MyCP Webinar: Priorities in Adult CP Research

Cristina Sarmiento, MD, and her colleagues Jocelyn Cohen, JD, Mary Gannotti, PT, PhD, and Ed Hurvitz, MD, present their plans for a study that is funded by our new Accelerator Award program made possible by our partner Cerebral Palsy Alliance Research Foundation.

[@rhondaclark2446]

As an adult with CP eating well, proper sleep, and PT with the right team and the right medical team is extremely important.

[@rhondaclark2446]

Better education for providers when it comes to adults with CP.

[@cpresearchnetwork]

Agreed. Lots of work but it is critical to better treatment for adults with CP.

[@heatherjohnson8862]

I would like to be in the focus group.

[@cpresearchnetwork]

If you send mail to us at cprn (see website), we will connect you with the organizers.

[@caitlynbunner]

@CPRN. Has there been researched for neurogenic bladder in Adult with CP?

[@cpresearchnetwork]

Hi Caitlyn. The only research I can find establishes that it is not uncommon in adults with CP but no research on treatment. onlinelibrary.wiley.com/doi/10.1111/j.1469-8749.2012.04360.x

[@heatherjohnson8862]

I have that too.

[@user-vv9uz2pe7n]

Will you include people with speech and language disorders and AAC?

[@cpresearchnetwork]

We plan to.

[@eatingreenbean77]

super insightful panel, it's always great to see research for adults with CP. I only wish there was more time for the q&a portion so it wasnt interrupted. adults w CP don't often get the floor🥲

[@cpresearchnetwork]

This one ran a little long but we run them so that people on the west coast can participate too. Roughly everyone other one of our webinars is about adults and there are plenty of opportunities to interact.