Lily's epilepsy story

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  • čas přidán 8. 09. 2024
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Komentáře • 173

  • @WolfKing-dv6xd
    @WolfKing-dv6xd Před 2 lety +57

    We used to have a girl at school who had seizures. She would just randomly scream "freezing cold" over and over again for about a minute. It really scared me. I always presumed it was a rare form of epilepsy, because at the beginning of 5th and 6th grade year, when she was in my class, the teacher would read to us a comic book about epilepsy and how it works, featuring superheroes, circa the start of the year. In 7th grade, her seizures were getting worse. However, the summer before 8th grade, she had brain surgery and she didn't have seizures anymore. Around the end of the year, we actually danced together at an 8th grade field trip to Beggars Pizza for a dance party a few weeks prior to graduation. She gave me her phone number and I gave her mine. One of the first things she texted me was if I had a disorder (but not in a mean way). I told her that I suffer from ADD, and she told me she has, or had, tuberous sclerosis complex, which formed a brain tumor. That was what caused her seizures, not epilepsy. All along, she had a brain tumor, not epilepsy. Over the summer before 8th grade, she had it removed. We haven't talked in a while. Maybe I'll consider getting back in touch with her.

  • @hayleyrosewilkinson6537
    @hayleyrosewilkinson6537 Před 2 lety +21

    This story resonates with me a lot. I suffered a seizure in my childhood but I don't remember much about it, and 6 days before my 15th birthday I suffered another seizure in a Maths exam. The last thing I remember was sitting down at my desk only to end up in the medical room as I was confused and disorientated because I didn't know what happened to me. I suffered three more seizures, one at school during Art class and two more at home. In the new year I suffered another seizure at school and on my brother's birthday on May 5th I had one at home, it happened upstairs, but I don't remember, although I do remember that I was planning to go downstairs when it happened. The last seizure I had was in March 2017 ten days after my 20th birthday, I was attending extra English classes on a Thursday morning and I was sat at the computer next to the door, I think about 15-20 minutes later I suffered a seizure.
    Thankfully I haven't suffered anymore seizures, but just like Lily I suffer from absence seizures and I take Keppra regularly.

  • @TriggerTheFoxYT
    @TriggerTheFoxYT Před 2 lety +19

    There is another way, I read an article of how dogs can sense seizures so I wonder if Lily will get a service dog to help her

    • @spartandonkey840
      @spartandonkey840 Před 2 lety +11

      She doesn't need a service dog, the narrator said that she was able to lead a normal life, so she is fine.

    • @TattooedAndHot
      @TattooedAndHot Před 2 lety +3

      @@spartandonkey840 she should get one just in case

    • @Llanellimagnetfishers
      @Llanellimagnetfishers Před 8 měsíci +2

      To be honest I agree with triggerthefox3323 on this one they can warn the parents of the kids they look after

  • @devanireneeortman
    @devanireneeortman Před 2 lety +16

    My friend Lily is 24, she has Prader-Willi Syndrome but she doesn’t have epilepsy. She is one of my high school friends since I was 16 years old, she likes to hang out with other people and she would be sad when she feels left out

  • @nuclearfist420
    @nuclearfist420 Před 2 měsíci +2

    This is such a great informative story. I like it.

  • @Sonicfan-cc1te
    @Sonicfan-cc1te Před 2 lety +12

    I really like how you make some goanimate videos about serious topics.

  • @ramennoodles1843
    @ramennoodles1843 Před rokem +3

    If someone has seizures typically they are prescribed medication like Keppra (Leviteracetam). If the prescribed dose cannot control the seizures the dose is usually increased. This shows that the medication Lily was prescribed is not effective and the dose should be increased since she still has 2 to 3 seizures a day even while taking the medication.
    However anti-seizure medications have side effects.
    Also, people feel tired after seizures because of the physical effort required to violently convulse due to loss of body control.

  • @Getcha-Pull
    @Getcha-Pull Před 2 lety +4

    One of the guys at my school who I've been friends with since third grade also goes through a series of seizures.....I pray he and other seizure sufferers will live a good life and recover

  • @cochiefemeralds3616
    @cochiefemeralds3616 Před 2 lety +9

    I used to have epilepsy but they cause absence aka petit mal seizures.

  • @lilliansikes3946
    @lilliansikes3946 Před 11 měsíci +1

    I also have epilepsy and have medication to control it, but I will have seizures every once in a while. The funny thing is, I can actually know when a seizure is coming. I always get the metal taste and smell in the nose and mouth. That is the first sign when I know it is coming

  • @TributeMack2015AngrierMack
    @TributeMack2015AngrierMack Před 11 měsíci +1

    I can relate to this one because I used to have seizures when I was a small child but it’s wasn’t an epileptic seizure it was a non epileptic seizure sometimes seizures isn’t always epileptic. Epileptic seizures are usually caused by an electrical into the brain and non epilepsy occurs when the brain isn’t electrical to the brain.

  • @rfart419
    @rfart419 Před rokem +3

    0:54 Poor Lily.

  • @harmless_hades33
    @harmless_hades33 Před 2 lety +9

    I've been enjoying you more this past week

  • @chevygirly9569
    @chevygirly9569 Před rokem +3

    I have eplisey I had like 3 episodes from 6 months to 3 yrs old. I'm seizure free but I can have another one. But anyways I am a healthy 27 yr old.

  • @WrapperOfflineComedianDude

    I also have epileptic seizures, when I was Lily's age.

  • @DemonSister6
    @DemonSister6 Před 2 lety +2

    I have Grand mal Seizures im on anti seizure medicine to keep the brain activity under control the reason why I still have them is because of a brain tumor that was removed back in high school the neurologist said i can outgrow the seizures there is also another risk of being diagnosed with brain cancer if another tumor comes back and becomes cancerous that's why i have MRI scans every 2 years is to make sure brain cancer is not present in my brain

  • @timothythompson8755
    @timothythompson8755 Před rokem +1

    I have a disability too learning autism and I got stressed alot in 9th grade it's feels like I have seizures when my body feels like electric shock my arms and legs but I don't have seizures I did almost pass out 5 times 2 of them I didn't have blurry vision and 3 of them I have blurry vision when I was overheating and feel like going to throw up but didn't I quit having it 1 year ago but I can start having it again I was okay last one I walked backwards and almost fall I sit down the chair to prevent me hit my head I think I passed out one time or more I don't remember and some of my friends have seizures it's scary

  • @chocolatebar1592
    @chocolatebar1592 Před měsícem

    3:37 Aw,SUCH caring and understanding friends she has!
    Is that Davids sister Maddie,and Taylor Jenkins?

  • @camronlawson6341
    @camronlawson6341 Před 2 lety +3

    I got a friend named Keiron he's 16 and he has epilepsy but not me

  • @Prettywoah123
    @Prettywoah123 Před rokem +1

    This is the exact same thing that happened to me I have epilepsy too and I had my first seizure outside of my elementary school when we were talking about stuff outside in the morning and a teacher called 911 and I rode in a ambulance I was in the hospital for almost 3 days to research why I had my first seizure. My first seizure was October 27th, 2011 and I was diagnosed with Epilepsy in December 2011. I didn't pass my driver's test and I can't drive because I still have mini seizures so I could get into a car accident

  • @roisinmaryoflannagain2927

    I have epilepsy used to have seizures when I was in school

  • @PrincessArielfan1989
    @PrincessArielfan1989 Před rokem +3

    My best friend Brianna Marble, has had seizures before too.... And... I wish i could have done something to help her more... Ik this comment is going to have replies saying "It's not your fault" and ik it's not, but sometimes I feel like it was...

  • @Sonicfan-cc1te
    @Sonicfan-cc1te Před 10 měsíci +1

    I have a couple of classmates in my program that have had seizures and take medication for it.

  • @journeysofjames1116
    @journeysofjames1116 Před 2 lety +10

    This is quite funny because my cousin is named Lily and she also has epilepsy, and can have seizures from time to time

  • @Abby_The_Muppet
    @Abby_The_Muppet Před 11 měsíci

    This happens to me a few times, it just makes me cry everytime of what i had to go through 😢

  • @kerisaltchannel3817
    @kerisaltchannel3817 Před 2 lety +8

    My brother has this 🥺😢💖

  • @chocolatebar1592
    @chocolatebar1592 Před 2 lety +3

    What other conditions can there be,which can prevent you from learning to drive,just out of curiosity?

  • @robertdeffenbaugh9004
    @robertdeffenbaugh9004 Před 2 lety +2

    I had my Seizure Tumor surgically removed when I was a Kid.

  • @tyroneedwards2056
    @tyroneedwards2056 Před 2 lety +3

    You know something you make some very original content talking about real life stuff I like that.

  • @gamingwithrobloxvideosonro2263

    She is not the only one I have seizures to o and i kept getting them when I look at flashing lights then I can’t stop them even though i am prescribed seizure medicine

  • @Heyosixteenstudios9472
    @Heyosixteenstudios9472 Před 2 lety +3

    I'm glad she's okay

  • @fearpartybus7659
    @fearpartybus7659 Před 2 lety +3

    I have autism and anxiety 🐤🐤🐤🐤🐤🐤

  • @RealMcSpoon
    @RealMcSpoon Před 2 lety +2

    Wow! Almost 100K subscribers. This might take a few months, but I can't wait for 60 subscribers!

  • @ryanmccann2954
    @ryanmccann2954 Před 2 lety +3

    I have small and big seizures and I have epilepsy too.

  • @Lightnang_
    @Lightnang_ Před 2 lety +8

    Awww Lily

    • @Lightnang_
      @Lightnang_ Před 2 lety +4

      My dog has seizures sometimes :(

    • @Lightnang_
      @Lightnang_ Před 2 lety +4

      My dog has seizures sometimes :(

    • @Lightnang_
      @Lightnang_ Před 2 lety +4

      My dog has seizures sometimes :(

    • @Lightnang_
      @Lightnang_ Před 2 lety +4

      Sorry for the spam, there’s this weird glitch that happens to me

    • @EWBRboy2006
      @EWBRboy2006 Před 2 lety +1

      @@Lightnang_ It's okay.

  • @samiyasmith150
    @samiyasmith150 Před rokem +2

    I have had seizures and almost died

  • @rayannaowens5425
    @rayannaowens5425 Před rokem +3

    I have seizure once not anymore

  • @maxalberts2003
    @maxalberts2003 Před rokem

    To TheREALRandomLozzie!: Thank you for your talent but most of all thank you for your beautiful, compassionate heart.

  • @craigwaters1508
    @craigwaters1508 Před 2 lety +8

    Poor Lily

  • @chocolatebar1592
    @chocolatebar1592 Před 2 lety +2

    I wonder what caused Lily's epilepsy in the first place?

  • @RollerSCoaster17
    @RollerSCoaster17 Před 2 lety +6

    Poor Lily!!

  • @emmaedelmann3027
    @emmaedelmann3027 Před 2 lety +4

    i used to have epilepsy but i dont have them anymore

  • @JJVPlayz090
    @JJVPlayz090 Před 2 lety +5

    Why did the guy said call Nine Hundred Eleven? Its 911 lol

  • @Sweetsam013
    @Sweetsam013 Před 2 lety +2

    I have epilepsy too

  • @clairemachara
    @clairemachara Před 2 lety +1

    Can you do a part 2 of Lilly’s Story

  • @ChristianLaborte2002
    @ChristianLaborte2002 Před 2 lety +2

    Like me I have an epilepsy since 2018

  • @gegioi1014
    @gegioi1014 Před 2 lety +2

    I had a seizure one time around Christmas I was getting ready for school

  • @gustavostrompytoonssecondc6405

    I don't Wanna Have Epilepsy

  • @Prylenmas_playzroblox
    @Prylenmas_playzroblox Před měsícem +1

    I also had epilepsy In the past but. I. Don't have it anymore

  • @tobibillick9340
    @tobibillick9340 Před 2 lety +8

    Ik how if feels I have epilepsy to

  • @darwinhombrecaramaya9755
    @darwinhombrecaramaya9755 Před 2 lety +2

    Nice

  • @MLGSouthPark
    @MLGSouthPark Před 2 lety +2

    How it all begin

  • @courtneyburney4168
    @courtneyburney4168 Před 2 lety +1

    This is just like i did I fell off my bed and ended up having my first seizure

  • @sallyjohnston7328
    @sallyjohnston7328 Před 2 lety +2

    Lily has amnesia

  • @chloeevans2569
    @chloeevans2569 Před 2 lety +3

    Nice!

  • @williammoss212
    @williammoss212 Před 8 měsíci +1

    Seizures can have nausea and vomiting

  • @chocolatebar1592
    @chocolatebar1592 Před rokem +1

    0:51 She first falls down

  • @camronlawson6341
    @camronlawson6341 Před 2 lety +3

    I feel bad for lily but I hope she's ok 😢😢❤️

  • @Goaway0024
    @Goaway0024 Před rokem +2

    Is Lily actually 8 or 9?

  • @Llanellimagnetfishers
    @Llanellimagnetfishers Před 8 měsíci +1

    I have epilepsy it’s not nice having a seizure at all

  • @playtimeallthetimecbeebies2272

    Has anyone noticed that Emma is recycled from Lily?

  • @mashedburgerpatties903
    @mashedburgerpatties903 Před rokem +2

    💔

  • @Gavin53zane
    @Gavin53zane Před 2 lety +3

    How does epilepsy work?

    • @TributeMack2015AngrierMack
      @TributeMack2015AngrierMack Před rokem +3

      Well I think that it’s hard to explain but Epilepsy is electrical to the brain but it got the the point where the brain doesn’t functioning properly so that’s how epilepsy works.

    • @trainwaysrails76
      @trainwaysrails76 Před rokem

      @@TributeMack2015AngrierMack Oh yeah, that is also called Brain Fog as well

  • @mariechitwood8521
    @mariechitwood8521 Před 2 lety +2

    oooooooooo

  • @timothythompson8755
    @timothythompson8755 Před 2 lety +1

    I hate Serizures I wish serizures doesn't exist real world and GoAnimate and other Animate do Lily have serizure medicine.

  • @jakethecarsandreactorvideo9409

    I have epilepsy

  • @christopherholcomb1463
    @christopherholcomb1463 Před 6 měsíci +1

    I have a Friend who has Seizures I do to to be Honest

  • @rfart419
    @rfart419 Před rokem +3

    This is scary and horrible.

  • @craigburggraf6183
    @craigburggraf6183 Před 2 lety +3

    😍

  • @keehaplengipgktb9211
    @keehaplengipgktb9211 Před 2 lety +4

    Is lily’s tummy hurts

    • @TheRealRandomLozzie
      @TheRealRandomLozzie  Před 2 lety +7

      No, she has epilepsy, also, will you stop asking if David has left home, it's getting annoying

    • @keehaplengipgktb9211
      @keehaplengipgktb9211 Před 2 lety +1

      @@TheRealRandomLozzie the reason why I’m asking is because I saw David push his own sister down the stairs and i heard he said that he want to get adopted by his new family that’s why

    • @TheRealRandomLozzie
      @TheRealRandomLozzie  Před 2 lety +3

      @@keehaplengipgktb9211 he was being sarcastic when he said that, also I have no plans for making a video of him moving out so please stop asking me

    • @keehaplengipgktb9211
      @keehaplengipgktb9211 Před 2 lety +2

      @@TheRealRandomLozzie ok okay I won’t ask you again

  • @nadinenasti-xv2db
    @nadinenasti-xv2db Před rokem

    How come at the start of the video, it said she was 9 but the mum said she was 8! Im so confused

  • @williammoss212
    @williammoss212 Před 8 měsíci

    Please check her pulse

  • @unknownpikachu3708
    @unknownpikachu3708 Před 2 lety +1

    I have seriuzes also and they suck

  • @kaylasimmons6638
    @kaylasimmons6638 Před 2 lety +1

    Love you youtube

  • @rositamascarenhas6932
    @rositamascarenhas6932 Před 2 lety

    Hi

  • @toren8791
    @toren8791 Před 2 lety +3

    F

  • @opalxhorizon
    @opalxhorizon Před 2 lety +2

    Miért Teszel Ki Karácsony előtt Ilyen Sz*rságokat?

  • @rickybobby302
    @rickybobby302 Před 11 měsíci

    Nine hundred eleven. Dumb

  • @brookekersey8966
    @brookekersey8966 Před 2 lety +8

    Poor lily