled Multiple Sclerosis leg.
Please subscribe: / @saraslivingwithms
My videos do not provide medical advice and are for informational purposes only. The videos are not a substitute for professional medical advice, diagnosis or treatment. Please do not disregard professional medical advice or delay in seeking it because of something you have read or seen in any of my videos.
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My heart goes out to you brave girl. I pray for a miracle for all of us MS sufferers. You are a strong soul ❤️
Thank you so much ❤
You walk just like me. I have right leg weakness/fatigue. My right knee buckles constantly, and I recently began having complications with foot drop in my right foot. I have been walking this way for about 3 years now. I was just diagnosed with MS March 2023. We are truly warriors🧡. Thank you for sharing.
I just saw this. Sorry I just asked you on the last comment about this. It does sound just like mine. Do you need assistance walking? I use a wrap around my right foot and ankle along with the bioness and my new doctor has a new physical therapist that ordered a NewGait so we will see how that goes, I don’t know much about it, but will be super great if it helps!!
@@SaraslivingwithMS Oh no worries! I do need assistance to walk. I always have my husband or one of our 3 kiddos to assist me with walking Lol! They are my only “assistive devices”. I did recently order a cane to try. My husband has been looking into purchasing the bioness device you wear. He saw your video before I did! I hope physical therapy and the NewGait helps you! Thank you so much for sharing🧡.
You might be able to get the bioness through your insurance. I did.
@@SaraslivingwithMS Oh thank you! We have not looked in that direction. I honestly do not have the best feeling about my insurance at this moment… they denied me for more Physically Therapy. So frustrating, but I am still trying!
Do whatever you have to do no regrets! I have MND & I’m 39, I finally had to swallow my pride & get a walker with a seat. It helps me so much & it’s pretty awesome to always have a seat around! My boys don’t care they’re just happy mom’s coming along. 😊❤
Parking lots absolutely freak me out. my problems may be a bit different. I've lost all confidence of my instinctual awareness of my surroundings. I am a fine, tuned human....even at 54. I was a state champion gymnast art age 15 and balance, or lack of it has finally caught up with me. Some days walking feels like treading through mud. Tipsy every night when I get up for the bathroom.
Parking lots are a constant battle
I just found this channel. I also have MS (48 year old male) and thank you for sharing this. This looks very familiar to how I walk. I’m terribly sorry you have to deal with this but also grateful to know there are others with similar issues. I’m very fortunate to have 2 grown sons that help me, but also wish to god I could just be normal, I’m sure you more than understand that. Thank you again for sharing a very difficult event.
Yes I feel the same so thankful for my family support and thankful that I don’t have it worse, but sometimes hard to not want to be normal. Thank you for sharing and your support!
Hey thank you for sharing this. That happens to me and my family too a lot. Real basic stuff like going to the chiropractor and the grocery store which are next to each other. But so many non-disabled people take the disabled spots. Frustrating but we got to make this work one way or another. Thank you again
Keep going. Use it or lose it!
I've had PPMS for 10 years & when I forget my sticks, I'm toast. 100% going to fall & 100% stuck until someone helps me up. When the MS nurses ask wear I got all the bruises, I say I'm a stunt man in training.
MS sucks, refuse to lose!!!
Ohh my respect for you to keep going forward, hopefully there will be a treatment in the future as my friend who his kidneys gave up on him says stay positive and wait for the next miracle 🙏
Thank you for the support!
God bless you Sarah, you did an awesome job crossing the road from your car. I don't think I would have attempted it but you did it and my hat is off to you. I haven't been able to walk without assistance in probably 5 years. You keep going because we got to fight the good fight. Take care until we see your next video.
Thank you so much! The walking thing to me, is the worst of my symptoms, I can’t stand it, I just want to be able to walk around and not have to constantly think about it, do you use a cane?
@@SaraslivingwithMS I use a walker Sarah, I wish I could still just use a cane.
@@roberture5903 is it one with wheels and you can push it or do you have to pick it up with every step? Are both of your legs affected? They made me leave the hospital with one when I had my seizures, but i refused to touch it and was grumpy and angry about it. But it probably would of helped me walk around the house the first couple of days I was home.
I use a walker or cane outside the home depending on the day, time, fatigue, numbness, etc. I have transverse myelitis in the setting of MS. I have also had problems with full disabled parking. I mostly travel alone at this point and that is where my walker keeps me safe (WI). Almost spring so I will have a break from snow and until hot weather sets in a couple good months.
That sounds painful. Does it give you pain? Are both legs affected. I can’t wait for spring!! I do much better in warm weather. The heat doesn’t affect me as much as the cold does.
@@SaraslivingwithMS it was painful at one point. Then major steroids to stop that flare that caused the spinal lesion. I get around pretty good. I just need balance support and occasionally have feet that drag on harder days. I do not tolerate heat or extreme cold. So spring should be nice. I am making some spring floral arrangements as a mood booster today.
Sara- you are awesome! You are a whole new definition of brave! Bravo!
Hello, have you had a MRI of your spine? I walked just like you . I changed neurologists and he ordered the MRI. It was years after my brain one. The medication wasn't working for me. Progression continued. I had a lesion at T10 and T11. Spinal lesions lead to a more progressive and disabling trend. I have been diagnosed since 2001. Life has been good. My children are in their 30's. They were 12 and 14 back then.
Thx for sharing Donna! I was diagnosed last year March 2022 & on Kesimpta. Doing well so far. I have 2 in college & baby is in highschool. We carry on:)
Yes both spine and brain. Are you currently taking any medication?
@@SaraslivingwithMS Hello, no I don't take MS drugs only Baclofen and Clonazepam at bedtime. I took the shots for about 7 years and I started having side effects and I wasn't progressing. That was 11 years ago. Today I am still using a wheelchair, my arms are a little more involved, I still transfer to chairs, shower chair, bed independently
@@donnamoore8479 Donna, may I ask what is the reason that you are not on one of the newer DMT like Ocrevus? I am not sure if you have tried any of the newer DMTs.
@@rosieposie9564 Hello, I don't take the new DMTs due to the possible side effects and the administration of being infused for that length of time, is too much for me. Every treatment states "may" reduce etc. I know what is now for me and have adjusted to it. I have lived a full life, with adjustments for the physical losses,. Currently there is no cure so I just roll with it.
Use a cane. Film the same thing using that. You'll SEE how much better, or stable, your walking is. You don't realize it, because each and every step you soley focused on just that next step, and trying to get to point B.
Have a back up cane in the car. Hint: Ski poles work great in the yard.
Shopping carts work great too. Walkers at home. Oh, well!
How do you do stairs? Sideways? Or do you go downstairs backwards?
Hey, you got'ta do, what you got'ta do.
See, that's why God made you such an angelic person and perfect otherwise. Oh, well.
I have MS also and I wish that I can walk like u. I use a walker. Thanks for sharing the video.
I tell everyone i have bursitis in my hip that is why i havevrough days but it it my hip flexors quads, anterior tibialis etc
That fact that our immune systems attack our central nervous systems really pisses me off. Our immune systems are so dumb!
Another impossible task is to take a large basket of laundry down or even up the stairs without the use of a hand rail. But you find a way. Stairs are problematic.
Yes I hate stairs!!! I seem to have even more troubles on inclines though, I hate those even more!! Why can’t everything just be nice and flat and smooth lol. 😊
i walk exactly like you! i'm undiagnosed, and therefore i have no parking permit for my car... parking lots are tough.
That is tough. How come you are undiagnosed? Do you have other symptoms? Do you use a walking aide?
@@SaraslivingwithMS i had a doctor from 2020 til about 3 months ago - he fired me - said he didn't feel that i trusted him. and he was correct! i have every neurological symptom you can think of, and no,, not using cane yet but i should!
Get yourself a steel carbide tipped Hiking stick. Great for traversing parking lots and other places
Just curious...what is that leg brace for? What is it supporting?
Thanks for the video. Doesn't that device require a direct skin contact (preferably moisturized for better electrical conductivity)?
I have a video on this device. czcams.com/video/qfU-XMPBQCI/video.html. It does need to be wet, and it will still works through clothing, I just have a wet spot there. Not so fun, but I rather have a wet spot and be able to walk better.
Now, here's what I know. "We" aren't first. "We" aren't 5th, 10th or even 25th. I like the study from 2017 where "we" ranked 54th, but that's from 2017, so there's that. In 2021, "we" ranked 37th. I can still leave the country and get better healthcare than here. In 2023, "we" slipped again. It's so weird.
Does the estima device work? What is the brand?
It is a bioness I have a video on it. It makes it easier to walk, but it is still hard to walk, it makes my leg less fatigued
Very nice girl 😍
Please use cane at least. Snow ice falls hurt really bad you could have broken your back
I know. I drive myself nuts with my stubbornness. However my husband is normally right there for me. I am super lucky, although I am sure I stress him out. I just want to walk normal with no cane, canes suck. They make it harder and more exhausting and the stares I get. I try not to let it bother me, but it does.
Looks a bit dangerous...
I know. I am very stubborn. I have learned the hard way, but it’s just my nature to fight the system and say no to a cane. I should be more careful and I am learning the hard way. Luckily I have a great husband that supports me and is normally holding my hand in these situations.
@@SaraslivingwithMS Excellent!
In Jehovah gods new world just like in the garden of eden it was jehovah gods original purpose at isiah 33:24 no resident will say i am sick .😎😎 Right here on earth.