I think that Dr's, especially after you already have a diagnosis, should be more willing to learn instead of dismissing it as something that they either know nothing about so can't help you, or dismissing it as something you can't possibly have because it's rare and they don't know enough about it. It would make the world of difference if a Dr admitted they didn't know something but we're willing to look into it for you and learn what they could, plus listening to your experience with it and learning from that - surely that's part of their job?! Too often they think they know better than the person living with that condition for years. Don't apologise for ranting, as you said, anyone with a CI knows how hard it is to get Dr's to even listen never mind help! I could rant about it for hours ;)
I know I think if you've got a regular patient with a condition you should learn as much about it as you can, you think they'd want to help. I think the problem is most people who will see this video and others like it already know, we need to get the medical world to listen. x
I loved this tag it was so fun to answer wasn’t it? I loved your doctor rant you hit the nail on the head there! You know I’m wondering after this video if my gastric problems are EDS I’ll mention that to my doctor xx
Yeah great questions! I was so annoyed I thought of so many better answers after I'd filmed it but oh well :P Haha :P Almost definitely, it's frustrating because it means there really isn't much we can do about it unfortunately x Spoons & Love x
I love this I am so going to make a tag video. I totally relate to not being able to wear anything but loose fitting pants and clothes. People are always trying to relate their stomach aches to my pancreatitis and I’m like uhhhh no love not the same at all!
I love this, especially how you explained concentration. The energy aspect...it is truly difficult to focus when in severe pain. Also, that's exactly how I feel when in a flare. I LOVE Grey's Anatomy & puppies too! Thanks for sharing! I would like to participate in this but do I need tagged first? I think I'll do it any way😉😂
I don’t read much but if do I like audio books as my eyes get blurry from reading regular books. I also like that I can do other things will listening to the book.🙂
I used to love audio books as a kid I think I need to get back in them but I can very particular about who is reading it and the way they read it but I guess that comes from my drama background. I've been reading better with my kindle lately so hopefully i might find it easier. Spoons & Love x
So glad you found that gastro doctor! Great to hear.
He was very nice. I hope he can help a little. x
I Love this Video Jenni! I'm doing this tag!! Great informative but also nice to have a list of questions to answer XXX
Thank you! Let me know when you've done it I'd love to see it!
I think that Dr's, especially after you already have a diagnosis, should be more willing to learn instead of dismissing it as something that they either know nothing about so can't help you, or dismissing it as something you can't possibly have because it's rare and they don't know enough about it. It would make the world of difference if a Dr admitted they didn't know something but we're willing to look into it for you and learn what they could, plus listening to your experience with it and learning from that - surely that's part of their job?! Too often they think they know better than the person living with that condition for years. Don't apologise for ranting, as you said, anyone with a CI knows how hard it is to get Dr's to even listen never mind help! I could rant about it for hours ;)
I know I think if you've got a regular patient with a condition you should learn as much about it as you can, you think they'd want to help. I think the problem is most people who will see this video and others like it already know, we need to get the medical world to listen. x
I loved this tag it was so fun to answer wasn’t it? I loved your doctor rant you hit the nail on the head there! You know I’m wondering after this video if my gastric problems are EDS I’ll mention that to my doctor xx
Yeah great questions! I was so annoyed I thought of so many better answers after I'd filmed it but oh well :P Haha :P Almost definitely, it's frustrating because it means there really isn't much we can do about it unfortunately x Spoons & Love x
Chronically Jenni omg i was the same as I edited I thought of so much more lol
I love this I am so going to make a tag video. I totally relate to not being able to wear anything but loose fitting pants and clothes. People are always trying to relate their stomach aches to my pancreatitis and I’m like uhhhh no love not the same at all!
I'd love to see it! I know, I wish I could give people my pain for like 30 seconds just so they'd realise it wasn't the same. Spoons & Love x
I love this, especially how you explained concentration. The energy aspect...it is truly difficult to focus when in severe pain. Also, that's exactly how I feel when in a flare. I LOVE Grey's Anatomy & puppies too! Thanks for sharing! I would like to participate in this but do I need tagged first? I think I'll do it any way😉😂
Thank you! Definitely I think it's something people don't tend to think about. No please do a video I'd love to see it! :)
@@ChronicallyJenni oh absolutely & it affects is much. Thank you Jenni, I just uploaded mine! Have a good day🙂
I don’t read much but if do I like audio books as my eyes get blurry from reading regular books. I also like that I can do other things will listening to the book.🙂
I used to love audio books as a kid I think I need to get back in them but I can very particular about who is reading it and the way they read it but I guess that comes from my drama background. I've been reading better with my kindle lately so hopefully i might find it easier. Spoons & Love x
Chronically Jenni Ya there is definitely some people I don’t like listening to.