What's wrong with ME? [CC]
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- čas přidán 20. 06. 2019
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"If you're well enough to go to work, why can't you come to my party?"
"I'm panicking about how I'm going to look after my children that I don't yet have, while still living with an illness that I thought would get better". That is just a summary of my life at the moment.
I watched with tears in my eyes. I was remembering back 25 year when I had a newborn baby, and a husband with ME/Chronic Fatigue.
When I was diagnosed, my doctor told me that I needed to start swimming three times a week. After one hour of swimming, I was bedbound for days and couldn't face going back. When I saw him again he said that if I wasn't going to even try to get better with exercise, then I clearly wasn't interested in getting better. I wonder how he feels now that the evidence shows that exercise is one of the worst things you can do. I gave up on doctors for ME, (another told me I was just going to feel tired for a while and maybe take a nap) and I just figured out how to do my life on my own. The medical community has been helpful with my other diagnosis, but for ME, they seem to have nothing to offer. Hugs to all those suffering.
I love your voice and accent. It's like listening to actors in an old movie
Ahh your hair is beyond perfection in this video!
....I want to cry and call my doctor and say "look can we consider this as a possible explanation instead of retesting my blood again and again and again for the same things that are never going to show up"
Sensitive to sunlight, sleeping only during daylight hours and breathtakingly beautiful? M.E or vampire?
Because I'll pass out in the potato salad, Janet! 😂
Every health care professional should be forced to watch this.
What's wrong with myalgic encephalomyelitis? My pronunciation of it. Literally every time.
my mum has M.E and our family ALWAYS gives the “you’re not ill enough” line 🙄 this video was great for me to know more about my mums illness, as i have to help her with it sometimes, so thank you very much :)))
When I was diagnosed with M.E. I was fourteen and literally just told this is what you have, there is no cure, get on with it. It's taken seventeen years and countless hours on the internet finding other who have had this and finding out what the frick my body is doing. So many of my symptoms I didn't know were part of this thing.
I have 'moderate' ME and I moved three weeks ago, but I spent the first week lying down in a sea of boxes. It's only now that i'm feeling excited (finally on the ground floor - no exhausting stairs!!) and settled, but it was worth it! Hope yours goes well! 😍😍
M.E. is just called CFS where I am so people constantly say "oh you're just TIRED? I'M TIRED TOO" like no dude I'm freaking exhausted from the most basic things, then I can't sleep, and when I do sleep I may as well not have
I have fibromyalgia and complex ptsd. My old Dr knew I had ptsd. But continued to insinuate all my medical issues were ' hyprocondriacte'. It took him 15 years to admit that my self diagnosis of Fibromyalgia was accurate. Thanks. -_-
"Because I'll pass out in the potato salad Janet" This is honestly so relatable! I can't tell you how many times in the last few years I've had to cancel with friends due to my illnesses or I look ok that day but I have so little that I can't leave the house, not even brush my teeth because I have to force any & ALL energy just to make it work each day
disability puns for the win!
Thank you for this video ❤ I have M.E. and it really did make me feel less alone.
It’s so much more than just “being tired” as people say. it’s your entire BODY being exhausted, but you can’t sleep. you lay in bed and your brain just STOPS working. It feels like you’re in a fog and somehow you’re genuinely unable to speak because it’s too hard to form words, or even think because you’re so confused about everything around you. because your brain has just quite literally shut down. and so you just la there and cry cuz.. well else is there to do. and imagine all of this happens JUST from spending your regular old day working at your office job. the smallest tasks are the hardest. THAT is fatigue.