How unbelievable that you got a simple “no” and no other dialogue!! That is just weird. Looking forward to hearing the results of your nerve conduction studies of your arms. Hand in there. ❤️
ive gotten rejected many times for scans looking too good for 10 years. no surgery but major pain , only recently started showing on mris .. wish i could move my neck half as good as yours lol .. hopefully you land in the totally pain free zone soon
@@KimWright thanks , meeting with a couple neurosurgeons this month , have severe stenosis on one side and facet arthritis on both sides , c6-c7 seems to be the worst . prolotherapy is another option you can look into as well if you havnt. im having a consultation tmrw for it but think i have a date w a laminectomy/ fusion in the near future lol . let me know if you find any answers to the symptoms youre still having . sucks the way this shit fucks with life
C4- C-7 don’t give up try gummies instead of smoke just have 6 weeks from my surgery don’t know how to get back to work my pain goes and come back on my back neck seems this is a long trip. Anyway Wish you the best thx for your video. Warms Regards from PR. 💪🏼
I have been watching you since 11/2021 ..I had my ACDF c4-c7 fused in 12/2021.. apparently this was not the actual source of my pain .. I have also been through being denied to be seen. There is so much more that I'd love to discuss with you. it is making me to numb to type at the moment. real quick.. I have been dnow diagnosed with NTOS (neurogenic thoracic outlet syndrome)I fit every single symptom and always have. Though it is been since 2017 and several surgeries to get this diagnosis.. Buuut ..there is so uch more.. I don't want you to give up.. I have some recommendations and I really can't keep typing at the moment.. I can explain where I am at with it all.. Still fighting.. I haven't watched to see if you have discussed TOS .. but I'd love to continue this.. msg.. a bit later or you can private msg me on Facebook..we can go from there.. this is something I've never done.. but felt like if I did not reach out I would be doing both of us wrong.
wow!! a long time viewer (never in my life would i ever think i'd say something like that lol) i hope you are doing ok i have been hearing more and more about thoracic outlet syndrome!!! idk what to do about it unless its just pain management so many ppl talk about center of the chest pain and dr's don't see to have answers it is so frustrating. im doing ok lately with it though. keep me posted and i hope you're not in pain
Kim your tinnitus is from your spine mine got worse after surgery. Also I had a 4 level pcdf from c2- c7 after the previous 3 level acdf. Worst now. Wish I would of just left the way I was. The problem with pcdf is all the scar tissue. Good luck.
Hello. I got the mri of the brain and neck from the neurologist and its clear. no aneurysm and structures look clean. so it's an IDK thing now :( 2 surgeries. wow. how are you now? i've heard about the scar tissue causing more issues. do you get that corrected down the road? ugh.. its so frustrating and it seems it can be never-ending. I hope you have relief somehow
@@mws952002 I had a 4-level fusion, most neurosurgeons won't do them they are very complicated and surgery can cause more problems. In my case, I didn't have a choice as it was paralyzing my upper extremities
Hey Kim sorry for everything you’re going through. So some who worked with doctors do not like taking on some other doctors patients that having issues from surgeries. Once they do you becomes there problem for life so doctors are very leery of taking on new patients from another physician especially ones that are having issues from a surgery. I haven’t seen all your videos I don’t know how long you’ve had this issue in your neck but I have learned the longer you deal with it it can build up scar tissue on the spinal cord and cause issue that won’t go away with surgery sometimes that’s a reason when I experienced it within two months I had the surgery immediately I’m still on a hard neck brace but everything‘s going good with my recovery at three weeks. I would keep going trying to find a doctor but you’ll have to find a real specialist surgeon with a big ego if he’s going to help you out. I definitely get your MRIs done and at least take them to a neurosurgeon to be evaluated for issues. Take care good luck.
@@KimWright My my cousin dealt with the issue for about 10 years and had the surgery done. It helped a lot but didn’t take care everything having issues like you with the pain. He did the acupuncture and acupressure and that seem to help a lot. Not sure if the MRI with contrast would show any scarring, that would be causing the nerve issues that you’re having. I’m hoping it’s not from the surgery. I know you’re younger than me did you have a disc replacement or disc fusion or both from what I read and followed doctors like to do disc replacement on younger patients, but I’ve also followed that you don’t lose that much mobility doing the disc fusion and it seems to have a better result and that’s just from my research I had severe spinal stenosis and compressed and herniated disc C4 through 7.
@@jefffarage9118 The MRI I am getting isnt for the cervical spine stuff. so that wont show anything. I did not get replacement I had the fusion. I was told cervical spine esp for as many levels I had done - replacement wasnt recommended. and insurance might not cover it. I think maybe one level would be fine. but also- I think replacement is usually done more in the T and S spine.
I was on high does of gabba for a couple of years & put on too much weight without even eating much.. it took complaints & insistence for an alternative when gabba's cousin topamax was suggested.. which had a tendency to shed pounds.. all fine until topiramate became the culprit swelling my prostate... yep.. gotta love trial by error.. ;)
Hi Kim, my name is Meg. I also had a failed fusion C5 through seven and just had posterior cervical fusion. It was hard for me to find a surgeon that would take my case because nobody wants to fix somebody else’s mess so to speak to put it lightly I got turned away by the mayo clinic in Northwestern University in UChicago and rush. I also traveled out to Pennsylvania do you Johns Hopkins who said they would do surgery but there is a 50-50 chance of a success rate to improve my symptoms. I actually had surgery here in Illinois at the Illinois spine and scoliosis center. Hit me up if you want to talk I don’t know we know how to talk on CZcams but I’m happy to answer any questions for you Meg Cronin
It did the first day or 2 then I adjusted. I just hated how it made me crave sugar and never full. Gained 10 lbs in a month plus water retention. Now I’m on lyrica
I stopped the GABA. But I needed some thing because the pain I was experiencing was even more hell so like I said, I’m trying what I can to eventually get off of them again, because I did so well being off of them for over a year so I’m hoping it’s just another temporary thing especially as I’m trying some other stuff
@@KimWright yeah. Try as hard as you can to get rid of them. They not only dull pain but also reconfigure how your brain works. This means that you experience a lot of bad sensations (anxiety, depression, hopelessness, etc) due to these drugs. I’m talking from experience, no doctor will ever tell you this because they’ve never been on the drug.
@@MartinMochetti I understand. Everything alters everything. That’s why I think having a good mindset is key. Being in chronic pain also can make people feel dark depressed, anxious and suicidal. I am a therapist, so I think I’m a good judge to see when I start going down that slippery slope. I will definitely keep this information in mind. But when I was on this before, and my pain subsided to the point of being more physically active I started having more goals and that is when I went into starting my pilots license training but unfortunately I wasn’t able to continue for a variety of reasons So there has to be a happy medium and I know medication‘s are not for everyone, but for me, this dulling of the pain is at least helping me stay motivated to try other avenues to get moving and healthy. I’m sorry, if you’ve had any bad experiences I think when it comes to pharmaceuticals of any kind, people need to do their research, but also do the pros and cons and hopefully have a good pain management team in place and they’re on the lowest dose possible with the plan of tapering off, if that’s a possibility
I’ve heard they don’t want to go into fix another surgeons work or working on you after another surgeon worked on you. Every place I call they ask is this your first neck surgery before booking.
@@KimWright I found this Dr Cantor on you tube and instagram and he created a ultrasonic surgery technique. He’s in south Florida I’m near Orlando so I’m sending him my mri and report for a free zoom consultation. I’m in agony today because I’m two weeks out from my shots and it’s wearing off. I work very part time as a hairstylist and after work yesterday it just threw me into a severe flare of muscle spasms and migraine. I feel like removing my head from my body 🤣 I laugh because it keeps be sane during the pain
I bet ur tinnitus is coming from the c3-4 compression I have the same thing at 3-4 and I'm going in for disc replacement surgery next Monday with Dr Argires
Are they rejecting you because you have a channel? I wonder if that is the issue. I had a good PA that worked with the neurosurgeon so if the assistant is good they can be helpful. I can say that post surgery I am a totally different person. I have been broken so many times and rebuilt myself it’s not funny but I have to accept that who I was I won’t be again. But do PT if you can, that will help with some mobility and strength.
They won’t take you on because they don’t think they can’t do anything for you. And before having a patient that will most likely negatively evaluate them they prefer to not take you on.
It’s harsh.. but doctors live out of their reputation. If they take you in, operate you (when there wasn’t much to operate) and then you’re the same or worse then it’s their reputation that’s on the line. That’s why they don’t take you in.
Doctors don't like to work behind other doctors especially when you've had complications. I don't think an orthopedic was supposed to do that work in the first place. I think you have to get a referral before you see a specialist. Sometimes Specialists don't see walk-ins. You will need an updated mri when you do get in to. Good Luck.
Hello Yes I have to get referrals for everything and I always do. And I also had an updated MRI from when I went to the hospital in April. I am doing better, but yes it’s one of the frustrating complications I think.
Hi Kimmy Glen from Australia good to see your post again. Stay positive the best you can you are a inspiration look forward
How unbelievable that you got a simple “no” and no other dialogue!! That is just weird. Looking forward to hearing the results of your nerve conduction studies of your arms. Hand in there. ❤️
👍💖🙏 thanx for your update. Weird re: docs saying no b4 they saw you?! With no explanation taboot. Good luck in June!
yes. before they saw me. I guess they looked at my recent mri and stuff from when i was in the er
Wishing you well Kim🙋♂️
ive gotten rejected many times for scans looking too good for 10 years. no surgery but major pain , only recently started showing on mris .. wish i could move my neck half as good as yours lol .. hopefully you land in the totally pain free zone soon
i hope you get some answers and some pain relief!
@@KimWright thanks , meeting with a couple neurosurgeons this month , have severe stenosis on one side and facet arthritis on both sides , c6-c7 seems to be the worst . prolotherapy is another option you can look into as well if you havnt. im having a consultation tmrw for it but think i have a date w a laminectomy/ fusion in the near future lol . let me know if you find any answers to the symptoms youre still having . sucks the way this shit fucks with life
I been on gabapentin for 20 yrs no problems whatsoever it works great for nerve pain relief
Wish you well dear. I'm still in the early stage of recovery and, C3-C5, 6 weeks now
hoping you are healing
C4- C-7 don’t give up try gummies instead of smoke just have 6 weeks from my surgery don’t know how to get back to work my pain goes and come back on my back neck seems this is a long trip. Anyway Wish you the best thx for your video. Warms Regards from PR. 💪🏼
I have liquid as I also want to try something other than smoke - but im too nervous to even try lol .. I have higher cbd stuff too but still nervous
i hope you get some relief. its def a long trip ,I hope you have a good team and support system in place
I have been watching you since 11/2021 ..I had my ACDF c4-c7 fused in 12/2021.. apparently this was not the actual source of my pain .. I have also been through being denied to be seen. There is so much more that I'd love to discuss with you. it is making me to numb to type at the moment.
real quick.. I have been dnow diagnosed with NTOS (neurogenic thoracic outlet syndrome)I fit every single symptom and always have. Though it is been since 2017 and several surgeries to get this diagnosis.. Buuut ..there is so uch more.. I don't want you to give up.. I have some recommendations and I really can't keep typing at the moment.. I can explain where I am at with it all.. Still fighting.. I haven't watched to see if you have discussed TOS .. but I'd love to continue this.. msg.. a bit later or you can private msg me on Facebook..we can go from there.. this is something I've never done.. but felt like if I did not reach out I would be doing both of us wrong.
wow!! a long time viewer (never in my life would i ever think i'd say something like that lol)
i hope you are doing ok
i have been hearing more and more about thoracic outlet syndrome!!!
idk what to do about it unless its just pain management
so many ppl talk about center of the chest pain and dr's don't see to have answers
it is so frustrating.
im doing ok lately with it though.
keep me posted and i hope you're not in pain
Kim your tinnitus is from your spine mine got worse after surgery. Also I had a 4 level pcdf from c2- c7 after the previous 3 level acdf. Worst now. Wish I would of just left the way I was. The problem with pcdf is all the scar tissue. Good luck.
Hello. I got the mri of the brain and neck from the neurologist and its clear. no aneurysm and structures look clean. so it's an IDK thing now :(
2 surgeries. wow. how are you now?
i've heard about the scar tissue causing more issues. do you get that corrected down the road?
ugh.. its so frustrating and it seems it can be never-ending. I hope you have relief somehow
Have you checked into RF nerve ablation. Really helped me with cervical pain. I'm now having C3-C7 due to weakness and diaphragm issues, not pain.
hello. Haven't gotten to that part yet. I will keep that nugget in mind though. When is your surgery?
@Kim Wright June 20th. 4 levels like you. I've been interested in your journey. Sure hope that you get relief AND answers.
@@mws952002 Oh. I only had 3 levels : c4-5,c5-6,c6-7
@@KimWright My mistake, I remembered it was mutilevel.
@@mws952002 I had a 4-level fusion, most neurosurgeons won't do them they are very complicated and surgery can cause more problems. In my case, I didn't have a choice as it was paralyzing my upper extremities
Always wishing you gwell, as well! 😉❤🩹
My tinnitus have been off the charts 3-4 is up higher closer to the brain stem and can cause many odd symptoms it disrupts your somatosensory system
I WAS GOING THROUGH THE SAME THING WITH U OF MICHIGAN HOSPITAL WHILE THEY WERE WATCHING MY HAND AND ARM ATROPHY. THE MAYO CLINIC TOOK ME ON.
are you doing better now?
@@KimWrightthe Mayo has a good rep even in the UK
Hey Kim sorry for everything you’re going through. So some who worked with doctors do not like taking on some other doctors patients that having issues from surgeries. Once they do you becomes there problem for life so doctors are very leery of taking on new patients from another physician especially ones that are having issues from a surgery. I haven’t seen all your videos I don’t know how long you’ve had this issue in your neck but I have learned the longer you deal with it it can build up scar tissue on the spinal cord and cause issue that won’t go away with surgery sometimes that’s a reason when I experienced it within two months I had the surgery immediately I’m still on a hard neck brace but everything‘s going good with my recovery at three weeks. I would keep going trying to find a doctor but you’ll have to find a real specialist surgeon with a big ego if he’s going to help you out. I definitely get your MRIs done and at least take them to a neurosurgeon to be evaluated for issues. Take care good luck.
That makes sense. How would we figure out if there is scar tissue affecting things? Anything non-invasive?
@@KimWright
My my cousin dealt with the issue for about 10 years and had the surgery done. It helped a lot but didn’t take care everything having issues like you with the pain. He did the acupuncture and acupressure and that seem to help a lot. Not sure if the MRI with contrast would show any scarring, that would be causing the nerve issues that you’re having. I’m hoping it’s not from the surgery. I know you’re younger than me did you have a disc replacement or disc fusion or both from what I read and followed doctors like to do disc replacement on younger patients, but I’ve also followed that you don’t lose that much mobility doing the disc fusion and it seems to have a better result and that’s just from my research I had severe spinal stenosis and compressed and herniated disc C4 through 7.
@@jefffarage9118 The MRI I am getting isnt for the cervical spine stuff. so that wont show anything. I did not get replacement I had the fusion. I was told cervical spine esp for as many levels I had done - replacement wasnt recommended. and insurance might not cover it. I think maybe one level would be fine. but also- I think replacement is usually done more in the T and S spine.
Have they ever figured out where your pain is coming from?
Or maybe Dr Diana Jho at Penn State holy spirit Neurosurgery she's good
I was on high does of gabba for a couple of years & put on too much weight without even eating much.. it took complaints & insistence for an alternative when gabba's cousin topamax was suggested.. which had a tendency to shed pounds.. all fine until topiramate became the culprit swelling my prostate... yep.. gotta love trial by error.. ;)
its like which effect are you ok with? ugh
Hi Kim, my name is Meg. I also had a failed fusion C5 through seven and just had posterior cervical fusion. It was hard for me to find a surgeon that would take my case because nobody wants to fix somebody else’s mess so to speak to put it lightly I got turned away by the mayo clinic in Northwestern University in UChicago and rush. I also traveled out to Pennsylvania do you Johns Hopkins who said they would do surgery but there is a 50-50 chance of a success rate to improve my symptoms. I actually had surgery here in Illinois at the Illinois spine and scoliosis center. Hit me up if you want to talk I don’t know we know how to talk on CZcams but I’m happy to answer any questions for you Meg Cronin
I'd love to hear how you are doing!
Neurosurgeons and orthopedic surgeons do not like to take patients that have been worked on by another surgeon.
that makes sense :(
does the gabapentin make you dizzy? I tried it and it made me very dizzy and a bit confused
It did the first day or 2 then I adjusted. I just hated how it made me crave sugar and never full. Gained 10 lbs in a month plus water retention. Now I’m on lyrica
Also, stop lyrica and gaba. Those drugs are hell.
I stopped the GABA. But I needed some thing because the pain I was experiencing was even more hell so like I said, I’m trying what I can to eventually get off of them again, because I did so well being off of them for over a year so I’m hoping it’s just another temporary thing especially as I’m trying some other stuff
@@KimWright yeah. Try as hard as you can to get rid of them. They not only dull pain but also reconfigure how your brain works. This means that you experience a lot of bad sensations (anxiety, depression, hopelessness, etc) due to these drugs. I’m talking from experience, no doctor will ever tell you this because they’ve never been on the drug.
@@MartinMochetti I understand. Everything alters everything. That’s why I think having a good mindset is key. Being in chronic pain also can make people feel dark depressed, anxious and suicidal.
I am a therapist, so I think I’m a good judge to see when I start going down that slippery slope. I will definitely keep this information in mind.
But when I was on this before, and my pain subsided to the point of being more physically active I started having more goals and that is when I went into starting my pilots license training but unfortunately I wasn’t able to continue for a variety of reasons
So there has to be a happy medium and I know medication‘s are not for everyone, but for me, this dulling of the pain is at least helping me stay motivated to try other avenues to get moving and healthy.
I’m sorry, if you’ve had any bad experiences
I think when it comes to pharmaceuticals of any kind, people need to do their research, but also do the pros and cons and hopefully have a good pain management team in place and they’re on the lowest dose possible with the plan of tapering off, if that’s a possibility
I was on Lyrica , sent me tropo .
Hey Kim, how are you doing? Any updates?
hello. planning on doing a video tonight. my 3yr anniv video never uploaded. :(
I’ve heard they don’t want to go into fix another surgeons work or working on you after another surgeon worked on you. Every place I call they ask is this your first neck surgery before booking.
That does seem to be the case :(
@@KimWright I found this Dr Cantor on you tube and instagram and he created a ultrasonic surgery technique. He’s in south Florida I’m near Orlando so I’m sending him my mri and report for a free zoom consultation. I’m in agony today because I’m two weeks out from my shots and it’s wearing off. I work very part time as a hairstylist and after work yesterday it just threw me into a severe flare of muscle spasms and migraine. I feel like removing my head from my body 🤣 I laugh because it keeps be sane during the pain
Also try RSO syringes under the tongue
I bet ur tinnitus is coming from the c3-4 compression I have the same thing at 3-4 and I'm going in for disc replacement surgery next Monday with Dr Argires
how did things turn out ?
Are they rejecting you because you have a channel? I wonder if that is the issue. I had a good PA that worked with the neurosurgeon so if the assistant is good they can be helpful. I can say that post surgery I am a totally different person. I have been broken so many times and rebuilt myself it’s not funny but I have to accept that who I was I won’t be again. But do PT if you can, that will help with some mobility and strength.
I might follow up w that PA that left a voicemail
They won’t take you on because they don’t think they can’t do anything for you. And before having a patient that will most likely negatively evaluate them they prefer to not take you on.
Hello. There’s a lot of double negatives there’s. Could you explain again ?
It’s harsh.. but doctors live out of their reputation. If they take you in, operate you (when there wasn’t much to operate) and then you’re the same or worse then it’s their reputation that’s on the line. That’s why they don’t take you in.
Did they ever figure out what is causing your pain. My story is identical to yours.
no,. going back to neuro at end of may as my issues are getting a little worse
Doctors don't like to work behind other doctors especially when you've had complications. I don't think an orthopedic was supposed to do that work in the first place. I think you have to get a referral before you see a specialist. Sometimes Specialists don't see walk-ins. You will need an updated mri when you do get in to. Good Luck.
Hello
Yes I have to get referrals for everything and I always do. And I also had an updated MRI from when I went to the hospital in April.
I am doing better, but yes it’s one of the frustrating complications I think.
@KimWright Good luck. Mine was performed by a neurosurgeon.
I can’t type is a can’t look at my phone so my messages are kinda long and drawn out. I apologize.
Take the PA they do foot work for the doctor normal for nerosurgen
Thank you, I will!
Why you want to talk to the neurosurgeons? You want more spinal fusion?
i just wanted information.
Ma come stai non capisco sei operata da diversi anni come va il collo
I had 1 surgery. 3 levels (c4-c7) AUG 2020. I am not getting any other surgeries. Just pain management.
Maybe you should take a break from doctors. What bothers me is that you're still dropping things...which is what's bothering me the most.
i agree. starting back at massage therapy next week!
I think you should call A neurosurgeon in boston they are the best