My best friend has just been diagnosed with IgAN, this video has been so informative for me, this has helped me understand what her condition is, what caused it, what treatments are available and any lifestyle changes that can help. I feel better able to support her now, thank you so much ❤
I was diagnosed with IGA nephropathy about 8 years ago. I was 29. I was put on prednisone for 6 months tapering after 3. Horrible side effects. I am currently on Lisinopril, Losartan, and just recently Jardiance. My current nephrologist was out for almost 2 years, and his fill in put me on Faxiga. Now my current nephrologist was hesitant to continue on SGLT2 even though it had brought my protein loss down within basically remission. Why would one nephrologist prescribe it and not the other? My GFR is currently 57. Which is up from 46 3 years ago.
Protein in urine is the main indicator of IGA nephropathy. Cortisone seems to be the starting point although it never treats IGA. . Nobody currently has the answer when it comes to treatment of IGA and actually all doctors are checkmated by this disease!
My son was diagnosed late 2023 and what's frustrating is that in 2018 he saw two urologists due to discomfort urinating and protein and microscopic blood was found in his urine, yet neither thought of referring him to nephrologist. One of the urologists' suggested to check his prostate. I just don't understand why these urologists didn't even consider IgA if there were signs in the urine. By the way, his urine never looked like cola or tea, but it was foamy. Before being diagnosed, he went to the ER due to extremely high blood pressure for a 25 year old. A biopsy was done and it was discovered. Apparently, this misdiagnosis is not unheard of. I have talked to others that had signs but their doctors failed them. It appears that some doctors are not aware this disease exists.
I experienced this personally. I had microscopic blood in my urine from what I can remember as early as the age of 16. The Dr. Said I had high blood pressure (no exposure to nicotine/caffeine/alcohol) and wanted to do a catheter for what reason I can’t remember. Years later after an emergency biopsy (long story) I found out I had IGA nephthropathy at age 27. It’s been tough as my kidneys are already in a chronic stage. Last week my GFR was 35. At 20 I am eligible for the transplant list. Can’t lie, I’m a little scared. I feel for both you and your son on this journey.
@@claywaterfill594 my son's GFR is at 32 right now and the Nephrologist just recently prescribed Farxiga (last week). Let's see how that goes. Hang in there. We put our trust in doctors and they let us down.
Thank you, Dr. hashmi.Live in a 🇬🇧 uk ,but these all discussions my nephrologist all the time reject because they said only we know everything.i know you spreading the good information, which is really helpful for us❤
Thank you for sharing this. I was told that the foamy urine could even appear for someone with microalbuminuria and doesn't necessarily need to be heavy leakage of protein?
I have foamy urine and microalbuminuria. Protein in my urine went down to ++. Before it was ++++ so alarming. I’m taking Dapagliflozin 10mgs and ketoanalogues 9tabs daily for creatinine, and it’s good. Crea now 78….. started from 151. After 5months
I have igaN and gfr is 12ml per min but when i had steroids it did increase up to 30 then my doc stopped it and said you will wait for the dialysis or transplantation :( no hope for my kidney ?
I'm suffering from IgA nephropathy and I'm 7 week pregnant can you please send me the name of medicine which I should take for nephropathy in my pregnancy
The answer is 1 in 5 patients will need dialysis within 10 years of diagnosis. I was one of those unlucky ones, yippee! Was diagnosed in 2010 at age 24, went on dialysis in 2016-2018 until my transplant, and now my eGFR is back down to around 60 so I'm researching new treatments that can keep that number from dropping. I don't want this disease to destroy my transplant!
@@kdbrown777have you ever heard about Dr Brooke Goldner? She her self reversed her stage 4 kidney failure due to Lupus Nephropathy and helping thousands of people online. Please consider taking her paid appointment. She reverses all autoimmune disease including autoimmune Nephropathy. She helps people with her programs called Hyper Nurishment and Rapid Recovery. She is an angel for many.
@kdbrown777 what line of treatment was done in 2010 with yourselves? And what was baseline gfr at diagnosis also protien per day. Some number would help as I am in your boat in 2024 I wish you all the best. Hope your gfr stabilizes
I have IgAN and was able to turn things around by eating better and cutting out gluten (along with medicine from my Neph). Great video!
That's awesome, great job! And thank you for sharing your success :)
We’re same. IGA NEPHROPATHY… what do you eat? Pls. share.
Please provide your contact so I can share my condition
What was the medicine given, kindly add here
@@soffiainnasiar Farxiga
My best friend has just been diagnosed with IgAN, this video has been so informative for me, this has helped me understand what her condition is, what caused it, what treatments are available and any lifestyle changes that can help. I feel better able to support her now, thank you so much ❤
We are so happy that our video helped you better understand your friend's diagnosis and wish them the very best!
I was diagnosed with IGA nephropathy about 8 years ago. I was 29. I was put on prednisone for 6 months tapering after 3. Horrible side effects. I am currently on Lisinopril, Losartan, and just recently Jardiance. My current nephrologist was out for almost 2 years, and his fill in put me on Faxiga. Now my current nephrologist was hesitant to continue on SGLT2 even though it had brought my protein loss down within basically remission. Why would one nephrologist prescribe it and not the other? My GFR is currently 57. Which is up from 46 3 years ago.
My sister is diagnosed with Iga Nephropathy.I am feeling very depressed😢😢😢...
Protein in urine is the main indicator of IGA nephropathy. Cortisone seems to be the starting point although it never treats IGA. . Nobody currently has the answer when it comes to treatment of IGA and actually all doctors are checkmated by this disease!
Any madician. Fully control protin in urin
@@ramthapa2937 yes, no medication can fully control proteinuria
My son was diagnosed late 2023 and what's frustrating is that in 2018 he saw two urologists due to discomfort urinating and protein and microscopic blood was found in his urine, yet neither thought of referring him to nephrologist. One of the urologists' suggested to check his prostate. I just don't understand why these urologists didn't even consider IgA if there were signs in the urine. By the way, his urine never looked like cola or tea, but it was foamy. Before being diagnosed, he went to the ER due to extremely high blood pressure for a 25 year old. A biopsy was done and it was discovered. Apparently, this misdiagnosis is not unheard of. I have talked to others that had signs but their doctors failed them. It appears that some doctors are not aware this disease exists.
What medication is he taking
@@hammadbhatti263 losartan potassium, nifedipine, metoprolol tartrate, prednisone (the first few I believe are the generic versions)
I experienced this personally. I had microscopic blood in my urine from what I can remember as early as the age of 16. The Dr. Said I had high blood pressure (no exposure to nicotine/caffeine/alcohol) and wanted to do a catheter for what reason I can’t remember. Years later after an emergency biopsy (long story) I found out I had IGA nephthropathy at age 27. It’s been tough as my kidneys are already in a chronic stage. Last week my GFR was 35. At 20 I am eligible for the transplant list. Can’t lie, I’m a little scared. I feel for both you and your son on this journey.
@@claywaterfill594 my son's GFR is at 32 right now and the Nephrologist just recently prescribed Farxiga (last week). Let's see how that goes. Hang in there. We put our trust in doctors and they let us down.
Thank you, Dr. hashmi.Live in a 🇬🇧 uk ,but these all discussions my nephrologist all the time reject because they said only we know everything.i know you spreading the good information, which is really helpful for us❤
Great video, anyone here part of the Atacicept trails? heard very good things about the trail from IGA Neph foundation seminar.
I just sent them inquiry so hopefully I'll be a potential candidate.
How much protein intake per day for IgAN?
As someone with iGA that is also into weight lifting / resistance training, what is your guidelines in:
1. Use of Creatine ?
2. BCAA supplements ?
Also what about supplements like Tribulus or Ashwagandha that are testosterone boosters ? Is that good or not ?
I have the same question
What diet is the best to follow
Thank you doctor an michelle
Great info.
Thank you so much for this info!
Thank you for sharing this. I was told that the foamy urine could even appear for someone with microalbuminuria and doesn't necessarily need to be heavy leakage of protein?
Definitely!
@@PlantBasedKidneyHealth Thanks for your quick response and all the good work that you do 🙏
I have foamy urine and microalbuminuria. Protein in my urine went down to ++.
Before it was ++++ so alarming. I’m taking Dapagliflozin 10mgs and ketoanalogues 9tabs daily for creatinine, and it’s good. Crea now 78….. started from 151. After 5months
Dr. Sean, what is your perspective on using sibeprenlimab as a potential treatment option for IgA nephropathy?
Thanks for the video and simple explanation...
Glad it was helpful!
I tried emailing you several days ago but got no reply. Is anyone checking your email?
Good doctr
I have igaN and gfr is 12ml per min but when i had steroids it did increase up to 30 then my doc stopped it and said you will wait for the dialysis or transplantation :( no hope for my kidney ?
Precious information, thank you very much.
Powerful video
Thank you! Glad you enjoyed it.
What about reishi mushroom? Is it really helpful ?
I don't understand can you explain me in franch 😊😊
Thank you
Thank you!!!
Our pleasure!
I'm suffering from IgA nephropathy and I'm 7 week pregnant can you please send me the name of medicine which I should take for nephropathy in my pregnancy
Hi...
Wer you are from??
Can you talk about MPGN next time please?
We can definitely add that to our list for future episodes!
@@PlantBasedKidneyHealth thank you so much 🙏
Iga nephrology dieses mean kidney fail? please reply am waiting ..
No,, its not sure,
The answer is 1 in 5 patients will need dialysis within 10 years of diagnosis. I was one of those unlucky ones, yippee! Was diagnosed in 2010 at age 24, went on dialysis in 2016-2018 until my transplant, and now my eGFR is back down to around 60 so I'm researching new treatments that can keep that number from dropping. I don't want this disease to destroy my transplant!
@@kdbrown777have you ever heard about Dr Brooke Goldner? She her self reversed her stage 4 kidney failure due to Lupus Nephropathy and helping thousands of people online. Please consider taking her paid appointment. She reverses all autoimmune disease including autoimmune Nephropathy. She helps people with her programs called Hyper Nurishment and Rapid Recovery. She is an angel for many.
@kdbrown777 what line of treatment was done in 2010 with yourselves? And what was baseline gfr at diagnosis also protien per day. Some number would help as I am in your boat in 2024
I wish you all the best. Hope your gfr stabilizes
Why did I get IGA after getting the covid vaccine?
I got it too right after. Not too thrilled with the government
😀😀😀