2021 CRPS Awareness Month Videos
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- čas přidán 6. 12. 2021
- Special thanks to CRPS Warriors Christine, Breanna, Gina, Kim, Megan, Shannon, Simone, and Kelly for creating videos for our 2021 CRPS Awareness Month campaign.
To learn more about complex regional pain syndrome (CRPS) and reflex sympathetic dystrophy (RSD), visit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)’s website at rsds.org.
#RSDSA #CRPS #RSD
It's so awful to hear others have CRPS since I wouldn't wish this on anyone. At the same time, it's also comforting to hear others also have the same experience as far as sometimes struggling to remember you're still human, rest days are necessary even when you don't want to admit it, etc. Thank you for sharing your stories. CRPS is the worst torturous club to belong to, but I'm sadly grateful to not be alone in it. ♡
First time listening to any of these! 37, living in 🇨🇦, 8 years in with CRPS. Grateful for the support and advocacy I see happening here. Will have to delve more into the videos, but WOW. Haven’t felt this seen and heard since everything started. Just fractured my ankle so I have a bit more time to lean into this. Thanks to everyone putting themselves out here and wishing much love and spoons to you all.
Happy to hear this, Brette. We are always in contact with our friends at PARC (rsdcanada.org). Let us know if you ever need anything! 🧡
Thank you for speaking frankly about living with CRPS. I live in 🇨🇦, just diagnosed this summer, and still trying to understand how to cope with the pain while managing activities of daily living. Thank you for providing your personal insights.
Sending you love, Jana. Let us know how we can help.
22 years full body CRPS and it did spread from my ankle to my entire body during six consecutive surgeries. Last surgery I literally flatlined in the hospital died went to a coma came back was told I would never walk again was bedridden literally for over 8 years then stuck into a wheelchair and then with the power of spirit and hope and whatever created us and plant medicines was able to walk again for the first time after many years of bedridden.
Was told I would never walk again and I can walk very short distances.
Still being stabbed and burned alive in every cell of my body from CRPS though.
That's what it feels like and being broken physically your bones on top of that at the same time
It's literally the worst most painful disease known to the human species
Worst pain on Earth. We're happy that you're still here with us through it all.
I have CRPS and it would be nice to get real help from RSDA. CRPS, poor medical care, and zero help is causing me so much distress my heart is failing. My death is imminent. Peace to you all.
How can we help Michele? We can connect you with a new physician who may be able to help you with different treatments. Email us at info@rsds.org.
🙏 Prayers for you and best wishes