Allison D's Story | The Experience Of Salivary Gland Cancer - SGC UK

Allison D's shares her experience of salivary gland cancer.
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Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma.
Our aim? To build an information and support network for people affected by, or treating, these conditions.
We organise regular networking meetings in the UK for patients, caregivers, clinicians and researchers.
We give you opportunities to input into ground-breaking research projects.
We’re working to improve access to the newest therapies.
We support all salivary gland cancers.
We’re focused on patients and clinicians working together to drive research and increase knowledge.
So why not join our network? Visit our website for more details. And follow our social media accounts below.
www.SalivaryGlandCancer.uk/
/ sgcanceruk
/ sgcanceruk
/ sgcanceruk
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#SalivaryGlandCancer #SalivaryGlandCancerUK #SalivaryGland #SalivaryGlands #AdenoidCysticCarcinoma #ACC #HeadAndNeckCancer #RareCancer #RareCancerResearch #SalivaryGlandCancerResearch #SalivaryGlandCancerCharity

[@heidikurz6609]

I live just north of Atlanta too and have just finished treatment for ACC. I’m binge watching these videos.

[@MarcyRaeford]

4:22 I, too, live north of Atlanta and am at Emory Winship for treatment. I search for all of this type of information

[@SGCancerUK]

So glad to read the stories are helpful to you

[@Nitoria.]

My aunt has salivary gland cancer but I don't know which type - removed asap and fastly recognized. Year later metastases to lungs ---> chemotherapy + few radiation lights. Results and her feeling were good. Then... just 3 months later --- small netastases in the head... She had 2 weeks + 2 days of radiotheraphy in Febuary (except weekends). Then she felt soooo weak and had huge headaches and ...
nobody knows how much these headaches came from cancer and how many from side effects after radiotherapy.
Results from April after treatment --- it stopped and smaller dissapeared. But she's so stressed, so scared.
She have some little lacks in memory, or not, rather
she have to think slower then she used to? She doesn't want to read not to make her brain tired or not to strain it.
We're all afraid. Only 2 months and now she needs help almost 24h/7. Like she can walk but she's really weak. She was in hospital amost the whole month between March and April now it's a little bit better but ... nobody knows what's gonna happen ...
I live in neighbour country, so we havent see each other for a while.
She's 69 with no other illnesses, among other health problems just "hypopigmentation". Generally healthy person, looks young as for her age, was always eating healthy and as she get retired she kept moving, going to sport, yoga etc. never had obesity etc.
She's living not in city, in the village.
I wanted to see some head metastases survivors but of this cancer it's so hard to find any videos

[@suebell7281]

You don’t look 40ish at all!