Mum using TikTok to educate about her son's rare hairy birthmark - CMN

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  • čas přidán 12. 05. 2024
  • Alyssa Huser's TikToks explaining and raising awareness about her son Jace’s rare hairy birthmarks (Congenital Melanocytic Naevus) have been going viral.
    On her account, @OurJourneyWithJace, she details his condition, called CMN - a type of birthmark that appears on newborn babies.
    1 in 100 newborns get small birthmarks; but CMN occurs for 1 in 500,000 children.
    Jace has a large birthmark on his back that sprouted a lot of hair, and has others around his body
    What we especially love about Alyssa's videos is how they are educating users about Jace's condition is such a warm and easy to understand way, spreading awareness and also removing prejudices.
    And she is also helping to foster an online community of parents whose young kids may have these moles too, or adults who are sharing their experiences with nevus skin.
    Alyssa explains that “our goal is to educate”, she says.
    But sadly there have been negative comments too, which she turned into a TikTok: “This is just a fraction of the hurtful, insensitive things people have said; a few internet bullies will not stop us from accomplishing our goals”.
    You can see her TikToks here: vm.tiktok.com/ZGexsF18q/
    There's a charity that supports children and adults living with CMN, called Caring Matters Now: www.caringmattersnow.co.uk/
    See the other human stories behind popular posts on our latest episode of Sorry You Went Viral: • The row over a run; a ...

Komentáře • 7

  • @geobus3307
    @geobus3307 Před měsícem +7

    What about when this kid is 8,9,10 if he wants to conceal it, but the other kids have these pics? Not sure that he will be ok with that.

  • @aliciahughley7508
    @aliciahughley7508 Před měsícem +1

    He’s an adorable little boy ❤

  • @LA-rc7cw
    @LA-rc7cw Před měsícem +2

    People need to stop putting their kids all over the internet like this. Shouldn't be legal. They get no say.

  • @pennyk1943
    @pennyk1943 Před měsícem +1

    God help and protect this family ❤️✝️

  • @dsaint372
    @dsaint372 Před měsícem

    He is a beautiful happy little guy. 😊

  • @goodquestion1
    @goodquestion1 Před měsícem

    Poor kid

  • @zoson-os9rd
    @zoson-os9rd Před měsícem

    He may get skincancer.