My CIRS Journey - Chronic Inflammatory Response Syndrome
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- čas přidán 28. 11. 2020
- I feel like it’s time for me to bring to light what I have been experiencing the past few years. If my story can help one person out there then I feel it has served its purpose. If anyone has any questions regarding CIRS, please reach out! There is also amazing information on www.survivingmold.com
- Hudba
I was recently diagnosed with CIRS. I have the "dreaded genes" and low MSH haplotypes. I thought I had MS for a long time until I realized every time I had the MS symptoms flare up it was after mold exposure. The worst one was after a leaky pipe caused me to breathe in a lot of mold while I was fixing it (before I knew how bad mold was). The doctors mostly treated me like I was a moron. Finally it's great to know what it was. I am still working on remediation and binding and all that...hopefully these symptoms calm down soon. I lost my only child right before this thing flared up bad, and I always wish I had known about this before his passing because I don't know if mold/CIRS contributed to his issues. It's all so painful, mold may have taken away my child and much of my life. I may heal physically, but it's already taken my heart.
I'm so sorry for your loss ♥️
Sending you so much love, and so deeply sorry for your loss. You are not alone, and if you’re still breathing, know that there is more love to give and receive in this life, in ways you might not expect or anticipate. Love and healing is abundant in the universe. Remember that because it’s always with you, even in the darkest moments that seem to last much too long. Never give up. You’ve more to do here. ♥️
Sorry to hear this.wgat are your ms type symptoms
Typical doctors are hopeless at treating chronic health issues and are still arrogant and condescending the entire time. I understand how that feels.
I believe you
I’ve been seriously sick for 32 months now, and in solitude since the start of the pandemic, so just over 3 years now. I recently discovered CIRS after a nearly exhaustive search (and $80k+ in medical expenses), and have all or nearly all of the blood tests that relate to it, as well as nearly every symptom it lists. If you ever want to share wins, joy, camaraderie or treatments that are helping you, I’d be happy to connect and pool our knowledge. I do about 50 things per day to live in a state of joy and gratitude, though am physically quite unwell, and have several new treatments and things I’m trying or about to try. If I can be of service, it would be my pleasure, and if I could learn something from others who have recovered or are recovering from CIRS, I would be so grateful, as well. Thank you for posting this. Sending deep peace, radiant health and wellness, ENERGY, and love. ♥️🙏🏻
Hi how can we connect I need help I'm suffering really badly
M ay I ask which tests you took?
@@jennifertomlinson7726 Hey friends, I’m so sorry to hear you’re both suffering and that I didn’t see these comments earlier. It’s been nearly a year since I posted that comment and I can share that the CIRS protocols did not really work for me, or the $100k of other alternative treatments I tried (I tried truly just about everything!), but what IS working better than any of those things is limbic retraining. I’m doing the Gupta Program, and when I finally started doing it in earnest, I just started getting better and better. That is my very best advice to you both. Be well and know that this illness is really just your brain and body’s way of giving you a much needed course correction. I’ve had 11 out of 41 years with DIFFERENT chronic conditions, and only now can I really see this to be absolutely true. These challenges truly are blessings in disguise, and as long as you draw breath your brain and body are and can change. There is health and wellness and joy and vitality waiting for you. Never give up. I am sending love and support to you both. ♥️🙏🏻
@@JamieR Hey friends, I’m so sorry to hear you’re both suffering. It’s been nearly a year since I posted that comment and I can share that the CIRS protocols did not really work for me, or the $100k of other alternative treatments I tried (I tried truly just about everything!), but what IS working better than any of those things is limbic retraining. I’m doing the Gupta Program, and when I finally started doing it in earnest, I just started getting better and better. That is my very best advice to you both. Be well and know that this illness is really just your brain and body’s way of giving you a much needed course correction. I’ve had 11 out of 41 years with DIFFERENT chronic conditions, and only now can I really see this to be absolutely true. These challenges truly are blessings in disguise, and as long as you draw breath your brain and body are and can change. There is health and wellness and joy and vitality waiting for you. Never give up. I am sending love and support to you both. ♥️🙏🏻
For Recovery search youtube : brain retraining dnrs
Or
Neuroplasticity brain retraining for chronic fatigue
You will find testimonials with dnrs. Watch them and again watch many interviews with those who recovered and eventually choose one program to enrol. There are many of them . Dnrs and gupta program are oldest ones. Real result.
Wish you the best
Hiya! I just got diagnosed with CIRS after 6 years of being absolutely wrecked. Just completely bedridden. Thanks for sharing! Glad I found you.
I am so sorry Elizabeth!! I pray that with this true diagnosis you can get back on the road to regaining your health! It is so tough especially with it being “newer” to the medical community but we WILL get through this and there is HOPE❤️❤️
I would encourage you to check out this doctor's lecture series on CIRS! I have a medical practice and I'm familiar with toxic mold but it wasn't until purchasing a home with an indoor pool in Washington State that we realized the nightmare of what toxic mold can do to the body, and how allopathic/western medicine is virtually nothing about the symptoms or treatment modalities and often make people feel like they are crazy. I'm so sorry you are suffering with this. Please watch the video, and his entire series. I feel confident that it will bring hope and healing to you. czcams.com/video/31Ftaa_PBRk/video.html
@@OliviaFarabaugh Olivia, what is the name of the gene and the test that 25% of population could have?
My health has worsened dramatically in last years with severe food and sensory hypersensitivities, migraines, body pain, peripheral neuropathy, insomnia, anxiety, etc.
Black mold was found six months before I discovered it at my last home, and this old apartment I'm in now has leaked from my bedroom ceiling for four years, despite complaints to landlord.
I've just been diagnosed with ADHD, small fiber neuropathy and they're texting me for autoimmune disease but so far all labs are negative (which is possible, seronegative AID does exist).
I would like to be checked for this gene you speak of. What is this test called?
Thank you.
* Oh yes, I've been battling Candida since I was 20. I'm 69 now and took another Diflcan just last night. Does this gene make it hard to fight off Candida?
Do the Carnivore diet.....I feel completely cured. Please....try!!!!
@@Rollwithit699did you ever get answers? The gene is HLA-DR.
I have CIRS also. Black mold along with food molds!! Shocker. Learned that grain is a big source of mold along with coffee & chocolate also.
I have all those symptoms you do. Look for an Integrative Health and Functional Medicine practitioner who treats using Shoemaker Protocol. I’m in month 5 of treatment but only started taking Cholestyramine about 4 weeks ago. With mold & CIRS you can also have MCAS causing food intolerances. I knew I did and my functional never addressed this at first. With my latest round of tests - did the OAT test and she found it. I have Salicylate Intolerance which is worse than just Histamine Intolerance! On a VERY restricted diet. I thought I was dying and truth is these functional practitioners ARE ABLE to help you with healing. I also have SIFO (Candida).
Get off sugar. Get off refined carbs. That’s all I can say. It has literally taken me 5 months to get off sugar through much prayer and asking God to empower me. The mold and candida feed off sugar thereby driving these insane cravings where you go mad until you feed them. It’s awful. I tell the Lord- please take out of me that which is NOT of You!! These bad bugs are not good so I’m believing they’re being exterminated!
Hope you’re feeling better!!
Oh and the first step - you need to move. If there’s mold you’ll continue to get worse. This gene is from Hell as you’ll now have to be oh so careful the buildings you live in and work in. Once you’re making progress in healing and you set foot in one can bring it all back.
Doing the carnivore diet helped a lot, but I'm still debilitated, most of the time bedridden. Magnesium (600-1000mg) gave me a nice headspace, reduced irritability a lot, helps cognition too. Something that helped me A LOT, felt me feel like new, was Kambo, the frog poison. I was as close as new and healthy as I can be, it lasted for 4 hours more or less. So I guessing it's related to bile excretion, as Kambo makes you vomit so much you vomit your bile. There's more action mechanisms to this, but seeing that Cholestyramine works, it's a good guess I think! Anyways, been sick 2016, used to work as a magician in parties now I'm in my bed, horay. All we can do is hope! Feel like I need more people going through this, I feel so alone, no one believes it's real just because it doesn't come out in the blood exam or ultrassound, is terrible, people assume you're pretending or is in your head, it's terrible, I can't open up to no one.... Thanks for reading.
How r you doing now
@@nylakhan5658 Same. Still haven't started CSM.
@@opedromagico Do you believe in God he will definitely heal your pain.
How did the Cholestyramine treatment work out for you?
@@Bloodyninenightangel it depends on the fungal toxin. Csm binds to a few, activated charcoal to another few, bentonite clay for some. But yeah pooping all that trash out is really difficult. It's as if you've lost your hind colon and it's now a sludge bag that doesn't wish to poop
I have suffered for weeks after huge amounts of mold exposure! 6 ER visits because of intense symptoms that were alarming. Told me I had Anxiety Disorder and needed meds. 🙄
Was CIRS the entire time. FINALLY THE TRUTH! I was INSTANTLY cured of Anxiety amd Depression, now working on the treatment.
These medical professionals are not very professional. The best one was a student who was curious about WHY I was having symptoms.
How did you heal please please help 😫 desperate in pain
@@brynnkrupke2564 me to what are you symptoms are you hypermobile
Please any advice? Suffering badly
@@jennifertomlinson7726 pain symptoms?
I'm experiencing CIRS and told my family doctor and he had never heard of it, so I'm not even sure if I'm technically "diagnosed". It's a crime that doctors are apparently not trained on microbiology and the moulds that are rampant in some homes. My landlord is only that by title and is also my husband's brother, so of course me with my symptoms that mimic psychosis and severe anxiety are being told it's in my head and that I'm choosing to sin in this way. It's not fair. I was exposed to mould for years as an adult, teenager and throughout childhood, and so I've been on every psychiatric medication and have been put into a psyche ward against my will that caused more trauma. Just this morning, my husband was angry at all the years of struggle we've had and of course he brought this up while I was in our mouldy house (I've been sleeping in a tent in our Canadian backyard) Anyway, I went into panic, since my body is always in fight or flight (more like sorrowfully explaining or running away or hitting myself because I can't control my limbs) so he was threatening to call the police. They've been called by neighbours over the summer and always make it worse and tell me I can't party like this!????? I went to an allergist in September and was told I was allergic to the only two moulds they tested for, I can't remember the first one but the second was Mucor. When I watch doctors talk about Mucor on CZcams, it's so scary to know it's what I could be experiencing.. My landlord ripped out black fuzzy pingpong ball sized mould on October 21 while telling me there is no mould. My symptoms have been through the roof. Our five year old daughter also experiences symptoms but our family blames me for "teaching her to act like that." My husband is enacting a seperation and tells me to stop using the mould as an excuse and to "learn to compose myself when he faces me with how I've sinned over the years". He's referring to me having mould symptoms. We need somewhere fresh and clean and mould free to live and recover in. God please help us.
Bless your heart for sharing all of this, Olivia!!!
Thank you Joy for your encouragement! I just hope that my journey can help others going through this as well. I hope you are having a wonderful start to your new year!
You have such a beautiful smile. 😊 I believe I had CIRS because I previously had lyme disease. I'm just learning about CIRS. Thanks for sharing your story!
Hi Peter, thank you so much for your kind words! I am so sorry to hear that you are dealing with this! We made a few other videos talking about my journey with CIRS. I have the link to them below if they can be of service to you. We will keep you in our prayers as you find your path to health and healing!
Thank you for your story. My family, including my seven year old daughter, are trying to heal from CIRS. We had seven years of mold exposure and it's caused so many symptoms. I trust that God will help me to help my family heal. ❤️
Prayers for you Olivia 🙏🏻🙏🏻🙏🏻
ripman ridin thank you so much 🙏🏼
I have CIRS and the hardest thing for me (other than feeling sick) is all the lifestyle changes: no gluten, no dairy, not going home anymore because that had toxins in it, it's a hard journey.
yes its very hard
Wow I’m so on your boat thanks for sharing ♥️♥️
Hi Lucy! I am so sorry that you are going through this as well!! Sending prayers and positive vibes your way ❤️❤️
Yes! The anxiety and depression stink. You are not alone, either! hugs!
Angela I am so sorry I just saw this comment! Thank you so much fir your support! I hope that you are doing well and finding some answers!!🙏🏼❤️🙏🏼
Thank you for sharing it means alot to people like me who are trying to find answers. What symptoms do you experience and neurological symptoms of numbness? What does your treatment plan consist of? Thank you!!
I am so sorry you are going through this! I have a few videos with more info to your questions and I’m going to get some more updates out there soon. The playlist link is below. In the beginning when I made this video I had symptoms across the board. Brain fog, Body aches, fatigue, Chronic sinus issues, I got a blood clot, ice pick pains.. I didn’t have as much numbness. I have to say the absolute best site that helped me was surivingmold.com . It has incredible information about what steps you can take to get back to health and it made sense of my symptoms after reading the “bio toxin pathway”. I would defiantly watch my video “first steps to recovery” in that playlist. In that videos description it has a link to the book my husband and I read that gave a step by step action plan to living with CIRS. It’s overwhelming but I can’t express how helpful it has been. Please let me know if you have anymore questions in addition to those videos. I’m going to post an update shortly as well. You are not alone, you are strong, we will get through this! I will keep you in my prayers!
czcams.com/play/PLlBYOhiAI-ZuNBCxMX7Pr9S9ZrL72ktlz.html
CIRS here too. Took me years to figure it out
Thank you for sharing your experience. I was curious about it because I saw a video of a girl who said she has CIRS and get sick when she is around covid vaccinated people. I am wondering if other people with CIRS has experienced this as well. Thank you!
I arrived here with the same question
Hi Barbara, thank you for your support! I have never experienced this. My husband and I actually did decide to get the vaccine ourselves. We got the J&J one (before we knew about the clotting risk) I have another friend who was also diagnosed with CIRS who also decided to get the vaccine. Now I know everyone has their own symptoms and such but as far as my experience goes, her reaction may not be related to CIRS. Maybe she has something else underlying but I have never experienced that. Thank you for taking the time to looking into this and learning about the illness!
@@RollSoundCameraAction Thank you for taking the time to learn about this illness! I responded to the comment where you also had the same question so I just wanted to be sure you did see the response. I copied it below. Thank you again!
I have never experienced this. My husband and I actually did decide to get the vaccine ourselves. We got the J&J one (before we knew about the clotting risk) I have another friend who was also diagnosed with CIRS who also decided to get the vaccine. Now I know everyone has their own symptoms and such but as far as my experience goes, her reaction may not be related to CIRS. Maybe she has something else underlying but I have never experienced that.
@@OliviaFarabaughI shower and change clothes after being out now. I’m not jabbed but had bleeding in menopause from whatever shedding is.
I’m on vip peptide spray, but if I have been out, I use xclear nasal spray a half hour before my vip spray. It took me a long time to get rid of MARCONS. Don’t know how much the vip spray is helping until I get another neuroquant mri .
Hi Olivia, how is your journey been healing from CIRS and working with Dr Heyman? I'm looking into it, it really seems like a gamechanger! You might consider an update video whenever it feels right, looking forward to it :-) take care!
Living it with ya for the last 10 years. Still deal with it. 🙃
I’ve been dealing with this for 5 yrs from mold and now Iam understanding what’s going on with my body to be able to get help from my dr mold made me extremely ill and almost killed me 6 times I don’t even know where to begin I no longer live in the home and it’s been a yr and a half and iam still suffering 😢 also my new apartment had leaks as well previously now I’m highly sensitive to mold 😭
Did you happen to do the genie test from ProgeneDX? If so was it worth doing?
How do we test for it
How are you doing with this? Have you been receiving treatment? Really hope you get better.
Hi Peter, thank you so much for checking in. I am so sorry that i missed your comment! I am now going through the Shoemaker protocol for treatment and am feeling better!! It will be something i will always have to monitor but i am very grateful for the doctors who are specializing in this treatment. Thank you so much for your support Peter!
Olivia, I am in the process of getting diagnosed with CIRS. I had been remediating moldy buildings for years and started to get very ill in 2019. I have been where you are at and have seen so many doctors with no results. I have been treated for LYME with no results. Have you taken the ACS test? This is one of the indicators that you have the mold issues.I have had COVID twice as well as pneumonia. I am trying to make a decision on where to go to get help. Can you provide who you are working with doctor wise? Appreciate anything you can help with....and GOD bless you for a healing.
Hi Kevin! I am so sorry that you are experiencing this as well! I have learned so much since the making of this video and I would love to help you in your healing journey as much as i can! My husband and i made a few more videos as we have learned more. We also will be sure to update soon on our recent findings. I have the link below to the other CIRS related videos and i also have an instagram page, @CIRSSupport where i laid out my first steps to finding answers. Now we have unfortunately gone though a few docs to find the one we are with now. His name is Dr Heyman. His first appointment price is defiantly expensive but then his follow ups are average for docs specializing in CIRS and he only has you book an appointment if you NEED it. Some docs we went to required every 4 weeks to have an appointment that cost $250 each. Overall Dr Heyman has gotten me to a place in my health i have not been since my health started to decline which feels really good! I really hope these videos and the instagram page can help! czcams.com/play/PLlBYOhiAI-ZuNBCxMX7Pr9S9ZrL72ktlz.html
Is he Andrew Heyman there is another doctor for confused which 1 u go
My son Christian Navarro is diagnosed with CIRS also.
are u doing a mold detox kit ? i’m so tired alll the time and my body aches , my anxiety and mood swings are too much sometimes , help beside my mold kit and going gluten free , dairy and sugar free what else can i do ?
thank u
Hi Kutima, I am so sorry you are going through this! I have a few videos about my process so far and I’m going to get some more updates out there soon. The playlist link is below. But the absolute best site that helped me was surivingmold.com . It has incredible information about what steps you can take to get back to health. Please let me know if you have anymore questions in addition to these videos. I’m going to post an update shortly as well. You are not alone, you are strong, we will get through this! I will keep you in my prayers ❤️💪🏼🙏🏼
czcams.com/play/PLlBYOhiAI-ZuNBCxMX7Pr9S9ZrL72ktlz.html
whta where the exact steps to heal from it? because i am totally stuck :(
Jasper Gabriels I am so sorry you are struggling! I was able to find a specialist and a lot of amazing information on SurvivingMold.com On that site they have the action plan and so much information to provide hope! I will keep you in my prayers that you can find some answers and healing. Please let me know if there is any way I could help🙏🏼
Just got diagnosed with it after a 1 year battle to understand what is wrong with me
Praise God you were able to take some stuff starts healing. How did you get diagnosed? I currently am suffering really badly and have no idea where to even start.
What’s the gene called?
❤️
Also, what do you think about Andrew Heyman? My impression is that he seems to have taken Shoemakers work a little farther. Thoughts?
Hi! I’m so sorry I missed your comment!! I have a friend who is going to him for treatment and has been really pleased with his treatment so far!! I have enjoyed reading his research as well as Dr Shoemakers!
i just started seeing him!
@@kristih911 how is it so far? I’ve seen mixed reviews about him
I just want to chime in here, I tried the heyman protocol with my mum and i would say it nearly killed us
@@cmrairlines8488 could you elaborate
I was just diagnosed with CIRS and PICO. Its a nightmare.
I am so sorry you are going through this!! We WILL get through this!🙏🏼❤️
What is PICO?
Please help me. I have this condition but idk where to begin. I'm suffering really badly and don't know what step to take. Any advice?
Start taking charcoal pills and bentanite clay orally. I am on the Dr. Shoemaker’s protocol and my doc recommended that first thing. Take them together. Also take 3-4K mg of omega3s. But don’t take your vitamins 4 hours before or after you take your charcoal bc it won’t absorb properly. The charcoal & bentanite clay are binders, so they will start detoxing and binding the toxins so you can flush them out of your system. The omega3s are to repair and oxidize your cells to help with fatigue and heal the damage. Do this every day! If you stop it won’t work. It takes 6-12 months to heal yourself from CIRS. Also, if you are still in a moldy environment it won’t work bc you’re constantly re-exposing yourself. There is other medication that a doc has to prescribe but you have to see a doctor who is trained in doctor shoemaker’s protocol. That’s the detox program. I see Dr Lyday from the Lyday Center if you want to look her up. Tell her Sarah Ordonez recommended her❤️ also, if you comment your name I will be praying for you as well!
Did you ever find a functional practitioner to help you?
So the gene is aspergers ADHD and hypomobility is the link
HAVE YOU GUYS NOT BEN INFORMED OF DR RICHIE SHOEMAKER & DR ANDREW HEYMAN
CIRS DIAGNOSTICS & TREATMENT PROTOCOL??
Make sure you watch the CIRS SERIES ON CZcamsS BY ANDREW HEYMAN
Thank you for your comment! I am actually a patient of Dr Heyman now and seeing wonderful results! I hope you are doing well!
How are you feeling now Olivia?
Has the protocol with Dr Heyman helped a lot? I’m trying to get started with testing and maybe CSM soon 🙏🏻
What is Dr heyman's website and what state is he based out of?
Aren you working with an integrative doc? I think detox is necessary for people like us
Hi there! I am actually seeing Dr Heyman now and i have been feeling soooo much better! His first appointment is expensive but he only has you schedule follow ups when needed. Some other docs i saw made you schedule every four weeks and pay the $250 every appt. I would 100% recommend Dr Heyman. I hope that your on the road to health and doing well!
@@OliviaFarabaugh I’ve just been diagnosed too - and have been watching all of his videos on CZcams. It really helps keep it all straight. So grateful that he’s shared all of that information. The clinic I’m going to (in Canada) does research with him. Hopeful for your recovery.
How does CIRS differ from MCAS?
ive been treating mcas but there is not cure. cirs at least mentions the underlying causes.
@@zacharyspurgeon minerals TMS work
CIRS is what sets off MCAS. Your immune system from the chronic inflammation leaves you in constant state of fight or flight and thereby floods your system with histamine to fight off invaders… unfortunately it’s so overwhelmed that it can see healthy organic whole food as bad and leave you with food intolerances. I have both. 😢
Mold
You look way too healthy to be dealing with CIRS, sorry lol. Mold exposure destroyed my health & my appearance.