2023 CCDS Virtual Conference | Caregiver Session | August 18

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  • čas přidán 10. 09. 2023
  • 2023 CCDS Virtual Conference - Association for Creatine Deficiencies
    Talk Timestamps Below...
    JENNY GOLDSTEIN, PHD, UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
    “The Genetics of Cerebral Creatine Deficiency Syndromes (CCDS): Genetic variants, genetic testing, and inheritance explained“ 00:06
    JESSICA KRUGER, SIBLING SUPPORT PROJECT
    “Sibling Support & Sibshops“ 55:30
    DEBORAH BILDER, MD, UNIVERSITY OF UTAH HUNTSMAN MENTAL HEALTH INSTITUTE
    “Psychiatric Approach to Emotional and Behavioral Crises in Children with Cerebral Creatine Deficiency Syndrome“ 1:38:23
    ASSOCIATION FOR CREATINE DEFICIENCIES BOARD PANEL
    “Overview of Caregiver Session and Conclusion” 2:34:59
    Program Agenda, Speaker Bios, & Abstracts: creatineinfo.org/ccds-virtual...
    For more information about ACD visit: creatineinfo.org
    #Creatinedeficiencies #CCDS #Creatineinfo

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