Happy to catch up if you want mate for a coffee as I’m living In Melbourne also. I’m 46 and was diagnosed with FSHD at 13 so know exactly what you’re going through. I too had to give up sports like lacrosse basketball etc and it was devastating. Remain as positive as you can as i know mood does fluctuate. All the best Scott
Thanks for the comment Scott! I'd love to catch up for a coffee, it'd be great to get your perspective on things. If you have Instagram you're welcome to message me there (@dudeability) or alternatively email me at kalvinhopperaus@gmail.com and we can get something going. :)
I found your channel from an FSHD Global newsletter. I've been following them since 2012. I thought about getting on CZcams like you have but I couldn't ever take that step. The judgement, trolls and fear of feeling humiliated. So I really value and admire what you're doing. If I could cross that line I would post on multiple platforms. At least 3. X is evolving so might be an opportunity there. I have seen stats that live streams can be great for learning to engage an audience. E.g. "make me laugh". "You're movie moments" etc. Third I saw a video about Linus years ago that learning mentioned learning to project the voice was a big turning point. It might have been corridor or something. I know they have a lot on making the best out of footage. Well thank you for being a voice for me, my family especially my 4 year old daughter. When she's older, having ppl like you will be very important for her confidence and will power.
Thanks Josh, that's really kind. That's really why I do all of this, to try to be the person I wished I could've looked up to when I first got diagnosed. In terms of getting on CZcams/social media, I'd really just say go for it. I was extremely self-conscious initially when I put parts of myself up online, but those feelings quickly faded away. I'm sure the world would benefit from hearing what you have to say. All the best to you and your family :)
Thanks for watching! If you have any good CZcams lessons, please drop them in the comments below.
*also apologies about the running water sound :D
G vid Kal have enjoyed your work over the past half year. You present well btw man. V impressive how regularly you’ve posted
Cheers Nath, very kind. I appreciate all the comments you leave on the vids!
Very insightful tips Kal, these vids will stay online too so people will certainly see and benefit from these vids into the future.
That's definitely a good point, hopefully soon!
Happy to catch up if you want mate for a coffee as I’m living In Melbourne also. I’m 46 and was diagnosed with FSHD at 13 so know exactly what you’re going through. I too had to give up sports like lacrosse basketball etc and it was devastating. Remain as positive as you can as i know mood does fluctuate. All the best Scott
Thanks for the comment Scott! I'd love to catch up for a coffee, it'd be great to get your perspective on things. If you have Instagram you're welcome to message me there (@dudeability) or alternatively email me at kalvinhopperaus@gmail.com and we can get something going. :)
Nica kal. imma take some tips from this vid for myself.
Thanks Scobes, I'll have to get some tips off you at some stage too
Amazing stuff kal great vid, crazy to think you’ve been making vids for a half year man
Thanks Sandy, to be honest it feels like waaay longer than that haha
Couldn't have said any of this better myself. Keep going dude, you're doing great 💪
Thanks Marisa! I like to think that we're both making a real difference out there for folks with fshd :)
I found your channel from an FSHD Global newsletter. I've been following them since 2012. I thought about getting on CZcams like you have but I couldn't ever take that step. The judgement, trolls and fear of feeling humiliated.
So I really value and admire what you're doing. If I could cross that line I would post on multiple platforms. At least 3. X is evolving so might be an opportunity there. I have seen stats that live streams can be great for learning to engage an audience. E.g. "make me laugh". "You're movie moments" etc. Third I saw a video about Linus years ago that learning mentioned learning to project the voice was a big turning point. It might have been corridor or something. I know they have a lot on making the best out of footage.
Well thank you for being a voice for me, my family especially my 4 year old daughter. When she's older, having ppl like you will be very important for her confidence and will power.
Thanks Josh, that's really kind. That's really why I do all of this, to try to be the person I wished I could've looked up to when I first got diagnosed. In terms of getting on CZcams/social media, I'd really just say go for it. I was extremely self-conscious initially when I put parts of myself up online, but those feelings quickly faded away. I'm sure the world would benefit from hearing what you have to say. All the best to you and your family :)
This is valid bro I'm glad I watched it all the way through! Love your thought process man keep up the grind 💪
Ay thanks Matt, I really appreciate that you watched the entire vid. Keep grinding too brother :)