Hello! I have a question. I am planning on doing a research on the relationship between physical activity/sport with the alleviation of motor tics of individuals with tourettes syndrome. Do you think there is any link between these two?
is there a way to predict the severity in a kid whose parent has Tourette’s ? If someone has a mild case would their kid also get Tourette’s and would it be mild ?
hi i wanted to know if tourette syndrome could also appear in late teen years without having any signs suspicious during the childhood ? (it's really important for me so if you or anyone in the comments have the answer, please give it to me)
@@yo-jc1we It can! The diagnostic criteria only requires for tic onset to have happened before age 18. My tics appeared very suddently at age 15, and one year later I got diagnosed with tourette's
I have Tourette’s and I am only 11 it’s very hard to live with Tourette’s, I do it in public and it hurts my neck so badly over time and one time I thought I was crazy because I do weird things, it’s very hard for me to describe it to others and not get made fun for it. I would be called Hailey the twitcher and whenever i had a tick they’d say tic tok next ones coming Hailey. My friends have been so nice and say they start to do tics aswel whenever I’m around.
Is it like a head banging thing where you give yourself whiplash over and over again? I have Tourette’s too. I would say I have very mild tics, right now I have a tic where I squeeze my eyes shut for about a second or less, I’m starting to do it so much that my eyelids are starting to twitch. ( I’m 13 btw )
@@averymatisons4133 not a head banging more of tightening my neck and stretching it forwards, it causes my muscles to hurt and be sore, also my third ever tick was tightening my eyes and stuff it does go away over time I noticed ticks come, leave then give a new tick and after you have a ton it just switches through again and again for me at least, they fade away when u get older I was told but ye-
hi! i also have tourette’s and have been trying to meet people in the community around my age (12) so if u don’t mind me asking what’s ur insta/snap/tiktok thank you!
I still remember when I was a kid, my parents actually brought me to some religious leader because they thought I was possessed lol. Tourette's sucks and I've hurt my neck several times because of it, but I'm glad mine has never been serious to the point where I tic in public.
This is the best video i've found about TS. My tics are very similar to yours except I experience more vocal tics. It's crazy how little the average family Doctor knows about TS. I've had it my whole life but wasn't diagnosed until 29 because they always said it was a bad habit I would grow out of. I was finally in a position to seek diagnosis myself last year and it's been so rewarding to allow myself to just be more okay with ticing. Now if someone asks about it I have a definite answer and can educate them when they inevitably say "oh isn't that the thing that makes you cuss?!" Before I would feel embarrassed and say "idk why I do it. I just do." which didn't make me feel very empowered.
I used to sit close to a teenage boy on the bus for about 2-3 years. He made sudden noises and at first I thought he was being silly and I may have been startled when he did it again. I wondered if he was trying to get bad attention. But as the weeks continued I observed that his noises where involuntary and accompanied with sudden involuntary movements of the face and neck (or the noises accompanied the movements not vice versa). I was pretty certain he was not mentally ill or even sick, just seemed to have a movement problem. It looked pretty similar to what my high school math teacher had, but the teachers symptoms were less severe than the boy's. I was glad to see that the teenage boy had some friends. And he seemed to have less symptoms when he was glued to his phone playing video games. I off course, cannot know for sure. But can only guess it may have been Tourette Syndrome. What bothers me is the need to have such conditions diagnosed by mental health practitioners when it is not 'mental' but a physical condition.
Thanks for sharing these stories, Vaneshree! Based on your description, it indeed sounds like your bus peer was showing signs of TS. I appreciate you being so open, too. Mistaking tics for bad habits is quite common. But after a while, folks understand they're involuntary and almost stop noticing them. At least that's what people tell me. I hear you about the diagnostic concern. "Mental health" is an interesting term, because the work spans emotional, behavioral, and neurological concerns. While TS has neurological foundations and emotional impacts, its symptoms are purely behavioral. Collectively, it's hard to neatly categorize TS as a mental vs. non-mental condition.
I once asked someone if they were ok while they were ticking. It was genuine concern. I wanted to make sure they weren't having a seizure or something to that effect. It was actually a kid who was somewhere between 10-12. When I asked they told me it was Tourette's Syndrome. I just responded with something like "Ah, ok gotcha. I just wanted to make sure you were ok". For that person to be like "Ok, don't swear at me" is rather insensitive. Though it can be a good time to educate people. There's someone else I have crossed paths with that was making a sound that sounded like a soft sneeze. I always wondered if that was a tic but I never asked.
Shirag, Thank you for sharing this video. I am a physician but learned an great deal about Tourette's from your post. I hope many people have the opportunity to see it and learn from it. Ken Montgomery MD
I have a neighbor with what I assume is Tourette. His vocal tics are sometimes extremely loud and incessant, all day and much of the night. I cannot imagine how he can stand it. I don’t know him as he keeps himself to himself but it has made me interested to find out more about Tourette. Thank you for the infos.
@@cindy6576 I'm not into "late" adulthood yet but I'm 30 and mine is still going strong. lol. Luckily mine isn't disabling and I live a pretty much normal life.
i’m 16 and i’ve had my vocal and motor tics for over a year now. but i’ve always had small facial motor tics growing up. i always feel like i’m faking my tics because i’m able to suppress most of my tics kind of easily (i suppress when i’m out of my room or when i’m near my sister because my toxic sister doesn’t know about my tics and i’m not ready to tell her). i haven’t been able to see someone for my tics yet but i’m going to see one soon. i just really hope i’m not faking because it feels so real but i still feel like i’m faking it for attention because i’m able to suppress so easily and i don’t get much of a feeling before i tic sometimes..
What an incredible well explained video, Sir! Thank you for that! One questions that I would be interested in is, how did your Tourette develop? When was the worst period in your life and when did it become better? Right now I am 22 and it feels like my vocal tics are worse then usual (probably because of all the stress at work and university) Thank you for your response!
You're welcome! Glad you enjoyed it. To answer your questions: I'm not sure how my TS developed. Somewhere around 8-9 years old, I started making facial grimaces, and it took off from there. The worst period was probably in middle school and high school, which is fairly typical because tics tend to lessen in early adulthood in many cases.
This is such a great video for people to learn. I was diagnosed with Tourette’s syndrome when I was 4. I was extremely young and I had quite a few seizures as a kid. A lot of the Tics you did and also talked about I did. The weird thing is I have been doing the wrist click my whole life. I thought it was just because it felt good. I never picked up on it as being a Tic. I also got diagnosed with Anxiety about 5 years ago. I am 42 now. It’s certainly makes you tired on a bad day.
I am 18 and for for over a year now I’ve had a head/neck/face twitch and with that I formed the habit of saying fuck because of embarrassment. It gradually became more common but I shrugged it of as a flared up muscle in my neck. But after lack of sleep and being very drunk in a pub (a place I don’t go often because I get overwhelmed) I had a full on tic attack and had to be walked home because it triggered a breakdown and it also wouldn’t stop! So I was already anxious clearly and it got worse because I became more anxious. Anyway, the swearing I believe was a habit and the neck/face/head twitch are technically three different movements but most of the time they’re one big one so I have no idea what this means. I think for now I will avoid lack of sleep and stressful situations but I will definitely bring it up to my gp at some point because it’s not an easy way to live and it’s a bit alarming that they’ve become a daily occurrence.
Thx dude, when I’m in class I try my hardest to not make random hmm noises and try to not twitch my head, but sometimes it’ll twitch just slightly and I get really scared thinking that someone might catch me doing it and making fun of me for it
I hear you, Adam! I encourage you to share more about your experience with supportive friends. One of my favorite quotes from Dr. Seuss is: "Be who you are and say what you feel because those who mind don't matter and those who matter don't mind."
I’ve constantly wondered if I have Tourette’s or some sort of tic disorder. I’ve been ticking for as long as I can remember. My main tics were/are picking my lip and playing with hair. As time went on, I gained new tics including vocal ones. I’ve tried so hard to stop but I can’t. It’s gotten worse recently, but I’m making an effort to find answers 👍🏼
My sons best friend moved in with us and I now think he has Tourette’s . Loud screeching sounds and his hands and head goes crazy and he can’t control it. He’s 21 and never been evaluated or diagnosed. When I noticed and I asked him if he was OK and he said “I think I have Tourette’s” . He said this started when he was 12 . He dropped out of school, he can’t keep a job, it’s hard for him to learn to drive because as soon as he gets behind the driver seat the ticks start. This is very new to me, I need to get him diagnosed and I need to get him help. He wants help. He broke down and told me how people make fun of him, he’s lost jobs because people didn’t understand it, people are mean to him and my heart just breaks for him. I want to protect him. All these years he’s had no help so I’m calling everyone trying to get help and I seem to be hitting a wall. What do I do? Who can help ?
I also have had this experience. As a child, I had mentally abusive, alcoholic parents and religious grandparents that believed that I was possessed. As an adult I learn about it the more doctors and family will think that I don't have it and believe that I am imitating to get disability. Someone actually mention it to me when young and when young but now as an adult it is getting worse but I never got treated and cannot go to doctors due to the stigma, institutional racism, lack of insurance, and doctors believing that I just want to abuse the medication. I also don't have family or friends as a result.
Idk what to do. I've thought I had many signs of having it since I was very little. I roll my shoulders and move my neck alot and it's very much involuntarily. Idk what to do abt it. It's very hard to not do it but I don't want my parents to be weirded out especially since it's only become bad as I've gotten older. I also don't know how to approach the topic of "hey mom and dad I think I need to get this figured out" so yeah. When I was young I had a weird thing with my tongue that my parents just called a habit and got mad when I kept doing it when they asked me not to. I had a hard blinking one when I was abt 7. I also had a strange wrist moving and popping one since I was abt 9 and I had a weird one with a noise from my nose and one from my mouth since I was 6. I can't not do them but bc they were so minor for so long I'm worried my parents won't take it seriously. Anyways if you've read this far pls give me your input ❤️
I think i have vocal tics but not Tourettes. Because everytime i get excited (usually at night when my mom says somethings going to happen the next day) I squeeze myself and let out squeaks, long or short. I just am excited or have vocal tics, but i dont mind :3
I don't, and have never seen anyone with this condition. I had heard that people with tourettes curse. I just saw, again, a clip with that woman who pretends to have tourettes (to the point where she can't even function at all) and wanted to know how a person, that actually has tourettes, is like. Thank you for this video!
My tics happens when I exhale. After breathing in, I’ll hold my breath for a second and then exhale in a few short bursts, which makes a quiet mm..mm sound. My girlfriend said I sound like her ferret she used to have. I also have the eye blinking thing too. Most people don’t even notice my tics
@@averymatisons4133 Yeah, the only thing about it that bugs me is that sometimes it leaves me out of breath and I have to catch it again. That’s good you don’t have to deal with that one anymore.
Omg. How did I go undiagnosed all my life?? Oh yea, I grew up in an abusive and neglectful household. My symptoms started to my recollection by age 9, maybe. I was never diagnosed. But from what I AM studying it fits so much.
Why didn't they care enough to get me help? Instead of labelling me problematic, attention seeking, crazy, bizarre, wierd, annoying, disturbing. What the fuck????
I'm 16 and I got diagnosed fairly recently. I don't really mind my tourette's for the most part, except for the tics that make me hurt myself. My child neurologist recommended a therapy called cognitive behavioral intervention for tics (CBIT) and my mom and I have been trying to get our first appointment for over a month and we haven't been able to. When (if) I start CBIT, the tics I wanna work with first are self-injurious ones, as those are the most distruptive for me.
I hid my ticks because they make me high and I figured out that if I use a stimulant to rewire my brain constantly, all day. I have to over stimulate myself to reset my ticks. I figured out that the ticks trigger nothing without training.
I think I have this, but the more I learn about it the more doctors and family will think that I don't have it and believe that I am imitating to get disability. Someone actually mention it to me when young and when young but now as an adult it is getting worse but I never got treated and cannot go to doctors due to the stigma, institutional racism, lack of insurance, and doctors believing that I just want to abuse the medication.
I'm pretty dang sure I don't have Tourette syndrome, but maybe I have tics of some sort? They only happen in the morning or a couple hours after I wake up, and it's not always due to sleep deprivation, since sometimes I'll just do them when I've got a full 8 hours of sleep or not do them at all after getting like 4 hours of sleep. They typically just consist of me dropping things, slamming down items, shaking my hands, or sometimes throwing things. Since they happen typically during the morning I'll be eating cereal and slam down my spoon or throw it, or I'll shake a water bottle really bad when holding it or trying to take a drink, and I'll often just drop clothing items I'm trying to put on. I don't have any vocal tics going on though, so I'm sure it's probably not Tourette syndrome I just find it strange they only last within the first couple hours of waking up, as I won't do them at all throughout the day no matter how tired I become, they only happen after waking up.
Too bad many people online (Tik Tok to be specific) like to pretend to have Tourette’s syndrome because they think it’s “Quirky” and “Trendy”, luckily most of us can see through that BS
hmm I meet every criteria expect the 18 years old thing. It started at 18. tho I used to do weird things a lot. and I have autism. i have adhd and OCD too, and the urges you said. and I can stop them for a few seconds too if I focus. damn even the engaging stuff are true too. but it happens mainly when i'm nervous. when i'm nervous i tick like crazy, and i literally grunt "UUUGH" out loud if I am experiencing pain.
Hi, just curious, how do the random phrases that are spoken or shouted out happen? For example cursing, do some people hear the curse words from friends or family and then it comes out as a tic for the person with TS?
My worst tick is with face movement and eye blinking . It makes me tired and sometimes stress. Tried many times to focus and stop letting it to happen but it doesn't last more than 10 minutes. Got mocked by friends since primary school but getting used to it. :)
What is it like trying to find employment? I know alot of people discriminate against others with certain health conditions, and I wonder if it is or is a similar case for people with tourrettes.
Of course, everyone has a different experience, but many people with Tourette syndrome believe they are viewed negatively for having tics, including during employment searches.
Dear Sir . Thanks for sharing your story My son,5 years old, have a tic. I am so worried about his future. Will it get worse when he grow up? I took him to doctor, but he just advised to wait and see. It seems no medication I can do.
i move my neck up sometimes, and down in a jerking motion, and also move my jaw in a horizontal motion, also when i make sounds with v i like to still make the v sound to get the vibration in my lips more, and also i suck in my mouth and the back of my throat closes.. and also bob my neck and like idk its basically a low pitch sound with my voice and sounds raspy..
Ive always been curious, I've never seen a Dr, but I do tic I think, mainly shrugging of my nose/mouth, and occasionally shrugging my shoulders I can not do it for hours or it'll happen alot within a few mins, I used to clear my throat and do a little hm constantly earlier in life but thats gone thank goodness.
I have tics, neck and tongue movement. Through Tongue movement i make bubbling sound which is annoying to anyone nearby me. I have received much more embarassment because of that specially in front of children. whenever i study or focus on something, tongue tics begins. And thankfully neck tics happens whenever i am alone.
watching you video 2022 march.Just a day before.I am from Bangladesh. My 17 years old daughter has this syndrme since childhood. Most people including my othet family members. Says she do it willingly but I feel she has some major problem. Even some doctor psy critic of my country did not mention about this syndrome say habit problem? Can you suggest me any treatment she has some peculiar movement of heat hand and speak unmeaning fool words certain times.
I am 15 and I’ve jsut started noticing them a few months ago maybe 6 months ago they usual come out in a noise like “mmffah” and then my shoulders shrug before after or during the the “mmffah” I can feel them coming like an urge and it’s sorta uncomfortable however they only happen abt 6 to 7 times a day but I also twitch my eyes multiple times throughout the day I have a question do they sometimes feel like they are gonna come and then they don’t? Because I’ve noticed mine do
Me when I saw Peter meeting his crush be like: Uhm, will you go (impossible mph twitchy) on a (impossible mph twitchy) prom with me (shoves girl into locker about 200lbs.)
Ok, so like what is it like when it comes on? I’m 17 and like my tics just popped out of nowhere and I’m thinking of asking my mom to get me diagnosed cause all of that is exactly what’s happening, but like a week ago I was just fine and nothing was happening, tic wise, then bam 3 maybe 4 tics in a week and I don’t know if that’s normal or if I should google something else.
Being a minority with Tourette's Syndrome can lead to a minority being killed or imprisoned because the law does not easily recognize it and many go undiagnosed.
Whats good, i want to say that i have tourettes syndrom and i have it since around 8-10 years old to now and i am 17 years old now, i hace tics and i userly make the high picth sound that you made there and these day i also been like strecing my arm like quicly, do my tics get worse with age and does in increase to curse cuz i dont want it too By the way i also have adhd and think i have ocd🤝
I know the feeling I had a teacher who kept telling me don't skip through the hallway stop making noise noises you're disturbing the clamp apologize to everybody for disrupting and making it hard to learn I know it I have tourette's too and it's a hard thing to live with it's good to know there's other people out there who have this illness or whatever it's called I have it too so I know how you feel
@@RosarioTV well you just have to sit still whether you twitch or not. I think it would help everybody including people with Tourette's syndrome... but you have to give it a try to really know. I'm almost sure there's some research done about meditators with Tourette's syndrome. I'll look I'll research it.
hi i wanted to know if tourette syndrome could also appear in late teen years without having any signs suspicious during the childhood ? (it's really important for me so if you or anyone in the comments have the answer, please give it to me)
@@Shemmassian thank you! can a person diagnosed with tourette's syndrom kinda control the tics they have? even if they happen t o be really tired and contracted (physical tics) during this period of time?
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I have a friend who's significant other, she says has Tourette's, but she tells me that her significant other puts her down with sentences saying such as she's fat ugly and her mother is a fat pig cow is this a part of Tourette's? She tells me that he does suffer from tics, and she knows he has Tourette's. She is having a hard time with the insults, and it's affecting their relationship. He also insults their children. My knowledge of Tourette's is very limited so I can't give her too much information I've been trying to research for her, and that's when I found your video. basically what I'm asking. Is the insults a condition of Tourette's?
@@Shemmassian I see... Actually my brother used to do some weird stuff with his face when he was in school... But now I don't see him doing those stuff.. I didn't know about Tourette syndrome, but now, I think, I don't know but may be that was Tourettes..
"It's tourettes" all of a sudden you stop worrying knowing you have a mental illness? Lol I wish I could stop caring about how I respond to people because I was told it was aspergers or something, regardless I am who I am. I think people get offended over such dumb stuff. It's nice that you let the "woah don't cuss at me" comment go. It's not meant to be offensive. Rather than get upset, it's nice that you educate and inform. Hopefully you wife can be more understanding about it. Laugh it off. Life is too short to be upset over misunderstanding and people saying dumb things.
Thank you for sharing your story! I think I may have Tourette’s. What are your thoughts? czcams.com/video/7RPZNGp8KWg/video.html This is a bit about FND that I’m currently diagnosed with: czcams.com/video/OVJmcg4HL0g/video.html
What questions do you have about life with Tourette Syndrome?
Hello! I have a question. I am planning on doing a research on the relationship between physical activity/sport with the alleviation of motor tics of individuals with tourettes syndrome. Do you think there is any link between these two?
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is there a way to predict the severity in a kid whose parent has Tourette’s ? If someone has a mild case would their kid also get Tourette’s and would it be mild ?
hi i wanted to know if tourette syndrome could also appear in late teen years without having any signs suspicious during the childhood ? (it's really important for me so if you or anyone in the comments have the answer, please give it to me)
@@yo-jc1we It can! The diagnostic criteria only requires for tic onset to have happened before age 18. My tics appeared very suddently at age 15, and one year later I got diagnosed with tourette's
I have Tourette’s and I am only 11 it’s very hard to live with Tourette’s, I do it in public and it hurts my neck so badly over time and one time I thought I was crazy because I do weird things, it’s very hard for me to describe it to others and not get made fun for it. I would be called Hailey the twitcher and whenever i had a tick they’d say tic tok next ones coming Hailey. My friends have been so nice and say they start to do tics aswel whenever I’m around.
Is it like a head banging thing where you give yourself whiplash over and over again? I have Tourette’s too. I would say I have very mild tics, right now I have a tic where I squeeze my eyes shut for about a second or less, I’m starting to do it so much that my eyelids are starting to twitch. ( I’m 13 btw )
@@averymatisons4133 not a head banging more of tightening my neck and stretching it forwards, it causes my muscles to hurt and be sore, also my third ever tick was tightening my eyes and stuff it does go away over time I noticed ticks come, leave then give a new tick and after you have a ton it just switches through again and again for me at least, they fade away when u get older I was told but ye-
✌🏼
hi! i also have tourette’s and have been trying to meet people in the community around my age (12) so if u don’t mind me asking what’s ur insta/snap/tiktok thank you!
@@callmeha-esthetic3649 I freaking hate that one, I just got over that one and my tics are pretty much unnoticeable now.
I still remember when I was a kid, my parents actually brought me to some religious leader because they thought I was possessed lol. Tourette's sucks and I've hurt my neck several times because of it, but I'm glad mine has never been serious to the point where I tic in public.
Thank you for sharing! We're hoping to raise awareness so people with TS can receive the support they need.
Well that sucks
Well, may be you were actually possessed then. The religious leader probably cured you and that’s why your symptoms became mild.
@@SurajInd89 tf?
@@SurajInd89 oh hell nah thats not how it works (also when did they say anything about symptoms becoming more mild?)
This is the best video i've found about TS. My tics are very similar to yours except I experience more vocal tics. It's crazy how little the average family Doctor knows about TS. I've had it my whole life but wasn't diagnosed until 29 because they always said it was a bad habit I would grow out of. I was finally in a position to seek diagnosis myself last year and it's been so rewarding to allow myself to just be more okay with ticing. Now if someone asks about it I have a definite answer and can educate them when they inevitably say "oh isn't that the thing that makes you cuss?!" Before I would feel embarrassed and say "idk why I do it. I just do." which didn't make me feel very empowered.
I used to sit close to a teenage boy on the bus for about 2-3 years. He made sudden noises and at first I thought he was being silly and I may have been startled when he did it again. I wondered if he was trying to get bad attention. But as the weeks continued I observed that his noises where involuntary and accompanied with sudden involuntary movements of the face and neck (or the noises accompanied the movements not vice versa). I was pretty certain he was not mentally ill or even sick, just seemed to have a movement problem. It looked pretty similar to what my high school math teacher had, but the teachers symptoms were less severe than the boy's. I was glad to see that the teenage boy had some friends. And he seemed to have less symptoms when he was glued to his phone playing video games. I off course, cannot know for sure. But can only guess it may have been Tourette Syndrome. What bothers me is the need to have such conditions diagnosed by mental health practitioners when it is not 'mental' but a physical condition.
Thanks for sharing these stories, Vaneshree! Based on your description, it indeed sounds like your bus peer was showing signs of TS.
I appreciate you being so open, too. Mistaking tics for bad habits is quite common. But after a while, folks understand they're involuntary and almost stop noticing them. At least that's what people tell me.
I hear you about the diagnostic concern. "Mental health" is an interesting term, because the work spans emotional, behavioral, and neurological concerns. While TS has neurological foundations and emotional impacts, its symptoms are purely behavioral. Collectively, it's hard to neatly categorize TS as a mental vs. non-mental condition.
I once asked someone if they were ok while they were ticking. It was genuine concern. I wanted to make sure they weren't having a seizure or something to that effect. It was actually a kid who was somewhere between 10-12. When I asked they told me it was Tourette's Syndrome. I just responded with something like "Ah, ok gotcha. I just wanted to make sure you were ok". For that person to be like "Ok, don't swear at me" is rather insensitive. Though it can be a good time to educate people. There's someone else I have crossed paths with that was making a sound that sounded like a soft sneeze. I always wondered if that was a tic but I never asked.
Thank you for your sensitivity!
Shirag, Thank you for sharing this video. I am a physician but learned an great deal about Tourette's from your post. I hope many people have the opportunity to see it and learn from it. Ken Montgomery MD
Kenneth Montgomery Appreciate your kind words! Glad you learned from it :)
Thankyou for making a video about tourrettes syndrome it helps spread awareness.
Thank you for sharing. I really enjoyed listening to your personal experience and your explanation of tourettes.
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Thank you for sharing!! This was a very informative video and I appreciate your openness.
Adam Leone So glad you enjoyed it! It’s important to talk about to educate and clear misconceptions
Shemmassian Academic Consulting I agree 100%!
Prototype Blitz Awesome! Thrilled to hear you like it
Thank you very much for sharing. I now have a better understanding of this condition. You are definitely an inspiration to many. 🙏🙏🙏
We're glad it resonated!
This is fantastic, Shirag, thank you for sharing! Also, your home looks great -- love that subway tile backsplash : )
Haha thanks, Molly! Mental health knowledge and kitchen design: two of my specialties?
I sense a new business plan...
Molly Anne LOL
I love how he is able to talk about even though the tics are kicking in great job with this video
Thank you for sharing and being so open Shirag, I learned so much from this video!
My pleasure, Heather! Glad you liked it.
I have a neighbor with what I assume is Tourette. His vocal tics are sometimes extremely loud and incessant, all day and much of the night. I cannot imagine how he can stand it. I don’t know him as he keeps himself to himself but it has made me interested to find out more about Tourette. Thank you for the infos.
@@cindy6576 I'm not into "late" adulthood yet but I'm 30 and mine is still going strong. lol. Luckily mine isn't disabling and I live a pretty much normal life.
i’m 16 and i’ve had my vocal and motor tics for over a year now. but i’ve always had small facial motor tics growing up. i always feel like i’m faking my tics because i’m able to suppress most of my tics kind of easily (i suppress when i’m out of my room or when i’m near my sister because my toxic sister doesn’t know about my tics and i’m not ready to tell her). i haven’t been able to see someone for my tics yet but i’m going to see one soon. i just really hope i’m not faking because it feels so real but i still feel like i’m faking it for attention because i’m able to suppress so easily and i don’t get much of a feeling before i tic sometimes..
What an incredible well explained video, Sir! Thank you for that!
One questions that I would be interested in is, how did your Tourette develop?
When was the worst period in your life and when did it become better?
Right now I am 22 and it feels like my vocal tics are worse then usual (probably because of all the stress at work and university)
Thank you for your response!
You're welcome! Glad you enjoyed it. To answer your questions:
I'm not sure how my TS developed. Somewhere around 8-9 years old, I started making facial grimaces, and it took off from there. The worst period was probably in middle school and high school, which is fairly typical because tics tend to lessen in early adulthood in many cases.
Shemmassian Academic Consulting Thank you very much, regards from Switzerland!
This is such a great video for people to learn. I was diagnosed with Tourette’s syndrome when I was 4. I was extremely young and I had quite a few seizures as a kid. A lot of the Tics you did and also talked about I did. The weird thing is I have been doing the wrist click my whole life. I thought it was just because it felt good. I never picked up on it as being a Tic. I also got diagnosed with Anxiety about 5 years ago. I am 42 now. It’s certainly makes you tired on a bad day.
Thanks for sharing your experience, Scott!
I am 18 and for for over a year now I’ve had a head/neck/face twitch and with that I formed the habit of saying fuck because of embarrassment. It gradually became more common but I shrugged it of as a flared up muscle in my neck. But after lack of sleep and being very drunk in a pub (a place I don’t go often because I get overwhelmed) I had a full on tic attack and had to be walked home because it triggered a breakdown and it also wouldn’t stop! So I was already anxious clearly and it got worse because I became more anxious. Anyway, the swearing I believe was a habit and the neck/face/head twitch are technically three different movements but most of the time they’re one big one so I have no idea what this means. I think for now I will avoid lack of sleep and stressful situations but I will definitely bring it up to my gp at some point because it’s not an easy way to live and it’s a bit alarming that they’ve become a daily occurrence.
Thank you for sharing your story! I also have Tourette’s and I have been using your content while preparing for my medical school applications :)
So well spoken. Thank you for doing this.
You're welcome!
Thank you for sharing your story.
Happy to do it! Thanks for viewing
You deliver your content and information very well. Great for you sir ! Thanks for sharing.
Thx dude, when I’m in class I try my hardest to not make random hmm noises and try to not twitch my head, but sometimes it’ll twitch just slightly and I get really scared thinking that someone might catch me doing it and making fun of me for it
I hear you, Adam! I encourage you to share more about your experience with supportive friends. One of my favorite quotes from Dr. Seuss is: "Be who you are and say what you feel because those who mind don't matter and those who matter don't mind."
@@Shemmassian I also have Tourette’s and I have that quote up on my wall! What a fun coincidence
I feel so bad for you dude.
I’ve constantly wondered if I have Tourette’s or some sort of tic disorder. I’ve been ticking for as long as I can remember. My main tics were/are picking my lip and playing with hair. As time went on, I gained new tics including vocal ones. I’ve tried so hard to stop but I can’t. It’s gotten worse recently, but I’m making an effort to find answers 👍🏼
Thank you for sharing and being a blessing to others!
Thanks, Joey! Super kind of you to say. Hope you're well
My sons best friend moved in with us and I now think he has Tourette’s . Loud screeching sounds and his hands and head goes crazy and he can’t control it. He’s 21 and never been evaluated or diagnosed.
When I noticed and I asked him if he was OK and he said “I think I have Tourette’s” . He said this started when he was 12 . He dropped out of school, he can’t keep a job, it’s hard for him to learn to drive because as soon as he gets behind the driver seat the ticks start. This is very new to me, I need to get him diagnosed and I need to get him help. He wants help. He broke down and told me how people make fun of him, he’s lost jobs because people didn’t understand it, people are mean to him and my heart just breaks for him. I want to protect him. All these years he’s had no help so I’m calling everyone trying to get help and I seem to be hitting a wall. What do I do?
Who can help ?
I also have had this experience. As a child, I had mentally abusive, alcoholic parents and religious grandparents that believed that I was possessed. As an adult I learn about it the more doctors and family will think that I don't have it and believe that I am imitating to get disability. Someone actually mention it to me when young and when young but now as an adult it is getting worse but I never got treated and cannot go to doctors due to the stigma, institutional racism, lack of insurance, and doctors believing that I just want to abuse the medication. I also don't have family or friends as a result.
Idk what to do. I've thought I had many signs of having it since I was very little. I roll my shoulders and move my neck alot and it's very much involuntarily. Idk what to do abt it. It's very hard to not do it but I don't want my parents to be weirded out especially since it's only become bad as I've gotten older. I also don't know how to approach the topic of "hey mom and dad I think I need to get this figured out" so yeah. When I was young I had a weird thing with my tongue that my parents just called a habit and got mad when I kept doing it when they asked me not to. I had a hard blinking one when I was abt 7. I also had a strange wrist moving and popping one since I was abt 9 and I had a weird one with a noise from my nose and one from my mouth since I was 6. I can't not do them but bc they were so minor for so long I'm worried my parents won't take it seriously. Anyways if you've read this far pls give me your input ❤️
I think i have vocal tics but not Tourettes. Because everytime i get excited (usually at night when my mom says somethings going to happen the next day) I squeeze myself and let out squeaks, long or short. I just am excited or have vocal tics, but i dont mind :3
I can relate, you Just get used to it over time
I don't, and have never seen anyone with this condition. I had heard that people with tourettes curse. I just saw, again, a clip with that woman who pretends to have tourettes (to the point where she can't even function at all) and wanted to know how a person, that actually has tourettes, is like.
Thank you for this video!
this is so great. thank you so much for sharing. you friggin rock
Haha thank you, Sam!
Thank you for sharing. My 4 year old just got dx and so our journey begins. Want to be able to help him.
She's fortunate to have you!
My tics happens when I exhale. After breathing in, I’ll hold my breath for a second and then exhale in a few short bursts, which makes a quiet mm..mm sound. My girlfriend said I sound like her ferret she used to have. I also have the eye blinking thing too. Most people don’t even notice my tics
Thanks for your comment! Some tics are definitely more noticeable than others.
I used to have that one, that one sucked.
( i don’t know about you, but my tics alternate every few days/weeks.)
@@averymatisons4133 Yeah, the only thing about it that bugs me is that sometimes it leaves me out of breath and I have to catch it again. That’s good you don’t have to deal with that one anymore.
Omg. How did I go undiagnosed all my life?? Oh yea, I grew up in an abusive and neglectful household. My symptoms started to my recollection by age 9, maybe. I was never diagnosed. But from what I AM studying it fits so much.
Why didn't they care enough to get me help? Instead of labelling me problematic, attention seeking, crazy, bizarre, wierd, annoying, disturbing. What the fuck????
I'm 16 and I got diagnosed fairly recently. I don't really mind my tourette's for the most part, except for the tics that make me hurt myself. My child neurologist recommended a therapy called cognitive behavioral intervention for tics (CBIT) and my mom and I have been trying to get our first appointment for over a month and we haven't been able to. When (if) I start CBIT, the tics I wanna work with first are self-injurious ones, as those are the most distruptive for me.
I subscribed because of this video
Glad you're here!
Very interesting and good to know, thanks!
Glad you enjoyed it!
Thanks for the brilliant video! Does you have any restrictions when it comes to your driving?
I hid my ticks because they make me high and I figured out that if I use a stimulant to rewire my brain constantly, all day. I have to over stimulate myself to reset my ticks. I figured out that the ticks trigger nothing without training.
I think I have this, but the more I learn about it the more doctors and family will think that I don't have it and believe that I am imitating to get disability. Someone actually mention it to me when young and when young but now as an adult it is getting worse but I never got treated and cannot go to doctors due to the stigma, institutional racism, lack of insurance, and doctors believing that I just want to abuse the medication.
I frequently would slap myself for this syndrome. Its killing my self esteem :(
Sorry to hear it's been a difficult journey at times...
@@Shemmassian of course it is. Isolating myself is the best way
I think i have it but sometimes i can control it for long time.
i think my bf has it but he is ashmed to admit that he has it. help should i ask him or wait untill he comes up with it? 🥴
Everyone has their own process. Just continue to be supportive. :)
I'm pretty dang sure I don't have Tourette syndrome, but maybe I have tics of some sort? They only happen in the morning or a couple hours after I wake up, and it's not always due to sleep deprivation, since sometimes I'll just do them when I've got a full 8 hours of sleep or not do them at all after getting like 4 hours of sleep. They typically just consist of me dropping things, slamming down items, shaking my hands, or sometimes throwing things. Since they happen typically during the morning I'll be eating cereal and slam down my spoon or throw it, or I'll shake a water bottle really bad when holding it or trying to take a drink, and I'll often just drop clothing items I'm trying to put on. I don't have any vocal tics going on though, so I'm sure it's probably not Tourette syndrome I just find it strange they only last within the first couple hours of waking up, as I won't do them at all throughout the day no matter how tired I become, they only happen after waking up.
Too bad many people online (Tik Tok to be specific) like to pretend to have Tourette’s syndrome because they think it’s “Quirky” and “Trendy”, luckily most of us can see through that BS
hmm I meet every criteria expect the 18 years old thing. It started at 18. tho I used to do weird things a lot. and I have autism.
i have adhd and OCD too, and the urges you said. and I can stop them for a few seconds too if I focus.
damn even the engaging stuff are true too.
but it happens mainly when i'm nervous. when i'm nervous i tick like crazy, and i literally grunt "UUUGH" out loud if I am experiencing pain.
Hi, just curious, how do the random phrases that are spoken or shouted out happen? For example cursing, do some people hear the curse words from friends or family and then it comes out as a tic for the person with TS?
My worst tick is with face movement and eye blinking . It makes me tired and sometimes stress. Tried many times to focus and stop letting it to happen but it doesn't last more than 10 minutes. Got mocked by friends since primary school but getting used to it. :)
What is it like trying to find employment? I know alot of people discriminate against others with certain health conditions, and I wonder if it is or is a similar case for people with tourrettes.
Of course, everyone has a different experience, but many people with Tourette syndrome believe they are viewed negatively for having tics, including during employment searches.
Dear Sir . Thanks for sharing your story My son,5 years old, have a tic. I am so worried about his future. Will it get worse when he grow up? I took him to doctor, but he just advised to wait and see. It seems no medication I can do.
Have faith. Everything will be fine. Your son will have a bright future, without any disorders. This is just a phase.
My most annoying tic is NANI and Tourette syndrome
i move my neck up sometimes, and down in a jerking motion, and also move my jaw in a horizontal motion, also when i make sounds with v i like to still make the v sound to get the vibration in my lips more, and also i suck in my mouth and the back of my throat closes.. and also bob my neck and like idk its basically a low pitch sound with my voice and sounds raspy..
Do you feel pain due to the involuntary movement in your eyes?
No pain!
Ive always been curious, I've never seen a Dr, but I do tic I think, mainly shrugging of my nose/mouth, and occasionally shrugging my shoulders I can not do it for hours or it'll happen alot within a few mins, I used to clear my throat and do a little hm constantly earlier in life but thats gone thank goodness.
I have tics, neck and tongue movement. Through Tongue movement i make bubbling sound which is annoying to anyone nearby me. I have received much more embarassment because of that specially in front of children. whenever i study or focus on something, tongue tics begins. And thankfully neck tics happens whenever i am alone.
Today i got to learn about my condition that whatever i do is not actually my fault. It was never my fault.😔
How do you sleep if you have tics
watching you video 2022 march.Just a day before.I am from Bangladesh. My 17 years old daughter has this syndrme since childhood. Most people including my othet family members. Says she do it willingly but I feel she has some major problem. Even some doctor psy critic of my country did not mention about this syndrome say habit problem? Can you suggest me any treatment she has some peculiar movement of heat hand and speak unmeaning fool words certain times.
I am 15 and I’ve jsut started noticing them a few months ago maybe 6 months ago they usual come out in a noise like “mmffah” and then my shoulders shrug before after or during the the “mmffah” I can feel them coming like an urge and it’s sorta uncomfortable however they only happen abt 6 to 7 times a day but I also twitch my eyes multiple times throughout the day I have a question do they sometimes feel like they are gonna come and then they don’t? Because I’ve noticed mine do
Me when I saw Peter meeting his crush be like:
Uhm, will you go (impossible mph twitchy) on a (impossible mph twitchy) prom with me (shoves girl into locker about 200lbs.)
Ok, so like what is it like when it comes on? I’m 17 and like my tics just popped out of nowhere and I’m thinking of asking my mom to get me diagnosed cause all of that is exactly what’s happening, but like a week ago I was just fine and nothing was happening, tic wise, then bam 3 maybe 4 tics in a week and I don’t know if that’s normal or if I should google something else.
Being a minority with Tourette's Syndrome can lead to a minority being killed or imprisoned because the law does not easily recognize it and many go undiagnosed.
This would suck
I was diagnosed at age 13 but we think iv had hit my whole life
Whats good, i want to say that i have tourettes syndrom and i have it since around 8-10 years old to now and i am 17 years old now, i hace tics and i userly make the high picth sound that you made there and these day i also been like strecing my arm like quicly, do my tics get worse with age and does in increase to curse cuz i dont want it too
By the way i also have adhd and think i have ocd🤝
Thanks for your comment! My tics are not as severe as they were in childhood, but this is not always the case for everyone.
hello. are there any advices how parents can help their kid with tourette's? It would be so reacch some tips from your parents! :)
I have very little Tourette i rarely get it but I will randomly jump out of nowhere
I have torates and I hate it cause my parents slap me so hard while I do it and my sister says STOP but it not my fault
I have motor tics nd vocal tics... It will affect my job opportunity???
I'm not diagnosed. I have the shoulder, eye e vocal ticks.
Thanks for viewing our resource!
Do you feel eye pain due to your eye tics ?
@@KevinKeenoo No. But the shoulder one does hurt sometimes.
@@hahahah9527 We are going through the same thing but for me, the tic is only in the right eye and it does cause me pain.
I do have tourette's
Does anyone want to comment what tic they have, I’m just curious.
I know the feeling I had a teacher who kept telling me don't skip through the hallway stop making noise noises you're disturbing the clamp apologize to everybody for disrupting and making it hard to learn I know it I have tourette's too and it's a hard thing to live with it's good to know there's other people out there who have this illness or whatever it's called I have it too so I know how you feel
Good
I'm wondering if a meditation practice would help.
Perhaps! Thanks for the suggestion
Meditation does help for my Tourrettes. Its helps to calm down. But for some people it doesnt.
@@RosarioTV well you just have to sit still whether you twitch or not. I think it would help everybody including people with Tourette's syndrome... but you have to give it a try to really know. I'm almost sure there's some research done about meditators with Tourette's syndrome. I'll look I'll research it.
hi i wanted to know if tourette syndrome could also appear in late teen years without having any signs suspicious during the childhood ? (it's really important for me so if you or anyone in the comments have the answer, please give it to me)
That's an atypical course of development, but we suppose it's possible.
@@Shemmassian thank you! can a person diagnosed with tourette's syndrom kinda control the tics they have? even if they happen t o be really tired and contracted (physical tics) during this period of time?
South Park anyone?
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Dr. Shimyshamashimeya
3:32
From what I see your Tourette’s is very mild compared to others I saw on CZcams!
In done with it
I have a friend who's significant other, she says has Tourette's, but she tells me that her significant other puts her down with sentences saying such as she's fat ugly and her mother is a fat pig cow is this a part of Tourette's? She tells me that he does suffer from tics, and she knows he has Tourette's. She is having a hard time with the insults, and it's affecting their relationship. He also insults their children. My knowledge of Tourette's is very limited so I can't give her too much information I've been trying to research for her, and that's when I found your video. basically what I'm asking. Is the insults a condition of Tourette's?
Can Tourette syndrome go away on its own with time??
In many people, symptoms significantly lessen following adolescence.
@@Shemmassian I see... Actually my brother used to do some weird stuff with his face when he was in school... But now I don't see him doing those stuff.. I didn't know about Tourette syndrome, but now, I think, I don't know but may be that was Tourettes..
🕊
I have tourett Syndrome
Thanks for sharing!
"It's tourettes" all of a sudden you stop worrying knowing you have a mental illness? Lol I wish I could stop caring about how I respond to people because I was told it was aspergers or something, regardless I am who I am.
I think people get offended over such dumb stuff. It's nice that you let the "woah don't cuss at me" comment go. It's not meant to be offensive. Rather than get upset, it's nice that you educate and inform. Hopefully you wife can be more understanding about it. Laugh it off. Life is too short to be upset over misunderstanding and people saying dumb things.
#shorts
I feel bad...
We appreciate it, but no need! We only hope this video serves as a source of encouragement to others.
You need to go to Mosquse and let the imam read Quran on you
Thank you for sharing your story!
I think I may have Tourette’s. What are your thoughts? czcams.com/video/7RPZNGp8KWg/video.html
This is a bit about FND that I’m currently diagnosed with: czcams.com/video/OVJmcg4HL0g/video.html
Bruh Tourette’s is just an excuse to say whatever you want; like cartman
I think i have it but sometimes i can control it for long time.