Pituitary Tumor | Yanir’s Story
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- čas přidán 27. 08. 2024
- Yanir shares the story of his diagnosis with a rare thyroid-stimulating, hormone-secreting pituitary tumor that required immediate brain surgery to save his sight and life. Visit the Johns Hopkins Pituitary Tumor Center at ow.ly/I5my4
I was told that my pituitary adenoma was the size of a ping pong ball. They discovered it after having to go in for an MRI because I was suffering from severe migraines. A week after they found it I went in for an operation to remove 90% of it. The operation took about 5hrs. They couldn't remove everything because the adenoma was too close to some artery. They remove what was left through radiation therapy, 30 minute sessions for 4 weeks. This happened 15 years ago, my health is ok. I've been taking hormones every since the operation.
If you have been diagnosed with hypopiruitisim hang in there it's not the end of the world. Just prepare yourself for some hospital bills not covered by your medical aid. You'll also get through this. I'm 51 years old and still feeling strong, through the grace of God.
@Earl Weiner…Such wonderful news. Praying for continuous abundance of good health. God bless 😊🙏
God bless
I have been having visual aura migraines. Did you have those?
Hi.. did u got any side affects of radiations?
The makeup of a bendy value has a fascist liening undertow roughly this way.
Under looking glasses time differs as d-o-a pucker up at landing. Sleep and hold water in the mouth to absorb salts but stay far from the stiffed. They goes far under ground to recompose itself!
Bias is up 1 time
8l_t_lT3St_t_lT
I have a pituitary tumor , literally lost my vision , docs told me I was never going to see again that I lost my eye sight the 98.99% I have thyroid problems and many other type of health issues bc of that , I went to therapy and started to take cabergoline and other meds , so far so good I only have 8 months since I found out and 2 MRI my doc said the tumor is getting smaller 👍🏽 and vision is getting way better, my newest glasses prescription is lower than the one I had before finding out about the tumor
Are you in the states? Go to Hopkins! They are the best!! They have housing you can get for your family if needed. People come there from all over the place. They removed my adrenal gland and made my father a new bladder out of his small intestine. I’m so fortunate to live so close. Good luck!
Maam im from Philippines and i cant buy carbegolin here in Philippines because its not available here..i wish i could buy it in your country but how😭hoping one day there's someone who could help me find and buy this medicine 😭
I was diagnosed with this tumor too, I have blurry vision due to this. Did you vision get better??? I would really want to know
Omg! I think I have the same condition cause my prolactine levels r high! I also have hashimoto and myopia !!! MRI is the next step I suppose!!!
@@idontcare1481Wow thats absolutely amazing.
Hi I listened to your story and mine is similar March 2016 I got my eyes checked because it seemed like I was looking in a tunnel and when I closed one eye this black blanket came and I could read horizontal lines on both eyes. I too found from a MRI a tumor pressing on my optic nerve. They operated right away up through my nose and removed the tumor on my pituitary gland. My eye site returned and the healing began. But right after I had no functioning thyroid, cortisol, estrogen. And I also became depressed and anxiety. So now I've went to tKing no meds. In 2016 totaling 5 meds now I had lost 25 lbs. and was weak. But I'm now getting stronger! I'm a 53 old female but there for awhile I felt 83 years old. I just wanted to tell you my story too!
Teri G I just found out I had a Tumor as well but it was not pressing on the Optic nerve. That was 10 months ago and they are monitoring it and will repeat my MRI in 2 months at the 1 year Mark. My hormones came back fine but now 10 months later I feel hormonal imbalance symptoms. Light period lasting only a day. Headaches, blurred vision. My muscles feel weak again
Mine also i was diagnose march of 2016 6.2cm
Hi teri, my MRI result that i got tumor pituitary, and my thyroid, cortisol and testoteron hormon it so down. I plan to surgery on this week but doctor said my hormon cannot be back normal after my surgery.. its that true? Need your advise
Andri Martinius not true
@@andrimartinius3214 in my mom's case, she lost her hormone and have to drink drugs everyday and she feels normal.
I have a pituitary tumour. Watching this video has really helped, thank you. Thank god you are feeling great now and healthy 🙏
how are you doing?
I'm meeting with a doctor tomorrow. I'm really worried.
@@amycox703 how are you doing?
I too had a pituitary tumor. Unfortunately, due to the fact that we were poor, and seeking medical attention is a privilege when you're poor, my tumor went undiagnosed for 12 years. When I was 25 people were asking my family if I had Downs Syndrome due to the side effects the tumor had on my body. By the time I was 25, I had lost half of the vision in my left eye and a quarter of the vision in my right eye. I had no body hair, no sexual attraction to anyone, a severely compromised immune system, slept 16 hours a day, had an aversion to sunlight, an aversion to loud noise, and when I woke I would have constant pain running down the left side of my head. It all ended ok because for 35 years since then I have been blessed with a great life.. Best of luck.
Did it effect your height?
Bane No. doctors thought it might have since I’m only 5’5”, but doctors determine via an X-ray of my hand that I had grown to my full height.
In my CT scan report... Finding is prominent pituitary gland impression... Now i m depressed about it..give me some suggestions plzzz😢
@@mithilaislam6376 You need to take cabergoline. I was Diagnosed 4 years ago and was prescribed bromocriptine, but thats for children and pregnant women, it lowered my prolactin levels but didnt have lasting effects. if you have a prolactin secreting pituitary tumor, it is the only tumor known, that can completely go away with medication.(cabergoline) Ive been on it for 2 years and my last MRI shows it the tumor is completely gone. Try not to be discouraged you have a diagnosis which means you can start to get cured. I was misdiagnosed for a better half of my 20's and had migraines for years, depression, weight gain, and low sex drive. There's hope, it gets better.
@@johgon6882 My prolectin level is normal but ami testosterone level is very low about 13ng/dl...by the way i m male not female....😣
I’m 23 years old and just found out I have a pituitary tumor, after going to the er for severe migraines, I had a mri done in the hospital and they found a infarct lacunar or small stroke. I was then told I had to get another mri when they found the pituitary tumor. I’m kinda used to being told bad medical diagnoses as I had open heart surgery when I was 14 with other heart problems. But I’m hoping for the best about this tumor as I’m getting another mri soon.
I was getting tested for breast cancer and now I am getting tested for a tumor. Being only a 17-year-old male my doctor did not want to say anything to me until she was sure, she said not to stress now and if something does show up I still should not stress. All my levels are normal except my prolactin. she said my prolactin was EXTREMELY low and was trying to find a reason if I was doing drugs or drinking. I dont do that which at my age is considered embarrassing. Anyways I am extremely tired constantly and have migraines. I like to fast and my longest fast was 13 days, I took my supplements so I would be good during the fast. I just hope that that the fast is what's causing my prolactin levels to be so low. keep in mind I did this fast almost 5 months ago and I got my blood test done a month ago.
what happened bro
@@kevintony7003 I ended up having a pituitary prolactinoma, been on bromocriptine for close to a year and get an MRI in a week to see if the tumour has shrunk. doctor says to expect good news. thanks for asking haha :)
@@DragosDomnara bb.
I had a pituitary tumor I was pregnant 24 year old, And the same day I start to lose my eye sight I had a eye appointment that I made couple of weeks ago. Also this was my First Time seeing a eye doctor, so eye doctor check my eyes she said your brain is bleeding or you have a tumor, so I rushed to the hospital I can still see a little bit , The doctor said thank god you came right in time because you would been blind . They did MRI and I had a pituitary tumor it went away on it own less then a year. I got thyroid and adrenal Insufficiency and thee doctor said” I was supposed to have Diabetes too but I don’t. Also the doctor said the pituitary tumor was to small to remove.
I am currently 28 weeks pregnant and my TSH and T4 are both low. I got a call from the doctor today saying he was referring me to endocrinology for secondary thyroidism caused by pituitary gland. Fingers crossed that mine isn't a tumor. If it is, then who knows when I'll be able to get it removed with the fact that I can't go under for brain surgery while carrying my little man. Can't find anything about anyone else who has experienced this during pregnancy and that's even more nerve wrecking and horrifying. Hope me and my baby boy are both going to be okay. 💖
My dear lord, my tumour was 6cm. Thank god I'm still here sfter 4 operations and a shunt fitted. What i went through for 2 whole year before they fave me a MRI scan was uncalled for. I could oflost my life if my sister did not find me when my body had shut down.
My medication I'm taking is as follows.
Hydrocortisone 10mg
Atorvastatin 20mg
Desmopressin 0.1
Levothyroxine 150 mg
Growth Hormone needle
If you feel your losing sight, unbelievable headaches, energy loss. Go see your doctor. But very important to have your eyes tested because they will know if something ain't right.
Nearly 7 years on and my tumour is 3cm. I also had Radiotherapy. Basically hoping for Radiotherapy to shrink my tumour.
May the Lord bless you for your courage.
@@robinrynearson7212 ❤🙏🏿God bless you.
@@billyrocky2974 .. Hi .. how are you feeling now.. since my husband also as the pituitary tumor
I have a pituitary macro adenoma, and even though it's in the head it is not a brain tumor. The pituitary gland is under the brain.
It is still considered a brain tumour by neurosurgeons!
I was on way to see eye doctor and closed my one eye at a stop light and noticed I could only read half the license plate of car in front.Switched eyes and same with other eye but could read the other side. Mentioned that to optometrist and within a week had results after MRI. Size of golf ball. All good now. No pain quick recovery. Hope this helps
Did you have the tumor removed surgically?
I had some dramatic experience too
I am 21years female and started with left half of my left eye started having blue and red hues but I thought It was migraine 2 months later half left got blurry and it was strange because I couldn't read from half left and could read from half right and it was my medical entrance exam time so I couldn't go for check up untill my the exam day is over . So after my exam I went to an opthalmologist and he did some tests and said your eye is completely fine and vision is full and now this problem has something to do with with your cerebral cortex , so he told me to do some blood tests MRI of brain MRA of cerebral cortex CT scan of spine and Ultrasound of my neck ECG after that I went to neurosurgeon and he simply said just do MRI and when I was in MRI machine the operator came and said your doctor has changed your MRI plain to MRI contrast and injected something into my right arm and my brother was siting outside they told him it was some kind of ulcer and when I come out of MRI room my brother was scared so I asked him what happened he said it's ulcer I was scared too because ulcers in brain can rupture anytime so after the report come we went to our neurosurgeon and he said please don't be scared it's a tumor and we have to remove it and your vision is getting compromised at this time was vision was only 64% in both eyes and so this day was Thursday and doc said get admitted on Saturday and your surgery will be on Monday . I did what they said went under Transphenoidal Surgery and was in ICU for 5 days after that in daycare room for another 5 days and it's been 27 days since my surgery and now the situation is I am recovering very well from surgery but the tumour biopsy shows it was Granulomatous hypophysitis and specially tubular hypophysitis so I am also on ATT right now .
Since 2014 i still have a pituitary tumour. I'm not sure what your size was, but mine was 6cm. I've had 2 operations on my tumour and 2 operations on my shunt. And finally Radiotherapy. Can no longer drive.
I take
Thyroxine
hydrocortisone
Desmopressin
Growth hormone needle
Testosterone gel
And Atorvastatin.
Life goes on.
I hope you're much better now ❤️ I've just been diagnosed myself waiting for the surgery
@@adunzoroq33I wouldn't say I'm better as my tumour is now 3cm but, i feel a whole let better as before i knew i had one. The headache was unbearable and i no longer wanted to be alive.
Right now as i am, I'm so thankful for life as when they finally game me a MRI scan after 2 whole year. My surgeon sat me down and said. We need to operate on you right away, as in 2 month or less your going to be blind or dead. Thank god I'm here to see another day.
I wish you all the best. Do you know the size of your tumour as yet.♥️
@@billyrocky2974 Was the shunt surgery minimal invasive? How are you doing now?
@@venomx4093 Yes it was. Its amazing what they can do now. I have a MRI scan in December. As it stands my tumour is just over 3 inches.
I have my days where i am so tired and don't really want to do much other than sleep. That is due to the damage to my hormones. I have good days depending on the level of my hormones.
I can wake up with headaches. And that is due to my shut. If i haven't been to use the bathroom its build up of fluid on my brain.
Do you have a pituitary tumour by any chance.
@@billyrocky2974 I'm not sure yet. My thyroid function failed 7 years ago. Misdiagnosed for 7 years. Started on Levothyroxine, but I am losing a lot of weight. I had a period of night sweats. Enlarged lower leg veins. Frequent urination. Spinal pain. Lower back side pain, headaches, confusion, vision issues. The rapid weight loss makes me think cancer or a non cancerous tumor. After researching, I found the pituitary gland can cause this. I lost 25 pounds in 1 month just prior to my hypothyroidism diagnosis. I've lost 20 more pounds since then. All within 1 year. My weight loss had stopped for a few months after starting Levothyroxine, but has kicked back in. I had elevated white blood cells last year. Those are being checked again in a week or 2. Dr google says multiple myeloma, pituitary tumors, lymphoma, leukemia. Multiple myeloma scares the sh1t out of me. The rest, I can handle mentally. I don't want that diagnosis. If my white cells are elevated higher with my next blood test, I will see about a brain mri scan. I know hormones can cause A LOT of issues.
Thank you for this video, very empowering
Yrs ago I found out I had tumours in my throat. Last year I found out I have a mass in my right boob. This year I find out I have a brain tumor. Shitty luck.
Same with me..my pituitary gland expand as per brain mri result.. my left eye was blurred also half of my vision in right eye..
I literally had no sexual health till I was 35 years old. In highschool and college I was an anxious mess bc you need testerone for certain things to work properly. Believing that it was mental i struggled, eventually a doctor took a simple blood test now I'm on cabergoline with normal hormones.
How long from when u started it did it fix
@@eeeeemoneeeee5898 couple months
Hey I have one too, I'm 33, and tumor is 3 cm but it's pressing on my optic nerves, I lost 60% of my peripheral vision in left eye and 50% in the right eye, I'm seeing through prisms and unable to read numbers as they merge, I've been living in constant stress as all the docs and eye 'specialists' were telling me I'm making this up. Until I ended in the ER. I've had visual issues for 7 months now and only hoping to recover my eyesight but I understand it can be so late into the tumor the optic nerve might be damaged permanently. 🙁 I've started seeing a black ball when i rub my eyes it's always on the opposite of where I press, I wonder can I somehow see the thing lol.
Other symptoms I have is complete lack of sexdrive, irritability, feeling forever tired, sleepy. Brittle nails, hairless arms, my head aches were mild to none until around a month ago, now its awful. A lot of tension in my eyes.. Like they are ready to pop.
I'm scechuled a consultation with the neurosurgeon this week and a surgery hopefully next,
❤️Good luck everyone suffering, I hope you are on the way to full recovery ❤️
Hey, I go for my consult in 2 days. How are you doing? Did you get the surgery?
What happened?
Any updates
I have hyperprolactinemia but a tumor didn't show up on the MRI luckily. My levels were 52/1100 and I've had a lot of the symptoms for the past few years that match up (weight gain, excessive sleepiness during the day, low libido (this is more recent), short/lighter periods for the last 3 years (I am 29), and then just last month my period stopped completely. I always thought I had a thyroid issue but aside from one time all the levels have been normal. Right when it stopped, I just got my diagnosis from the lab result from OBGYN and the doctor has started me on cabergoline. I am hoping it restores my menstrual cycle I know it's helping a bit already but I won't know until that comes back. I also have issues swallowing for the last 3 years too so if they told me that I had a brain tumor that wouldn't surprise me at this point. Luckily it isn't big enough if it is there and if so then it's probably benign. I also have had to take anti seizure medication for seizures the last 13 years but have been in remission since
I just had my surgery a month ago. I had the same issue with my left eye losing sight ,my peripheral vision was hugely decreased. MRI showed the tumour the size of my eye socket.
A month later and my sight is improving,the headaches are gone . Hormones still a bit wonky but getting there.
How are you right now?
He may be little but he has BIG PLANS
I was lucky...blessed...for the removal of pituitary tumor...very thankful...
I’m at an endocrinologist for low testosterone.
He was talking about doing a mri if my blood levels are off.
Can someone tell me what values are off with a pituitary tumor.
My LH and FHS are probably low because of trt and prolactin has always been normal in previous tests.
Within “Normal range” but on a lower side, in the I think LH, and it was enough for my doctor to send me in for the MRI. I got the results today and now I’m here on CZcams trying to ascertain what I think was said in the reports.
I had a pituitary macro adenoma. It was pressing on both optic nerves so I was losing sight in both eyes. The surgery I had did improve my vision in my left eye but my right eye the damage is permanent
Hi, I was diagnosed with Pituitary Gland Tumor and it was big in size. It was operated in March 2019 in Apollo Hospital, New Delhi. Later, radio therapy was also done in Aug 2019. Thank God, every thing went well. But sometimes I feel some problem. Could you please help me.
Hi Shakeel, thank you for reaching out to us. We’re very sorry to hear about what you’re going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication.
If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.
Bro, what was the total cost of surgery ?
Hi Shakil.. how are you feeling now since my husband also has same situation
what's the name of the doctor in video ? please ...anyone ...thank you in advance
Hi, the doctor in the video is Roberto Salvatori. You can learn more about him here: www.hopkinsmedicine.org/profiles/results/directory/profile/0008986/roberto-salvatori
@@JohnsHopkinsMedicine sir, my son was diagnosed of pituitory stalk interruption syndrome😢yesterday. He is now of 35 months. Sir, is there any permanent cure?
Please reply ! Thanks in advance🙏
My mom got a 5cm pituitary tumor in 2017, she lost her eye's vision. Then, she had a laparoscopic surgery but the doctor just cut about 3cm. 2018, she was told to surgery by Gamma Knife. I belived that she will get that tumor away but in 2019, her eyes was shaked a little bit so she went to check MRI and the result was that tumor increases about 1cm ( totally 3.3cm) bigger than before 1.3cm. Now, my family is scarying and waiting because maybe she will have a third surgery. Im really worry
Tường Vi Lê
I hope the surgery goes well, sending prayers ❤️
Hope ur mom will get well soon❤
I have prolactinoma tumor diagonesed 2 years ago, 6.5 x 4.5mm now it grew to 9x6.5 mm and now i am taking pils to keep it under controll. I have mri every 6 months.
Just found out I have a 3mm size tumor.
Hopefully I can avoid the surgery!
Don’t worry you will be fine Mine is 1.6 mm!
And taking medication
What are your symptoms?
@@k-no058 actually, I had another scan from the university of Michigan and they found the previous doctor was incorrectly reading the results. It was actually a small brain bleed. They are not sure if that is better or worse news.
But unfortunately my dearest friend M•Aquil lost his life after the pituitary non cancerous tumour surgery held in NIMHANS India•
We all are very 😔
Please don't say that.. some of us need to get surgery and reading this will just make us fear more
Is NIMHANS not good for brain tumor surgery?
They are looking into this for me. The pituitary could my issue, i hope we are catching it early.
My dramatic experience started after the surgery lost olfactory nerves for one year and a few month regained my smell but not my taste completely 🙏🏻don’t do it through your NOSE I develop clusters inside my nose and I’m always stuffed up they go backwards now through my throat 😡can’t use the nasal sprayer much cause it can go to your brain !!!!
I’m going through this exactly and my ophthalmologist told me that I’m a hypochondriac
Very nice information sir
My Prolactin levels are high so my doctor wants me to get an MRI to rule out a tumor. It's got me a little scared.
What was the result?
@@hiwanineupane7875 the doctor put me on some meds to help lower it. it went down.
Hi there. Glad you are better now, wish you all the best. Just whant to tell that I had similar situation with big pituitary tumor. Maybe even over size of the golf ball. Suddenly it make big pressure to my eye nervs and I lost my
visual... I discovered that in March this year, had a strong headaches for 5 days and when I do CT and MRI, Dr's tell me, son, how did u not notice this earlier?? U have very big pituitary tumor and have to go to resection asap. 2 weeks after that, neurosurgeons removed about 80% of tumor and now I wait for some endocrinological result, and probably gamma knife surgery.
Hi Ivan.. how are you feeling now?
Same here but mines coming back
How are you now?
So after this surgery, does the patient continue to take medicine, till date or no medicines required?
For specifics about treatment around a pituitary tumor, we suggest speaking to a doctor.
S for life time he has to take all hormone tabletss...
My adrenal glands are not making enough cortisol and my ACTH is 8 like almost close to the borderline of 7 my TSH is not high not low , but i cant drive car and bike its really hard for me to catch cars and bike i use to have vertigo drowness lightheaded and lack of energy blurry vision i cant see the sides things clear and when i ever the lights touchs my eyes i use to stop my car or bike little bit to see clearly.. i dont whats going on i have my CT done and its clear but haven’t done my Mri yet.. can you suggest me what to do?
I have a 16.5 x 17 mm pituitary adenoma per MRI. Where does my primary healthcare provider send a referral to? Specifically, what address to get an appointment? My doctor is very detached about my condition.
this video is terrible, just makes all of those who have high prolactin and waiting for MRI to be even more scared. Why is it necessary ? what's new information here ? just an ad for this hospital ?
I have a pituitary tumor surgery 03 now I’m having issues again just had a MRI said a growth of 1.3cm of the tumor😢
Same situation is going on with my sister pls guide me her vision is very low in left eye and 0 vision in right eye. Any treatment in abroad so that she can see properly
Hi, thank you for reaching out to us. We’re very sorry to hear about what your sister is going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication.
If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.
I lost my life to pituitary tumour. Very sad. Operated
Hi i am suffering from same disease that is TSH sectrating Pituitary tumour where doctor has said it is a very rare disease.. I have been operated but again tumour is growing
Hi Parvathi.. how are you feeling now?
🌸🙏🌸 God Bless You Always
My Dads Tumour was 6cm and the largest. How big was your tumour please? He's had 4 ops so far and Radiotherapy.
Hi Amy.. how ur father doing?
Hello, was it close to your optical nerve? That's were mine is, and they want do surgery because I could go blind in one or both eyes. I'm afraid:-(
I'm going through some health issues myself right now that may have to do with my pituitary gland. Dont be afraid God has a plan for everyone all we can do is fight to get better and let it be what God has planned for us.
Mine was pressing on the optic nerve also. Mine was discovered at the end January of this year and surgery was February 7th about 10 days from diagnosis. Talk about being scared. My whole world was turned upside down. But with some faith and the best surgeon in Oregon I was back to work in two weeks. The vision I lost may never come back but I remain optimistic.
the operation is through the nose. a good surgeon can peel the tumor right off without hurting the pituitary. find a good surgeon with good tech who specializes in pituitary tumor removal.
Hi hon, I don’t know what you want me to do. Please advise me,
Hi, Please reach out to inquire about a new appointment by calling 855-695-4872. Please note, many of our offices are reaching out to patients to reschedule appointments as video visits; this will depend on visit type and currently, these are only available for existing patients. Please call the above number to learn more about what options may be available for your specific situation. You can see more on our patient and visitor guidelines at www.hopkinsmedicine.org/coronavirus/index.html#patient-visitor-alerts
My tsh levels are suddenly elevated to 90.71 though I am taking 50 mcg of thyronorm daily.. Could it be because of pituitary tumor?
Pituitary seems to affects multiple hormones at once usually.
50mcg is a starting dose. A TSH that high is crazy. You are very under medicated. I was started on 75mcg of Levo when my TSH was 13. My TSH jumped to 17 after 6 weeks. I was put on 100mcg of Levo then. 6 weeks later my TSH dropped to 10. My dose is going up to 125mcg next week.
I also have pitutary gland tumour. Want to lose my thigh weight
I got my pituitary tumour from nasopharyngeal carcinoma.
Thank God mine started producing hormones
Be careful drinking water bottles that the plastic gives off synthetic female estrogen. Bottle should say BPA free if not don’t drink it my T level was low , when we switched the water bottles it rose to high side of normal.
D L that’s interesting, what symptoms did u start noticing? I’m about to get a brainscan because of high prolactin levels, I’m only 20
@@1juggy352 how did it end up going?
Same things happening with me , and i gone through 2 Endoscopic surgeries in 2010 and 2012 in INDORE ( INDIA). after my second Surgery i also gone through Radio Theraphy but unforunately now i am also facing vision loss issues in my eyes. plz help me
Hi, thank you for reaching out to us. We’re very sorry to hear about what you’re going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication.
If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.
Hi I've just been told I have high prolactin levels I've been for an eye medical examination my doctor has had the report and there's nothing pressing on my optic nerve does anyone know what the next steps are now as I've not heard anything from my doctor since the eye examination and that was 3 weeks ago
Male or female? I'm a male, and also had this diagnosis and just started CAPERGOLINE to remove the tumour. My testosterone was 0.8 and should be in the teens/twenties. Ask to see an endocrinologist.
Go see neurologist and endocrinologist for a complete hormone check
Could you tell me the size of your pituitary tumor.. as my mom has same problem and it was said to be macroadenoma..
3 cm - cray visual problems but ophthalmologists says I have very healthy eyes. Red light
me diagnosed with pituitory adenma one year back...nd my doctor started conservative treatment as i was 7 month pregnant....now iam stable....taking medicine for tsh defeciency.....and living happily...but i have a doubt whether this tumour will grow again as it is not removed
Hi,what conservative medicine did you have for the tumor?
I have pituitary macroadenoma .
What will be my treatment??
Hi Nisat, Thank you for reaching out to us. We’re very sorry to hear about what you’re going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication.If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.
I thought pituitary tumours weren't considered "brain tumours"?
My mother had Pituitary tumor she had Endonasal transsphenoidal pituitary macroadenoma surgery and it was removed 100% surgery went uneventful but after 15 days she started to complaint about pain in the left side for head and neck the pain was so chronic and started to speed up but there is nothing pain is not going surgery was on 9 November 2020 and still she is suffering from pain can you please guide me. Thank you.
Hi, Please reach out to inquire about a new appointment by calling 855-695-4872. Please note, many of our offices are reaching out to patients to reschedule appointments as video visits; this will depend on visit type and currently, these are only available for existing patients. Please call the above number to learn more about what options may be available for your specific situation. You can see more on our patient and visitor guidelines at www.hopkinsmedicine.org/coronavirus/index.html#patient-visitor-alerts
Who did her surgery?
how is she now
Aren’t pituitary tumors almost always benign...?
Almost always. But there are rare occasions
Most of the time yes but the symptoms of them could be debilitating regardless, causing a lot of other problems.
It’s not a brain tumor, as the pituitary gland is not in the brain. An insult for everyone with a brain tumor. I also have a pituitary gland tumor, had surgery in 2012, it’s growing again and another surgery is necessary. No fun, but with a good surgeon, very manageable.
How big?
Any abnormal tissue growth is a tumor.
Not all abnormal tissue growth is a cancer.
Change your diet please. Leave sugar alone
I m also having these types of symptoms what should i do.
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