Some of the World's Rarest and Most Bizarre Diseases
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- čas přidán 16. 06. 2024
- It is probably easier to believe that everything is meaningless and no one really exists if your body is constantly drunk of O'Charley's bread rolls.
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I feel like Simon just kinda posts his videos on whatever channel he happens to be signed into at the moment
lmao It's funny because it's true
Can't wait for Simon to yell: "Am I right, Peter?" on Biographics.
@@kiwi_commander or get back into the Basement Danny
He sounds very sure of himself, painfully so
@@rodyates1 that's because Simon threw out shoulder during an bike ride. More like, Rodeo bull riding. We're onto you facts boy.
My daughter and I have Porphyria which is extremely rare. You should be familiar with it since King George III had it. It's also the disease that the vampire myth is based on. There are some striking similarities to the myth. I can go out in the sun as long as I wear sunglasses but, my daughter cannot. Just 5-10 minutes of sun exposure results in 2nd degree burns for her.
One place where the myth has it right is the Garlic thing. Sulfur triggers attacks and garlic is almost pure sulfur however, there are dozens of other foods that have a significant amount of sulfur too such as onions, broccoli, mustard, shellfish, radishes, cabbage, most kinds of meat, etc.
I've had attacks bad enough to kill me. The medical professionals have been able to bring me back even after I hadn't been breathing for over 15 minutes. I'm told that I suffered no loss of mental capacity or intelligence which is not explainable according to modern medicine, so the old vampires rising from the dead idea can also be true. There are a myriad of other symptoms and explanations but, I've written enough. Thanks.
Fun fact: Porphyria is the only known illness that turns one's urine purple during attacks.
Great video, I really enjoy your content.
Is purple urine common amongst porphyria sufferers? As someone without that disorder, I'll occasionally piss or crap red/purple after eating certain foods like beets or red cabbage. I'm genuinely curious if it's just how the disorder works or if diet combined with that alters how your bowels work.
@@unocoltrane2804 Beets will make anyone's urine and stool bright red. The pigments in beets are ferocious!
🤯
@@unocoltrane2804 czcams.com/video/JmsVnJ6H_pY/video.html
It hasn’t been proven that George III had porphyria. It’s just one of the many theories regarding his periodic bouts of mental and physical illness.
"How much have had to drink tonight sir?"
"Nothing, but I was at Olive Garden and I must have had 10 breadsticks."
I knew someone with that. not funny. he is on a special diet and several drugs. and no alcahol.
There is an interesting story of a women who found out she had this after getting pulled over for a broken tail light when going home after a long date at an Italian restaurant. She didn't feel drunk, but the officer made her blow into a breathalyzer when she mentioned she had a class of wine a couple hours prior. She blew something like 3.1. They sent her off to a hospital because they expected her to basically be dying, not lucid, talking, and a little tired. They kept her there for 24 hours, and her blood alcohol was still high when tested agian. She was eventually diagnosed ABS. Turned out her body adapted to having constant alcohol that she ended up with an insane tolerance. To be clear, a high tolerance doesn't stop all the alcohol damage, so she still had to have an extremely low carb diet. Pretty fascinating.
@@zencat999 Well that sucks for your friend, but that doesn't mean I can't make a joke.
@@zencat999 my cousin has it. Didn't know until the night before my wedding, at the rehersal dinner. She had pasta, breadsticks, and barely a sip of a long island tea. Poor girl starting having seizures, couldn't remember her son. It was terrifying! She was in the hospital all that night and the following day. I listened to him saying something about damaged liver or something associated with it. She had childhood cancer, so it may have done this to her.
@@KyaKramer she also had to have been slowly decreased from alcohol because the withdrawal from it is worse than heroin and can be deadly
Ah yes, blaming the patient for trying to attract attention when no "logical" cause can be found. I suffered from a consistent cough all throughout my childhood and my doctor told my parents that it was just me trying to attract attention, so they scolded me every time I coughed, which led me to suppress the cough reaction so much that it became habitual, leading to several instances where I almost choked to death. Turned out, I had a faulty lower esophageal sphincter (the muscle ring that prevents stomach contents from coming back up the esophagus), and when I sleep my stomach acid would flow into my throat and burn it, constantly causing irritation, and thus, coughing. I fix the problem these days with a slanted bed, one that prevents the acid from simply flowing up and out of my stomach, and I haven't suffered from that consistent coughing since. But because of the "trying to attract attention" thing that haunted me for over 5 years, I still habitually suppress coughs, even when I really should, like that time I had a lobster claw in my wind pipe...
God. That’s horrible. I’m so sorry 😢
@@rachelhorwitz9086 well, on the bright side, at least we’re no longer blaming the village weirdo for witchcraft, or the demonic wolf that lives on the forest, or that cursed rock in the well or whatever anymore 🤣
Glad to hear your better?
Our parents learned the same techniques of raising kids. To this day I still have problems trusting even doctors because always being told I'm faking it makes you think its normal when something is wrong.
Omg! I’m so sorry. I suppressed my sneezing for years bc of teachers thinking I was trying to get attention. it was such a dramatic sneeze. Recently I was talking to my brother and I sneezed a bunch of times and then I got mad bc I peed a little. I told him that for as long as I can remember whenever I sneezed I would pee a little.. he said “maybe it has to do with you holding in your sneeze” at that point I didn’t even realize that I was holding in my sneeze.. so the next time I had to sneeze I realized I was holding it in.. so then I let the rest of them go.. and I didn’t pee! I couldn’t believe it!! Ever since, I sneeze however I need to, no longer pee myself, and I don’t sneeze seven times in a row.. only up to three times max!
Had a patient once that had suffered closed head injury and it resulted in neglect of the left side of his body. He did not and could not recognize his entire left side. You'd point to or hold up his left arm and he'd deny it was a part of his body or say that he didn't know what it was. He was in constant danger of severe injury. Awful things happen from CHI.
Oliver Sacks has a wonderful story and research on this
it's called hemineglect syndrome and can be treated by physical therapists ! very interesting syndrome
@Ahmed Aaqib I am pretty sure that it isn’t BIID. Body Integrity Identity Disorder is where you feel like a part of your body isn’t supposed to be there. You know it is there, know what it is, and know that it is yours, but you feel like it shouldn’t be there. It is basically reverse phantom limb syndrome, where instead of thinking a limb should be there when it isn’t you think a limb shouldn’t be there when it is.
Also, BIID tends to be congenital/develops very early in life. We believe it is caused by the mental body part map not being properly developed [So, for example, the part of your brain which is supposed to tell you that you have a left leg isn’t working properly, so doesn’t tell you that you have a left leg]. It’s also known as “Amputee Identity Disorder” [Pretty fitting, since suffers tend to feel like they should be amputees. And, according to their brains, they should be] and “Body Intergrity Dysphoria”. It also tends to affect just one body part, and not the entire side of the body.
Sounds like the dude in the original comment has Asomatognosia. That is caused by brain damage, and is where you basically can’t recognize an entire side of your body. Hemispatial Neglect is similar, but it is where you completely ignore EVERYTHING on one side. So not just your body parts - People, food, pieces of paper when drawing, etc.
@@deniellehaileyalvarez1991 Asomatognosia, I think, not Hemineglect. Hemineglect is where you can’t “See” people, food, etc, on the affected side, instead of just one side of your body. Asomatognosia where you just can’t “See” one side of your body.
The side projects channel Simon is about expanding your CZcams empire
Shhhh that’s are secret objective
@@historytank5673 lol. Oops🤣🤣 my bad
The Genghis Khan of CZcams
@@xyzpdq1122 whistle Khan
That should be a Mega Project video!
If you do a part 2, you need to cover Fibrodysplasia ossificans progressiva. It's an incredibly rare disease where you petrify from the inside out. It's a genetic disorder, and for people who suffer it, every injury they receive that results in damage to muscles or tendons, such as a rigorous workout, results in the tissue healing incorrectly and turning to bone. So over the course of these people's very short lives they become less and less mobile and unable to move, often dying from being unable to eat as all their muscles turn to bone.
I'd heard of it and that description is horrifying.
Jesus
That sounds awful. It sounds genetic but how do these people get to the point where they can reproduce? Or why would they?
@@cvn6555 They *don't.* Some bad luck with healthy parents carrying genes that combine to cause this problem, or a gene mutating in transit, seems to be the cause.
@@brigidtheirish That sucks. You just never know what is waiting to hit you in the gut next.
I have a family friend with fish odor syndrome and it is pretty sad, but thankfully the odor isn't usually strong enough that it can't be covered by strong perfume unless she eats the foods you mentioned
I knew a few like that. Everyone kept telling them to get a stronger douche. They all eventually either switched schools or killed themselves.
I have a buddy I served with in the Marines who may have had this. The guy was absolutely fastidious about in regards to his hygiene. His barracks room smelled so bad no one was able to room with him. He showered 3 to 4 times a day. Nothing helped. When asked why he stank in typical Marine fashion he said it was a glandular problem. Thinking back it was most like this. We were stationed in Japan and eating local food almost every night. When back state side with a change of diet I don't recall him having the issue.
I don't know if you have seen the deodorant brand Lume but I listened to the inventor's story and it was actually made for her daughter who has this condition. They have all over body deodorants
In Mahabharata the great Indian epic there is mention of a girl who has fish odor. She is cured by a sage and starts to smell like Jasmine. Wish they had indicated the cure 🙂
There has recently been a case of auto brewery syndrome here in The Netherlands. He has been acquitted of drunk driving after it was established he has this rare syndrome.
I don't think he should drive. Forever.
I had that when I was young. Luckily I outgrew it.
I'm alergic to all alcohol. Injested. As a kid cough syrup gave me hangovers. My issues is my body just reacts to any alcohol. But thankfully I can eat all the carbs I want.
I thought you Dutch just had beer running through your veins naturally.
@@robertlevine2827 no that's a german thing. common mistake.
My wife had a diagnosis of Multiple sclerosis when I met her. During our time together she displayed symptoms that convinced me that she didn't have MS ... but my opinion was rejected. After her death there was an autopsy. What they found resulted in her brain and spinal chord being closely studied by two of the UK's top medical research laboratories. Only one other person was known to have had her condition ... believed to be caused by a virus from an animal found in the Canadian Rocky Mountains (where my wife had holidayed with her family).
I'm so sorry she passed away. 🤗
Rocky mountain spotted fever often gets misdiagnosed for years
How dare you suggest doctors are not all knowing walking gods!?!?!?
@@NastyWoman1979
They’re only human, like the rest of us.
@@janicesullivan8942 you seriously didn't get the sarcasm dripping from my statement??? 🤦🤦🤦
Don't eat paint chips
My son showed signs of Pica and because I had been familiar with it when I noticed he was chewing nerf darts, I ended up getting him some gummy kids multi vitamins and within a week, the problem stopped with no chewing or eating non food items since. It's been almost 2 years since we started using the daily vitamins and I definitely can say I see a positive improvement on my son's overall health and wellness. His moods have also stabilized too which is a relief. I just want him to thrive and be happy.
Yes, it's often linked to certain vitamin and mineral deficiencies (like craving ice when iron deficient).
@@marnie9063 Paper products as well is a sign of low iron! I only know this because my coworker craves both. The ice isn't much of a problem but I don't want her to plug herself up from eating toilet paper all the time.
She did try iron supplements but they weren't enough, she might need a pretty high dose.
@@marnie9063 I actually just wrote out a comment regarding finding out my new obsession with eating ice actually was a form of Pica bc I was lacking enough iron. It's wild bc I didn't really notice that the Ice thing was uncharacteristic for me until I was questioned by a specialist if I found myself eating that along with a bunch of other things that seemed "odd" to me.
@@MrDeathBunny The insane craving I had for ice (which I didn't even realize I was doing until pointed out) ended up being a pretty big problem for me. Iron supplements did help eventually. I forget my dose or how long though. Once it was managed I no stopped craving & obsessing over having ice or partially frozen chips of water or Powerade. Hope your coworker will see a specialist
Hi! I had pica as a kid! This can be a red flag for alot of health issues, especially if everyone's diet seems normal! I ended up having several serious conditions.
This of course is unsolicited medical advice and I have no idea about your situation, I can only speak from my anecdotal experience that my mom was always struggling with doctors saying I wasn't receiving proper nutrition and even with vitamins (although I grew out of the pica and the vitamins helped the pica early on) It slowly became apparent that there were alot of problems that meant I was using up the potassium, iron, vitamin C and calcium really quickly.
TLDR; could be nothing! Sometimes you just get pica! But if it isn't, be gentle on yourself you might be doing everything right with your nutrition! I always wish I could go back and tell my mom that
I worked with Pica sufferers and the amounts they go to to get their hands on stuff to eat is mind boggling. Never worked in a cleaner environment, with everything locked away all the time.
Man that's crazy lol
New Employee: "so uhhhhh, why again is LITERALLY EVERYTHING locked in cabinets and the only who has the keys is the manager?"...
I had Pica during pregnancy specifically for the ice you defrost off the freezer and the urge to eat it was so strong it was all I thought about most of the day. I ended up buying a shaved ice maker and eating plain shaved ice 3× day.
@@GLGC688 I don't think I'd call that Pica. Sounds more like the typical odd pregnancy cravings.
@@jaybird0312 cravings during pregnancy are usual foodstuffs, pica is diagnosed when the craving is for non foodstuffs
Side projects: the channel for all the things that don't really fit in Simon's many other channels. I think we're cool with that.
I feel like you should have done two lists: one for purely physical diseases and one for mental disease. I have a rare, inherited disease called PKU. You know those warnings about sweeteners containing aspartame? This disease is what those warnings are for. Myself and my sisters have to read labels on everything, avoid certain meats, and take a supplement every day. If phenylalanine builds up in our bodies, it leads to brain damage and eventually death.
I had a good friend who had this as well; I had never heard of it before then. He accidentally came in contact with some aspartame - a packet of it burst and got everywhere - and he had to go to the ER... Terrifying for me, but he was just like "yeah that's a thing, let's all be more careful, sorry I forgot to tell you"
WOW!!! That's so interesting!!!
Yikes. You wouldn't last a day in my aunt's place.
Sidenote, everyone should be reading (and understanding) every package before they consume it.
I'm sorry. When I was young, I found out Apartame was a primary reason I was having seizures. Why they keep it in rotation/allow it to be used is beyond me.
@@orfeusdissenting685 Because it doesn't affect everyone. I have epilepsy, but mine came along before aspartame was on the market. I drink diet soda all day long with no ill effects. Like the person with PKU, you just have to avoid things that use it. Think of all those people who have allergies to peanuts, and yet peanut butter is still in circulation.
I have pica, and I’m open for questions.
I know it’s kind of hard to understand and not many people talk about it, so I thought I’d offer it up.
Back ground: I crave minerals such as chalk, slate, pumice, graphite, clay, and then things like paper, erasers, plaster, and egg shells. These are specifically called geophagia, lithophagoa, and xylophagia.
The only vitamin deficiency I have is vitamin D.
Is it something that's always on the back of your mind or it's more of an on and off thing?
Maybe a weird question, but how are your teeth? I can't imagine eating that stuff would be good for them. Though eggshells are perfectly edible as long as they're not covered in bird shit!
@@batfurs3001 great, actually, isn’t that weird? I have only chipped one tooth and it was from something unrelated
@@marigabyteyssier2279 I’d say it’s off until something I eat is there, and then it’ll be on my mind for a few days. Kind of like a mosquito bite. Just got to wait it out, and the fastest way to get rid of it is to not indulge.
My daughter, 4 1/2, has pica and it became very obvious around 18 months old. She has been tested for all types of things and the only result that came back low was her ferritin levels. She was on elemental iron for months and it didn't change anything.
Do the items you eat taste good? Or have you ever questioned whether things taste the same to you as they do to other people?
I ask because of the strange things my kiddo eats. One of her favorites is salt. She will eat it by the mouthful. Also things like deodorant, hair products, markers, crayons, sand, etc. She acts like the things do not have weird textures or flavors and will eat the same things repeatedly if she can.
Then there is Whistler's syndrome where you keep making CZcams channels out of impulse.
😉
😂😂😂
Lmfao well played
I think we’re all okay with this disorder. 😉🤣🤣
characterized by a loss of head hair and the growth of a splendid beard
I've learned about this wonderful device called the "off" switch. Apparently you haven't.
There was a child that had the alcohol issue and he died and the parents were tried for murder and then the second child started having the same thing.. if it wasn’t for the second child who wasn’t in there custody having the same symptoms, they would’ve been put in prison.
Did you watch the "Good Doctor"?. That sounds like one episode I watched.
I have an odd disease, I’m severely allergic to mold. Normal amounts found on typical persons clothes or home make me sick. My house is a bubble. It’s made life really hard. I developed it after being exposed to high quantities of black mold.
It’ can cause Multiple Chemical Sensitivity (MCS)👌🏻
I'm also very sensitive to mold. I've had health issues my whole life and I never could find a doctor to tell me what was wrong. They all sort of shrugged. When I was in my late 30's after almost 2 decades of health issues, I developed multiple chemical sensitivities and found a support group for it. The folks in that group educated me on the dangers of mold and I was able to look back at all the times my health was at its worst and I was living or working in moldy, water damaged building. I really wish that our society was more aware of how bad mold is for our health. If I had known how dangerous it was, how to spot it, and what to do about it, it would have saved me years of health struggles and thousands of dollars in medical bills for doctors who never helped me.
May I recommend you get a really powerful ozone generator.
poor thing
My partner lived in a house with black mold. It killed all of their small pets, the kids got sick, and then his parents started getting ill. His brother was the most sick of all of them, but all of them were in and out of hospitals before they found out what happened. Turned out the airflow in the house was sucking hot, moist air in instead of out.
To this day, they all have problems noticing the smell of mold and mildew. I can smell it very easily, so it's up to me to make sure I pay attention and clean accordingly. Do you have high or low sensitivity in regards to smelling mold as well?
This sounds so debilitating. I'm sorry you have to go through this.
I was born with Androgen insensitivity syndrome which means I have male genitalia with a female body. I also have breast (B Cup) that started forming when I was going threw puberty. I was raised as a male and with my female looking body and it made it hell growing up. I was constantly picked on and bullied. Most people with this syndrome are raised as females which makes it easier growing up. I found a woman who I married that had no problem with my looks. She also knew we could not have children.
If u had a male genitalia why could u not have children? Or where concerned with passing down your disease
@@douggaudiosi14 Probably because without the effect from the hormones puberty wouldn't go towards the male result.
I really hope you're doing better these days, especially as the western world has grown more tolerance for people who are intersex and gender non conforming and all that. I'm glad you found a forever person who accepts you, as well.
People are absolute knobheads, I’m sorry you had such a hard time. I wish we could see souls not bodies. And yay to finding love. Your wife sounds ace and I truly hope you are happy.
Why do people want to be loved. What does it matter if you find a wife or not. I'm a fit, handsome, smart, straight guy and I only care about me loving myself. regardless of sexual orientation or gender. Intersex or whatever I just care about everyone else. I just don't understand why people need other people to love them. I'm not mocking you just truly don't understand the need to have "that special someone". Like why did you feel like that was some gargantuan task that, oh thank heavens you pulled off? Why do most people care about that?? Make babies, live with a bang partner who you show affection too as a trade for their affection... I just don't get it. It seems transactional to me.
My husband was diagnosed with Huntingtons disease after losing his job. This is a rare genetic neurological degenerative disease which there is no treatment or cure. Our 2 daughters have a 50/50 chance of having this horrible disease. There are no words to express the pain of watching him lose his mobility, his speech, him. Then having to prepare for the children's future without knowing.
I am so sorry you have gone through such a traumatic experience. I see that this was posted a year ago but I couldn't pass by your post without telling you how very much it affected me. My heartfelt wishes that your children are spared and that your husband is comforted by your very presence. Lastly, my deepest regret that you are losing your life partner and your children their father far, far sooner than anyone should. Wishing you peace. 💞
I don't have the words to convey how deeply sorry I am. No words could ever be sufficient. A dear friend of mine has Huntingtons. It is an unspeakably cruel condition and I would give anything to erase it from the world. My heart goes out to you, your Husband, and your children.
I am so sorry for what both you and your husband are going through. I can relate as I have a rare genetic neurological disease myself called CADASIL and life with it is just...not life.
"I've never had this disease but somehow, I'm familiar with all the symptoms." Hahaha, good one Simon.
I'm experiencing some of those symptoms after last night
Aren't we all?
I have a weird unconscious habit of answering people with their own accent, even when sitting with people from multiple backgrounds. I was once setup by a group of friends who all were from different countries and answered each in turn during the chat with their own accent without even realising I was doing it, even after they pointed it out to me. They had discovered it individually and talked about it before the setup conversation. It even goes as far as responding to various American accents.
I do the same thing! Far as I know, it's an ADHD thing maybe?
omg I totally get that. I don't actually respond in different voices but when someone with an accent (different from mine) talks to me I start thinking in the same accent too, and it almost comes out when I talk but not quite. I agree with the person above, it could be an adhd thing as I have that as well and it causes similar but unrelated problems
@@littelcreatchure506 Yeah, I could imagine it being an ADHD thing- I don't get anything so dramatic, but my accent is very easily influenced, & I have to stop myself picking up other people's accents & words they use, etc. I sometimes end up thinking in a different accent or style of speech too, & I really shouldn't be surprised I'm not the only person whose brain does that, lol, but it seemed so ridiculous, like I must be doing it on purpose.
@@beth7935 yeah exactly
Listening to Simon describe PICA and thinking, "Heh, I remember eating dust when I was a kid... and paper... and my hair... and my clothes..."
Simon: May be a side effect of trauma and a symptom of obsessive-compulsive disorder... dammit, every time I relate to a thing, it's OCD again.
A result of being raised in an era where kids didn't have mental health problems they're just stupid kids who should learn to act straight if they know what's good for them. Oh, well, I guess I learned to cope.
That sounds really tough Sarah. I hope you're among people who love you and accept you. While I can't relate to PICA, I can most certainly relate to parents not understanding mental health issues! My mom is very "why are you so horrible and defect? You most definitely don't have that from me". It's never too late to get help or try therapy, if you're interested in trying that. Wishing you all the best!
I had it too. But from trauma. It was not fun. Paper was my favorite. Book paper. You can guess how that caused issues in school.
Born and raised in the 90s, constantly being shamed at a young age for being too shy, a loner or rude for not talking to people I didn't know super well. I was not shy, it was selective mutism and debilitating general anxiety disorder.
Same… I literally sat there like “Pica can be caused by parental neglect? Uh oh! That checks out.” I think I have a milder form of it, can confirm that antidepressants suppress it. Thankfully I don’t want to eat cat litter or anything like that, but since I was a small kid up until I was in high school I would eat paper frequently and acrylic paint less often. Somehow managed to not get sick from the paint thankfully lol
I feel genuinely sorry for those who suffer from some of these disorders.
Especially those disorders/illnesses that are triggered by psychological trauma.
I suffer from Complex PTSD myself so I know that psychological trauma is, in it self, more than enough suffering for a person.
Imagine first being subjected to trauma and because of the stress of that trauma you’re now experiencing symptoms that make you shunned, alienated and even worse off mentally and because of all of this consider suicide.. It’s almost like Jobe in the Old Testament. That is a person that I would feel really really bad for.
I suffer with that aswell, hope you are doing well and stay strong! 🙏
Sideprojects is turning into Simon's own side projects... still works...
I came here to say this! I think its fine if Sideprojects is just where stuff lands that doesn't fit the criteria of Simon's 99 other channels. :)
I thought that was business blaze
Nah. Business Blaze is Danny's life stories, Sam's memes, and Simon's bullshit. Its all you really need in life.
@@toketillubroke Our Boy with the Blaze 🔥
No worries Simon, theres around 277,000 of us that dont care about the name of the channel. Allegedly
I’m waiting for the channel called “ Allegedly “ the ultimate c.y.a channel 🤣
I'm sure many of us just watch whatever topic seems interesting or wherever autoplay sends us. Simon tube is Simontube. Except the legendary channels BB and CC of course
Hahahaha underrated comment Oh my lord
I suffer from CS, but my medical team literally has nothing they can do for me. My Cotard syndrome stemmed from a lifelong battle with cancer/brain damage. It gets worse and it's a matter of time before it kills me. I however, having spent 30 years in decline of my body (they literally cannot remove anymore organs from me or repair) so I'm very much not attached to my body and feel I am a corpse walking. I don't suffer paranoid delusions about those around me, simply myself. The strangest part to me, is that I feel the medical community is insane for continually trying to keep me alive. Like, this body has been trying to die since I was an infant, I think THEY are insane for purposefully trying to get the most out of it rather than myself. Sorry if this sounds crazy or doesn't make sense, just thought I'd offer some insight on this strange disorder.
Are you still alive
@@Dogdayafternoon4325 still here, just had another VA shunt revision in Oct, died on the table. Suffered another stroke. It’s weird to say, but you can tell when your body doesn’t want to fight anymore. It’s hard to explain other than you and your body are both exhausted and are neutral to what’s happening around you.
What have you done in your time alive?
It’s called “PIE-CUH.” It isn’t a Pokémon, it isn’t “pika” 😂😂
PIKA PIKA! 🤣🤣
Pika chew!
No
I've always called it PIE CUH but people in every video I've ever heard the word say Pika
Only if english is your first language, to me i read it as 'pika' because its how i would read it in my mother tongue
i suffered from cotard delusion very briefly when my ibs got so horrific it made my psychosis return full-swing. outside of my more realistic question of whether or not im dying due to my horrible cocktail of medical issues, i still experience its symptoms every now and again. the misery is wrought was something beyond description. to feel as if youre alive but actively rotting and decaying is scary. part of you knows its not real, but your brain is screaming that it is so much that you cant convince it otherwise and you have to fight to not believe what it says- a fight you very often lose, its just easier to give it up lest you exhaust yourself.
i was just waiting and hoping to die completely. i was convinced my insides were so rotted they were nothing but sludge now, barely clinging together by ligiments and muscle fibers. it was as if all the organs in my disgestive tract had shut down and ceased function. i could picture the cause of death in my head- massive organ failure. and no one took me seriously when i said i felt like i was dying. at this point in time it had been 3 years without treatment, 3 years of misdiagnosis. i knew vaguely that my ibs was at the root of it all, brushed off by my abusive stepmother and father and ignored as a diagosis by doctors. i went to the er for it. i felt miserable, i just wanted it to kill me already. i wanted my organs to stop fighting and just give it up already. very often, i felt like i was being eaten at from the inside by little scavengers, much like how they eat from decaying dead animals, slowly reducing them to bone. i swear i could feel the bites.
when i finally got taken seriously and got meds for ibs, it just vanished. that first day was... incredible. i was abdominal pain-free for the first time in years, and my head was clear of the belief i had been dying the whole time. i owe so much to my doctor for that. steadily, my ibs has improved with use of the medication, but my other conditions worsen so i often slip into delusion again. but this time i can fight it effectively.
delusions are the worst. we dont want to have them, we dont want to experience them. theyre highly distressing, but many psychosis sufferers have no choice but to cave to them; theyre just too loud and fighting back is exhausting, if one can fight back at all. sometimes, its because we think its normal, that everyone experiences it, because no one tells us otherwise or has told us otherwise. hell, i didnt know not everyone suffered from the sensation of having bugs crawling on them all the time everywhere, until just recently- ive had it all my life, i thought it was normal.
but tangents aside, cotard is the fucking worst and every time it resurfaces for me im in for a world of pain. im lucky i can handle it now, with use of medication for the very real diseases it was caused by.
the things the brain will do to get you to pay attention to your health... it goes to extremes. take care of yourselves.
I have FSA. It started after I developed seizures! I now have an UK/Irish/Scottish accent. Speech pathology caused me to have Grand Mal seizures each time we’d try to have me speak ‘normally’. It’s been over 6 yrs now. I’ve given up on explaining it to others. The look on my family’s face the first time I said ‘time to scarn’ was hysterical. My husband was positive I’d gone completely mental at that point! Others think I’m rather posh, poor souls!
Counselling psych major here - but pica is very common in folks with severe iron deficiencies who begin to crave non-edible minerals (rocks, sand, and more commonly things like corn starch!)
Now I've learned the condition my friends' mother has actually is known. She gets literally drunk from eating suggery food like cake, pie... She's fine, though. Because she knows what causes it, she can avoid those intakes.
And on the other side, parties can be super cheap if all you need to buy is bread
“What is the Side Projects channel actually about?” Perfect tagline for the channel.
Simon discovered the legendary 25th hour in a day. This is just him flexing now.
My very elderly cat developed pica a few months before he passed away. I constantly found him eating cat litter - not his waste, the actual clay litter.
What is Sideprojects? It's the bridge between Simon's serious fact channels and the completely indescribable mess that is Business Blaze
Probably the connection over towards megaprojects
I lost touch with reality a few years ago, thought everything was fake, couldn't explain how I could be perceiving anything, because I believed I didn't exist. I knew I was being delusional, but it didn't change anything. This was a trauma coping mechanism (if it's not real, it didn't happen / can't hurt) but jeez did listening to the CD/nihilism sound like my experience, and to an extent, still what I experience.
I've had times where I didn't feel real, I actually remember as a teen when things were very stressful I felt like I was watching myself from a distance (above I think). Everything felt unreal like I wasn't in my body and I could just watch myself pretending everything was ok but it wasn't. I've had it in small instances since then but the time it happened when I was a teen lasted a few months.
@@legoqueen2445 what you just described sounds exactly like dissociation
@@thehouseofupsidedown yea, I think so. I was diagnosed with Dissociative Personality Disorder about 12 years ago and didn't really believe the diagnosis because I don't have multiple personalities but on reflection I used to have a lot of dissociative states during times of my life that were extremely traumatic and can sometimes feel myself dissociating though this doesn't happen as often since I got treatment for CPTSD.
I had the same from severe dissociation. I later got diagnosed with BPD and I was suffer severe trauma issues. It’s terrifying. I remember at one point believing it was a simulation and needed to kill my self to woke up. Luckily I listened to my instinct and ignored that thought.
i experience cotards, and there's really no way to explain how weird it is, especially when you're fully aware that it's a delusion in the moment. while most of the time i do as said in the video, wearing dirty clothes and not washing, sometimes i get overly focused on cleanliness to fend off what i perceive as the inevitable rot from living in a dead body. it definitely coincides with depression. i also have a dissociative disorder, which might be related.
My friend has FAS after a motorcycle accident. He was a full on Northern English guy, and woke up with the most flamboyant Italian accent ever. Rather than get down about it, he leaned into it and started greeting everyone in Italian.
My illness doesn't cause me to be drunk all the time, but it make me feel hungover all the time. The plus side, I've never had a real hanfover because it just feels like a normal morning
If you don't mind me asking, what is it called? I may have that 🤣
The Blaze is seeping into every one of Simon's channels slowly but surely.
I have pica, im 18 and I've had it since I was a toddler. I eat pieces of the carpet and pieces of my own skin, (which could be something else entirely) but for my whole life I'd just he told to "stop" which made me really guilty whenever I had the urge to tear up the carpet. I recently starting taking iron supplements, and my cravings have gone down a hell of a lot
Also take. Zinc and alpha lipoic acid for this. It's great.
I like that Sideprojects is becoming sort of a catch-all or random channel, I watch a few of Simon's other channels but Sideprojects was the first I subscribed to and it continues to be my favorite, in part because of the random fluctuation in what these videos are about.
Check out Biographics, it was my first intro to Simon and it continues to be a nice break from the rush of the world.
Even people I had never heard of or considered to be of much interest turned out to be extremely interesting and a few even became people I look up to highly. Viktor Frankl, for one
The true Simon is only on Business Blaze, and that Simon has been slowly creeping into his other channels. Watching it is glorious! Am I right, Peter?!? 🤣
@@rogueviking9268 It's so weird when a video of his from a few years ago pops up and he's so 'proper' and also has no beard. It's been like watching a decent in to madness. And it's glorious. I look forward to the day when Business Blaze has fully engulfed all the other channels.
I feel the same way about business blaze!
I first came across top tenz , then today I found out. Didn’t like a lot of the content, especially top tenz, but stayed for Simon. Was very pleased when I discovered the rest of CZcams was being colonised. I like trying to spot the writers as well as enjoying the creep of business blaze Simon into everything else.
The Mütter Museum has drawers full of swallowed items removed from patients. Not sure what were attributed to pica but the number of similar items found in one person or another seem to point to OCD. (Pounds of pennies from one person, hundreds of construction nails from another, etc.)
Even in a museum with so many other oddities I found that display fascinating... And this from a person who chews ice regularly (a habit some also attribute to pica).
I figured out i have asphantasia this year. Was crazy to learn people actually see images in their minds😂
Same! I also don't see images in my dreams; they're more like stories being narrated, although the emotions I feel are still intense, like it was actually happening. I asked my 8 year old if she can picture an apple & actually SEE it - she said no, but she does see images in her dreams.
Wow, I believe there is a direct correlation between every extra channel Simon starts and his beard growing bushier. 🤔🤣
The beard amasses power.
I was expecting you to mention Fatal Insomnia, a rare prion disease brought upon by a genetic abnormality. It affects very few people, but notoriously so a few families in spain where a lot of cases have been recorded.
Along those lines are Creutzfeldt Jakob disease.
I have always been made fun of for the foreign accent syndrome. I had quite a prominent head injury at 19 and yes I will say when I was young I found it fun to try to sound like I had an accent especially when learning another language such as German.
Often during emotional or stressful times the accent comes out and any time it's ever been made fun of you'll find I go silent for lengthy periods of time. It's not fun and it's frustrating.
On any list of rarest and most bizarre diseases, it always surprises me when kuru is omitted, because everything about kuru is either rare or bizarre or both. An incurable and fatal neurodegenerative disease, kuru is one of only a handful of known prion diseases, and the first human disease to be identified as such. It also occurred solely among a few indigenous societies of Papua New Guinea and was transmitted almost exclusively by cannibalism of an infected person's brain. Fortunately, kuru has now been functionally eradicated; the last known sufferer died in the mid- to late 2000s.
This show is about entertainment through learning man, just like all of your shows. Even business blaze 😆
All I've learned from BB is that Simon LOVES cocaine
Bro this guy is the reason for my newfound love for academics! Now i’ll finally return to UNI to get me a degree in something i enjoy and know i enjoy again thanks to mr.simon whistler my g
@@roscojenkins7451 Allegedly...
Ahhhh. BB, allegedly, and cocain …. The best parts of Simons life. Love BB. Although I haven’t watched it much in the last few months…. Weekend is around the corner, I feel a binge come on.
it now goes by the name of big brain blaze
It warms my heart to hear him refer to nihilism as a condition
Simon you need to make a B-list Channel where its everything from every channel that didnt make it or the cut topics and reads.
I was absolutely hoping Simon would try a variety of accents during the FAS section
@@D2.159 meh
I'd love to see you do a video on Multiple Chemical Sensitivities. It's not all that uncommon, but no one has heard of it until they experience it themselves. I have it and try to advocate for those of us with it. Please reach out of you would like to talk about it.
Me too Simon! …..I’ve been subscribed to your channels from the start, since TopTenz and I developed MCS symptoms approximately 3yrs ago!
Wikipedia is a good place to to start for those whom have never heard or understand it!💯👌🏻
There is a movie about this disease with Julianne Moore called Safe.
If he does, I hope you're prepared for a significant portion of the video to be prefaced with "there is no scientific consensus on this diagnosis or whether it is entirely physical, or a psychiatric disorder that manifests physical symptoms." I hope that's not coming off as disrespectful and I'm not trying to disregard your struggle, it's just a bit of a controversial subject in the medical community.
@@semaj_5022 Even when not knowing what it is or what causes it, there are still symptoms
@@HappyBeezerStudios And I wasn't denying or arguing against that. I was simply offering a warning that the video's content may not quite be what the commenter expects or hopes due to a lack of agreement by the scientific community on the legitimacy of the aforementioned diagnosis.
It's about my favorite random bald guy on you tube entertaining and educating me. Love all of your shows and watch every day.
I have severe anaemia, my hgb high point is 7.9. One of the symptoms is eating dirt, clay, laundry detergent & other things that are a response to need for iron. My whole life doctor are always questioning me if I have eaten any non food items, mostly dirt. I have never eaten anything like that or any non food items.
I craved ice and ate it nonstop. Iron deficiency and as soon as my anemia was taken care of the craving stopped.
My friend had an extremely rare form of cancer - radiation-induced osteosarcoma in the soft tissues of the head. He was believed to be one of maybe a dozen patients in the world with his specific pathology, and likely the only one in the US. There wasn't an established chemo protocol for such a rare type, so he had a pretty rough time for a year or so before he lost the battle.
May I recommend an episode about the years of crazy things from Sears Roebuck catalog?
You could order a home...a home.
I heard you could order anything from a boat to parts to build an oil driller off that thing
Would love to see tours of Sears homes..... that would be awesome.
Used to love going through that catalog as a child and tabbing all of the pages of things that I wanted!! It would take me hours because it was so huge!!
YES
This is an excellent summary of some conditions that while rare, are afflicting many people.
Cotard’s in particular is fascinating to me.
But I’m obviously a bit odd or I wouldn’t be watching this in the first place.
Nice work Simon, and your team!
I lived with Pica from childhood into early adulthood. Ate paper all the time. Surprise, surprise I was diagnosed with an anxiety disorder and severe depression in my 30s
I hope you’re doing much better.
My grandmother ate strips off the newspaper for many years. She tore off pieces whilst she was reading. Not sure if this was true pica or an eccentric habit.
I can't even keep up with all of Simon's CZcams channels. The godfather of CZcams.
My ex-wife was a nurse and I remember her telling me stories of people with pica, one of whom ate a paperclip that she sat on a table in the room of the girl who was suffering from this.
A while ago I watched a show where a child ate too much salt and subsequently died from it. His stepmom was charged for his murder but it turned out that he had Pika and his mom refuse to recognize it and was in denial. Stepmom was acquitted.
This feels like more of a "Today I found out" topic. There isn't a project to spread these right?...right?
Allegedly
I thought you finally made a video about prions. Hope it will be on Biographics
NO THANK YOU.
Simon, another good show thank you
After being diagnosed with cancer, my oncologist recently found out that I have an extremely rare condition.. I'm missing two proteins in my DNA (there are only 4). Missing 1 protein is rare enough but missing 2 is absolutely unheard of. No treatment for it, of course
Oh wow. Is it something they've experienced enough that it has a name or what? I'm genuinely curious.
Do you mean bases instead of proteins?
DNA’s four-letter code is comprised of nucleotides, not proteins. But even then this doesn’t sound right. You wouldn’t have even made it past an embryo if you only had 2 nucleotides instead of 4, across your entire genome. Do you mean you’re missing 2 nucleotides at a specific location on a gene?
I’m confused.
@@jimlorrison7530 exactly. Missing 2 nucleotides from your entire DNA sequence is absolutely impossible and could never happen in a living creature.
It's weird for me that eating stuff like ice or raw dough is also considered pica (at least, Wikipedia says this). As long as you use food-grade components and follow the basic cooking safety procedure, it's safe for you (eating too much active yeast can give you an upset stomach, but you can kill yeast or just not use them), isn't it?
I wonder if Simon loses track of what channels he has lol
Lol no. He now lists them all
he makes a recording of every recording he's made.
Scuse me aye fact boi. Do some 2 or 3 hour videos. Lots of people listen to ur stuff at work and it keeps us going. U are very appreciated
Ok.
You need to have a channel that only concentrates on things that really interest you Simon.
Call it “Simon Says”.
Such amputations were common practice for the Vikings. Entire body amputations were common during the French Revolution.
Business Blaze is the highlight of my week.
I adore this channel. I'm so glad I found it! Never stop!! #SimonsCZcamsEmpire
I knew someone with FAS. He had a cross between a German and English accent after a childhood head trauma.
Simon laughing in disbelief is the best!
Nah, boss. I wasn't drinking at work. I have....drunk disease.
There was a clip on QI channel and a guest had suffered from this and the issues she faced.
That awkward moment when you know about every one of these conditions. What am I doing with my life?
Please keep the purpose of Side Projects a secret.
I often wonder if I have a disorder (other than the list of psych disorders and their physical effects I’m actually diagnosed with) where I’m just too fascinated in videos about, well, weird things (I can say weird cos I’m a weird thing myself). Your awesome channels reassure me I’m not alone in my fascinations! Thank you!
My cat has Pica. He loves to chew and eat plastics, then throw them back up! Nice.
In Vancouver, BC, I had a friend, a woman, well-educated, upper middle class, in her forties, who evidenced a marked Bostonian accent when she had drunk much alcohol.
At least this is consistent about educational content, as opposed to Business Blaze, where who knows what in the nine hells will happen or how educational it will be.
"You're 3x over the legal limit"
"But I've only had 1 donut!"
Whistleboy has rapidly become my favorite CZcamsr. He has a massive amount of edutaining videos and I raise my beer to him in tribute.I think once my rent is paid again, I'll purch some merch. I like the 'boy with the blaze' shirts
Due to my autism, I have a form of foreign accent syndrome where if I hear someone with a different accent than my own for a long enough time (about an average movie length) I will start speaking with that accent. I also have fluctuations in my accent throughout the day, and (weirdest of all) I developed a slight Irish accent when I drink.
I went through a stage of eating washing powder and moisturiser. I never thought it was a disease but I really couldn’t understand why…
Sometimes it's a deficiency in particular elements in the body, my mum used to eat large amounts of dirt when she was pregnant, turns out she was severely anaemic.
Some day Simon should make a channel that’s just about reorganizing his videos into playlists.
Would def love to see more of these. The alcohol one was a new one to me.
What is Side Projects about?
Yes.
(also, I think it'd be a fabulous notion at some point to put a "blooper reel" in this channel, things cut from your other channels.)
Business Blaze is basically a whole channel dedicated to intentional blooper reels
Someone close to me was suffering with Cotard Delusion in conjunction with being Bi-polar. Thankfully it never manifested itself physically, but I must say that having a heated argument with a loved one that they are in fact alive is frustratingly futile.
I can’t imagine what argument you could use. I mean even descartes made some leaps. Sorry you had to deal with that.
Simon has so many channels I was challenged to find this video when trying to find it.
I’m actually quite surprised Morgellons disease didn’t pop up here considering it’s both rare and very mysterious as there are often black, white, blue and/or red fibers that grow beneath the skin of sufferers. Despite this it’s debated on whether it’s a pathogen-borne or psychological disease.
There’s a condition that causes people to have dozens of uncontrollable orgasms a day. It may sound fun, but I watched a tv special with a woman who has it and she was absolutely miserable. She can’t even go put gas in her car without having at least one or two. And it makes her so sensitive that it’s painful to be touched even slightly. I felt so damn bad for her.
Many years ago I worked with someone who had what I assume was fish odour syndrome. He was taken on as a Christmas temp in the HMV I worked in and despite clearly being showered/washed and wearing clean clothes he had this pungent odour that was like nothing else I've ever smelled. Needless to say he didn't get taken on after the holidays!
How is no one talking about how epic Simon's beard has become
Very interesting!! Thanks !
I do have pica I've got it under control though, it usually flairs up with anxiety.
If the jumping French-Canadiens aren't in the #1 spot... I will be disappointed.
I have FAS which happened about 2 years after a stroke. I have a very strong accent when I am excited.
Well done Simon.