So there is hope, and hope is all we need. Things take time so I hope remy happens in the future not just for me but mostly for my son. So in his lifetime I have hope. Thanks heaps.
Brett what would be the best organisation to fund raise for to assist research and work like this? I am keen to help fund a “hold up the fragile cells” work.
Brett what would be the best organisation to fund raise for to assist research and work like this? I am keen to help fund a “hold up the fragile cells” work.
Interesting conversation but I'm not sure remyelination will help axons that have already degenerated/died. Probably a good strategy for RRMS but likely of limited effect for chronic progressive MS.
Yes, it may be that different strategies are required for this, which Travis and Alban touched upon. Another challenge, but it's good to see that ideas and progress are being made - even if they aren't necessarily always as quick as we'd hope for!
they also said that they extend the myelin repair, which is the most important thing for MS patients, over the long term. Still waiting when people with ms don't have a day to wait. BORING!
Brett what would be the best organisation to fund raise for to assist research and work like this? I am keen to help fund a “hold up the fragile cells” work.
Brett what would be the best organisation to fund raise for to assist research and work like this? I am keen to help fund a “hold up the fragile cells” work.
That was the most interesting to date! Thank you
Thanks for the feedback Samantha - we're glad you enjoyed it!
So there is hope, and hope is all we need. Things take time so I hope remy happens in the future not just for me but mostly for my son. So in his lifetime I have hope. Thanks heaps.
Brett what would be the best organisation to fund raise for to assist research and work like this? I am keen to help fund a “hold up the fragile cells” work.
Brett what would be the best organisation to fund raise for to assist research and work like this? I am keen to help fund a “hold up the fragile cells” work.
Interesting conversation but I'm not sure remyelination will help axons that have already degenerated/died. Probably a good strategy for RRMS but likely of limited effect for chronic progressive MS.
Yes, it may be that different strategies are required for this, which Travis and Alban touched upon. Another challenge, but it's good to see that ideas and progress are being made - even if they aren't necessarily always as quick as we'd hope for!
what do you think of FDA clemastine approved for remylination?
they also said that they extend the myelin repair, which is the most important thing for MS patients, over the long term. Still waiting when people with ms don't have a day to wait. BORING!
Brett what would be the best organisation to fund raise for to assist research and work like this? I am keen to help fund a “hold up the fragile cells” work.
Brett what would be the best organisation to fund raise for to assist research and work like this? I am keen to help fund a “hold up the fragile cells” work.