Complex Regional Pain Syndrome(CRPS) Episode 55
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- čas přidán 21. 08. 2024
- Have you ever treated Complex Regional Pain Syndrome? If so, you know how important it is to recognize this devastating problem early. If you haven't ever treated it, then you need to listen carefully to this episode.
-Understand the importance of early recognition.
-Treat this with a team approach.
-Know how treatment of CRPS is different then treating other orthopedic issues.
Be sure to follow us on CZcams to see real patients with real diagnoses. / @orthoevalpal
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Ty Father I found this doc. Ur vid alone is giving me hope again. 30+ yrs of RSD & in hospital now. I've tried everything & tryin not to give up n go home to God. Bless ur heart for just makin this vid & giving this ole gal some hope. Thank you 😊 💓
Great information and having CRPS since 2014 there MUST be a whole-patient approach to this horrific syndrome. Thanks for helping your medically trained peers understand to go slow with us or we'll be even further down on ourselves with not being able to meet attainable goals physically, no matter how much we think we can mentally. For me, I do not think of my leg as "my leg"" anymore, ever since it failed me, broke, and has literally fought me ever since my injury. The mental anguish, constant exhaustion from being in agonizing pain every moment, CRPS is the Mt. Everest of mental tenacity and each day is approached like a technical climb in order to be successful. Thanks so much for posting Mr. Marquis!
As a sufferer with CRPS type 2, I believe due to the debilitating pain and dysfunction, the effects of the "disease" is eventually depression and isolation and feeling as though you're not understood. It's like screaming and no one is listening. At least it has been this way for me. Depression was inevitable for me, someone who was otherwise a happy, positive active, athletic person. Your life and abilities get ripped away and of course it leads to depression, anxiety, PTSD, etc. I do not believe mental illness has anything to do with the development of CRPS, but that CRPS CAUSES these mental health conditions. It's agonizing to be in relentless pain and it absolutely takes a toll on me mentally. I'm just watching my life slip away and I feel powerless and unable to fix this. I watch my body waste away, getting worse and spreading and the lack of sleep, stress, tension from pain, spasms, etc just make it more and more difficult as time passes. I'm a 36 year old mother to 3 kids and I definitely have a difficult time processing and accepting that this is the new normal and that I may not get to do the things with my kids that I once imagined. The life I once had is gone. There needs to be more treatments for this that do not cause more damage. I basically was told there wasn't much else they can do for me, but treat the pain (which doesn't even work) and that it's a lifelong condition. I am definitely struggling with accepting that. The isolation is also very real and I wish I knew just 1 person who knows what this feels like. An actual patient. I feel so alone in this. We need awareness about this chronic pain condition because most people dont even know what it is.
About Gabapentin, for me it did not do a ton for the pain and the side effects are horrible. The thought of a tens unit made me cringe. I already feel like I'm on fire all the time and a zap near my damaged nerves sounds like torture. The nerve conductivity test was torture as well, along with every time I shower, or my husband accidentally brushing against me or a gentle hug. I can't even pick up my baby, so yes it definitely can effect you psychologically. An amount of touch or massage is excruciating, am I just in stage that has progressed too far to try massage? My doctors at this point don't recommend PT, just restoring as much function to my arm due to it in the beginning contracture phase.
So sorry to hear about this. Yes you are completely correct, this syndrome is devastating. Did you have a chance to read previous comments? You definitely are not alone. There are people out there who specialize in CRPS. I would continue searching for help. If I can find the name of a specialist I had gone on a course with, I will forward it to you.
I have CRPS if you wish to have support. I have done much research. I suffer too. I can't walk due to deformity knee. I am improving. I have videos here.
Hi I’ve been diagnosed as well.I feel roller skating in March broke my wrist and now I’m in so much pain I can’t even work
I understand because I suffer. TENS is not like a nerve test. You can dial up or down stimulation & it works. Try it. There are also different qualities of stimulation that you can try. It's in your control
It has been almost 14 months since my fall. I am now on a cane after being unable to walk for over four months. I've researched countless hours of material. This is in the top five of beneficial advice. Bless you! "I'm a little French so I talk with my hands alot." Lol. My maiden name is Brouillette (born and raised in New Orleans, La).
I hope you feel better soon! I hear you about the talking with your hands. I am Franco-American from Northern Maine. We probably speak the same French.
@@OrthoEvalPal You made me chuckle at the end of your video your talking with your hands. A wealth of knowledge. Take care and thank you for the get well wish.
@@OrthoEvalPal Paul, I developed a KFC which is now measuring at approximately -2 from a -35. The left quad and hamstring are smaller but are no longer atrophied. Cellulite /dimples are in the left leg compared to the right. My concern, or rather question is, how long before I will be able to walk on my left leg without a limp? Where are you located by the way? Thank you for any feedback.
@@Lexilea68 I would continue to aim for 0 degrees of extension. Do you have pain when you weight bear? Limping is often a learned problem. I recommend thinking about spending more time on the affected limb when walking. I can't give a time frame since I haven't seen you. I've been able to change someone's gait in one visit and others can take months. I'm in Northern Maine.
@@OrthoEvalPal November 3rd is one year post injury. I do have pain with weight bearing but it has improved each month. It's pain and stiffness in the kneecap area. I force myself to walk straight to practice but more like fake walking straight. Your feedback regarding learned limping is very encouraging to me. I try to trick my brain and treat my leg as if nothing is wrong with it but I know that's not truth. I do wish you were closer. I would pay for your services; namely, advice and encouragement.
Great podcast, I'm a student PT and I'm dealing with a patient right now who I believe is suffering from this disease. Will definitely plan to use a lot of the techniques you went over in this vid
Really one of the more informative videos on this kind of condition I've seen. Thank you so much every little bit of education helps and this was a god send.
I have type 1&2. Denied SSDI 3 times . Everything’s way worse off now From financial stress , overwhelming evidence of disease progression , four years of medical paperwork , had to hire a lawyer . I’ve been in pt for four years off and on .
What a nightmare .
Makes total sense about a psychological stress component contribute to the development of CRPS. It is the nervous system. I developed in my leg a most compelling case as quoted by my doctor. I developed a KFC. It has slowly began to straighten. I have videos on my channel of knee contracture. Thank you for sharing your knowledge.
You are welcome!
CRPS is not linked to psychological problems per the peer-reviewed literature.
Hi Lauren, I will not argue with the literature. I will say though that EVERY one of my CRPS patients have had more underlying issues than the rest of my patients. I have had a few where the CRPS definitely contributed to psychological stress as we would assume because the pain is unrelenting, they can't sleep, they can't function, they often can't continue to work etc...Thanks for the feedback. Best, Paul
I got stabbed multiple times from behind causing lots news damage
I know have CRPS severely and I have never had my pain completely dealt with or conditions it caused me I can understand why it has high suicide rate after 28 years of leg and buttock nerve damage now I’m more or less bedridden I hate it and no one understands at hospital I now has head to toes conditions inside and outside my body I MISS ME SO MUCH😢
This injury was in 1980 so it has even traveled to the other side and legs from a car accident in 2002.
There is a chronic pain focused peripheral neurosurgeon in Las Vegas who has cured a number of people with. RPS. I am one of them. I was crippled, homebound and used a wheelchair for 27 years. He disconnected the damaged peripheral nerve that was causing my symptoms and I walked painfree the following day. See my video CRPS PAIN GONE AFTER 27 YEARS and another BEATING CRPS. People need to know this. Maybe you could interview him for a segment.
Glad you are doing better Sunday. I will consider it.
Well what is his name?
Dr. Tim Tollestrup. If you watch the videos you’ll see him.
I suffered from RSD when I had a AC speration in my right shoulder. My hand turned so cold and I couldn't move my shoulder. After hospital and my Dr I was diagnosed with RSD . Have done every therapy ,chiropractor, and never got better. Thermography testing showed the arm and hand was black inside .
I have tried to explain the “pushing through it is the worse thing I can ever do and it’s from a decade of personal experience” to someone who actually works in ortho. He keeps telling me how he has seen CRPS patients so he knows. I have CRPS 2 75% of my body since 2009. Unfortunately he doesn’t see me as an authority on this.
Explains why after my surgeries after getting CRPS that I had a hard time healing. Needed more medication than normal and my Dr said no more meds for you…😔
I had an 8 inch tumor inside my spinal cord. It was bad before they found it. After they pulled it out it spread to another level of hell and I was paralyzed. I am still trying to find help. I have been to UCSF, Stanford, UCLA, etc. St. Mary’s helped me and the cdc ended that help and offered no alternative but ridicule and lies. I need help.
I have this in my chest after a thoracotomy. It’s excruciating. I have yet to see anyone else with it in the chest area.
I live in agony,bad car wrecks really messed up my neck.
I had two spinal surgeries and that just made everything worse I can't have anything on my shoulder or it just hurts so bad like clothes I can't wear a bra or anything tight on my shoulder my back and my arm I can't have blood pressure on my left arm I can't get blood taken out of my left arm it just hurts so bad and some nights I have to shake my whole body I have to fling it because of the nerve pain is so bad in my arm it is just unbearable I suffer from insomnia due to the pain I had to sleep study done and after two spinal surgeries fusion most of them and replacing to now I'm worse than I was before the pain that I live in the muscle just pulls my whole side of my right body towards my left my head goes towards my left side my shoulder is up by my ear that's how tight the muscles pull and it's non-stop it never stops it never goes away the pain did I've been living in since around 2007 when it really set in and I became bedbound it is just unbearable over time it just got worse and worse and worse to where my spinal cord is damaged because of it I did get the okay to finally get the pain pump put in but there is not one doctor or not one hospital in Florida that will do it and this has been going on for 3 months trying to find a doctor and a hospital that would do it!!!
So I went to the ER doctor the podiatrist (foot DR) and the Doctor of physical therapy they all say I’m having L4 L5 S1 Radiculopathy sever pain in my foot stinging bubbling pain stabbing pain it’s not hot does not sweat is not red or shiny thinning hair on affected leg but not bad I can walk it just hurts and I went to a pain clinic doctor and he said I had this condition. So it’s 3 Vs 1 so you have any ideas ?
Thanks for the useful information. Have you heard of anyone having CRPS in both legs at the same time? I had an epidural steroid injection 5 years ago and have had the same burning and crushing pain you describe in both legs ever since, it has not stopped for even one second. Could this be type II CPRS? Thanks.
I should add that the injection was very, very painful and the needle was repositioned multiple times, each time excruciating. I had lots of symptoms with 24 hours that made me think something was damaged by the injection.
I have excruciating pain in both legs.
@Brooksie Conery So sorry to hear that. I hope you find some relief or that it at least reduces over time.
Yes, this is possibly. My partner has CRPS in both legs.
@@yeetexplainsandgames7787 Thank you, I hope your partner is doing ok.
I am allergic to antiptimine is there any nerve pain medication that does not contain this?
Not sure. You may want to ask your pharmacist
Where is the file/link for download?
help me die
Try to see a pain specialist, maybe even a physiatrist.
Time has been on my side. As has diet changes.
Ok...well what if your me. I have had crps for about 11 years from a horrible wrist fracture was on a cast almost a year hand is now a complete ball etc I don't respond to nerve blocks like cortisone shots or gabbapentin had it in many different doses. Tried other stuff been on anti depressants . Some work for a week sken do nothing. I've had methadone for pain different opiates and only 40 mg oxycodone and Percocet for breakthrough has ever helped me. Ever. I've also tried katamine iv from pain specialist. Nothing works. My nerves r shot. It has also spread to opposite lomb enotre ark to shoulder. Broken sleep. Apple of it. Again have diagnosed for years . What do I do. I'm not on any medication at this point everyone just says can't cure it srry .