My wife of 31 years died on July 18,2022. Hospice was so wonderful to me and Janet. Hospice walked me through everything. I could call them anytime day or night and they was so nice and understanding. God bless everyone working with hospice.
Haldol was a God-send when my mom's dementia advanced to the point that she started suffering pretty severe agitation a couple months before she died. With it, she calmed right down. Not more lucid, but not feeling the desperate need for *something* that she couldn't put words to. We all took ragged breaths of relief. I was and still am incredibly grateful to her hospice nurses. Keep doing what you do, Julie. You, like most nurses, are awesome. 💖
Morphine should not be demonised. It's a brilliant drug that keeps patients comfortable in the final stages. None of us should live our last days or weeks in pain. I'll happily be given all the drugs towards the end until I quietly, peacefully slip away. It's much better for the family as well to know their loved one passed without pain, fear or distress. ❤️ Fortunately my mum was a nurse so she has explained end of life care to us and how the nurses will do everything possible to keep you comfortable. There's nothing to fear. She did admit dealing with the relatives was the most challenging part of nursing who don't always understand what's being done and why. Emotions tend to cloud logic and reason. So it's understandable. Again, nurses get this.
After watching your videos, I realized that though the nurses were nice and comforting, my mother probably suffered way more than she had too during her final days.. They were giving her fluids even though her body was obviously in the “stages of shutting down” as you’ve called it. She then developed an Pneumonia, from the fluids I presume. During her last 3 days she went on full life support and clearly wasn’t going to wake up. I wish they were more clear and honest with us, because I would have NEVER let her go on those machines if I knew that what her body was doing, was the best thing for her.. I lost my mom in January and I just hope she knows that I’m sorry 😞
We all just do the best we can with the knowledge we have at the time. Your mother knew you did the best you could for her ❤️ I hope you find some comfort.
@@marieh442 The way you worded that was excellent. You are definitely right. I know she knows that I did my best at the time. I just think the way you wrote that, was spot on and comforting in itself. Thank you! ♥️
she's Saif when she worked in the icu she didn't know that giving fluids to terminal pts made death more uncomfortable- she didn't learn that until working in hospice. This, to me, points to an issue that could be easily addressed- specialities that overlap- such as icu & hospice, comparing notes, should be common practice.
My sister died of metastasized breast cancer, and it was liver cancer she died from. She had been an RN for 100 years, very experienced, who actually ended up teaching US about dying and what to expect. She was accepting, sanguine, and at peace with her imminent death. And I agree, Barbara Karnes' book *Gone From My Sight* is so helpful.
My mom had hospice in a assisted living. It was just wonderful. Every night every hour on the hour they came in and wiped her off gently and checked her It was beautiful and so calm. Some would talk to her as they were in there.They did give her meds and swab her mouth The guy in in the morning told us almost when she’d most likely die that day( I had asked it was day 3) and he was correct. Hospice was wonderful. Beautiful people they are💚
Hopice was there for my father and us while he was passing. They were/are fantastic! Everyone was kind and ever helpful. My family loves Hospice and were very greatful to have them there when we really needed help. Thank you for being a Hospice nurse. Your videos are very helpful and imformitive, please keep them coming. Again thank you.
My father, who was NOT on hospice, was given a heavy enough dose of morphine-against his wishes-to render him unconscious. From there, he died within two days. My mother, who IS on hospice, has the sublingual morphine of which you speak. The dose is itty-bitty, sublingual, and helps when she really needs it. So far she hasn't needed it much. The bulk of the experience we're having with hospice so far is really awful. Your CZcams channel is helping me figure out how much is wrong expectations on my part vs. the hospice company sucking. Thank you!!!
Thank you ,, your videos are helping me to understand what my wife's daughter and I went thur ,, it's was a 2.5 year down slide with the last six months being very difficult and yes hospice was involved ,
My dad has ALS that is progressing rapidly. No idea on timelines, but it's emotionally very difficult to watch a parent die in front of you. While we're not at the hospice stage yet, this disease is 100% terminal, so it's only matter of time. Thank you, Nurse Julie, for helping me to understand a bit more about what is coming.
There is a channel where this man believes his daughter's (who had fought cancer for many years) death was caused by being given a pain medication before leaving the hospital (I'm assuming it was Morphine) and to this day he blames the hospital for her death because of that pain medication. I can see where this would be a frustrating thing to try to explain to a family member convinced it was the medicine that it was just the patient's time to die.
When my sister was going through treatment for sarcoma, she developed Leptomeningeal disease, which as you know is fatal. In the end stage of her disease, she was in excruciating pain, as you might imagine. Our wonderful hospice team used methadone, instead of morphine, to control her pain. She was also given other drugs to aid in her transition. Thanks for you informative videos.
Listening to you helps take the fear away from dying. Thank you. You are an angel that was put here along with those that take this profession seriously
Thank you for your videos! So helpful to those who are terminally ill and their families. Hospice was a Godsend to my mom when she was dying from a brain tumor. Hospital nurses are truly Angels on earth! God bless all of you who are so dedicated in all you do to help patients to ease their pain and suffering.
I've always wondered how anybody would know if morphine speeds up death or prolongs life. How can anybody know when that person would have died without the drug?
I work in an LTC pharmacy and we service multiple hospice clinics and I had no idea the comfort kit was an everywhere thing!!! I thought it was just an “our pharmacy” thing!😅
Soon as they gave my wife fentanyl 1.25 syringe drive she went into deep sleep breathing went all weird and she died less than 40 hours later.. before she was talking normally but in a lot of pain.and cyacline anti sickness..she came home at 4am in the morning by ambulance and passed between 7-30& 8am..it's broken me ..as I was told she'd still be able to communicate with the syringe drive...I feel I let her down.. this was only 50 day's ago..I'm totally heartbroken and lost
Is the drug that drys up terminal secretions necessary for the comfort of the patient, or because the rattle upsets the family? (I'm sorry if it's a dumb question - my own POV is to prefer the least medication possible WITHOUT causing pain)
You are sooo good!! You provide excellent information, delivered in a clear and reassuring manner. Please keep up the good work!! We all need what you are providing. 💖
I hope this post may get you to do a video on the subject of patients having negative reactions to some drugs in the Hospice drug care package. I had to fight my mom's hospice nurse and doctor over the use of morphine. I like to do research for fun and being in charge of my mom's health and her medications I researched morphine and found that it is in the same class as codeine, a drug that had sent my mom into respiratory distress where she couldn't breathe. I dug into the information and found that there is an alternative, Tramadol, that I could give mom. I went to the nurse and talked with her and she said she'd talk to the doctor. The doctor said no. I persisted and eventually the doctor called another doctor who worked in the ER, and he agreed with me. I didn't make any friends with that nurse and doctor but I did help my mom.
Several of your videos lately have the audio and video out of synch. Not sure if you know. Anyway, thank you so much for the information - I really appreciate your knowledge. (My dad was in hospice and I wondered about the whole process at the time but for some reason didn't have anyone like you around, sadly enough. So thank you.)
I don't understand why morphine is used when most doctors are refusing to prescribe pain medications at all outside of hospice. Also, there are pain medications other than morphine which stop pain.
My uncle passed in dec 2021,Parkinson’s ,dementia ,non verbal ,in a coma state while actively dying was given the first two drugs on your list, it was a awful thing to watch I was like his daughter and he was like my dad. He was a singer his whole life, at the end I played the music he sang and talked to him. It was just him and I at the end of his life,the death rattle was horrifying,I’ve heard they can hear you or know you are with them, his mouth was fully opened wide,a couple of deep breaths with a gap in between his jaw clenched up then dropped,I knew that was it ,he was in a rest home and I had to run out of the room to find his nurse to pronounce death no heartbeat,I’m still haunted ,l hope he knows I was with him till the end.
What do you give someone who does not want to take all the addictive drugs because they are an alcoholic and addict in recovery and taking all those drugs would be like relapsing back into addiction?? Is there anything to give other than opioids etc??
My sister is getting closer to dying. She's anorexic and bipolar with some COPD. She started reaching to the ceiling and sees people in her room that aren't there. Is it possible to stop all her bipolar meds when she starts hospice? She's too weak at 75 lbs to even get out of her bed now. And do you think it's getting close?
Oh, when I was caring for my sister who was terminally ill, she stopped going to the bathroom altogether. I figured it was her system shutting down. She didn’t want hospice so …. I didn’t know.
When i had surgery they gave me two shots of morphine. Didnt effect me at all. Ive had Oxy and Hydrocodone and neither did anything for me. I have a high tolerance for meds. What would the next step up for relief ? Percocet or Dalaudid ?
I’m not a rn but I have seen multiple hospice nurses say that they do not give any iv fluids. I believe all of the medications are oral except the constipation one. But I don’t believe they would use ivs from what I understand. I am curious to know as well if there are exceptions
my husband was just admitted to home hospice care about 3 weeks ago. we were told we would be mailed the comfort pack in the mail by fed ex. well we had forgotten about it and after watching a video about hospice i thought about the pack. I asked the nurse and she said we should have gotten it about 2 days after admission and in fact it was documented it was delivered. we never got the pack. I told her we did not get it and she reported it to her supervisor. it was determined there was nothing they could do. so now my husband does not have the comfort pack. what should we do. the nurse told me there is one locked up at the office and if he needs anything she will bring it. she lives 30 miles away and probably will not want to bring anything during the night and she is busy seeing patients during the day. we hope they do not think we did get it and were untruthful about it. I feel like I don't want to make a big deal about it because of this. By the way he has terminal lung cancer and has severe pain most of the time. Please help me to understand what I should do for my husband. He doesn't want me to ask about it because he has always been the type of person to never ask for help. I feel strongly that I should advocate for him.
If he’s in pain, like you say he’s been, you absolutely should advocate for him. No one should have to leave this world in pain, it’s absolutely inhuman. I watched my Sister in so much pain from pancreatic cancer, it was horrific to watch and I swore that I would never suffer like she was made to suffer. So please, please, insist on those meds for him!! He deserves to be comfortable at his end, like we all do. I hope you find out what happened with that package too. ❤️
My wife of 31 years died on July 18,2022. Hospice was so wonderful to me and Janet. Hospice walked me through everything. I could call them anytime day or night and they was so nice and understanding. God bless everyone working with hospice.
I'm so sorry for your loss 💔
Haldol was a God-send when my mom's dementia advanced to the point that she started suffering pretty severe agitation a couple months before she died. With it, she calmed right down. Not more lucid, but not feeling the desperate need for *something* that she couldn't put words to. We all took ragged breaths of relief. I was and still am incredibly grateful to her hospice nurses. Keep doing what you do, Julie. You, like most nurses, are awesome. 💖
Morphine should not be demonised. It's a brilliant drug that keeps patients comfortable in the final stages. None of us should live our last days or weeks in pain. I'll happily be given all the drugs towards the end until I quietly, peacefully slip away. It's much better for the family as well to know their loved one passed without pain, fear or distress. ❤️ Fortunately my mum was a nurse so she has explained end of life care to us and how the nurses will do everything possible to keep you comfortable. There's nothing to fear. She did admit dealing with the relatives was the most challenging part of nursing who don't always understand what's being done and why. Emotions tend to cloud logic and reason. So it's understandable. Again, nurses get this.
Load me up with all of it when it’s my time! I’m not scared of when , it’s the how that’s scary!
After watching your videos, I realized that though the nurses were nice and comforting, my mother probably suffered way more than she had too during her final days.. They were giving her fluids even though her body was obviously in the “stages of shutting down” as you’ve called it. She then developed an Pneumonia, from the fluids I presume. During her last 3 days she went on full life support and clearly wasn’t going to wake up. I wish they were more clear and honest with us, because I would have NEVER let her go on those machines if I knew that what her body was doing, was the best thing for her.. I lost my mom in January and I just hope she knows that I’m sorry 😞
We all just do the best we can with the knowledge we have at the time. Your mother knew you did the best you could for her ❤️ I hope you find some comfort.
@@marieh442 The way you worded that was excellent. You are definitely right. I know she knows that I did my best at the time. I just think the way you wrote that, was spot on and comforting in itself. Thank you! ♥️
@@justme6934 Thank you, that's so sweet of you to say ❤️
she's Saif when she worked in the icu she didn't know that giving fluids to terminal pts made death more uncomfortable- she didn't learn that until working in hospice. This, to me, points to an issue that could be easily addressed- specialities that overlap- such as icu & hospice, comparing notes, should be common practice.
My sister died of metastasized breast cancer, and it was liver cancer she died from. She had been an RN for 100 years, very experienced, who actually ended up teaching US about dying and what to expect. She was accepting, sanguine, and at peace with her imminent death. And I agree, Barbara Karnes' book *Gone From My Sight* is so helpful.
My mom had hospice in a assisted living. It was just wonderful. Every night every hour on the hour they came in and wiped her off gently and checked her It was beautiful and so calm. Some would talk to her as they were in there.They did give her meds and swab her mouth The guy in in the morning told us almost when she’d most likely die that day( I had asked it was day 3) and he was correct. Hospice was wonderful. Beautiful people they are💚
Thank you for de-mystifying all of this….blessing to know. ❤️
Hopice was there for my father and us while he was passing. They were/are fantastic! Everyone was kind and ever helpful. My family loves Hospice and were very greatful to have them there when we really needed help. Thank you for being a Hospice nurse. Your videos are very helpful and imformitive, please keep them coming. Again thank you.
My father, who was NOT on hospice, was given a heavy enough dose of morphine-against his wishes-to render him unconscious. From there, he died within two days.
My mother, who IS on hospice, has the sublingual morphine of which you speak. The dose is itty-bitty, sublingual, and helps when she really needs it. So far she hasn't needed it much.
The bulk of the experience we're having with hospice so far is really awful. Your CZcams channel is helping me figure out how much is wrong expectations on my part vs. the hospice company sucking. Thank you!!!
Thank you ,, your videos are helping me to understand what my wife's daughter and I went thur ,, it's was a 2.5 year down slide with the last six months being very difficult and yes hospice was involved ,
My dad has ALS that is progressing rapidly. No idea on timelines, but it's emotionally very difficult to watch a parent die in front of you. While we're not at the hospice stage yet, this disease is 100% terminal, so it's only matter of time. Thank you, Nurse Julie, for helping me to understand a bit more about what is coming.
There is a channel where this man believes his daughter's (who had fought cancer for many years) death was caused by being given a pain medication before leaving the hospital (I'm assuming it was Morphine) and to this day he blames the hospital for her death because of that pain medication. I can see where this would be a frustrating thing to try to explain to a family member convinced it was the medicine that it was just the patient's time to die.
When my sister was going through treatment for sarcoma, she developed Leptomeningeal disease, which as you know is fatal. In the end stage of her disease, she was in excruciating pain, as you might imagine. Our wonderful hospice team used methadone, instead of morphine, to control her pain. She was also given other drugs to aid in her transition.
Thanks for you informative videos.
I'm preparing for when my mum will eventually pass away, so this is very comforting and helpful. Thank you.
Listening to you helps take the fear away from dying. Thank you. You are an angel that was put here along with those that take this profession seriously
Watching has become something that’s been really soothing!! I’m really happy I’ve found You!
Thank you for your videos! So helpful to those who are terminally ill and their families. Hospice was a Godsend to my mom when she was dying from a brain tumor. Hospital nurses are truly Angels on earth! God bless all of you who are so dedicated in all you do to help patients to ease their pain and suffering.
I've always wondered how anybody would know if morphine speeds up death or prolongs life. How can anybody know when that person would have died without the drug?
I made sure that my dad had a morphine pump before he even got to the hospice stage.
I work in an LTC pharmacy and we service multiple hospice clinics and I had no idea the comfort kit was an everywhere thing!!! I thought it was just an “our pharmacy” thing!😅
Soon as they gave my wife fentanyl 1.25 syringe drive she went into deep sleep breathing went all weird and she died less than 40 hours later.. before she was talking normally but in a lot of pain.and cyacline anti sickness..she came home at 4am in the morning by ambulance and passed between 7-30& 8am..it's broken me ..as I was told she'd still be able to communicate with the syringe drive...I feel I let her down.. this was only 50 day's ago..I'm totally heartbroken and lost
Is the drug that drys up terminal secretions necessary for the comfort of the patient, or because the rattle upsets the family? (I'm sorry if it's a dumb question - my own POV is to prefer the least medication possible WITHOUT causing pain)
You are sooo good!! You provide excellent information, delivered in a clear and reassuring manner. Please keep up the good work!! We all need what you are providing. 💖
Thank you so much! These videos are great!
What would you give instead of morphine if the patient is allergic?
I hope this post may get you to do a video on the subject of patients having negative reactions to some drugs in the Hospice drug care package.
I had to fight my mom's hospice nurse and doctor over the use of morphine. I like to do research for fun and being in charge of my mom's health and her medications I researched morphine and found that it is in the same class as codeine, a drug that had sent my mom into respiratory distress where she couldn't breathe. I dug into the information and found that there is an alternative, Tramadol, that I could give mom. I went to the nurse and talked with her and she said she'd talk to the doctor. The doctor said no. I persisted and eventually the doctor called another doctor who worked in the ER, and he agreed with me. I didn't make any friends with that nurse and doctor but I did help my mom.
Several of your videos lately have the audio and video out of synch. Not sure if you know. Anyway, thank you so much for the information - I really appreciate your knowledge. (My dad was in hospice and I wondered about the whole process at the time but for some reason didn't have anyone like you around, sadly enough. So thank you.)
I don't understand why morphine is used when most doctors are refusing to prescribe pain medications at all outside of hospice. Also, there are pain medications other than morphine which stop pain.
what is the difference between palliative care and hospice? Would you please make a video about it. From everything I've read it sounds the same.
What about ppl who abused pain meds when they were younger but they have cancer? I hope they would still treat them as nobody should die in pain…
Can you do something on fentanyl my daughter had a fentanyl poisoning and I can't understand it for nothing please help me with that
My uncle passed in dec 2021,Parkinson’s ,dementia ,non verbal ,in a coma state while actively dying was given the first two drugs on your list, it was a awful thing to watch I was like his daughter and he was like my dad. He was a singer his whole life, at the end I played the music he sang and talked to him. It was just him and I at the end of his life,the death rattle was horrifying,I’ve heard they can hear you or know you are with them, his mouth was fully opened wide,a couple of deep breaths with a gap in between his jaw clenched up then dropped,I knew that was it ,he was in a rest home and I had to run out of the room to find his nurse to pronounce death no heartbeat,I’m still haunted ,l hope he knows I was with him till the end.
What if a patient refuses morphine or other pain medication to manage severe pain?
What do you give someone who does not want to take all the addictive drugs because they are an alcoholic and addict in recovery and taking all those drugs would be like relapsing back into addiction?? Is there anything to give other than opioids etc??
My sister is getting closer to dying. She's anorexic and bipolar with some COPD. She started reaching to the ceiling and sees people in her room that aren't there. Is it possible to stop all her bipolar meds when she starts hospice? She's too weak at 75 lbs to even get out of her bed now. And do you think it's getting close?
Have you had much experience with the use of medical marijuana for cancer patients on Hospice? Would love to hear from you on this topic.
For secretions my hospital gives atropine eye drops SL instead of the levsin.
Oh, when I was caring for my sister who was terminally ill, she stopped going to the bathroom altogether. I figured it was her system shutting down. She didn’t want hospice so …. I didn’t know.
When i had surgery they gave me two shots of morphine. Didnt effect me at all. Ive had Oxy and Hydrocodone and neither did anything for me. I have a high tolerance for meds. What would the next step up for relief ? Percocet or Dalaudid ?
Dilaudid or Fentanyl 💜
Hello there as a hospice RN do you give any IV medication or have to start IVs in a patients home? Thanks
I’m not a rn but I have seen multiple hospice nurses say that they do not give any iv fluids. I believe all of the medications are oral except the constipation one. But I don’t believe they would use ivs from what I understand. I am curious to know as well if there are exceptions
my husband was just admitted to home hospice care about 3 weeks ago. we were told we would be mailed the comfort pack in the mail by fed ex. well we had forgotten about it and after watching a video about hospice i thought about the pack. I asked the nurse and she said we should have gotten it about 2 days after admission and in fact it was documented it was delivered. we never got the pack. I told her we did not get it and she reported it to her supervisor. it was determined there was nothing they could do. so now my husband does not have the comfort pack. what should we do. the nurse told me there is one locked up at the office and if he needs anything she will bring it. she lives 30 miles away and probably will not want to bring anything during the night and she is busy seeing patients during the day. we hope they do not think we did get it and were untruthful about it. I feel like I don't want to make a big deal about it because of this. By the way he has terminal lung cancer and has severe pain most of the time. Please help me to understand what I should do for my husband. He doesn't want me to ask about it because he has always been the type of person to never ask for help. I feel strongly that I should advocate for him.
If he’s in pain, like you say he’s been, you absolutely should advocate for him. No one should have to leave this world in pain, it’s absolutely inhuman. I watched my Sister in so much pain from pancreatic cancer, it was horrific to watch and I swore that I would never suffer like she was made to suffer. So please, please, insist on those meds for him!! He deserves to be comfortable at his end, like we all do. I hope you find out what happened with that package too. ❤️
@@JenDoe1 I will let you know what the nurse does
♥️
I am doubtful of you being a nurse how you mispronounced Biscodyl…Morphine suppresses the respiratory drive
Take them to China.