An Olympian's journey with Factor V Leiden: Rebekah's Story of Hope
Vložit
- čas přidán 8. 09. 2024
- Inherited thrombophilia, a condition most frequently caused by Factor V Leiden (G1691A) or Factor II Prothrombin (G20210A) gene mutations, is a predisposition to develop thrombosis and potentially lead to Venous Thromboembolism (VTE). Evaluation of a patient’s risk for hereditary thrombophilia through Factor II and Factor V genotyping is critical for the diagnosis and clinical management of patients with thrombophilia.
I didn’t know I had FVL until I had a stroke last year in January. It’s a crazy reality and journey. Thx for sharing your story xo
glad you found out and are very lucky to be alive ,a good friend of mine just passed away from a pulmonary blood clot and he was a marathon athlete
:/ .thank you for sharing this video
I've nearly died from this disorder. Thank you for sharing! I'm 39 and I was diagnosed with this disease around early 30's.
I had three blood clots in my right leg when I was in my late 20s. It was only years later when I wanted to try and conceive that I had my blood tested and came back positive for FVL, luckily I’m a heterozygous carrier. I was on the birth control pill when I had my episode so expect that was the catalyst. I’ve since given birth to a beautiful son, who is now three; I injected clexane throughout my pregnancy and had a good experience, with a healthy delivery.
Do you know if it's okay to take vitamin K2 with this gene mutation?
Sounds very similar to my experience. I knew I had FVL, I had two bouts of DVTs, but never a PE. PEs are so often misdiagnosed. I was told I had allergies, and the pain was from a back spasm. Plus I tested a couple of times for COVID because I was having breathing issues. Finally after having real trouble catching my breath the manager took me to the first aid station at work. They did BP and blood oxygen reading. The attending PA looked at the number and said, "Call the ambulance." Spent a week in the hospital with a heparin drip. Now on Eliquis probably for life.
Two notes. Everyone has Factor V, or they would bleed to death. What we have is Factor V Leiden, which is a mutation of Factor V that make the clotting turn off mechanism not work very well. And here is the fun part. This mutation is thought to have originated in eastern Turkey thousands of years ago. This means all of us who have this mutation are cousins. We are one big happy clotting family.
hey iam so sorry to hear that i have aquestion when you got clott in your lungs before that you eat Revoraxaban ? or not ? i want to know if revoraxaban prevent you to got clooted on your body or not and i have this disorder too i lost my one kidney when i was 6 and when i was 6 they dont know why my blood cloted and in my 20 i got dvt then they undrestand i have that disorder realy hard life for me 🖤
@@iphdi-ha8682 I never took revoraxaban, which is sold as Xeralto. I took Apixaban which is sold as Eliquis. I took this to help clear the DVTs and it did, and then I stopped. But now after two DVTs and the PE I take Eliquis everyday. It has been 2.5 years since the PE and so far no DVT or PE has recurred. I think Xeralto would help prevent recurrance as well. They are similar drugs.
@@scottsutoob you have to use it for the rest of life when they realised th dvt at first time you should not stopp it . i got clotted when i borned in my both kidneys and one of my keidneys stopped working and they take it out but in that time they did not know about Factor 5 leiden and after that in my 20 i got dvts after that i eat Rivoraxaban every day .
Where did you get this info about the mutation starting in turkey.
I heard its common in European descent but I have it and I don't have European in me
Had a stroke in2013. Went to ER in 2023. ER doctor said looks like a blood clot so ran a test. Came back negative. 3 months later went to vascular surgeon who diagnosed 2 blood clots big as the state of Texas. Ran yet another test and diagnosed factor v leiden. Wow
Thank you for this. I was misdiagnosed at the emergency room on Super Bowl night in 2015. I got an ultrasound on Fab. 10th 2015 and the told me not to go home and go straight to the emergency room. I had a blood clot in my left leg starting from my ankle all the way up to my upper thigh, and clots in my right lung. I had been on birth control for only 3 months. My hematologist told me that I have both Factor V and II. I was only 27 years old, and they also told me that if I had not come in when I did, I would have died.
7 years ago I was diagnosed with FACTOR V LEIDEN, having miscarriage every time was a horrible and shameful thing to me and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including FACTOR V LEIDEN , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for FACTOR V LEIDEN and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now Free from FACTOR V LEIDEN ,ever since 6 years now i not experience miscarriage again am now having my babies peacefully all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by contacting Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I'm 78 years old and two years ago I had covid and a month later I got clots like you describe. I already knew that I had factor 1V. they put me on Riveroxiban and kept me at ER overnight. I was lying there thinking, "Well ,Lord, if you want to take me home to heaven, that's ok." but I made it through.
I am so glad you are ok. Factor V caused a DVT in my leg, and a great doctor saved my leg and life. Currently on a light dosage of Eliquis and I am healthy. Keep trying. You will be fine. everyone should be aware of the signs of blood clots, including PA’s and Doctors.
Thank you for sharing your testimony 🌹
My husband was recently diagnosed with FVL never had an issue with blood clots and then he started noticing pain in his calf and thought he pulled a muscle at work. Few weeks later pain was unbearable went to the ER and they found blood clots in his legs and lungs. Multiple test later they diagnosed him with this FVL my husband never had an issue before. His mother suffers from blood clots as well and never knew of this condition she is from Danish decent which this factor is common in European cultures we are told. The only solution is for my husband to be on blood thinners for the rest of his life. Which is hard pill to swallow going from being a healthy man to have an incurable blood disorder.
I had a PE and it’s very traumatic! So I completely understand I tell people all the time it’s serious! I have factor V as well.
I had a blood clot in my lung when I was in a car accident and I had to take anticoagulant medicine to get rid of it and I was diagnosed with LVF my family has it, my sister, my nephew and some of the other people in my family. But I’m not on the blood thinners anymore because I am doing well and I’m not having any problems. I have Epilepsy and EDS, too.
i was just diagnosed with factor 5. I woke up one morning and could barley move or breath then 2 days later I was coughing up extreme amounts of blood. the hospital thought I was having a heart attack. they did the cat scan and I had small air pockets and a blood clot in my lung. 6 and a half month later I'm still feeling some of the chest pain/preasure.
Ate you currently on anticoagulants?
Some people are on for life others are not. Many people have factor 5 and never develop blood clots
Would you happen to have any more info for athletes? I am 51 but I live jiu jitsu (no gi), wrestling, etc but now they say I have FVL and have to be on blood thinners the rest of my life. I had competitions I wanted to go to so I am wondering if there are options like coming off blood thinners for a short period of time, etc? Any links would help. God bless!
I know of a doctor who will help you get rid of it permanently because he also saved my life.Doctors whatsApp info :+16232634799
Email: Dr.o.osemuahu@gmail.com
i was born with factor v leiden aswell
do you use revoraxaban ?
Hi, my husband has lieden factor v. How do you manage the condition to keep the symptoms to a minimum?
My eating right and taking your medication it's still hard to keep them to a minimum they come and go
As God said to Moses, “KEEP TAKING THE TABLETS!”
I was at home and doing my makeup after going to the gym. I had NO energy, hard time breathing, but I went to work.
I was waiting for my next client outside my room, struggling for breath, and mycoworker noticed my lips were blue. I didn't realize how bad it was. I was taken to the hospital and had a pulmonary embolism at 30. My father passed from a stroke at 46. Distressing.
❤️