I believe my mother's side of my family all had it due to symptoms that lead to there passing and all my health issues from a child up to my age now 40 and my mother was the sickest and just gave birth to me with full blown dermatomyositis
Hi, hope you are still doing well. I've been on my own with severe muscle weakness for over three years now and cannot stand up to brush my teeth or anything else. I am undiagnosed but I think I have this. I can't find any doctors to help me. You are very lucky you found one willing to figure it out.
I have had Dermatomyositis and the only thing that worked for me was the IVIG. My story is a bit different from yours and I've had a whole lot of issues from it. I would love to meet someone who knows what I'm going through. Did you ever have calcium deposits?
Lil Mama What I was just diagnosed after 15+ years. I have a few calcium deposits in my arm muscle and my leg muscle. I knew I had lumps on my leg and arm but my primary care doctor said they were nothing. So I never mentioned them to my neurologist it rheumatologist. I hope you are doing great with treatment now a year later.
I live in Dallas Texas and I have the same problem Can you please tell me what's the name of the Dr They do all the test and everything looks good but I know I am positive for ANA and lots of redness on my face and joints pain
Thank for telling your story. 🔆
Thanks, I have just about everything you mentioned
I believe my mother's side of my family all had it due to symptoms that lead to there passing and all my health issues from a child up to my age now 40 and my mother was the sickest and just gave birth to me with full blown dermatomyositis
Hi, hope you are still doing well. I've been on my own with severe muscle weakness for over three years now and cannot stand up to brush my teeth or anything else. I am undiagnosed but I think I have this. I can't find any doctors to help me. You are very lucky you found one willing to figure it out.
How are you doing now...hope all is well
IVIG THERAPY
😊I better check this out.
Pulmonary medicine checked for it, my PCP ignored me, keep searching for a doctor who will listen.
THANKYOU!!
God bless you sir
😮this is almost EXACTLY me. Gotta get back with Neurologist
I have had Dermatomyositis and the only thing that worked for me was the IVIG. My story is a bit different from yours and I've had a whole lot of issues from it. I would love to meet someone who knows what I'm going through. Did you ever have calcium deposits?
Lil Mama What I was just diagnosed after 15+ years. I have a few calcium deposits in my arm muscle and my leg muscle. I knew I had lumps on my leg and arm but my primary care doctor said they were nothing. So I never mentioned them to my neurologist it rheumatologist. I hope you are doing great with treatment now a year later.
My sister has it and we’ve been thinking about trying IVIG. How much did it help you?
I was diagnosed at 8 years old
I had about 24 times ivig and it helped
I live in Dallas Texas and I have the same problem
Can you please tell me what's the name of the Dr
They do all the test and everything looks good but I know I am positive for ANA and lots of redness on my face and joints pain
Have you been diagnosed with Lupus?