Walk with me and my HSP (hereditary spastic paraplegia)
Vložit
- čas přidán 12. 09. 2024
- Traveling is always fun, but when I am out of my comfort zone my body feels it! I had a lot of long car trips and then stayed at my parents house which is a carpeted two story home.
Railings everywhere would be soooo handy 😂
Right?!
You walk exactly like I do. And yes, I also wish parallel bars were installed everywhere. How is your sleeping?
It would make life so much easier! No issues sleeping.
Woooow amazing! Especially walking uphill in the last video! Was that mostly the upper body strength pulling you up, or mostly the legs?
Eh a little bit of both!
Really interesting about the dock. Do you have a baclofen pump ?
No
Do not get a baclofen pump. Stay off of drugs especially prescription
I myself am tired of walking funny its so hard...next week im getting tested for the baclofen pump and if i pass im getting 1 installed ive been walking crazy for 5 yrs and im sick of it....lifes to short i wanna enjoy what time i have left....
@@williambean6126 I hear you. It is exhausting and even more so in this summer heat. It’s physically and mentally taxing to move like this. Best of luck with the pump. I hope it works out and gets you the results you are expecting!
wow your pretty
What about the everlasting sea legs?
Or just live on a boat/ship the rest of my life?
BEN BURAK ULUCAY SEN KİLOLUMUSUN