ARDS Patients and Post-Intensive Care Syndrome

Patients who survive acute respiratory distress syndrome (ARDS) often leave a hospital intensive care unit with debilitating mental, physical, or cognitive problems that may limit their quality of life. Samuel M. Brown, MD, lead author of the new study and director of the Center for Humanizing Critical Care at Intermountain Medical Center, spoke with ABC4 about the impact the research will have on patients and families.

[@SECONDHANDUSA]

Yep I can't do half of the stuff I used to do but people don't understand and don't get it. Can't even get disability....

[@michellemilford6219]

How or where can I get help with/for my issues and suffering after having ARDS? It has been quite some time since my battle with ARDS (December 2013), but I am still not getting any better and seem to still be declining physically, cognitively, and emotionally. My doctors all know my history, but they just don't talk to me about it and maybe don't realize how much it has crushed my soul and has traumatized me.

[@paulsecon2131]

Michelle Milford This is one debilitating condition even after you leave the hospital. It took a long time to fully recognize the phsycological ramifications and now, years later I finally am reaching out for support. Anybody have Info in the Manchester Ct. area?? Any info would be greatly appreciated

[@lindahubbs8146]

Yes, same experiències. Its a terrifying experience, then forgotten by family etc. I feel alone..

[@dmorgan6503]

2019 for me
just falling through the cracks with the doctors.
my body and my mind just keep getting worse.
doctors are so compartmentalized
they dont look at the whole picture