Q&A: What is Ewing sarcoma? | Texas Children's Cancer and Hematology Centers

Sdílet
Vložit
  • čas přidán 20. 05. 2024
  • The Faris D. Virani Ewing Sarcoma Center, part of the Solid Tumor Programs at Texas Children’s Cancer Center, is dedicated to research, advancement and treatment of Ewing sarcoma, the second most common bone tumor in children. The center was officially established by Dr. Asha and Mr. Farid Virani in honor of their son Faris’ battle with Ewing sarcoma.
    Topics in this video:
    00:21 - What is Ewing sarcoma?
    00:45 - What are the symptoms of Ewing sarcoma?
    01:06 - How is Ewing sarcoma diagnosed?
    01:30 - What is the typical treatment plan for Ewing sarcoma?
    02:05 - What is the incidence rate of Ewing sarcoma?
    02:24 - What Ewing sarcoma research is being conducted at Texas Children's Hospital?
    03:56 - How is the Faris D. Virani Ewing Sarcoma Center unique?
    05:08 - How can parents contact the Faris D. Virani Ewing Sarcoma Center?
    To learn more about the Faris D. Virani Ewing Sarcoma Center at Texas Children's Hospital, please visit txch.org/cancer-center/solid-t....

Komentáře • 91

  • @israelmiguel8768
    @israelmiguel8768 Před 3 lety +28

    I was diagnosed in 2019 when I was 29 years old, thank God now I'm healed! Keep the faith, because God is with us all time. We need God. Keep the treatment from your doctor and just have faith. God bless you all.

    • @Laadrianaaa1990
      @Laadrianaaa1990 Před 3 lety +2

      💯💯🙏🙏

    • @notsayingc2192
      @notsayingc2192 Před 3 lety +3

      My daughter was diagnosed last week at 30. It scares the hell out of me.

    • @israelmiguel8768
      @israelmiguel8768 Před 3 lety +2

      @@notsayingc2192 just have faith in God, the lord definitely has all we need.
      God bless your daughter. Peace!!

    • @notsayingc2192
      @notsayingc2192 Před 3 lety +1

      @@israelmiguel8768 thank you! Be well and god bless

    • @israelmiguel8768
      @israelmiguel8768 Před 3 lety

      @@notsayingc2192 amen!

  • @young9869
    @young9869 Před 4 lety +26

    I was diagnosed back in 2013. Stage 4 had spread to my lungs. Anyone out there who may be suffering, just keep fighting on, no matter the odds.

    • @pyrefly7575
      @pyrefly7575 Před 4 lety +1

      Same happened to my bro , sadly enough he didn't make it , happy you made it tho !

    • @young9869
      @young9869 Před 4 lety

      @@pyrefly7575 Sorry to hear that, I appreciate it though

    • @pyrefly7575
      @pyrefly7575 Před 4 lety +2

      @@young9869 don't worry I've gotten over it , :) I've found peace at last

    • @justaregularguy1234
      @justaregularguy1234 Před 3 lety +1

      I was diagnosed this year, already amputated my right leg and it also has metastasized to my lungs as well, still fighting it with my chemo. But I honestly don't know will I survive or not

    • @young9869
      @young9869 Před 3 lety

      @@justaregularguy1234 How old are you?

  • @eva_pruiett
    @eva_pruiett Před 2 lety +5

    A girl at my school died of Ewing sarcoma and I want to learn as much as possible about cancer to try to find a cure/ better treatment options in the future.

  • @pyrefly7575
    @pyrefly7575 Před 4 lety +7

    This shits rough , if anyone one of you is going through this I hope you make it out , back in the days this was death sentence

  • @kaylynrivera5245
    @kaylynrivera5245 Před 5 lety +12

    My brother just got recently diagnosed with ewings. He got his port last week and he starts chemo tomorrow. I'm honestly very shock and never thought this would happen... I hope this process is easy..

  • @aidanwaddell9348
    @aidanwaddell9348 Před 7 lety +23

    I had this cancer and i was diagnosed when i was 6 now im 13

    • @lordofgibby4160
      @lordofgibby4160 Před 7 lety +3

      Aidan Waddell you are strong

    • @izzysvlogchannel2109
      @izzysvlogchannel2109 Před 6 lety +1

      Aidan Waddell strong

    • @Marbaby92
      @Marbaby92 Před 5 lety +1

      Aidan Waddell were you vaccinated before diagnosed with it

    • @pyrefly7575
      @pyrefly7575 Před 4 lety

      My brother died of this , thank your doctors and your caring parents . And good luck with your friendships since you're now so much more mature mentally than anyone else bcus you had to face death at age of 6

  • @itsmeminhaz3784
    @itsmeminhaz3784 Před 7 měsíci

    My uncle suffered from Ewing sarcoma for 2.5 year now he is resting in peace. May Allah grant him jannah

  • @Sarinajan1990
    @Sarinajan1990 Před 6 lety +12

    I was diagnosed with Ewing sarcoma when i was 13. Now i'm 27. Unfortunatley the Tumor was on my spinal cord and now i'm paralyzed.

    • @weirdnessmasterd2539
      @weirdnessmasterd2539 Před 5 lety +2

      Sarinajan1990 I’m really sorry. My cousin just got diagnosed with this and it’s wrapped around her spinal cord....

    • @fernandapalv7392
      @fernandapalv7392 Před 5 lety +3

      Im so sorry..... 😪😭😥

    • @yogiraj3995
      @yogiraj3995 Před 5 lety +1

      I am 39 .
      30/04/2019 digonis Ewing sarkoma

    • @annahchimwara4719
      @annahchimwara4719 Před 4 lety +2

      Sending love to all of you guys❤🌸

    • @mycah1993
      @mycah1993 Před 3 lety +1

      Sending prayers

  • @561Hero
    @561Hero Před 2 lety

    My sister was diagnosed at 26, 4 months before her 27th birthday. 8 months of treatment later she now has just days left to live.

  • @yylaminator
    @yylaminator Před 4 lety +6

    I had this on my chestwall, it was fully cut out but i still have to undergo chemo for safe reasons. Have to do every 3 weeks 6 cycles. Next week the second starts, for now im doing preety good with the chemo.

    • @skyewilliams9343
      @skyewilliams9343 Před 4 lety

      Massimiliano Rossi you only have 6 cycles?? I have an overall 14 cycles.. I'm currently on cycle 8 :(

    • @yylaminator
      @yylaminator Před 4 lety

      @@skyewilliams9343 where was or is your tumor and do you have metastasis?

    • @UmarHassan.
      @UmarHassan. Před rokem

      I survived it in 2020 there was 12 cycles I goes for follow up and it relapsed in 2022 now it's my 4 cycle total is 10 I am 16 and it makes me stronger mentally

  • @GravyMilkJelly
    @GravyMilkJelly Před 8 lety +14

    kek, I have this cancer. diagnosed at early stage.

  • @viharkhandhar3192
    @viharkhandhar3192 Před 4 lety +4

    a kid in my grade died 2 days ago bcz of this cancer, he was only 14 :(

  • @sde8383
    @sde8383 Před 4 měsíci

    Had it at 10 years old. I survived with chemo and radio. Not a death sentence. But not easy either.

  • @bucktooth3684
    @bucktooth3684 Před 3 lety +6

    I just got this diagnosed to me yesterday and this disease is not nice

    • @DrespoTV
      @DrespoTV Před 3 lety +1

      Hope you are doing well friend!

    • @bucktooth3684
      @bucktooth3684 Před 3 lety +1

      @@DrespoTV thank you I have 2 months till my operation just doing doing proton beam therapy right now for 6 weeks

    • @DrespoTV
      @DrespoTV Před 3 lety +1

      @@bucktooth3684 Keep strong buddy, god bless you ❤️

    • @bucktooth3684
      @bucktooth3684 Před 3 lety +1

      @@DrespoTV thanks man 🙏

    • @bucktooth3684
      @bucktooth3684 Před 2 lety +5

      @@DrespoTV hi man just wanted to say I finished my operation a month ago they took at my collar bone and I’m cancer free now!!!

  • @Ace_xsc
    @Ace_xsc Před 3 lety +6

    my cousin died from this yesterday she was 17 yrs old almost 18 in one month😭😭😭#gontosoon

  • @JackKingOS
    @JackKingOS Před 4 lety +6

    my buddy tayden died 2 days ago from this😭 #taydenstrong

    • @pyrefly7575
      @pyrefly7575 Před 4 lety +2

      Tayden had really bad luck but he surely died happy knowing ppl like you would care for him

  • @shikhachauhan3128
    @shikhachauhan3128 Před 3 lety

    My friend is suffering from this disease I want to know that how many month it tooks to cure and how many chemo is given to patient plz reply to me plz

    • @UmarHassan.
      @UmarHassan. Před rokem

      12 cycle 10 months dose

    • @kylerspang2148
      @kylerspang2148 Před 7 měsíci

      9 months of it I have it but if it’s early he’ll survive if it isn’t man either amputation or he may rest in peace

  • @briang.g4112
    @briang.g4112 Před 4 lety +2

    my little brother is currently diagnosed with this, the cancer has grew so big on his shoulder joint....we need help please!! ...we are PNG...

    • @surethreat291
      @surethreat291 Před 4 lety +1

      How is he?

    • @briang.g4112
      @briang.g4112 Před 4 lety

      @@surethreat291
      After my plea, he passed away in November 26th 2020!!

    • @surethreat291
      @surethreat291 Před 4 lety +1

      Santoh Mahn sorry to hear. A girl i know just got diagnosed with stage 4. Shes beautiful and funny and nice, a truly amazing person i hope she makes it

    • @briang.g4112
      @briang.g4112 Před 4 lety

      @@surethreat291 wow thats an inspiration...Great news!! 👍

    • @surethreat291
      @surethreat291 Před 4 lety +1

      Santoh Mahn what

  • @kinemasteredite5558
    @kinemasteredite5558 Před 2 lety +3

    I got the fucking ewing sarcuma and i am from bangladesh

  • @madisynsickafoose2509
    @madisynsickafoose2509 Před 8 lety +5

    I had this cancer. they found it when I was 6 not teen age years😂

    • @NanaMuffinLady
      @NanaMuffinLady Před 4 lety

      I'm 27 and they just found it😅

    • @NanaMuffinLady
      @NanaMuffinLady Před 3 lety

      @Jibon Sarkar I'm okay, thanks for asking. Had 3 of 6 rounds of chemo, waiting for results on the last CT and MRI. Chemo is tough but they have good medication to treat side effects. They may do radiation afterwards. It's localized.

    • @NanaMuffinLady
      @NanaMuffinLady Před 3 lety

      @Jibon Sarkar I had an obvious tumor that grew at my jaw back behind the teeth. Small at first, the spot felt sore. Then it grew faster.

    • @NanaMuffinLady
      @NanaMuffinLady Před 3 lety

      @Jibon Sarkar the tumor did not hurt, no. But the chemo makes my body hurt for a couple of days and the neulasta shots cause some nasty bone pain.
      If you have something that concerns you, go to a doctor. Don't take “it's nothing“ for an answer and demand either CT or MRI.

    • @NanaMuffinLady
      @NanaMuffinLady Před 3 lety

      @Jibon Sarkar the tumor did not hurt, no. But the chemo makes my body hurt for a couple of days and the neulasta shots cause some nasty bone pain.
      If you have something that concerns you, go to a doctor. Don't take “it's nothing“ for an answer and demand either CT or MRI.